Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Hi ! My 9 month old son has been in a Hanger helmet for 2.5 months now. He's almost finished his treatment and we've been very happy with the helmet and the correction. As for the movement of the helmet, it should move some, but shouldn't impair vision or the ears at all. If you can put a finger between the helmet and the head, it would be much looser than Nate's helmet. Sounds like it would be worth a call to the ortho. As for the sweating, the body does really adjust in a few days. I didn't believe it, but it's true. I'm sure you're doing an on/off schedule this week. Our ortho told us to make sure we dried Nate's head off when we took the helmet off and make sure it (and the helmet) were dry when we put it back on. We also use a diaper wipe to clean his head when we first take the helmet off. No idea if it's a coincidence, but it seems to help with the sweating! As for just general advise, I would say to stay on top of fit issues. If you don't think it's right, take him to the ortho. You see the baby a lot more than the ortho. Also, when Jaxon has a growth spurt, you'll see very quick changes in his head. We've had to take Nate back for adjustments in just 4 days a couple of times and the ortho happily couldn't believe how much change had happened. Does your Hanger facility have a scanner system? Our ortho has re-scanned Nate when we've wanted to check progress or get an unbiased look. It's been very beneficial. Let me know if I can answer other Hanger questions. Mom to Nate (9 months) Hanger Cranial Band --- In Plagiocephaly , " " <travisdgumm@y...> wrote: > Hey all, today we just got our 10 month old son, Jaxon, his hanger > helmet. We have some serious questions if anyone has answers. > First the Hanger guy said the helmet would be wobbely for a awhile > and move around. Is this correct because we constantly have to move > it a bit. Any tips for the sweeting? Is there any other general > information you may have?- Jaxons pictures are under Jaxon in our > plagio folder. Also, you can put a finger in between the helmet and > his head- is that ok? The Hanger guy is awesome but parent > advice/experience is always better I think. Anyway any > comments/suggestions really help- Thanks to all and God Bless > > > P.S. Judgeing by his pictures do you guys think his case is > moderate, light or severe? Thanks again all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Hi - I just looked at Jaxon's photos. I have a question. In photo number 3 and 5 look at the ears. In 3 the eyes look more aligned to the other ear. In photo 5, the ears look not as aligned. In photo 5 , he looks moderate to severe. In photo 3, he looks mild to moderate. I don't know what kind of schedule Hanger gives for their bands, but we are give a schedule for the band. had to wear the band 1 hour on and then 1 hour off (didn't wear the band for naps and night time). The next day, wore his band 2 hours on then 1 hour off. 4th day 4 hours on 1 hour off. By the 5th day he wore the helmet 23 hours. It gives the baby time to adjust to the heat of the band. I hope someone with the Hanger band will chime in. But, it does take time for them to not perspire as much. still perspires slightly during the day. I take his band off in the AM to change him (and then it is right back on) He has his band off for the hour at night for his tub. The perspiring does get better. One important thing is, if Jaxon has a slight fever he does NOT wear the band. The helmet can make the temperature rise very fast and to dangerous proportions. Otherwise, just look for red spots. If the don't go away in an hour, he will need a fitting. I wish you and your family the best and may God Bless you! Krissy ph's mom Starband 4/28/04 Palm Harbor, FL On Jul 30, 2004, at 5:15 PM, wrote: > Hey all, today we just got our 10 month old son, Jaxon, his hanger > helmet. We have some serious questions if anyone has answers. > First the Hanger guy said the helmet would be wobbely for a awhile > and move around. Is this correct because we constantly have to move > it a bit. Any tips for the sweeting? Is there any other general > information you may have?- Jaxons pictures are under Jaxon in our > plagio folder. Also, you can put a finger in between the helmet and > his head- is that ok? The Hanger guy is awesome but parent > advice/experience is always better I think. Anyway any > comments/suggestions really help- Thanks to all and God Bless > > > P.S. Judgeing by his pictures do you guys think his case is > moderate, light or severe? Thanks again all > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 , Well it depends. If I remember correctly the Hanger band is active which means you go in every week or so for adjustments. So, if it's passive ignore all of this. A little movement is normal especially in the beginning, more than 1/2 - 1" would be cause to discuss with ortho. Being able to put a finger between the helmet and Jaxon's head is either ok or not ok. It depends where the space is. If it's over the flat area that needs to fill in it's perfectly acceptable. If it's over a bulging area that you don't want to get bigger than that is a bad fit. Can you post a picture of Jaxon in his helmet? It makes it easier to see exactly what you are concerned about. Now for sweating - oh my - it's summertime so it will be difficult. Babies do adjust but it takes a few days. Dress him in less even if that means just a diaper. Keep him in a/c. Take the helmet off frequently to dry it and his head. Turn the a/c down to a lower temperature for a few days. If you don't have a/c try an occilating fan in his room and/or play area. If it doesn't occilate don't place it to blow directly on him - you don't want him to get chilled. On CT's website they talk about car seats. Keep an ice pack in a cooler in the car. Put the ice pack in the car seat and cover with a light blanket when you reach your destination to keep the seat cool. If you aren't able to keep the seat cool then take his helmet off for short trips or until the car cools down for longer trips. HTH mom to na DOC Grad <travisdgumm@...