Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 I saw Dr. Johanning. I wasn't going to say anything but I think you posted this twice so I will tell about my visit. He is a very respected Mold Researcher. I don't know if he is a treating doctor now. I went to him in 2000 expecting to be treated. I waited 8 months for my appointment. Had the best insurance. Had a very good visit but Dr. Johanning resigned from his position at the NY Environmental Center in Albany several weeks or so after my visit. I was devestated when I called the doctor to get feedback, and found out he resigned. It took me some time to get a report and I had to pay extra for my report. He linked my illness with the mold and said I had systematic fungal disease. He called my local doctors to give suggestions to give me sporanak (spell) but my doctors were afraid. In fact several of them told me it was out of their realm of expertise and were afraid to treat me. Even my asthma doctor said he couldn't help me anymore. Now I am very afraid since I can't afford anything at this point. I saw a doctor recently that was great but it is very expensive to get anything. He did give me an antiobotic recently because I had a serious infection. I called to see how expensive it was and it was 140.00 for 10 pills. Luckily the doctor gave them to me and also sent me a more pills in the mail since they were so expensive. Luckily it helped. > > Looking for any comments and feedback from people who have been to this > Dr. > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Can you tell us how the doctor knew it was systematic fungal disease? These terms are so new to me. What symptoms did you experience? What antibiotic was it that helped. Always good to ask our doctors about different options. Thank you > I saw Dr. Johanning. I wasn't going to say anything > but I think you > posted this twice so I will tell about my visit. > He is a very > respected Mold Researcher. I don't know if he is a > treating doctor > now. I went to him in 2000 expecting to be treated. > I waited 8 > months for my appointment. Had the best insurance. > Had a very good > visit but Dr. Johanning resigned from his position > at the NY > Environmental Center in Albany several weeks or so > after my visit. I > was devestated when I called the doctor to get > feedback, and found > out he resigned. It took me some time to get a > report and I had to > pay extra for my report. He linked my illness with > the mold and said > I had systematic fungal disease. He called my local > doctors to give > suggestions to give me sporanak (spell) but my > doctors were afraid. > In fact several of them told me it was out of their > realm of > expertise and were afraid to treat me. Even my > asthma doctor said > he couldn't help > me anymore. Now I am very afraid since I can't > afford > anything at this point. I saw a doctor recently > that was great but > it is very expensive to get anything. He did give > me an antiobotic > recently because I had a serious infection. I > called to see how > expensive it was and it was 140.00 for 10 pills. > Luckily the doctor > gave them to me and also sent me a more pills in the > mail since they > were so expensive. Luckily it helped. > > > > > > Looking for any comments and feedback from people > who have been to > this > > Dr. > > Thanks! > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Hi , Thanks for your reply. I did post twice because no one responded. I understand he is not in fact retired and I wante dto make an appointment with him mainly to prove causation. What disturbed me was that when I tried to get some idea of what this would cost his office seemed to be less than forthright and I almost had the feeling I was being scammed. I finally had to ask teh questions in such a manner that nothing could be ommitted.There is a high initial visit fee and ( after much questioning) you will apparently be billed another high fee just to get your results and visit with him again. Additionally he charges a high hourly fee for conversing with your lawyer. If you want a report apparently all you will receive are copes of the the doctors notes. All of this of cours is not covered by insurance. I was all excited to make an appointment until it was obvious that his secretary was not being forthright. It really turned me off. I had to literally pull teeth to get some idea of the whole cost. All I wanted to know was what i would be walking into and to get some idea of how to budget for it. In my mind why even begin the process if you can't afford it! The secretary had the nerve to tell me that by my asking the question of costs it wasn't a very good way to start a relationship with the doctor.I just told her I am a very responsible person and I am not going to sign up for something I can't afford to finish because I am that responsible. I told her that she needs to be more forthright. Now, whether this was this particular secretary or whether this is the way this office runs I am not sure. I want the best one out there to prove causation and I don't want to be scammed in the process which is what it felt like. I am hoping this was just a case of a secretary not handling things very well but I don't know. Obviously specialists and expert witnesses etc cost and gone are the days when a Doctor will simply stand up for you on principle alone. This has become quite a profession and one gets paid for it. Thats