Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 We took Kaeleigh to the Shriners in Springfield, MA and saw Dr. Masso. I received his report yesterday. We also saw a neurologist in Rochester, NY. Kaeleigh is 2 years 8 months old. She was diagnosed with scoliosis at age 17 months in July 2003. 2/04 MRI normal. She began wearing TSLO brace (boston) in 4/04. Slight possibility of cerebal palsy, based upon her history, but not on examination. We'll get a MRI of her brain to rule it out. Dr. Masso's report says RVAD of 34 degrees at apical vertebra in 7/03 (curve was 13 degrees), and RVAD of 21 degrees in 12/03 (curve was 27 degrees). A new x-ray was taken in the brace (just put on, off for 24 hours prior) with 10 degree curve and RVAD of 7 degrees. He recommends continuation of the brace. He told us that he does not believe that Kaeleigh will need surgery in the future, and that her curve will resolve itself (with the brace). Does anyone have any comments? Could this be as good as it sounds? Bert - there are many neurological causes of scoliosis. One of them is cerebal palsy. There is a good article in the links file. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Patty, Ortho docs say that 98% of idiopathic infantile scoliosis cases spontaneously resolve on their own. I dont know if I believe these stats, but some cases really do resolve on their own. I hope Kaeleigh is one of these resolving cases. By looking at the films, does this appear to be the case? If each x-ray looks clearly better than the prior, I would be very happy. If you havent seen them side by side, I would definately take a look. Then get another opinion, if your not 100%. HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 This is with baby Colton in Watertown, NY. We spoke on the phone last week. That sounds like wonderful news. Did you even bring up the subject of casting? I know when we talked that depending on your results you were thinking about it. Just wondered what his views on it were. We'll continue to say prayers for you and little Kaeleigh..... Our appointment with Dr. Katz is Friday. Send prayers our way. I'm sure we'll need them. > We took Kaeleigh to the Shriners in Springfield, MA and saw Dr. > Masso. I received his report yesterday. We also saw a neurologist > in Rochester, NY. > > Kaeleigh is 2 years 8 months old. She was diagnosed with scoliosis > at age 17 months in July 2003. 2/04 MRI normal. She began wearing > TSLO brace (boston) in 4/04. Slight possibility of cerebal palsy, > based upon her history, but not on examination. We'll get a MRI of > her brain to rule it out. > > Dr. Masso's report says RVAD of 34 degrees at apical vertebra in > 7/03 (curve was 13 degrees), and RVAD of 21 degrees in 12/03 (curve > was 27 degrees). A new x-ray was taken in the brace (just put on, > off for 24 hours prior) with 10 degree curve and RVAD of 7 > degrees. He recommends continuation of the brace. He told us > that he does not believe that Kaeleigh will need surgery in the > future, and that her curve will resolve itself (with the brace). > > Does anyone have any comments? Could this be as good as it sounds? > > Bert - there are many neurological causes of scoliosis. One of them > is cerebal palsy. There is a good article in the links file. > > Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Patty, Did the Neurologist also check for clonus? I was told by one Dr. my son had clonus and he did not. What about your ped. did he or she check for clonus? What about the muscle tone? Alot of children with CP have hypertonia and some have hypotonia. Which simply means high or low muscle tone. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Crista We did see a neurologist, but no, we did not have any metabolic testing done. The neurologist recommended a MRI of her brain. The ortho's 12/30/03 report says " she does have a couple of beat of clonus on the right, her toes are upgoing with Babinski bilaterally. " What does that mean? Kaeleigh's physical therapist (for tight heel cords) 4/11/03 report stated that clonus was not consistenly observed at the ankles. The 10/30/03 report states that that there continues to be a difference between the two body sides with regard to alignment and functional strength/use, although there are no indications of tonal differences between the two sides.The 3/22/04 report also references the asymmetry between the two sides of her body. Patty >From: cristab@... >Reply-infantile scoliosis treatment >infantile scoliosis treatment >Subject: Re: Kaeleigh >Date: Sun, 15 Aug 2004 22:43:58 EDT > > > >Patty, >Have you done the Metabolic testing to rule out Metabolic and Mitochondrial >disease? I was told my older son had CP and he didn't. Does she have >Clonus? >Does she have hypertonia or hypotonia? > >Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 We never discussed casting. I still intend to send everything to Dr. in PA to review. I will keep you and Colton in my prayers. Good luck on Friday. Let me know how it goes. Patty >From: " jennifer_heiler " <jennifer_heiler@...