> wrote: Hey all, today we just got our 10 month old son, Jaxon, his hanger helmet. We have some serious questions if anyone has answers. First the Hanger guy said the helmet would be wobbely for a awhile and move around. Is this correct because we constantly have to move it a bit. Any tips for the sweeting? Is there any other general information you may have?- Jaxons pictures are under Jaxon in our plagio folder. Also, you can put a finger in between the helmet and his head- is that ok? The Hanger guy is awesome but parent advice/experience is always better I think. Anyway any comments/suggestions really help- Thanks to all and God BlessP.S. Judgeing by his pictures do you guys think his case is moderate, light or severe? Thanks again all For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Thanks so much I will post pictures of Jaxon and his helmet tomarrow- We are suppossed to go in every 2 weeks but are going in on Monday (just to make sure) His ears are a little out of alighnment so the helmet knida brushes one of them- Ill post pictures tomarrow- Let me know Thanks again -- In Plagiocephaly , Filyaw <monicash@y...> wrote: > , > > Well it depends. If I remember correctly the Hanger band is active which means you go in every week or so for adjustments. So, if it's passive ignore all of this. A little movement is normal especially in the beginning, more than 1/2 - 1 " would be cause to discuss with ortho. Being able to put a finger between the helmet and Jaxon's head is either ok or not ok. It depends where the space is. If it's over the flat area that needs to fill in it's perfectly acceptable. If it's over a bulging area that you don't want to get bigger than that is a bad fit. Can you post a picture of Jaxon in his helmet? It makes it easier to see exactly what you are concerned about. > > Now for sweating - oh my - it's summertime so it will be difficult. Babies do adjust but it takes a few days. Dress him in less even if that means just a diaper. Keep him in a/c. Take the helmet off frequently to dry it and his head. Turn the a/c down to a lower temperature for a few days. If you don't have a/c try an occilating fan in his room and/or play area. If it doesn't occilate don't place it to blow directly on him - you don't want him to get chilled. On CT's website they talk about car seats. Keep an ice pack in a cooler in the car. Put the ice pack in the car seat and cover with a light blanket when you reach your destination to keep the seat cool. If you aren't able to keep the seat cool then take his helmet off for short trips or until the car cools down for longer trips. > > HTH > > > > mom to na > DOC Grad > > > <travisdgumm@y...> wrote: > Hey all, today we just got our 10 month old son, Jaxon, his hanger > helmet. We have some serious questions if anyone has answers. > First the Hanger guy said the helmet would be wobbely for a awhile > and move around. Is this correct because we constantly have to move > it a bit. Any tips for the sweeting? Is there any other general > information you may have?- Jaxons pictures are under Jaxon in our > plagio folder. Also, you can put a finger in between the helmet and > his head- is that ok? The Hanger guy is awesome but parent > advice/experience is always better I think. Anyway any > comments/suggestions really help- Thanks to all and God Bless > > > P.S. Judgeing by his pictures do you guys think his case is > moderate, light or severe? Thanks again all > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 1.just because we are indigent I was holding a sign part of the antiwarmovement suffing from mold living in HUD Housing Mold. I fought for and Indigent fund, got it? in the state of Florida Yet no Justice here I agree, all anyone has to offer is broken promises and dreams. 2.a private Attorney and I fear a Pro-Bono Attorney in the state this occured in would be paid off as was the Court Appointed Attorney was,his reward was Assistant D.A.in a nearby County less then 2 wks.after my husbands trial. I agree it happen to me today only I don't know who sent me the mediator but I feel it may have been the Attorney.Something in the milk ant clean he spent more time with the Defendant than me? they just wanted me to talk the woman that bought the place after I moved I went to worn her about the Mold she just bought. She started to calling me but after the 3rd time of talking with her she no longer had a thing to say? but today he brought her up That she will speak for him? I feel this was a set up this is his email address???? don@... <don@...