Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 I've heard people say that mold can cause blood clots in the brain elsewhere. Does anyone have any knowledge of people getting strokes from toxic mold, or studies that support or refute this? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 LiveSimply wrote: > I've heard people say that mold can cause blood clots in the brain > elsewhere. Does anyone have any knowledge of people getting strokes > from toxic mold, or studies that support or refute this? My lifestyle choice was to combine every possibility to " get clear " with having as much fun as possible. To everyone else, it appeared that I just " chose to be outdoors all the time " to the detriment of pursuing career, and ignoring other vital aspects of a normal life. The focus I placed on camping, hiking, kayaking and doing all kinds of fun stuff was the result of discovering that if I didn't, I soon would be unable to stand up and would be wracked with pain and losing ground to my susceptibility to mold. I'm often told that " Your way is difficult and not an option. I'm surprised that people would look at it this way - given the alternative, but I guess we all have our choices to make. Some choices don't make much sense to me - but that is their decision to make. While out mountain biking " The Downieville Downhill " , an awesome singletrack from near the Sierra Buttes that is WELL worth doing, I met a girl who described an unusual experience with her health. She said that she felt really ill during the normal course of her job and home activities, and was much improved by getting out and about. (Who ever heard of such a thing?) She said that she took a long vacation and felt energized and healthy during her entire furlough, but as soon as she got home, started to fall apart again. This was prior to Melinda Ballard's USA today front page headlines, which was really the turning point when total rejection of the mold concept started to become " I think I heard of that somewhere " . She listened to my story and I could see it really made her think. I warned her of the dangers of " do it yourself " remediation, but this is something that just never seems to make an impression on people until it is too late. I met her again months later at Spooner Lake, the starting point for the famous " Flume Trail " , a singletrack carved right into the mountains on the East side of Lake Tahoe that supplied water for the " Incline " flume - which brought logs down the mountain into Lake Tahoe and - gave Incline Village its name. While we rode, she told me the follow-up to her peculiar illness story. She made the correlation of feeling the most crappy while in her house and started to snoop around. She found that her basement smelled the moldiest and pulled up the corner of the carpet that covered the cement floor. To her horror, it was covered with black mold. Certain now that my story wasn't so farfetched as people think, she immediately pulled up all the carpet and threw it outside. The exertion seemed to have been more than expected, for she passed out with fatigue afterward. The next morning, she could hardly get up, but dragged herself to the bathroom and looked in the mirror. And that was the last thing she remembers before waking up in the late afternoon on the floor. She was dizzy and nauseous, couldn't see clearly, and then realized that she couldn't move and was almost completely paralyzed. She just lay there for hours unable to raise herself or do anything but wonder what had happened. I can't remember if she said that someone found her, or if she was finally able to crawl to a phone, but she wound up in the hospital and was told she had suffered a stroke. I asked if she had informed her doctors about her illness, the mold, and the " coincidence " of pulling up the carpet. She said that she had, but that the doctors didn't think anything of it. This is how it goes. Nosebleeds, Fainting, Asthma and Anxiety attacks, Strokes and Heart attacks - all after a mold exposure, and every one of them is just a fluke in the minds of doctors. Amazing. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 LiveSimply, From personal experience my wife has suffered many stroke-like episodes and had been rushed to the hospital many times. The physicians even thought she was having a stroke, the symptoms mimiced a stroke exactly. Slurred speech, unable to walk without assistance, onesided weakness, complete brain fog, delusional, but all tests came back negative. I rushed her to Atlanta many times, 1 hr 45 minutes away to Emory doing over 100 mph, where were the cops when you need them? lol One of the neurologists actually observed her having one and asked her what the hell her problem was. Well gee doc, that's why I brought her here. At that time she was also leaking fluid in one ear. This was when she was still working at the comtaminated building. Upon my persistance to admit her to the hospital for observation, oh yeah, forgot to mention, her temples were swollen and bruised, (which was finally noted in 1 report, which they told me was a normal condition) quack, quack comes to mind, (no offense)this is when they diagnosed her with a pseudotumor in the beginning.We were unaware of any building related illnesses being caused by mycotoxins. At that time I thought that was great, we finally had a diagnosis and Sharon & I were both ecstatic and releaved because at this time the headpains were so severe. I also knew of an aquaintance that was basically going through the exact same thing concerning a pseudotumor, had a shunt put in and went home. At this time we had a senior neurologist (now I know that doesn't mean anything) and she had said " dr. so and so was right it was a psuedotumor. " My next question was " did you read the two spinal taps. " Her answer, wide eyed, " no " . grrrr. Then how in the hell do you diagnose a psuedotumor without looking at tests.The so-called doctor couldn't get out of the room fast enough. I couldn't get my wife out of the hospital fast enough and we were back to square one. One strange occurance happened with her, the only time she was out of headpain was within minutes of having the spinal taps done and that lasted for days each time. Doctors could not believe this, this was not the