Re: Looking for feedback for an 18 month old girl.

[Guest guest]

The Amen clinic could give you a fuller picture of the current brain activity, but the metabolic disorders are progressive, and braintraining is ultimately driven by symptom presentation. And if the child has a metabolic disorder, adding meds is unlikely to be desireable. If the family is willing/able to travel, perhaps it would be worthwhile to have them begin training with Sue Othmer and continue with you after she's optimized the protocol. With a child so young, it makes sense to have them start with somone who has experience with babies - and I know Sue does.

Please keep us posted,

Merrifield

-------------- Original message from "jamesandjulieahrick" <advancedbiofeedback@...>: -------------- > Aloha > > Today we saw an 18-month-old girl who was recently diagnosed with > a "metabolic disorder" which has left her with some left side > paralysis and according to her mother a loss of overall motor > function and vitality, compared to her previous state of > development. > > The child's current situation was preceded by 3 days of seizure > activity which came on without precipitating factors, and without > fever (though she had a cold a month or so earlier). Her doctor has > suggested the possibility of Leigh's Syndrome. There is also > mention of Basal Ganglia involvement. > > Though I have a background in Neuropathology, this is over my head. > Also, th

is is the youngest child we have seen. We did a CZ EEG > baseline, and also a reading at T3 T4. We're artifacting the > measurements, but not sure what to look for. We would expect some > right side sensory motor involvement, but again the age of the child > leaves us unsure of norms, or expected values. > > We probably will not do any training with the child, unless we have > some additional support. We have suggested that the mother contact > the Amen Clinic, and if possible take the child there for further > workup. We're just not quite sure where to go with this one and > thought it was worth looking for some suggestions. > > Mahalo > > > > > > > >

[Guest guest]

Aloha

,

Thank you

for your feedback and suggestions. We will suggest the girls mother get in

touch with Sue Othmer. We did

training with Sue when she was with EEG Spectrum and have a great deal of

respect for her. Mahalo again for

your response.

and ah

Advanced Biofeedback of Kauai

-----Original

Message-----

From:

[mailto: ]On

Behalf Of psychologics@...

Sent: Wednesday, March 29, 2006

6:27 PM

Subject: Re:

Looking for feedback for an 18 month old girl.

The Amen clinic could give you a fuller picture of the current

brain activity, but the metabolic disorders are progressive, and braintraining

is ultimately driven by symptom presentation. And if the child has

a metabolic disorder, adding meds is unlikely to be desireable. If

the family is willing/able to travel, perhaps it would be worthwhile to have

them begin training with Sue Othmer and continue with you after she's optimized

the protocol. With a child so young, it makes sense to have them start

with somone who has experience with babies - and I know Sue does.

Please keep us posted,

Merrifield

-------------- Original

message from " jamesandjulieahrick "

<advancedbiofeedback@...>: --------------

> Aloha

>

> Today we saw an 18-month-old girl who was recently diagnosed with

> a " metabolic disorder " which has left her with some left side

> paralysis and according to her mother a loss of overall motor

> function and vitality, compared to her previous state of

> development.

>

> The child's current situation was preceded by 3 days of seizure

> activity which came on without precipitating factors, and without

> fever (though she had a cold a month or so earlier). Her doctor has

> suggested the possibility of Leigh's Syndrome. There is also

> mention of Basal Ganglia involvement.

>

> Though I have a background in Neuropathology, this is over my head.

> Also, th is is the youngest child we have seen. We did a CZ EEG

> baseline, and also a reading at T3 T4. We're artifacting the

> measurements, but not sure what to look for. We would expect some

> right side sensory motor involvement, but again the age of the child

> leaves us unsure of norms, or expected values.

>

> We probably will not do any training with the child, unless we have

> some additional support. We have suggested that the mother contact

> the Amen Clinic, and if possible take the child there for further

> workup. We're just not quite sure where to go with this one and

> thought it was worth looking for some suggestions.

>

> Mahalo

>

>

>

>

>

>

>

>

[Guest guest]

Another suggestion might be for the family to contact Coralee , MD at the Institutes for Human Potential in Philly. She heads up the neurofeedback program there and they also work with metabolic issues. Coralee is very knowledgeable about nutritional and physiotherapy procedures to enhance brain development in children with all sorts of neurodevelopmental disorders. I understand that they have an international client base and have a strong parent training component so that treatment continues at home. They also are doing Q's and NF, with some amazing success stories, despite their brief time with clients- I think a week or ten days every 6 months or year. I could see that program dovetailing nicely with Sue Othmer's protocal development experience, which is only emerging at the Institutes.

Good luck to you,

Sheila

RE: Looking for feedback for an 18 month old girl.

Aloha ,

Thank you for your feedback and suggestions. We will suggest the girls mother get in touch with Sue Othmer. We did training with Sue when she was with EEG Spectrum and have a great deal of respect for her. Mahalo again for your response.

and ah

Advanced Biofeedback of Kauai

-----Original Message-----From: [mailto: ]On Behalf Of psychologics@...Sent: Wednesday, March 29, 2006 6:27 PM Subject: Re: Looking for feedback for an 18 month old girl.

The Amen clinic could give you a fuller picture of the current brain activity, but the metabolic disorders are progressive, and braintraining is ultimately driven by symptom presentation. And if the child has a metabolic disorder, adding meds is unlikely to be desireable. If the family is willing/able to travel, perhaps it would be worthwhile to have them begin training with Sue Othmer and continue with you after she's optimized the protocol. With a child so young, it makes sense to have them start with somone who has experience with babies - and I know Sue does.

Please keep us posted,

Merrifield

-------------- Original message from "jamesandjulieahrick" <advancedbiofeedback@...>: -------------- > Aloha > > Today we saw an 18-month-old girl who was recently diagnosed with > a "metabolic disorder" which has left her with some left side > paralysis and according to her mother a loss of overall motor > function and vitality, compared to her previous state of > development. > > The child's current situation was preceded by 3 days of seizure > activity which came on without precipitating factors, and without > fever (though she had a cold a month or so earlier). Her doctor has > suggested the possibility of Leigh's Syndrome. There is also > mention of Basal Ganglia involvement. > > Though I have a background in Neuropathology, this is over my head. > Also, th is is the youngest child we have seen. We did a CZ EEG > baseline, and also a reading at T3 T4. We're artifacting the > measurements, but not sure what to look for. We would expect some > right side sensory motor involvement, but again the age of the child > leaves us unsure of norms, or expected values. > > We probably will not do any training with the child, unless we have > some additional support. We have suggested that the mother contact > the Amen Clinic, and if possible take the child there for further > workup. We're just not quite sure where to go with this one and > thought it was worth looking for some suggestions. > > Mahalo > > > > > > > >