Re: Interaction with IEQ, yes someone please help us

March 9, 2006

Im scared and with you too Jeanine.

Janet

March 9, 2006

yes, please, what does it take to get help?I dont know about anyone

else, but Im scared, that this is slowly killing me, and no one gives

a damn. we have had a natural hazzard, where is the help? I have been

told that mycotoxicosis feeds on stress, and the stress is

unbearable. we need someone who isn't ill from this to help us. I'm

trying to live on $600.00 a month from disablity, how am I supposed

to get expert medical help? I just read that food allergies can kill

you, MCS gets worse with each attack, and MCS attacks also cause me

to have the same effects on my stomach as if I ate a food that Im

allergic to,dierrhia with blood. HOW AM I SUPPOSE TO HELP MYSELF?

when I haven't even had a total evaluation and my messed up brain has

a hard time retaining all this crazy mixed up info. for one thing,

all the " LIKE " illnesses of this is not what we have, fibromyalgia is

actually mycotoxin poisoning lodged in our glands, vasculitis is

actually mycotoxins circulating in our blood streams,affecting our

eyes and all our other organs and could cause a stroke. leaky gut

syndrome is actually food allergies and or strong smells (of mold)

attacking our sick bodies, because its everywhere in everything and

we can't even get a mask that really works. cronic fatique is because

mycotoxicosis is sucking the life from us and the result of our

bodies thinking theri in hybernation, trying to store fat because

mycotoxins thrive on fat.candida (sugars and yeast) and I dont know

about anyone else but I never had asthma or allergies before this and

I know mold exposure has caused these too. the only signs of asthma I

have is when I have a MCS attack (I dont think this is your tipical

asthma) and ecstringic asthma if I over exsert myself, because my

lungs have been through hell. instead of haveing a name for death or

illness by ocupation contact or kind of mold like farmers lung,

valley fever, blastomycosis, on and on , and hypersensative

pnuemonia, MCS, allergic asthma, and on and on, what is this BS. our

foods are poison, our water is poison, our air is poison to us, and

the rest of the world cant be to far behind. I've lost my health, my

home, my social life(being single and alone does not help with this

illness) I cant even afford tires for my car, because I've spent the

last 12 years breathing molds and suffering from its effects, I fell

like theres not much more that can be taken from me. I cant even

spend guality time with my grandkids, I hate this, if I knew who I

could get on my hands and knees to ,to beg for help, I would. I try

to stay strong, but this is getting to me. just the fact that Im

about to lose my moldy home because I cant afford the taxes, lol

TAXES? for a home I cant even live in? I even have a (what seems

like, never ending)lawsuit, and well be lucky to even get restatution

for respirtory problems, what ever that means. people we have been

poisoned, dont people who have been poisoned usually get emergency

help? who is supposed to help in emergency poisoning? who is supposed

to help in environmental hazzards? why are we not getting help? being

a single white female, I have had my share of discremanation in the

work place and in life in general. and Im getting a big dose of it

now. I've never been so discusted in my life, why isn't my country

not helping me? what happened to the toxic mold safety and protection

act? why is it that you only get help from mold exposure if your

rich? why is it that the very few places that actually deal with mold

exposure cost a arm and a leg and dont take medicaid or medicare?

because us and our illnesses are not covered under these, why is

that? yes Im angry, I want my life back. look at the people in this

group, haveing to play doctor theriselfs, because we are being left

to fend for ourselves, I dont think its wise to be giving advice

about herbs or any treatment. if I had not been dignosed with food

allergies, I would still be thinking I had LGS and might of tried

some of these things and it could of hurt me. we all need specialest

careing for us, we all need these toxins out of our bodies so we can

heal. I am very thinkful that there are specialest out there, but its

not helping me any. Im actually felling jelious now because at least

the hurricane victims are getting some attention from the experts. I

related to them because like them ,I have also lost my home, and I

know what the mold is going to do to them, but theri getting help

before they get that ill. Ive done been through it. sorry people, but

I cried all day yesterday and am now. we can set here and post till

the cows come home, what good is it going to do? heres the way I see

it, the only way you get attention these days is a disaster, or by

fileing some kind of class action lawsuit. we are being discremanated

against, our illness is being played down by certain goverment

angencies,while we are left to deal with family, friends and the

public treating us bad because of it. our illness is our worst enemy,

because its keeping us from haveing the energy to fight for our

rights.