norm. Even right after the spinal tap, when they make you lie down for 1 hour so you don't get headpain, she was up and off the table within 10 minutes and good to go, pain all gone. Another response of, " it can't be. " Shortly after this is when I decided to fly her to NY to see Dr. Singer, (neurotoxicologist,neuropsychologist) his final diagnosis, chemical toxicity, brain damage. Talk about being deviastated. I wanted to blame myself, but I wasn't sure what for. Now what caused this? Now we know.... LiveSimply, I'm not sure if I have any research that actually questions or discusses mold/mycotoxins causing stroke without really taking alot of time and checking my files. But you all could help me out here, with what little time I have and search for this and I would appreciate any feedback. I know there is some information available, I just can't put my finger on it. I also know she is not the only one that has experienced these symptoms, I've only come across a handful of others. This is supposedly not one of the " standard " mold symptoms and she can experience these again if re-exposed. A question comes to mind if many more are experiencing these symptoms or similiar and referred to them as seizures, spasms, early dementia? The only time she has experienced these is when she was in that building or re- exposed and the after effects lasted for months. So many questions unansered. KC --- In , LiveSimply <quackadillian@...> wrote: > > I've heard people say that mold can cause blood clots in the brain > elsewhere. Does anyone have any knowledge of people getting strokes > from toxic mold, or studies that support or refute this? > > Thank you! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 My symptoms in beginning made me think I was have a stroke also. I was driving felt strange in the head and then like an electrical feeling going thru my body and both legs did tremors. Didn't last long but I felt right before all this like I was blacking out. Right leg was numb after that. Had other get up unbalance episodes felt like passing out and laid down and that electrical feeling shot thru my body then right side was numb and other leg tremors and since that 11 years ago, never had another episode like that but over years other symptoms came with my whole body numb, fatigue, cognitive dysfunction, unbalance, some vision things, pain that didn't stop, pins/needles, shocking, memory loss, intestinal problems and knew something was wrong and last 3 years esculating worse every year. Got the MRI one 7mm X 9mm brain lesion found in vision area. Technically neuro said I should just be having optic neuritis and I said I'm having a lot more than that and not sure I ever had that at all but do have pressure and burning and swollen eyes. He didn't offer me anything but a antidepressant supposedly for pain. I knew then I had to find my own answers and went on my mission and found LDN first and it basically took all my symptoms away except numbness that would vary and major sinus until I turned the heat back on and heat at work and stayed inside with air scrubbers and I went back to hell but the LDN is still trying. Seems memory and cog. dys, and unbalance has't gone back to real hell but I have bad intestinal problems, stomach burning, pins/shocking/fatigue(but fatigue isn't daily drop dead like before) Don't feel tons of joint pain or pain but feeling something and not great seems to vary with barometer and maybe workplace. Barometer kicks my butt bad. Oh, got them sores on head and more than ever this fall/winter. BUT, do feel better since old hvac is gone and clean air is blowing in my house. I get migranes too seems in fall and spring. Have not appetite and my nose feels strange and with old hvac felt like something eating my nose. Oh, the lovely eating flesh feeling which must be the inflammation and bug crawling feeling. I knew as good as the LDN had done me something UP and Heat related and then saw the mold growing on insulation and floor joist and ac had been smelling sour for last 3 or so years. It all came together like a lightening bolt and always knew something wrong with work place b/c after year one, allergies/sinus and headaches I didn't have before working here and I use to say this workplace was going to give me a brain tumor b/c I didn't feel right in here. I'm not the only one that has made complaints either. Might have missed something here but eating lunch. Anyhow told two docs back then what happened and one blew it off on stress other said well, you are past the 5 year mark with MS and still walking but wouldn't do a MRI. I decided to stay away from docs until I was bad off. Rhonda > > > > I've heard people say that mold can cause blood clots in the brain > > elsewhere. Does anyone have any knowledge of people getting strokes > > from toxic mold, or studies that support or refute this? > > > > Thank you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 I had something I thought might be a TIA three years ago over the holidays. I had been out to dinner with friends, and while walking back to my car entirely lost track of where I was or what I had been doing - somehow, I knew that I was headed to my car and remembered where it was about 3 blocks from where I was. I was lightheaded and a bit dizzy and utterly frustrated. I was in Santa , a city where I have lived for extended periods and know pretty darn well, and I was only about a half mile from where I had lived fairly recently at that time, as well as being on a familiar pedestrian thoroughfare. I have had my mitral valve replaced 4 times, and I take bloodthinners for the mechanical valve to prevent strokes, and I have had stroke-like events during surgeries. Once in my car, I sat for about 20 minutes trying to figure out if I should go to the ER to see if I was having a stroke. I decided it was probably best to go home where I could rest (having spent enough time in ERs where I neither got help nor rest). I knew where home was, and I called my boyfriend and talked to him on my cell as I drove home to help me stay focused. I eventually remembered that the city I'd been in was Santa and remembered having dinner with friends, but panicked when I didn't recall PAYING for dinner (which I had). I called my cardiologist when I got home, and he