Defiantly Taken it's Toll

[Guest guest]

Christ wrote:

> It has defiantly taken it's toll on me.

This illness has " Defiantly " taken it's toll on me too!

After so many years of being mistreated with the " retarded

disconnect " and having people prove that they were ready to watch me

steadily fall apart, and finally write " Died of a Bad Attitude " on

my tombstone, I just went all-out on a strategy of concerted

avoidance and decontamination that is absolutely staggering in its

complexity. As I keep repeating in this group, my military training

in biological warfare gave me a model for avoidance and

decontamination procedures which gives me a critical advantage.

It is far more intricate and involved than just moving to the desert.

In fact, it's so effectively concerted that it allows me to live

in-between spore plumes - inside of some pretty moldy towns, and to

even build up enough tolerance to withstand exposure to buildings

that used to knock me flat.

In a thousand little ways, I learned to constantly monitor my

overall exposure and pay attention to all the ways this " adds up " to

put me below the threshold of tolerance. Things like wearing a hat

into a known mold exposure just so I can take it off immediately

afterward.

Things like noticing that " mold hits " have no odor other than

associated mVOC's which can be fairly benign - and training myself

to respond to the perception of " mold hits " rather than sight and

smells which are unreliable indicators.

I thought for certain that other mold victims would want to hear

about details of this strategy - especially when they appear to be

suffering in the same " out of control " way that I did. But much to

my amazement, people blazing with mold and complaining of all the

same clues rejected the very idea and treated me even worse than the

denier doctors ever did.

For calling attention to these maneuvers which have meant so much

to me, I am called arrogant for the resolute way in which I present

the " superiority " of my approach. Whatever recovery I experienced is

taken as proof that I wasn't as sick. Repeating my story is taken

as " Grandstanding " ad-nauseum instead of a clue that perhaps I

really AM putting a little more effort in details that are being

overlooked. This has taught me that rejection, disbelief and

derision of my experience can arise from virtually any source - even

from people preparing to die in a moldy environment with NO help or

understanding from doctors, family or " friends " .

This unexpected condemnation from sources I didn't anticipate has

raised my " defiance factor " to a degree in which I have even told

the top doctors in the world " Here is your chance to learn from

someone who has been through it and did something different. Take it

or leave it. It's your choice. "

So I am really struck by your possibly misspelled sentence which

just might be the more accurate expression.

-

[Guest guest]

, not all feel that way about you or your post. I enjoy reading them and if

I learned anything from my military experience is that you cannot go at things

on your own. If you take others ideas, experience, etc the worst thing you will

gain is knowledge you previously did not have. If everyone spent some time

serving they would know our military forces are a perfect model of how team work

equals success regardless of its source and whether you think it is rational or

not, so just keep posting. some will listen and some won't, as I recall the

later were the ones who couldn't make it through boot camp.

Chris...

ikmoldwarrior <erikmoldwarrior@...> wrote:

Christ wrote:

> It has defiantly taken it's toll on me.

This illness has " Defiantly " taken it's toll on me too!

After so many years of being mistreated with the " retarded

disconnect " and having people prove that they were ready to watch me

steadily fall apart, and finally write " Died of a Bad Attitude " on

my tombstone, I just went all-out on a strategy of concerted

avoidance and decontamination that is absolutely staggering in its

complexity. As I keep repeating in this group, my military training

in biological warfare gave me a model for avoidance and

decontamination procedures which gives me a critical advantage.

It is far more intricate and involved than just moving to the desert.

In fact, it's so effectively concerted that it allows me to live

in-between spore plumes - inside of some pretty moldy towns, and to

even build up enough tolerance to withstand exposure to buildings

that used to knock me flat.

In a thousand little ways, I learned to constantly monitor my

overall exposure and pay attention to all the ways this " adds up " to

put me below the threshold of tolerance. Things like wearing a hat

into a known mold exposure just so I can take it off immediately

afterward.

Things like noticing that " mold hits " have no odor other than

associated mVOC's which can be fairly benign - and training myself

to respond to the perception of " mold hits " rather than sight and

smells which are unreliable indicators.

I thought for certain that other mold victims would want to hear

about details of this strategy - especially when they appear to be

suffering in the same " out of control " way that I did. But much to

my amazement, people blazing with mold and complaining of all the

same clues rejected the very idea and treated me even worse than the

denier doctors ever did.

For calling attention to these maneuvers which have meant so much

to me, I am called arrogant for the resolute way in which I present

the " superiority " of my approach. Whatever recovery I experienced is

taken as proof that I wasn't as sick. Repeating my story is taken

as " Grandstanding " ad-nauseum instead of a clue that perhaps I

really AM putting a little more effort in details that are being

overlooked. This has taught me that rejection, disbelief and

derision of my experience can arise from virtually any source - even

from people preparing to die in a moldy environment with NO help or

understanding from doctors, family or " friends " .

This unexpected condemnation from sources I didn't anticipate has

raised my " defiance factor " to a degree in which I have even told

the top doctors in the world " Here is your chance to learn from

someone who has been through it and did something different. Take it

or leave it. It's your choice. "

So I am really struck by your possibly misspelled sentence which

just might be the more accurate expression.

-

FAIR USE NOTICE:

[Guest guest]

>

>This illness has " Defiantly " taken it's toll on me too!

>

>After so many years of being mistreated with the " retarded

>disconnect " and having people prove that they were ready to watch me

>steadily fall apart, and finally write " Died of a Bad Attitude " on

>my tombstone,

LOL

I've been told my problem is " I hate people " and that's what is

making me sick. I guess I have no right to be angry at the way I have

been lied to by authorities and how it's destroyed my life.

I know most all of my friends have made a bunch of suggestions in a

judgmental way. The ones that told me to move out of my house were

right. It would have been nice if one of them would have offered to

give me a place to stay. All they wanted to do was ridicule me for

something I already knew I had to do.

I never got the impression from any of your post's that you were doing

anything other than trying to help people help themselves by sharing

what has worked for you.

I know I appreciate your post's and they have helped me a lot. I

would probably still be using that moldy monitor if it wasn't for

post's like yours that emphasize get rid of moldy items.

It's just too bad people can't get this vital information from their

Dr's. I still consider it a crime and someone should pay dearly for

this.