> oh how the defendant lied I was saying with my body I will go to court Attorney or not. Brad you are a reporter that lived there as well also the Attorney from legal aid and the X president of the NAACP here is where I need the person that give me his phone# and that's mail house gov, Conyers.with out their help they will win it seem I stand alone. Mobuhl I hope you can fine help here and a little peace of mine this is why I can't give up there are to many me's out there.like and Francies in Canada. so much shame in this old cold world we must keep our chin up and hope for the best, they know every trick in the book and we have no protection.therefore we are just pounds in their sick game but as they say what come's around goes. they must remember others are watching thank God for the internet my problem is with mold & Toxins and a false arrest. Elvira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Hiya Viv I concur, he has an infection, they need to take a swab to check wether it is a resistant strain and if so which it may be resistant to. When I had my CWD I reacted to the iodine in the packing which gave me a nasty infection that took awhile to clear and involved hanging upside down for 10mins each time I applied the antibiotic. GP's seldom have the specialist knowledge bout what is still an uncommon condition, go back to ENT. Big hugs hang in there kiddo June > > My son had his 4th op on the 20th Dec.He has packing in and it stinks > like somethink has died in it. GP has swobbed it but we won't know for > a few days what it is.The discharge has gone from a clear and watery > to thick yellow-green. I have rung the hospital that did the op, they > have told us that the packing can smell.His ear is sticking out it > wasn't a few days before the smell.To me it smells like roting > meat.They have put him Antibiotics {it's day 3 no change}. > Please can anyone help us? > Brice is 10 years old and has had 4 major op's and 5 to change > dressing in the last 18 months > > Viv > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Hi Viv, Did you report the protruding of the ear to the Doctor? Very important to do so-this could be a sign of something serious. Please keep us posted - my son now 11 underwent 4 surgeries for his c-toma. We'll keep you in our prayers. Tom's Momboudiccamk2 <boudiccamk2@...> wrote: Hiya VivI concur, he has an infection, they need to take a swab to check wether it is a resistant strain and if so which it may be resistant to. When I had my CWD I reacted to the iodine in the packing which gave me a nasty infection that took awhile to clear and involved hanging upside down for 10mins each time I applied the antibiotic. GP's seldom have the specialist knowledge bout what is still an uncommon condition, go back to ENT.Big hugs hang in there kiddoJune>> My son had his 4th op on the 20th Dec.He has packing in and it stinks > like somethink has died in it. GP has swobbed it but we won't know for > a few days what it is.The discharge has gone from a clear and watery > to thick yellow-green. I have rung the hospital that did the op, they > have told us that the packing can smell.His ear is sticking out it > wasn't a few days before the smell.To me it smells like roting > meat.They have put him Antibiotics {it's day 3 no change}.> Please can anyone help us? > Brice is 10 years old and has had 4 major op's and 5 to change > dressing in the last 18 months> > Viv> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Hi Viv, Did you report the protruding of the ear to the Doctor? Very important to do so-this could be a sign of something serious. Please keep us posted - my son now 11 underwent 4 surgeries for his c-toma. We'll keep you in our prayers. Tom's Momboudiccamk2 <boudiccamk2@...> wrote: Hiya VivI concur, he has an infection, they need to take a swab to check wether it is a resistant strain and if so which it may be resistant to. When I had my CWD I reacted to the iodine in the packing which gave me a nasty infection that took awhile to clear and involved hanging upside down for 10mins each time I applied the antibiotic. GP's seldom have the specialist knowledge bout what is still an uncommon condition, go back to ENT.Big hugs hang in there kiddoJune>> My son had his 4th op on the 20th Dec.He has packing in and it stinks > like somethink has died in it. GP has swobbed it but we won't know for > a few days what it is.The discharge has gone from a clear and watery > to thick yellow-green. I have rung the hospital that did the op, they > have told us that the packing can smell.His ear is sticking out it > wasn't a few days before the smell.To me it smells like roting > meat.They have put him Antibiotics {it's day 3 no change}.> Please can anyone help us? > Brice is 10 years old and has had 4 major op's and 5 to change > dressing in the last 18 months> > Viv> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Hello, I have been reading this subject for awhile. My daughter went through the same thing since she was 15. She is now 19 and finally the CT is gone . Yes she lost her hearing in this process but we still have our daughter. If I can mention the dr she went to ,because to us he was a miracle from God..His Name is Dr. Henry Nugyen. He is located next to Crestwood Hospital. The building number is 333. I hope all lgoes well for yall. Please keep us updated... Thank You ,sunni > > Yes The Doctors know they don't seem as worried as us. > The swab came back as a golden staph strain they changed the > antibotics.The Doctors from the Hospital are in touch with his GP,so > we just have wait it out.I just don't know how long I should wait. > Thank you for your prayers. > I just have my Fingers crossed it will be ok AGAIN > > VIV > > > > > > > My son had his 4th op on the 20th Dec.He has packing in and it > > stinks > > > like somethink has died in it. GP has swobbed it but we won't > know > > for > > > a few days what it is.The discharge has gone from a clear and > watery > > > to thick yellow-green. I have rung the hospital that did the op, > > they > > > have told us that the packing can smell.His ear is sticking out > it > > > wasn't a few days before the smell.To me it smells like roting > > > meat.They have put him Antibiotics {it's day 3 no change}. > > > Please can anyone help us? > > > Brice is 10 years old and has had 4 major op's and 5 to change > > > dressing in the last 18 months > > > > > > Viv > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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