did not think I should go to the ER. I saw him a couple days later and he shrugged about it, but recommended I see a neurologist who called what happened a 'seizure' and wrote something about 'epilepsy.' Three of us in a four-unit building had 'seizures' in a three month period. That's when we began to realize something was very wrong. My unit didn't have visible mold, but there was plenty visible in the unit below mine - my neighbor in that unit ultimately died either during or immediately after a seizure, having produced a great deal of foam as he did with his seizures, and the final time, blood - many of you know we recenlty found he had an enormous amount of trichothecene in his lung tissue. I don't want no strokes, people. That was scary enough. I told Dillian earlier I'd like to be left in denial on this subject...the dizzy spells, loss of balance, memory fuzziness, depression - it's all quite enough as it is, thank you. -Haley tigerpaw2c <tigerpaw2c@...> wrote: LiveSimply, From personal experience my wife has suffered many stroke-like episodes and had been rushed to the hospital many times. The physicians even thought she was having a stroke, the symptoms mimiced a stroke exactly. Slurred speech, unable to walk without assistance, onesided weakness, complete brain fog, delusional, but all tests came back negative. I rushed her to Atlanta many times, 1 hr 45 minutes away to Emory doing over 100 mph, where were the cops when you need them? lol One of the neurologists actually observed her having one and asked her what the hell her problem was. Well gee doc, that's why I brought her here. At that time she was also leaking fluid in one ear. This was when she was still working at the comtaminated building. Upon my persistance to admit her to the hospital for observation, oh yeah, forgot to mention, her temples were swollen and bruised, (which was finally noted in 1 report, which they told me was a normal condition) quack, quack comes to mind, (no offense)this is when they diagnosed her with a pseudotumor in the beginning.We were unaware of any building related illnesses being caused by mycotoxins. At that time I thought that was great, we finally had a diagnosis and Sharon & I were both ecstatic and releaved because at this time the headpains were so severe. I also knew of an aquaintance that was basically going through the exact same thing concerning a pseudotumor, had a shunt put in and went home. At this time we had a senior neurologist (now I know that doesn't mean anything) and she had said " dr. so and so was right it was a psuedotumor. " My next question was " did you read the two spinal taps. " Her answer, wide eyed, " no " . grrrr. Then how in the hell do you diagnose a psuedotumor without looking at tests.The so-called doctor couldn't get out of the room fast enough. I couldn't get my wife out of the hospital fast enough and we were back to square one. One strange occurance happened with her, the only time she was out of headpain was within minutes of having the spinal taps done and that lasted for days each time. Doctors could not believe this, this was not the norm. Even right after the spinal tap, when they make you lie down for 1 hour so you don't get headpain, she was up and off the table within 10 minutes and good to go, pain all gone. Another response of, " it can't be. " Shortly after this is when I decided to fly her to NY to see Dr. Singer, (neurotoxicologist,neuropsychologist) his final diagnosis, chemical toxicity, brain damage. Talk about being deviastated. I wanted to blame myself, but I wasn't sure what for. Now what caused this? Now we know.... LiveSimply, I'm not sure if I have any research that actually questions or discusses mold/mycotoxins causing stroke without really taking alot of time and checking my files. But you all could help me out here, with what little time I have and search for this and I would appreciate any feedback. I know there is some information available, I just can't put my finger on it. I also know she is not the only one that has experienced these symptoms, I've only come across a handful of others. This is supposedly not one of the " standard " mold symptoms and she can experience these again if re-exposed. A question comes to mind if many more are experiencing these symptoms or similiar and referred to them as seizures, spasms, early dementia? The only time she has experienced these is when she was in that building or re- exposed and the after effects lasted for months. So many questions unansered. KC --- In , LiveSimply <quackadillian@...> wrote: > > I've heard people say that mold can cause blood clots in the brain > elsewhere. Does anyone have any knowledge of people getting strokes > from toxic mold, or studies that support or refute this? > > Thank you! > FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 hummm, I too have read or heard something about this, remember talking about it to my daughter, that lack of air in the blood to the brain causes strokes and MCS attacks cause lack of air in the blood or something like that. was also thinking about my brother in law who had a stroke while living alone, he had mold in his house and a hairy dog and a lot of dust. I was trying to tell them that that could of been what brought on his stroke. KC, In my second home my ears were swelled shut and would drain clear liquid from them when I went outside,the sound of a pin dropping on the floor was painful. my family doctor gave me ear drops , lol, what a dummy,anyway, l have never known the reason for the clear liquid running from my ears, this is how I realized that it was something in the home, but I just read something the other day about one of the molds in this home and how it causes ear problems, but I dont think it went into a lot of detail. Ill see what I can find. maybe I saved it on my web 2.0, which reminds me to ask, can anyone view my web 2.0 or do you have to be invited to join 360 first? > > > > I've heard people say that mold can cause blood clots in the brain > > elsewhere. Does anyone have any knowledge of people getting strokes > > from toxic mold, or studies that support or refute this? > > > > Thank you! > > > Quote Link to comment Share on other sites More sharing options...
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