> > Basically, all I would really like to say is " We're sick. Get us

> some damn treatment. "

> > Sharon

>

> Yes.

> Frustrating when a someone trying to get some assistance after

> experiencing a reaction to mold runs into a semantic " Iron Curtain "

> from the very people you'd think would be first in line to help.

> I asked doctors to help me with mold and they said " I'm a doctor,

> not a biologist. Ask them " .

> And when I went to microbiologists and mycologists, they said " I

> study organisms, not humans. If you want to know the effects of

mold

> on a human - ask a doctor " .

>

> Twenty years of this run-a-round gets pretty old.

> -

>

> (Mr Grabthecheck! TEAR DOWN this wall!)

>

March 9, 2006

Very well said. I am sick of being patient and dignified. I want to

know what these polititians are doing. This is criminal negligence

and I wouldn't have any idea who is responsible because there are so

many the courts, congress. some doctors and lawyers, landlords. I

have been involved with many that shoud be in jail.

> > > Basically, all I would really like to say is " We're sick. Get

us

> > some damn treatment. "

> > > Sharon

> >

> > Yes.

> > Frustrating when a someone trying to get some assistance after

> > experiencing a reaction to mold runs into a semantic " Iron

Curtain "

> > from the very people you'd think would be first in line to help.

> > I asked doctors to help me with mold and they said " I'm a

doctor,

> > not a biologist. Ask them " .

> > And when I went to microbiologists and mycologists, they said " I

> > study organisms, not humans. If you want to know the effects of

> mold

> > on a human - ask a doctor " .

> >

> > Twenty years of this run-a-round gets pretty old.

> > -

> >

> > (Mr Grabthecheck! TEAR DOWN this wall!)

> >

>

March 10, 2006

1.congress. some doctors and lawyers, landlords. I

have been involved with many that shoud be in jail.

A-MEN

E

[] Re: Interaction with IEQ, yes someone please help us

Very well said. I am sick of being patient and dignified. I want to

know what these polititians are doing. This is criminal negligence

and I wouldn't have any idea who is responsible because there are so

many the courts, congress. some doctors and lawyers, landlords. I

have been involved with many that shoud be in jail.

March 10, 2006

Who,

Don't feel Rain on for You are not alone I live with the HUD Voucher in Broward

County and each time I complain about the Mold to make a long story short

Homeless over and over again Frau7d prepertrated on my Credit my Medical turn

off for a month!?. GO FIGURE, I feel your pain.

Elvira

[] Re: Interaction with IEQ, yes someone please help us

yes, please, what does it take to get help?I dont know about anyone

else, but Im scared, that this is slowly killing me, and no one gives

a damn. we have had a natural hazzard, where is the help? I have been

told that mycotoxicosis feeds on stress, and the stress is

unbearable.

March 10, 2006

all the polititians I wrot to and spoke to didnt care.But it doesnt mean give

up I guess.

Janet

March 10, 2006

No it doesn't mean give up, it means plant your feet firmly on the

ground and give a quick upswing kick to vitals..... causing

irreverseable damage and permanently implanted.

>

> all the polititians I wrot to and spoke to didnt care.But it doesnt

mean give

> up I guess.

> Janet

>

March 10, 2006

Dear Marvcie...

