Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 Gail, Let us know how this works out for her If it doesnt help to maintain her, then what it this docs plan? Did he say? just curious, did he say that if the brace doesnt hold, that he would consider plaster as a way to maintain for as long as possible? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Robin, I'm glad Dr. D'Astous feels confident about the brace, and that he said that her curve MAY ACTUALLY be correcting in the brace. I'm sure that makes you feel better, as it would any concerned parent. It is because has such a low degree of curvature, 0 RVAD, and is very flexible that she is in a brace, and not a cast. I am not disputing the reasoning behind this. Common protocol after optimum correction by EDF/POP jackets, is to be molded for a very tight fitting brace like 's. This is only AFTER the spine has grown into a more corrected position, and has been allowed to continue growing in the more corrected position for a significant amount of time.. I will agree that bracing MAY BE effective in maintaining/correcting LOW juvenile curves. I will NOT agree that braces are effective in correcting infants with progressive infantile scoliosis. Robin, I have been doing this for a while and I see the difference between braces. My six year old is wearing a brace like 's, right now. I wasnt there for your conversation in SLC, but I'm suspecting (since youve mentioned it twice), that you think the (mis)information about casts being the only non surgical treatment that can correct progressive infantile scoliosis curves, came from this group. If so, let me point out that we are advocating POP/EDF casts for progressive infantile babies, not juveniles. I try not to quote docs on this group, but even he said that braces can be just as effective as casts for curves like s. Curves like s means low degree of curvatures, 0 RVAD, and very flexible. Not progressive infantile curves. Before it is assumed that CAST is misinforming people, lets point out to all new members that your situation is very different from many on this group. Your child is older, with a lot smaller of a curve. Bottom line, braces will NOT correct a progressive infantile curve. Some well-made braces MAY have the ability to correct a low, 0 RVAD, flexible, juvenile curve such as your daughters. This must be made clear to the rest of the group..Most parents on this group have babies with progressive infantile scoliosis, and only a window of time to be casted. I dont want them to waste any valuable time with ineffective bracing for their baby. Its happened too many times. I hope you get correction from her well made brace. Best of luck to you and HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Robin, I would also like at add that I was told by several Dr.'s that an infant's torso cannot be accurately fitted for a brace, because of the shape of the belly. Therefore bracing was not recommended for my son by any of the 3 Dr.'s I saw in California before going to Utah. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Don't worry Robin, I just wanted to also let parents know that braces are not effective with Infantile Scoliosis. I am so glad that has had good luck with bracing!! Do you know what her RVAD is or was? I am sorry if you are having to repeat yourself, I just can't recall. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 , We are in total agreement. Casting is the way to go for progressive, infantile scoliosis. The misinformation I was talking about was whether casting was the only thing that could bring about correction rather than maintenance in all cases. He disagreed. He felt that bracing can be just as effective IN CERTAIN CASES - but not progressive infantile scoliosis! You had written that the brace has now looks like it can 'maintain her curve'. I felt I had to respond because this particular brace was not designed just to 'maintain' her curve. It is actually designed to improve her curve. Dr. D'Astous said braces can improve curves - not just maintain them - in CERTAIN CASES. 's curve started out at 37-degrees. Out of brace now, it's only 15 degrees. So - yes, now I feel it is low - but I did not feel that 37-degrees was low to begin with. The misinformation I was referring to was NOT that casts are the only non surgical treatment that can correct progressive infantile scoliosis - the misinformation I was referring to WAS that casts correct while braces maintain. That is not true in all cases....according to the doctors in SLC, UT. I asked them several times. Braces CAN correct IN SOME CASES. I did NOT meant to imply that THIS group was misinforming people - I think this group is EXCELLENT at informing people. I just did NOT want the thought that " braces maintain while casts correct " IN ALL CASES to go without comment. Yes, most parents on this group have babies with progressive infantile scoliosis - CASTING is the way to go - but there are some people on this group who have young children with scoliosis - like me. I have not found an equivalent, informative group for the small number of people in my same situation. I agree with you - do not waste time bracing infants with progressive curves! And even casting may be the way to go for juveniles who are progressing in brace - that was certainly going to be our option when we thought was progressing in her brace. I am sorry I was not clear enough on my original post. All I meant say to the small number of people reading these posts that have juveniles with scoliosis is that in some cases, with the right brace, bracing can be corrective and not just maintain. Sincerely, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Crista, Totally agree - bracing is not for infantile scoliosis that is progressing - I'm really sorry I was not clear at what I was saying... All I meant to say was that SOME BRACES CAN CORRECT NOT JUST MAINTAIN IN SOME CASES...NOT in progressive infantile scoliosis. I know there are some people on this site that do not have infants with scoliosis - they have juveniles - I just wanted to let those people know that there are some braces that are designed to correct not just maintain - that casting is not the only option for juveniles to get correction - braces can get correction IN SOME CASES. I'm really sorry again that I wasn't more clear to begin with. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Robin, Thanks for the detailed explanation/opinion. I try and clarify these things whenever possible. My daughter never had EDF casts as an option, and it will effect her for the rest of her life. If I can stop it from happening to someone else, I will... I'm posotive that all new members just got a great education on what we are talking about, and for that I am glad. Thanks Robin...And please continue to keep us updated on all the correction she is going to have! Sincerely, HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 , I don't know for sure what his reasoning was but this is what I was told by 3 different Dr.'s here in California. Our 3rd Dr. said he would cast but I was not comfortable with that because he had never applied an EDF cast on any child and wanted it to also include a leg and an arm! YIKES! ...I would love to talk with you and I know you sent me your # once before can you send it privately to my email again? Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 > Crista, Is this the reason my ortho here locally will not brace my son? ( 10 months) She wouldn't give me a reason only that he was too young. I didn't understand her at the time becuase there were other children in the waiting room that had been braced around the same age as my son. She wasn't very receptive and gave us the wait and see so that's why we are on our way to Erie Shriner's next week. I jsut want another opinion......... > > Robin, > I would also like at add that I was told by several Dr.'s that an infant's > torso cannot be accurately fitted for a brace, because of the shape of the > belly. Therefore bracing was not recommended for my son by any of the 3 Dr.'s I > saw in California before going to Utah. > > > Crista Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.