immune supressor worst thing for mold victims

[Guest guest]

Barb

My mcs began after extreme mold exposure and a well meaning dr, unsure

why i was gasping for air, and dizzy - giving me prednisone, again,

blocking my immune system. Are you chemically intolerant also? I ve

been pretty housebound since the summer of 2004. Wonder if the steroid

use, or the immune suppression tactic did us in, and should be taught to

Drs to avoid in future. I wonder how Id be now, if I just rested and

let my body battle it. I did go to Shoemaker, but began CSM after Id

gone on and off the prednisone.

barb1283 wrote:

> my illness also started with some medicine that I was put on

> that had a side effect of suppressing my immune syste. It said so

> in insert but wow, they are sooooo long. It gave me a terrible sore

> throat. I told my doctor, he said to just take less, however now

> off of medicine for over a year, I still have throat soreness (I had

> developed Epstein Barr virus), and my stomach was inflamed and

> ulcerated. So that was done by medicine. Ulcers are gone but I

> still have bloating and something I call 'empty stomach belching'.

> I belch like a man. It's awful, so my stomach is messed up also and

> also due to medicine (and reason I probably can't keep the CSM

> down). I try to avoid most medicine now unless I read everything

> and then try small dose first, etc. If I develope something like I

> did, like sore throat, I'm going off of it and like CSM vomiting,

> off of it. I can't afford to take risk, I had cancer last year and

> my health is very fragile.

>

>

> >

> > - my problem too barb, thats why Im leery, and really feel like I

> > need a expert and a total dignoses like Dr. Rea does at EHC, but

> > money doesnt grow on trees. I've aready been through so many

> >

[Guest guest]

, I just don't follow doctor's advice anymore without first

checking everything out myself. They only spend a couple minutes with

you and make so many mistakes. I feel sure my EBV virus was from

taking the medicine. When I told doctor I wanted to stop medicine,

could he put me back on my old medicine instead, because of sore

throat, he looked up some info on medicine and said, refering to my

sore throat and warning on medicine to stop medicine if you get a very

sore throat, ...and I quote " it only has something to do with your

white blood cells. You should be okay. I think you could continue on

it. " Really, that is what a DOCTOR said, don't worry, it just is

affecting your white blood cells. Don't worry, it just is affecting

that part of your system that protects you from EVERYTHING!

--- In , " J. Page " <apage1@...>

wrote:>

> My mcs began after extreme mold exposure and a well meaning dr,

unsure

> why i was gasping for air, and dizzy - giving me prednisone, again,

> blocking my immune system.