I have been doing the same thiing as you for two years now.Take care and

God Bless,

Janet

March 10, 2006

Dear who, having looked back , I find a post from feb, is this your

first month on the site? I too was sick for 14 years without knowing

why- but the truth is -no one is out there to help you-there is no

safety net in the U.S.- You need to get well to take care of yourself-

I allso am alone and not a young woman- you need to help yourself- and

the road to getting better is a suprisingly simple one- although it is

sometimes hard to implement- First you must get out of a moldy

environment- totally- by any means necessary- even if it means moving

to a climate sutible for camping out- backpacking in a tent will be

better than staying in a moldy house- then get a perscription for

Cholestramine by any means possible- if you are on medicare-

medicaide? or use some of the monthly payment for the perscription- I

have heard some people get it for $50-60 a month - take it- breath

clean air- and in a few months or more you will be able to be

healthier- I have come back from the dead in the last 16 months. You

must take responsibility for yourself- no one can make you well- no Dr

can help-this you can and must do first before anything else - good

luck- I know it is not easy

>

> yes, please, what does it take to get help?I dont know about

anyone

> else, but Im scared, that this is slowly killing me, and no one

gives

> a damn. we have had a natural hazzard, where is the help? I have

been

>

March 10, 2006

carondeen, this is my point, we are not getting help. even animals

get more help for mycotoxin exposure than we do. and yes, Im new,

dont even know what csm is or clorestamene is, if its another herb,

Im leary.

>

> Dear who, having looked back , I find a post from feb, is this your

> first month on the site? I too was sick for 14 years without

knowing

> why- but the truth is -no one is out there to help you-there is no

> safety net in the U.S.- You need to get well to take care of

yourself-

> I allso am alone and not a young woman- you need to help yourself-

and

> the road to getting better is a suprisingly simple one- although it

is

> sometimes hard to implement- First you must get out of a moldy

> environment- totally- by any means necessary- even if it means

moving

> to a climate sutible for camping out- backpacking in a tent will be

> better than staying in a moldy house- then get a perscription for

> Cholestramine by any means possible- if you are on medicare-

> medicaide? or use some of the monthly payment for the perscription-

I

> have heard some people get it for $50-60 a month - take it- breath

> clean air- and in a few months or more you will be able to be

> healthier- I have come back from the dead in the last 16 months.

You

> must take responsibility for yourself- no one can make you well- no

Dr

> can help-this you can and must do first before anything else - good

> luck- I know it is not easy

> >

>

> > yes, please, what does it take to get help?I dont know about

> anyone

> > else, but Im scared, that this is slowly killing me, and no one

> gives

> > a damn. we have had a natural hazzard, where is the help? I have

> been

> >

>

March 10, 2006

CSM www.chronicneurotoxins.com <http://www.chronicneurotoxins.com/> has

some info. Cholystramine has been around for a long time and used in past

for those with high cholesterol. It is available by prescription by certain

doctors and is being used " off label " to address chem. And toxic exposures.

I have been on it since mid Jan with good results.

You are leery about exactly what? I am leery about docs who want to diagnose

me with a new disease a week and prescribe new medications on top of more

new medications on top of more new medications and of course more to address

side effects of the meds and so on.

Being leery is good. Keeping one's head in the sand is not being leery. I

hope you spend the time to learn more about the various treatments to

address your medical condition..

_____

From: [mailto: ]

On Behalf Of who

Sent: Friday, March 10, 2006 12:19 PM

Subject: [] Re: Interaction with IEQ, yes someone please help

us

* carondeen, this is my point, we are not getting help. even animals

get more help for mycotoxin exposure than we do. and yes, Im new,

dont even know what csm is or clorestamene is, if its another herb,

Im leary. --- In , " carondeen "

<

_____

March 10, 2006

" carondeen "

>I too was sick for 14 years without knowing why- but the truth is -

no one is out there to help you-there is no safety net in the U.S.-

You need to get well to take care of yourself-

I thought that of all people, the old Indoor Air Quality group

would appreciate this.

If they encounter people with progressive illness, they, of all

people are peculiarly placed to intervene to stop the inevitable

decline that they, above all others, are in a perfect position to

observe.

Doctors don't see it - they won't leave their offices to test your

environment and even if they are Mold-Aware, the best they can do is

to refer patients to a " Mold Expert " who may or may not tell you to

get out - because THEY are not a doctor - and this borders

on " medical advice " .

When a " Mold Expert " identifies someone who is too brainfogged to

see that the medications, supplements, and endless doctor visits

aren't going to save them - and they are getting too sick to work -

the " downward spiral into oblivion " is almost complete.

The black hole of despair is almost impossible to escape without

help.

