[Fwd: Re: Preparing for second AVS]

[Guest guest]

Val

I've just decided to give this up as a bad joke. The process is taking

too long and I can't go on like this. I've started back on 25mg spiro

and will gradually increase it as my body tells me. I'll go to my GP

and get regular tests to monitor potassium levels. In the process I'll

probably sully my relationship with the Greenslopes " experts " , but

this is so much more than hypertension and potassium levels, in my

view. I want to live, not just survive.

I really appreciate your thoughtful contributions here, Val.

Carol

>

> Carol,

>

> What happened to me when I went off spiro for six weeks:

>

> I kept sodium ultra low to keep my BP down.

> My urinary sodium got so low it couldn't be measured.

> Low sodium resulted in somewhat elevated (but still below normal) renin.

> Brilliant doc at Mayo concluded that I couldn't have PA because my

renin was

> too high (erroneous conclusion)

>

> My caution to you: Assuming you control sodium while off spiro, DO NOT

> allow aldosterone/renin tests unless you also have a 24-hour urinary

sodium

> test. Your doc may understand why your renin is somewhat elevated from

> previous tests if you have a low urinary sodium.

>

> I don't understand why they don't just stop the spiro for six weeks

and then

> do the test and get it over with.

>

> Val

>

>

>

<http://geo./serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId

> =13360/stime=1234660029/nc1=3848642/nc2=5202322/nc3=5522125>

>

>

>

>

[Guest guest]

Carol, that's too bad. I was on 150 mg spiro before I went on my break, and

am now on 100 mg spiro. I buy it on the internet to make sure I always have

an adequate supply. If you're going to increase dose, I suggest you

increase until you feel well and your blood pressure is good. I am having

occasional good moments. Last night I danced - for the first time in twenty

years.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of carolch58

Val

I've just decided to give this up as a bad joke. The process is taking

too long and I can't go on like this. I've started back on 25mg spiro

and will gradually increase it as my body tells me. I'll go to my GP

and get regular tests to monitor potassium levels. In the process I'll

probably sully my relationship with the Greenslopes " experts " , but

this is so much more than hypertension and potassium levels, in my

view. I want to live, not just survive.

I really appreciate your thoughtful contributions here, Val.

Carol

>

> Carol,

>

> What happened to me when I went off spiro for six weeks:

>

> I kept sodium ultra low to keep my BP down.

> My urinary sodium got so low it couldn't be measured.

> Low sodium resulted in somewhat elevated (but still below normal) renin.

> Brilliant doc at Mayo concluded that I couldn't have PA because my

renin was

> too high (erroneous conclusion)

>

> My caution to you: Assuming you control sodium while off spiro, DO NOT

> allow aldosterone/renin tests unless you also have a 24-hour urinary

sodium

> test. Your doc may understand why your renin is somewhat elevated from

> previous tests if you have a low urinary sodium.

>

> I don't understand why they don't just stop the spiro for six weeks

and then

> do the test and get it over with.

>

> Val

>

>

[Guest guest]

Also tell your Dr what you are doing and why. Track your BP and body

symptoms so you can show your Dr. (and us) and remember that

DASHing will minimize the need for meds.

On Feb 15, 2009, at 10:35 PM, carolch58 wrote:

> Val

> I've just decided to give this up as a bad joke. The process is taking

> too long and I can't go on like this. I've started back on 25mg spiro

> and will gradually increase it as my body tells me. I'll go to my GP

> and get regular tests to monitor potassium levels. In the process I'll

> probably sully my relationship with the Greenslopes " experts " , but

> this is so much more than hypertension and potassium levels, in my

> view. I want to live, not just survive.

> I really appreciate your thoughtful contributions here, Val.

> Carol

>

>

> >

> > Carol,

> >

> > What happened to me when I went off spiro for six weeks:

> >

> > I kept sodium ultra low to keep my BP down.

> > My urinary sodium got so low it couldn't be measured.

> > Low sodium resulted in somewhat elevated (but still below normal)

> renin.

> > Brilliant doc at Mayo concluded that I couldn't have PA because my

> renin was

> > too high (erroneous conclusion)

> >

> > My caution to you: Assuming you control sodium while off spiro,

> DO NOT

> > allow aldosterone/renin tests unless you also have a 24-hour urinary

> sodium

> > test. Your doc may understand why your renin is somewhat elevated

> from

> > previous tests if you have a low urinary sodium.

> >

> > I don't understand why they don't just stop the spiro for six weeks

> and then

> > do the test and get it over with.

> >

> > Val

> >

> >

> >

> <http://geo./serv?s=97359714/grpId=7299303/

> grpspId=1705132763/msgId

> > =13360/stime=1234660029/nc1=3848642/nc2=5202322/nc3=5522125>

> >

> >

> >

> >