Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Hi Amber, I have been sending letters to the shows also and have told them about the group and so far I have'nt heard anything I keep sending them every few months I just did it again last month. So does anyone ever get on the chat everytime I check it theres no one there. Have A Happy newYear talk to you soon,Bridgette Update on Zane Hello gals.(i'll get to zane in a second).... whoa! hello.... i am sorry but when i read the update on nate that crap made me sick. absolutly sick. that doctor is an idiot. i cried. seriously. i did.you have the right to your sons rva measurement. that is your freakin right! i had to fight to get my sons rva measurement too.. but after i gave them hell and told them it was my right to know if my sons curve was progressive or not... and i told them i was a reporter for our local news channel they gave me his rva and appologized. hey whatever works.also postural.. they tried to say that zanes was postural and progressive... yeah! highly unlikely that your kid has postural if he isn't doing anything but laying down! Okay looking back 18 years from now wouldn't you want to know that you did everything you could for you kid? and have no regrets because you tried everything that you could. ofcourse.i am absoulutly outraged that the doctor said what he said.. i just don't know what else to say about what a clueless moron he is.Anyway theres not much of an "update" about zane.. is is just that i am in south fla right now visiting family and i looked at a few spine care centers... interesting... they cast infants, but only infants who have congenital????? okay.also, i sent the package the other day and i passed shriners hospital on my way here to visit family and talked with the doc there that recieved his package and he said that on my appointment on jan 12th he will have 3 other docs look at zane and his information and the information that i have provided... but in his opinion he doens't see a problem with casting... so we'll see i guess. i am hopeful!oh, oh ... hehehehehe... i have tickets to see john edwards in march.. does anyone know who he is? probably the moms who are homemakers... oh i also think everyone should send more letters to oprah, montel and i recently sent one to sharon osborn...please please please everyone send a letter! tell them you are not going to accept no for an answer lol....oh, also my hours of operation have changed.. lol ... i am now awake from 2pm-3am... ~Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Amber, I dont mean to sound like a broken record, but make sure the docs at the Shriners are talking about PLASTER casts.. Ive come across many that say that they will cast, then when the child gets out of the O.R., its fiberglass. Just want to make sure you dont go all the way out there for nothing. lets talk soon, heather Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 I Love him too!! Maybe he will do a show about us! LOL , have you checked out Shriners for Nate. I guess I don't know where you are at with him. Are you wanting to cast him? Amber, good job! you go girl!!!! Bridgette, did you see 's photo's? I went on the other infants site and a woman named Sue emailed me about her Baby . 19 months old with Infantile Scoliosis. hmm...I wonder how many more Mom's are out there that don't have any support. Anyways..I told her about our group so hopefully she will join us. The other group has a moderater so you can't really get angry or else it won't be posted and it takes like a week for your post to show up. I will be a nervous wreck with a support group like that!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Im happy to hear about your trip to Shriners. Lets just keep our fingers crossed!! I LOVE JOHN EDWARD!!!! I am so fanatical its frightening!! Heres his site if you want to check it out. http://www.johnedward.net/after_life_.htm Oh...and his shows site... http://www.scifi.com/johnedward/ When are you going?? Wheres it at? Ive never actually been to see him, I watch the show every day though (Its helps that hes so adorable too ) LOL Quote Link to comment Share on other sites More sharing options...
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