What it takes, is a " pristine " escape zone in which to survive

the " intensification reaction " that follows exposure. Even a

primitive and basic trailer could serve - if it was mold free and

not parked in an area that is being plumed.

I thought that the mold experts would surely have contact with

people who completely fall apart after a " successful remediation "

and see that a " Plan B " is called for. Only a person who

understands just how bad mold illness can get is able to warn others

that an RV parked next to the house is a plan designed for failure.

If someone had this low cost " Plan B " available, gets

through " intensification " , and starts to recover - then they have a

chance to get a life back.

Just a chance to recover! - with the proper education and tools,

because " You need to get well to take care of yourself " .

-

March 10, 2006

No CSM is not a herb but an FDA approved drug for elimination of

MYCOtoxins from the body. You need to educate yourself fast if you

are going to save yourself- read the archives of this site- you will

learn allot- go to http://www.chronicneurotoxins.com/-read

everything he says about mold illness- buy the book-Mold Warriors-

the ONLY WAY to health is strict avoidence of mold and taking the

CSM- it is the start- only you can do it.- no one but you can take

these first steps to health- mold effects the brain- you may not be

making rational choices for yor health. Many people on this site can

attest to the effectiveness of these measures. Avoidence is

necessary. This most of the times mean moving, staying with friends,

relatives, campimg out-going broke- loosing your money is better

than loosing your life.Keep in touch- you can use this site to help

get healthy-but it means doing the drill.

> >

> > Dear who, having looked back , I find a post from feb, is this

your

> > first month on the site? I too was sick for 14 years without

> knowing

> > why- but the truth is -no one is out there to help you-there is

no

> > safety net in the U.S.- You need to get well to take care of

> yourself-

> > I allso am alone and not a young woman- you need to help

yourself-

> and

> > the road to getting better is a suprisingly simple one- although

it

March 10, 2006

I guess this also takes a prescription, also from a certain

doctor?

> > >

> > > Dear who, having looked back , I find a post from feb, is this

> your

> > > first month on the site? I too was sick for 14 years without

> > knowing

> > > why- but the truth is -no one is out there to help you-there is

> no

> > > safety net in the U.S.- You need to get well to take care of

> > yourself-

> > > I allso am alone and not a young woman- you need to help

> yourself-

> > and

> > > the road to getting better is a suprisingly simple one-

although

> it

>

March 10, 2006

Every time I start bitching about the medical profession I feel like I

am shooting Bambi because they do so many good things for us. And I

know some people think I am horrible for it.

That's one of the reasons why my family tells me " I hate people "

As if I have no reason to be mad.

I have lost my home, my investments, my career, my narcissistic and

shallow friends, essentially to a very treatable disease! Why can't

I get a straight f... answers from these people?!!!!!

My brother tells me I am stupid and always somehow responsible for

or perpetuating my illness myself and he oscillate's from blaming me

for the stupid things I did to calling me a phony, two diametrically

opposed views. One unanimous point. " I am a bad guy "

You would think if he really believed my house was making me sick

that he might reserve a little of that contempt towards the

epidemiologist's and the medical profession in general that refute his

own point (my house made me sick). He is essentially mad at me for

ignoring something that a very large institution is not only ignoring

but generating propaganda contrary to the truth.

They treat us like some type of phony trying to make the big bucks

when what we want most is information that can help us get our health

back! They have the resources to make this happen but choose to turn

their backs on us, and at least in my case turn family, friends, and

the general public against me. If that isn't evil I don't know what

is. I wish I had the quote, but someone somewhere equated evil to

seeing evil and saying nothing.

March 10, 2006

,

Boy...do I understand how you feel. I am in the same position with family and

friends. They never ask how I am doing...but do want to know if I have any

money!!!!

I am so tired of fighting with WC trying to just to get the medical help I

need to get better. They don't seem to understand at all and they don't care. I

just want to give up!

Even though Dr.Rae said I was one of the sickest he has seen...he will not

help because it's all about money. He does not take insurance and I do not have

an income of any kind.

Please hang in there and know you are not alone.......you are welcome to

e-mail me anytime and talk. God knows I need it.

