Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Hi , I was thinking about this all weekend. You and Bridgette definately need to take, -"Baby Booklets," with you. Did I ever send one to you.? Its a small booklet made by the SAUK. Also, you should -photocopy the before and after pics on infantilescoliosis.com under the SAUK link. ( If copied on photo paper they really look good.) -Plagiocephaly article by M.C. Hawes -Moe's Article -any other published article on early treatment with serial corrective plaster casts for progressive infantile scoliosis. As far as questions go, You can start with your experience with Nates doc. These docs from the SRS seem to contradict themselves quite a bit, when it comes to this condition. I think I told you once that the pres of the SRS (back in 98/99) told me that the info, and the "before and after pics," that the SAUK distributes were airbrushed. He also stated that he couldnt believe England allowed their orgs to circulate such trash. He said that the effectiveness of casts was a lie, a hoax, and impossible! Thats the mentality we are dealing with here..... Scary huh? Anyway, Bridgette should definately bring , and her before and after x-rays. And the article from their local paper. Also, nevermind... We should talk on the phone today. I will be gone from 11;20 a.m. to 3:30p.m. Call me, or I will call you when I get home. Do you need to make an appt. with the seminar organizers to have some speaking time, or do you just raise your hand? talk soon, HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Theres a question and answer time after the presentation. I asked for time to talk to the doctors directly and she said we could " catch him after " > Hi , > I was thinking about this all weekend. > You and Bridgette definately need to take, > - " Baby Booklets, " with you. Did I ever send one to you.? Its a small > booklet made by the SAUK. > Also, you should > -photocopy the before and after pics on infantilescoliosis.com under the SAUK > link. > ( If copied on photo paper they really look good.) > -Plagiocephaly article by M.C. Hawes > -Moe's Article > -any other published article on early treatment with serial corrective > plaster casts for progressive infantile scoliosis. > > As far as questions go, > You can start with your experience with Nates doc. These docs from the SRS > seem to contradict themselves quite a bit, when it comes to this condition. > I think I told you once that the pres of the SRS (back in 98/99) told me that > the info, and the " before and after pics, " that the SAUK distributes were > airbrushed. He also stated that he couldnt believe England allowed their orgs to > circulate such trash. He said that the effectiveness of casts was a lie, a > hoax, and impossible! > Thats the mentality we are dealing with here..... Scary huh? > > Anyway, Bridgette should definately bring , and her before and after > x-rays. And the article from their local paper. > > Also, nevermind... > We should talk on the phone today. I will be gone from 11;20 a.m. to > 3:30p.m. > > Call me, or I will call you when I get home. > > Do you need to make an appt. with the seminar organizers to have some > speaking time, or do you just raise your hand? > > talk soon, > > HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Thanks Gail, I am so glad that you all have decided to go. I will be contacting later today, about what items/articles to take, etc. As soon as I speak to her, i will e-mail you so we can all get on the same page. Gail, this type of advocacy work can go a long way. Thank you! Ill get in touch with you later. sincerely, HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Jen, Ask any questions you have, we are ALL here to help you. Ask away! Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 HI...I am new to the group and my daughter was just recently diagnosed. I was wondering how to get a copy of this book you referred to. I will greatly appreciate any information you can send. Thanks- Jen > > Hi , > > I was thinking about this all weekend. > > You and Bridgette definately need to take, > > - " Baby Booklets, " with you. Did I ever send one to you.? Its a > small > > booklet made by the SAUK. > > Also, you should > > -photocopy the before and after pics on infantilescoliosis.com > under the SAUK > > link. > > ( If copied on photo paper they really look good.) > > -Plagiocephaly article by M.C. Hawes > > -Moe's Article > > -any other published article on early treatment with serial > corrective > > plaster casts for progressive infantile scoliosis. > > > > As far as questions go, > > You can start with your experience with Nates doc. These docs from > the SRS > > seem to contradict themselves quite a bit, when it comes to this > condition. > > I think I told you once that the pres of the SRS (back in 98/99) > told me that > > the info, and the " before and after pics, " that the SAUK > distributes were > > airbrushed. He also stated that he couldnt believe England allowed > their orgs to > > circulate such trash. He said that the effectiveness of casts was > a lie, a > > hoax, and impossible! > > Thats the mentality we are dealing with here..... Scary huh? > > > > Anyway, Bridgette should definately bring , and her before > and after > > x-rays. And the article from their local paper. > > > > Also, nevermind... > > We should talk on the phone today. I will be gone from 11;20 a.m. > to > > 3:30p.m. > > > > Call me, or I will call you when I get home. > > > > Do you need to make an appt. with the seminar organizers to have > some > > speaking time, or do you just raise your hand? > > > > talk soon, > > > > HRH Quote Link to comment Share on other sites More sharing options...
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