[Fwd: Re: Preparing for second AVS]

[Guest guest]

--- Re: Preparing for second AVS

Date: Sun, 15 Feb 2009 10:43:12 +1000

From: Carol Christie <carolch@...>

averagebear88 <averagebear88@...>

References: <gn54v8+epieeGroups>

Thanks so much for your kind words of support.

What happened when you stopped Inspra? How are you now?

Carol

averagebear88 wrote:

>

>

>> Hello all

>> I guess I just want to sound off on how miserable I feel about how

>> things are. I saw Prof/Dr Stowasser at Greenslopes Hospital

>>

> (Brisbane)

>

>> on 18 Dec last year We discussed the option of a second AVS given

>>

> that

>

>> the one done in 2004 was inconclusive. He wanted more tests done so

>>

> I

>

>> was in hospital from 18 Jan to 22 Jan 2009. My dosage of Spiro was

>> down to 12.5 mg per day and the instructions are to cease spiro

>>

> round

>

>> the 20th Feb. Four weeks after that to have a blood test

>>

> (aldo/renin).

>

>> Then I see the dr again on 9 April to decide whether to have the

>>

> AVS.

>

>> He said not to worry if BP goes into The 160's systolic. If into

>> 170's, he would prescribe Minipress 1mg.

>> Trouble is that since being on the low dose of spiro again, I'm

>> feeling really terrible again - backache that goes up my spine,

>> headaches, breathless with minor exertion, weakness especially in

>> legs, mental confusion and fuzziness, inexplicable fatigue and

>>

> general

>

>> debilitation.

>> BP is typically in 150's over 80's.

>> The thinking here re spiro dosage is that less is best. 50mg per day

>> is seen as a high dose.

>> I really feel like I just want take the spiro to give me some

>>

> relief.

>

>> Carol

>>

> Carol...I sympathize with you. I also was instructed to stop my

> Inspra for 6 weeks in order to have testing. I lasted 8 days and

> started it back...like you had to have some relief...not worth it to

> just confirm again the diagnosis....takes too long to get your system

> back under control. If you decide to hang in there....know that you

> are not alone and will have the group members support. Good luck!

> (This site is a good place to vent frustration at this condition)

>

>

>

>

>