Your Friend,

Marcie

Christ <antares41-41@...> wrote:

Every time I start bitching about the medical profession I feel like I

am shooting Bambi because they do so many good things for us. And I

know some people think I am horrible for it.

That's one of the reasons why my family tells me " I hate people "

As if I have no reason to be mad.

I have lost my home, my investments, my career, my narcissistic and

shallow friends, essentially to a very treatable disease! Why can't

I get a straight f... answers from these people?!!!!!

My brother tells me I am stupid and always somehow responsible for

or perpetuating my illness myself and he oscillate's from blaming me

for the stupid things I did to calling me a phony, two diametrically

opposed views. One unanimous point. " I am a bad guy "

You would think if he really believed my house was making me sick

that he might reserve a little of that contempt towards the

epidemiologist's and the medical profession in general that refute his

own point (my house made me sick). He is essentially mad at me for

ignoring something that a very large institution is not only ignoring

but generating propaganda contrary to the truth.

They treat us like some type of phony trying to make the big bucks

when what we want most is information that can help us get our health

back! They have the resources to make this happen but choose to turn

their backs on us, and at least in my case turn family, friends, and

the general public against me. If that isn't evil I don't know what

is. I wish I had the quote, but someone somewhere equated evil to

seeing evil and saying nothing.

FAIR USE NOTICE:

March 10, 2006

and at least in my case turn family, friends, and the general public

against me. If that isn't evil I don't know what is.

I wish I had the quote, but someone somewhere equated evil to

seeing evil and saying nothing.

>

The really peculiar thing is that those with the " retarded disconnect "

feel so GOOD about themselves, as if they were somehow defending Truth

and Reality itself from an onslaught of delusional madmen.

" All that is necessary for the triumph of evil is that good men do

nothing " . -Edmund Burke.

Of course, you have to ask yourself, " If they do nothing, are they

good men? " , because if everyone who does nothing shows by their

malfeasance that they are not good, it comes down to my dad's favorite

phrase:

" People are no damned good " .

-

March 10, 2006

Many people, like me get their GP to perscribe it- downlode the info

for your GP- and with luck you can have a script fast- but it won't

help much unless you can stop the exposure also

> > > >

> > > > Dear who, having looked back , I find a post from feb, is

this

> > your

> > > > first month on the site? I too was sick for 14 years without

> > > knowing

> > > > why- but the truth is -no one is out there to help you-there

is

> > no

> > > > safety net in the U.S.- You need to get well to take care of

> > > yourself-

> > > > I allso am alone and not a young woman- you need to help

> > yourself-

> > > and

> > > > the road to getting better is a suprisingly simple one-

> although

> > it

> >

>

March 10, 2006

DITTO......DITTO......DITTO!!!!! I agree with everything you said. I really

p----s me off the way things like this are ignored and they keep passing you off

to someone else. I am sick of this and they don't understand is " ALL I WANT IS

TO LIVE " . And healthier than I am right now. Like I was before I was exposed to

Stachybotrys and who knows what else.

I am a single female also and know what you are going through....no one to

turn to at all.

Marcie

ldelp84227 <ldelp84227@...> wrote:

Very well said. I am sick of being patient and dignified. I want to

know what these polititians are doing. This is criminal negligence

and I wouldn't have any idea who is responsible because there are so

many the courts, congress. some doctors and lawyers, landlords. I

have been involved with many that shoud be in jail.

> > > Basically, all I would really like to say is " We're sick. Get

us

> > some damn treatment. "

> > > Sharon

> >

> > Yes.

> > Frustrating when a someone trying to get some assistance after

> > experiencing a reaction to mold runs into a semantic " Iron

Curtain "

> > from the very people you'd think would be first in line to help.

> > I asked doctors to help me with mold and they said " I'm a

doctor,

> > not a biologist. Ask them " .

> > And when I went to microbiologists and mycologists, they said " I

> > study organisms, not humans. If you want to know the effects of

> mold

> > on a human - ask a doctor " .

> >

> > Twenty years of this run-a-round gets pretty old.

> > -

> >

> > (Mr Grabthecheck! TEAR DOWN this wall!)