fine. I just want the best and the most honest and fothright. Does anyone have any suggestions even if perhaps it is another toxicologist knowing that I will most likely be going to court. Your help is greatly appreciated. Beez > > > > Looking for any comments and feedback from people who have been to > this > > Dr. > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Hi Beez, I would check out Dr. Shoemaker. I just read his book. Many on this site have seen him. Sounds like a very compassionate doctor. He is in land. chronicneurotoxins.com He also has proved causation, etc. I wish I had gone to him. > > > > > > Looking for any comments and feedback from people who have been > to > > this > > > Dr. > > > Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 > Looking for any comments and feedback from people who have been to this > Dr. > Thanks! I'm going tomorrow, so I'll let you know...the cover letter and survey that they want you to fill out before you get there indicates that the office visit is $600. The only insurance plan that he accepts officially is MVP Selectcare, which is what I have (luck of the draw). The visit will last an hour and a half and include some blood work, a physical exam, review of your health history and review of any previous blood tests or chest x-rays that you bring with you from the other doctors that you visited (that were clueless...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Hi , Thanks and yes do let me know. The follow up visit will cost you $195 after the test results come back. If you are planning on bringing a lawsuit you may not want to run it through your insurance right away.I look forward to hearing your opinion. You can also email me privately if you prefer. Beez > > > Looking for any comments and feedback from people who have been to > this > > Dr. > > Thanks! > > I'm going tomorrow, so I'll let you know...the cover letter and survey > that they want you to fill out before you get there indicates that the > office visit is $600. The only insurance plan that he accepts > officially is MVP Selectcare, which is what I have (luck of the draw). > > The visit will last an hour and a half and include some blood work, a > physical exam, review of your health history and review of any > previous blood tests or chest x-rays that you bring with you from the > other doctors that you visited (that were clueless...) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 , Where is Dr Johanning located? I hear he only tests and does not treat. Is that true? Of course testing sometimes is so hard to get. barb b --- In , " nippernine09 " <nipper_nine@...> wrote: > > I'm going tomorrow, so I'll let you know...the cover letter and survey > that they want you to fill out before you get there indicates that the Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Hi , he is in Albany New York. > > > > I'm going tomorrow, so I'll let you know...the cover letter and > survey > > that they want you to fill out before you get there indicates that > the > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Well - I was wrong about one part of my initial write-up below, he does not do any blood work. I have to go to a nearby hospital with the two sheets that he gave me for tests that get sent out to specific labs that he uses. It has to be done early in the week, (so I'm going on Monday) so the samples make it to the labs without a weekend in between. My overall assessment of the visit was positive. He is one of the pioneers in the field and was one of the first to make the connection to mycotoxins and health. He does not follow the " Shoemaker Protocol " (which seems to be established and repeatable) so it will be interesting to see what he comes up with to readjust my immune system, which is getting a total whacking from the mycotoxins. I will let you know in a few weeks when I see him again after my test results come back... > > Hi , > Thanks and yes do let me know. The follow up visit will cost you $195 > after the test results come back. > > I'm going tomorrow, so I'll let you know...the cover letter and > survey > > that they want you to fill out before you get there indicates that > the > > office visit is $600. The only insurance plan that he accepts > > officially is MVP Selectcare, which is what I have (luck of the > draw). > > > > The visit will last an hour and a half and include some blood work, > a > > physical exam, review of your health history and review of any > > previous blood tests or chest x-rays that you bring with you from > the > > other doctors that you visited (that were clueless...) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Beez - Interested in your results - Were you happy with what he recommended? Was he able to get you on a treatment program that you improved on, or was it, " well, avoid any spores in the enviroment and have a nice life " ? Thanks, - I see him later this month and just don't want to waste any more time when I could be seeing doctor shoemaker! > Hi , > Thanks and yes do let me know. The follow up visit will cost you $195 > after the test results come back. If you are planning on bringing a > lawsuit you may not want to run it through your insurance right > away.I look forward to hearing your opinion. You can also email me > privately if you prefer. > Beez Quote Link to comment Share on other sites More sharing options...
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