Guest guest Posted April 20, 2009 Report Share Posted April 20, 2009 Thanks for the comments and will work on them.I add some responses belowOn Apr 20, 2009, at 12:51 PM, arthur springer wrote:EDITED VERSION .... TEXT BROKEN AND COMMENT OR CHANGE INSERTED AT BREAK Begin forwarded message: From: Clarence Grim <lowerbp2@...>Date: April 20, 2009 9:47:17 AM EDThyperaldosteronism Subject: Latest abstract thanks for all your help.Reply-hyperaldosteronism Delayed Diagnosis of Primary Aldosteronism-help from the Web: a support group for patients struggling with the diagnosis and long term management THESE ARE TWO SEPARATE ISSUES. CORRECT THE TITLE TO INCLUDE BOTH OR RE MOVE ALL MATERIAL ON LONG TERM MANAGEMENT. THIS IS VERY CONFUSING TO THE READER. of this common cause of difficult-to-control high blood pressure. HYPHENATE Grim CE, Hall S, V, PEARSON HM and the 500+ members of hyperaldosteronism at REPLACE WITH ACTUAL WEB ADDRESS. CEG: This does not work as you cannot get to hyperaldosteronism without first registering unless you are on the list. Unless this has changed. I used to tell people to go to hyperaldoseronism but it does not work. Primary aldosteronism (PA) is characterized by severe, CUT SEVERE AND STICK WITH DRUG-RESISTANT ALONE. SEVERE ALONE IS INCORRECT. IF YOU INSIST ON INCLUDING THIS IT SHOULD BE MODERATE TO SEVERE. drug-resistant HTNCEG Good (ACEs, ARBs and BB don’t work in PA) and disabling hypokalemia (LoK). JUMPS THE GUN. PLACE LOWER DOWN IN TEXT WHERE IT BELONGS. NOT HERE.CEG: This is to get the attention of the reviewers who select the abstract early as many have not recognized this issue. An online support group organized in 2002 by a single patient grew into a world-wide support group. Many have made the diagnosis (Dx) themselves by searching the web after frustration with their health care team’s failure to recognize the association of LoK and drug resistant HTN . The average patient had seen 5 different Drs before Dx and average duration of poorly DX AND Rxed TRANSLATE INTO ENGLISH ..... DO YOU MEAN TREATED/ MEDICATED? CEG: these were defined earlier and are abstract speak to keep to 250 words. HTN was 10 (range 1-40) PLACE ELSEWHERE ... DONT DISRUPT EVERY SENTENCE WITH A SUPERFLUOUS DETAIL THAT BELONGS SOMEWHERE ELSE. years. Average BP decreased from 212 ± 28/124 ± 23 mm Hg before DX to 131 ± 15/83 ± 12 after Rx: (average spironolactone Rx 60 mg or eplerenone 120/d ). TOO MUCH MEDICAL SHORTHAND ... TRANSLATE CEG: Drs will be reviewing the abstract and will not have a problem I dont think. Based on an analysis of this experience, Dx should be suspected by the complex of drug resistant HTN (93%), 93 PERCENTOF WHAT? AN UNSCIENTIFIC SAMPLE? SAME FOR ALL THE REST OF THE PERCENTS.CEG: this is based on the % of the 28 who have completed the survey. Will add this somewhere. nocturia (75%), muslce cramps/fatigue (60%), and multiple ER visits for a complex of symptoms of headaches, chest pains, muscle cramps, and anxiety with severe CORRECT HTN and LoK (90%)90 PERCENTOF WHAT? Despite the fact that the DASH DEFINE AND CITE REFERENCE diet is a powerful adjunct treatment for aldo/salt HTN TOO MUCH SHORTHAND EXPLAINCEG: Dr talk for models of high blood pressure aldo/salt is one. only 14% FIX had had this recommended, DASH works remarkably well CHANGE TO QUANTIFIABLE STATEMENT AS IN EFFECT OF MEDS ON BP ABOVE in controlling BP, LoK and need for other HTN Rx. NOT CLEAR We invite all caring for difficult HTN EXPLAIN NOT CLEAR to visit hyperaldosteronism at USE ACTUAL WEB ADDRESS NOT THIS. CEG: web address does not help. Need to go to Groups and sigh up. to read SOME OF THE emails and the “Conn's Stories." NO we are certain they will NO THEY MAY recognize some of their own patients and be spurred to Dx and Rx PA TRANSLATE in their own PRACTICES. CEG: good .thanks.. Quote Link to comment Share on other sites More sharing options...
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