> >Reply-infantile scoliosis treatment >infantile scoliosis treatment >Subject: Re: Kaeleigh >Date: Mon, 16 Aug 2004 18:04:37 -0000 > >This is with baby Colton in Watertown, NY. We spoke on the >phone last week. That sounds like wonderful news. Did you even bring >up the subject of casting? I know when we talked that depending on >your results you were thinking about it. Just wondered what his >views on it were. > >We'll continue to say prayers for you and little Kaeleigh..... Our >appointment with Dr. Katz is Friday. Send prayers our way. I'm sure >we'll need them. > > > > We took Kaeleigh to the Shriners in Springfield, MA and saw Dr. > > Masso. I received his report yesterday. We also saw a neurologist > > in Rochester, NY. > > > > Kaeleigh is 2 years 8 months old. She was diagnosed with scoliosis > > at age 17 months in July 2003. 2/04 MRI normal. She began wearing > > TSLO brace (boston) in 4/04. Slight possibility of cerebal palsy, > > based upon her history, but not on examination. We'll get a MRI of > > her brain to rule it out. > > > > Dr. Masso's report says RVAD of 34 degrees at apical vertebra in > > 7/03 (curve was 13 degrees), and RVAD of 21 degrees in 12/03 (curve > > was 27 degrees). A new x-ray was taken in the brace (just put on, > > off for 24 hours prior) with 10 degree curve and RVAD of 7 > > degrees. He recommends continuation of the brace. He told us > > that he does not believe that Kaeleigh will need surgery in the > > future, and that her curve will resolve itself (with the brace). > > > > Does anyone have any comments? Could this be as good as it sounds? > > > > Bert - there are many neurological causes of scoliosis. One of >them > > is cerebal palsy. There is a good article in the links file. > > > > Patty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi patty, I did a "google search" on Babinski bilaterally and found this site http://www.mult-sclerosis.org/Babinskisreflex.html. Whenever the dr says something that I don't understand or need info on, I "google" it. It has helped tremendously when explaining to my family what is going on. Can you post a pic of Kaeleigh? I would love to see her! Gail Re: Kaeleigh>Date: Sun, 15 Aug 2004 22:43:58 EDT>>>>Patty,>Have you done the Metabolic testing to rule out Metabolic and Mitochondrial>disease? I was told my older son had CP and he didn't. Does she have >Clonus?>Does she have hypertonia or hypotonia?>>Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi Gail, Thanks for the help. I've attached a photo of Kaeleigh. Patty > >Hi patty, >I did a " google search " on Babinski bilaterally and found this site >http://www.mult-sclerosis.org/Babinskisreflex.html. Whenever the dr says >something that I don't understand or need info on, I " google " it. It has >helped tremendously when explaining to my family what is going on. > >Can you post a pic of Kaeleigh? I would love to see her! > >Gail > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 I just looked at the photo I posted - it's huge! I don't know how to make it smaller. In fact, I didn't even know how to attach until my husband showed me. Sorry! Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 How gorgeous is she??? I made the pic smaller for you, so that everyone could see it. Gail Re: Kaeleigh Hi Gail,Thanks for the help. I've attached a photo of Kaeleigh.Patty>>Hi patty,>I did a "google search" on Babinski bilaterally and found this site >http://www.mult-sclerosis.org/Babinskisreflex.html. Whenever the dr says >something that I don't understand or need info on, I "google" it. It has >helped tremendously when explaining to my family what is going on.>>Can you post a pic of Kaeleigh? I would love to see her!>>Gail> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Gail - Thank you!!! That was so nice of you! Patty >From: " Gail M. Kimball " <gmkimball@...> >Reply-infantile scoliosis treatment ><infantile scoliosis treatment > >Subject: Re: Kaeleigh >Date: Wed, 18 Aug 2004 08:07:48 -0400 > >How gorgeous is she??? I made the pic smaller for you, so that everyone >could see it. > >Gail > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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