> >

>

FAIR USE NOTICE:

March 10, 2006

marcie, yes stachoboctrys here to , and EHC told me I was lucky to

be alive, but same problem as you, after $10,000.00 put out on

waistful trips to unguailfied doctors that didn't bother to tell me

they weren't really quailified, until I got there and before I knew

of the EHC.(much thanks to my last lawyer)Im now broke. and I have

been to the cronicnerotoxin.com and wrote them and told them I had

medicare and medicaid, never got a reply. no opened minded doctors

that I've found yet in my area.still searching. Dr. Rea is going to

teach classes on MCS in April in my area, thank god, hope some

doctors learn something so I can get some help.

> Every time I start bitching about the medical profession I feel

like I

> am shooting Bambi because they do so many good things for us. And I

> know some people think I am horrible for it.

>

> That's one of the reasons why my family tells me " I hate people "

>

> As if I have no reason to be mad.

>

> I have lost my home, my investments, my career, my narcissistic and

> shallow friends, essentially to a very treatable disease! Why

can't

> I get a straight f... answers from these people?!!!!!

>

> My brother tells me I am stupid and always somehow responsible for

> or perpetuating my illness myself and he oscillate's from blaming

me

> for the stupid things I did to calling me a phony, two

diametrically

> opposed views. One unanimous point. " I am a bad guy "

>

> You would think if he really believed my house was making me sick

> that he might reserve a little of that contempt towards the

> epidemiologist's and the medical profession in general that refute

his

> own point (my house made me sick). He is essentially mad at me for

> ignoring something that a very large institution is not only

ignoring

> but generating propaganda contrary to the truth.

>

> They treat us like some type of phony trying to make the big bucks

> when what we want most is information that can help us get our

health

> back! They have the resources to make this happen but choose to

turn

> their backs on us, and at least in my case turn family, friends, and

> the general public against me. If that isn't evil I don't know what

> is. I wish I had the quote, but someone somewhere equated evil to

> seeing evil and saying nothing.

>

> FAIR USE NOTICE:

>

March 10, 2006

I do have to say that I've had dogs that were better friends than so

called friends, and theres nothing like a good dose of toxic molds,

to make you hate people, expecially the know it alls that are so

rightous, that dont really know it all, at all.

>

> and at least in my case turn family, friends, and the general

public

> against me. If that isn't evil I don't know what is.

> I wish I had the quote, but someone somewhere equated evil to

> seeing evil and saying nothing.

>

> >

>

> The really peculiar thing is that those with the " retarded

disconnect "

> feel so GOOD about themselves, as if they were somehow defending

Truth

> and Reality itself from an onslaught of delusional madmen.

>

> " All that is necessary for the triumph of evil is that good men do

> nothing " . -Edmund Burke.

>

> Of course, you have to ask yourself, " If they do nothing, are they

> good men? " , because if everyone who does nothing shows by their

> malfeasance that they are not good, it comes down to my dad's

favorite

> phrase:

> " People are no damned good " .

>

> -

>

March 10, 2006

Dr.Rae only takes cash up front and you have to bill your insurance company.

My problem is I have -0- money income. No joke. From about $4,000. a month to

nothing. When I had money, I sent it to my family out of state often. Now when I

need help..... " sorry " . I am at my wits end and don't know what to do. I even

made an appt. with a priest because I was suicidal and he spent more time

watching the timer than hearing me. Some days it just feels so hopeless and I

know that I am getting sicker and no one is listening. Oh sure... the docs @

TCID give me the IVIG's every 4 weeks to keep me alive but what for? I don't

know what to do or who to turn to next.

At my WC pre-hearing with my Ombudsman, I just told her, " If you can tell me

I will be better tomorrow, I will walk out of here now. " She said she understood

but I have the burden to prove the mold made me sick. How can I do that without

the test and I have -0- money to do that. The company knows this and that is why

they are so smug on this issue.

I hope like hell that someone gets the help they need and tells the story

because I am sure I will not be around long enough to do it. I am very tired of

fighting and just want some peace.

Marcie

who <jeaninem660@...> wrote: