Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 In a message dated 4/29/99 6:41:16 AM Eastern Daylight Time, onelist writes: << Hi, Doc C. was only ASKING for feedback, I believe, & I took the 2 out 2 comment as humor. I am SO glad Doc.C. is onboard. He not only offers information, but ASKS for advice and LISTENS to us. For that he has earned respect. And if we disagree with him, it should be with respect. I do not understand the dissention among CFIDS people; perhaps it is the frustration at having serious illness and having no answers. But why diss the doc who is offering support? Especially when he is asking our opinion? How many doctors do that, for heavens sake? Lincoln had it right: a house divided against itself is destined to fall. We are all in this illness together, so please let's work together. Christie tab@... >> I agree with you totally Christie, thanks for speaking up! Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Bridgett- thank you for the Hand gel recipe and your extra work perfecting it. Digest Number 163 > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 Thanks Barbara You are an angel!! CSCluv** http://community.webtv.net/cat926/doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 In a message dated 2/16/00 10:33:08 AM !!!First Boot!!!, onelist writes: << So I agree with the answer given by someone that the proper answer is to find a doctor, regardless of type, who fully understands the CMT, it's effects and what the foot needs to do after a procedure. >> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Kudos to the advice! I haven't " spoken " in a while...My name is Barry, age 33, male. I was diagnosed at 13 with CMT by an orthopedic surgeon. He also immediately brought in a neurologist consultation. I was fortunate that my mother insisted on the best help she could find, and my father's insurance allowed that to happen. FYI...The guys were referring to Triple arthrodesis and osteotomy among other things. The former being bone work done fusing the joint in the ankle and the latter being the process of cutting a wedge of bone out of the heel. I had the osteotomy done on both feet at age 13. The purpose was to lower the arch in my foot as it was beginning to become painful. I believe the surgery, although painful, was a great success as did the surgeon. The triple arthrodesis was done at age 19. Again, it was done to relieve pain and pressure that accompanies very high arches. It was probably the most physically painful thing I've ever experienced. The result was also successful although it probably took me about 5 years to realize it. I wished I had had it done at a younger age thinking children are more resilient, but then again the gains achieved might have been better since waiting until it was more necessary. You never can tell. We should make our best decisions based on the information available at the time. Then try to spend little time worrying about what might have been better. I have not had foot surgery since age 19 (14 years ago). The only pain I experience now is in the heel of my feet. I begin wearing AFO's 3 years ago. Initially I hated the idea, but after a few weeks I could not deny the fact that they made me much more mobile. I still struggle with not wanting people to know that I wear them. That said, I can also honestly say that I know intellectually that it has not slowed my social or personal life. I ended a difficult 8 year relationship 3 years ago. It took about 10 months to get comfortable with going out again. Since then I have dated 4 different women, not to mention another half dozen that lasted only through the first or second date. Not one time did my CMT or ankle braces cause any strain on the relationships. Even people with no apparent physical problems experience self conscious behavior or periods of low self esteem. The key is to recognize that it is a normal part of life. Accept the downs and enjoy the ups! My two cents, Barry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 Barry, Glad to see you posting again! Your " two-cents " is always worth a lot more than that! >>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ >Kudos to the advice! I haven't " spoken " in a while...My name is Barry, age >33, male. I was diagnosed at 13 with CMT by an orthopedic surgeon. He >also >immediately brought in a neurologist consultation. I was fortunate that my >mother insisted on the best help she could find, and my father's insurance >allowed that to happen. > >FYI...The guys were referring to Triple arthrodesis and osteotomy among >other >things. The former being bone work done fusing the joint in the ankle and >the latter being the process of cutting a wedge of bone out of the heel. > >I had the osteotomy done on both feet at age 13. The purpose was to lower >the arch in my foot as it was beginning to become painful. I believe the >surgery, although painful, was a great success as did the surgeon. The >triple arthrodesis was done at age 19. Again, it was done to relieve pain >and pressure that accompanies very high arches. It was probably the most >physically painful thing I've ever experienced. The result was also >successful although it probably took me about 5 years to realize it. I >wished I had had it done at a younger age thinking children are more >resilient, but then again the gains achieved might have been better since >waiting until it was more necessary. You never can tell. > >We should make our best decisions based on the information available at the >time. Then try to spend little time worrying about what might have been >better. > >I have not had foot surgery since age 19 (14 years ago). The only pain I >experience now is in the heel of my feet. I begin wearing AFO's 3 years >ago. > Initially I hated the idea, but after a few weeks I could not deny the >fact >that they made me much more mobile. I still struggle with not wanting >people >to know that I wear them. That said, I can also honestly say that I know >intellectually that it has not slowed my social or personal life. I ended >a >difficult 8 year relationship 3 years ago. It took about 10 months to get >comfortable with going out again. Since then I have dated 4 different >women, >not to mention another half dozen that lasted only through the first or >second date. Not one time did my CMT or ankle braces cause any strain on >the >relationships. > >Even people with no apparent physical problems experience self conscious >behavior or periods of low self esteem. The key is to recognize that it is >a >normal part of life. Accept the downs and enjoy the ups! > >My two cents, >Barry > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 In a message dated 5/10/00 3:45:15 PM Pacific Daylight Time, egroups writes: << I want it all cured, but I'll take the autism cure first. However, I'll love her to death anyway. >> Amen, Kara! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 In a message dated 5/10/00 3:45:15 PM Pacific Daylight Time, egroups writes: << Wow, I think I did not state what I mean very well! >> Gail: I knew what you meant...... :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Dear Edie: Normally, I say to talk to your provider, but, it sounds like your physician is so blatantly wrong, I would see someone else ASAP. To not have full testing, including a Genotype, as well as tell you to wait until you have symptoms, is contrary to all recent studies, and outright stupid. He/She is playing a game of Russian Roulette with your life. This is considered an epidemic, and by basic statistics, if you do nothing, you will more than likely develop liver disease. That is similar to finding a tumor and saying lets wait until it develops into something more serious. In both cases, anything more serious may be too late. If you meet the criteria now, you should be given the opportunity for treatment now. Maybe nothing will happen and your body will keep this under control, but as a provider, and with all the patients I have seen or read about, you are very likely to develop symptoms sometime in the future. But, you don't want to wait until you are ready for the transplant list to find out you are ill. FIND ANOTHER PROVIDER!, Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 I'm no professional.. but I agree with Marty. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2000 Report Share Posted June 6, 2000 Steve See below towards the end about online body fat calculatros. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2000 Report Share Posted June 6, 2000 Steve See below towards the end about online body fat calculatros. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 It is my understanding that ICDs will not prevent either fluid build-up (congestive heart failure?) or atrial fib. They only work on ventricular tach. and fib. (Although that brings up a question--I got a dual chamber pacemaker in September. Will that now work on a-fib?) I think it sounds like the ICD did what it was supposed to do - it zapped him appropriately when he was in v-fib. ICDs aren't a cure, they're a treatment. I started taking amiodarone in August. I understand it has some possible very serious side effects, but you have to work out pros vs. cons. It's worth the risk to me because I had such a side effect from the other drugs I tried. I hope your husband's troubles are over, that they've now got him stabilized. My thoughts are with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Hi list, Can anyone tell me what the life expectancy of the Medtronic defib is? What is the cut-off point for the voltage on the battery? How much leeway is there once this charge level has been reached? The holidays are past and I am still zapless. Hope the rest of the year will be the same. You miss one hundred percent of the shots you do not take. Smile!! Karl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Karl, it depends on the model, how many shocks or paces you receive and my personal voltage is 35 ergs but many are lower. My machine life is estimated at 5 years. Love, Jeannie Re: Digest Number 163 Hi list, Can anyone tell me what the life expectancy of the Medtronic defib is? What is the cut-off point for the voltage on the battery? How much leeway is there once this charge level has been reached? The holidays are past and I am still zapless. Hope the rest of the year will be the same. You miss one hundred percent of the shots you do not take. Smile!! Karl Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 RE: No, Francesca, I don't think this is the answer. There is enough food now, only political power games keep the food from getting to the people. Malthus was right. Why do we continue to blind ourselves to the fact that we must reduce birth rates for the ecosystem to support us and that otherwise we will need Monsanto just to continue a miserable survival in overcrowded cities with a mutilated planet to look at? best wishes to you, MM Actually, native born Americans responded to the 1970 Earth Day plea for zero population growth in the following way: by 1973, these Americans had limited their reproduction rates to replacement level AKA zero population growth. Europeans have done the same, or better. It is third world countries that need to reduce their exponential birth rates. Immigration from so called third world population explosion nations has, since 1970, accounted for the vast majority of America's population growth, sprawl, worsening traffic, and environmental destruction. The ecological footprint of someone immigrating from China to the U.S. increases by 8,000%. Those of our group who achieve longevity will witness immense suffering as our population growth far overshoots the carrying capacity of the continent. After taking one's daily supplments, one ought to try to find time to write one's Congressional Representative and ask that Congress reduce immgration to levels compatable with a sustainable environment. Californians use 5% less electricity per capita than thirty years ago. Population growth is the problem, and nearly all of the population growth there is due to Congressional immigration policy. Terry --- wrote: > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 Mara - I live in Glendora, folx live in Anaheim - not " that " far from Riverside. Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 In a message dated 10/1/2002 4:39:16 AM Eastern Standard Time, writes: > About me...turning 40 on Wednesday Happy Birthday Lori!! Hope you have a great day! Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Thank you, Vicki. Re: Digest Number 163 In a message dated 10/1/2002 4:39:16 AM Eastern Standard Time, writes: > About me...turning 40 on Wednesday Happy Birthday Lori!! Hope you have a great day! Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Hi all, My specialist has just upped my aspirin dose to 3 tabs, twice a day (300mg each). Day two and my right sinus is complaining with swelling and mucus and a little sore. It could be anything else - it's Spring here and I don't eat a restricted diet (we did eat takeaway pizza the other night too.) Has anyone else whose been taking aspirin for a while (I was on 2 tabs, twice daily) had an adverse reaction like this? I'm not worried about asthma reaction -that's definitely not happening, but I'm worried that my polyps will flare up -we've just got them under control again with prednisolone. Is it worth bothering the doc at this stage? all the best, Beverley <Avoid virus/worm attack - choose your email program wisely!> Author of " The Chimaera Conspiracy " , new Australian YA action-packed sci-fi mystery novel. http://chimaera.topcities.com available from http://greaterglider.com " Getting Started with Homeschooling " and " Learning in the Absence of Education " available from http://members.ozemail.com.au/~beverleypaine/homeschool Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 Hello and happy (belated, present, future) holidays to all! Please forgive my woefully slapdash attention to this list. I am getting little bits of time on my son's PC while my own laptop is en route to Dell for repairs. I just want to say that I welcome all the new members and am finding the mail in general very lively and worthwhile. I know we need to be careful not to smear anyone gratuitously, and as always I urge some care and tact, but frankly I think some of the recent criticism of specific doctors, webmasters, et al, is very healthy and refreshing. I, too, have had difficulties with someone who did not want to acknowledge flatback. My own feeling is that it is vital to face reality if you are going to run a responsible medical list. You cannot possibly help other people by throwing their own " reality testing " or " b.s. detection " out the window. Those of us who have been through scoliosis surgery and its less desirable side effects -- often repeatedly, and often, initially, at a very vulnerable time in adolescent develpment -- have had to cultivate enough denial and escapism just to get through the day at times! So who needs some sacrosanct know-it-all further confusing the issues and discounting her own perfectly adequate perceptions at times when she IS forced to grapple with the whole unpleasant truth head on?! Sure, we all wish flatback were not the problem it is for our generation. And no one with serious and disabling flatback is likely to be a malingerer. (Not to mention that few sane or reasonable people with any kind of severely disabling condition, in my humble opinion, would choose to try living on the rather modest stipend afforded by Social Security if there were any alternative whatsoever.) Well, my son needs to get on line " STAT, " so I must flee once more! More very soon . . . keep that mailbag filling up, so to speak . . . . this is a great group, and I am delighted that we are all here for each other. And I promise that everyone's perception of the facts will always be welcome here at " Feisty. " Thanks also for the bulletins re scientific studies, Suzy -- and please don't worry about any repetition, since even a previously summarized study is likely to be brand new to someone here. I am still hoping to find some way of making some of this material " permanent " at the site and readily accessible to anyone without the need to plow through archives for several hours . . . . P.S. Suzy has offered to take charge of linking our two sites, at least loosely. I think that will be excellent for both sites. P.P.S. I am still working on a disclaimer to accompany everything we post here, so that no one can mistake our opinions for definitive medical advice. There is some feeling that the disclaimer should embrace any advertising that allows at the site as well -- an excellent idea, in my opinion, but I welcome other opinions as well. And one final addendum: I favor limiting this site to the problems of people who have previously undergone scoliosis surgery, or who have flatback occurring in conjunction with past or present scoliosis. I know there are other serious spinal problems afflicting many very fine and articulate people who do NOT have scoliosis, but I am not sure that it would be optimal to combine forces with these folks, much as we may love them and feel for them. I think that people with spinal fractures and flatback, for instance, would probably be best served by starting their own group. I do not mean to be at all inhospitable or unreasonable in this regard, and I welcome any contrary opinions that may educate me on the subject. I just think some of us have wandered around so long trying to find anyone with our particular situation, and have gotten sufficiently bogged down or overlooked in more generic or general scoliosis/spine groups, that at least for now we may want to stay " scoliosis identified. " Ciao for now, Eliana At 01:01 PM 12/16/02 +0000, you wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Welcome to the group Anela! Congrats on your third child! Have you worked out before? Are you doing ant low key exercise now like walking? a -- _______________________________________________ Find what you are looking for with the Lycos Yellow Pages http://r.lycos.com/r/yp_emailfooter/http://yellowpages.lycos.com/default.asp?SRC\ =lycos10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 In a message dated 11/9/2005 9:14:39 AM Eastern Standard Time, writes: I could be completelyimagining it, but I think I have heard that Dr Errico may also sometimes dodistance consults? Not so sure on that one. Yes, Dr. Errico does do distant consults.....call his office for the information....but I will ask him when I see him tomorrow> June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 Hi June~ How are you doing? I saw that you are heading in to see Dr E tomorrow, I hope that all is well with you! Give me an update when you get home. Suziejune08816@... wrote: In a message dated 11/9/2005 9:14:39 AM Eastern Standard Time, writes: I could be completelyimagining it, but I think I have heard that Dr Errico may also sometimes dodistance consults? Not so sure on that one. Yes, Dr. Errico does do distant consults.....call his office for the information....but I will ask him when I see him tomorrow> June FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
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