What To Do During An Episode??

[Guest guest]

Thanks for the tip on eating raw spinach. I have already tried it twice when I

was feeling bad, and it did seem to help both times. I am learning the DASH

diet. I also bought a RESPERATE medical device that helps you learn to do deep

breathing, with clinical studies showing it lowers BP (resperate.com). I

started using the device to learn deep breathing even before the PA diagnosis,

and my BP has lowered. Since the PA episodes can make you feel so out of

control, it helps me to have a few things I can do to feel like I still have a

little control. So when I have an episode, I do these things if I can:

- practice deep breathing using the RESPERATE

- eat raw spinach(advice from kwame)

- lay down and listen to a stress relief CD (water falls & waves etc.)

- go outside and let the sun shine on my face (this seems to help)

I would very much like to know what everybody else does to feel better when they

have an episode.

Thanks, Callie

>

> research high potassium foods and get massively into them + low salt - it

helps heaps - I find that a 150 g packet of spinach with a light balsamic

vinegar dressing and a little olive oil is as good as any pill any time

>

>

>

>

> ________________________________

> From: callie.nelle <callie.nelle@...>

> hyperaldosteronism

> Sent: Tuesday, 17 March, 2009 2:07:17 AM

> Subject: My Experience and Starting Spiro Today

>

>

> I am new to this group, and I am grateful that you are here.

>

> I was diagnosed with primary hyperaldosteronism on February 9 after about six

trips to the emergency room with heart attack-like symptoms (sharp pain in the

chest, irregular heart beat, high BP, nausea, tingling in the hands). This

happened over about 18 months time during the highest period of stress of my

lifetime. They never found anything except low potassium and high BP. After the

first trip, they sent me to a cardiologist who put me on BP meds that depleted

potassium and gave me xanax for what he diagnosed as panic attacks. The episodes

just got worse. Finally, I got a primary care physician who sent me to a

nephrologist who diagnosed primary aldosteronism. My aldosterone was 46.8 and

my renin 0.57 (upright). Then I was sent to an endo who did a CT scan and found

nodules on both adrenals.. Since the first of December I have been on 40 meq K

and 25 mg amlodipine for BP. Some time I feel like myself, and sometime I feel

pretty bad.

>

> Today I am supposed to begin taking 25 mg spiro, reduce my K to 10meq and

continue the 25 mg amlodipine. To tell the truth, I am pretty nervous about

stopping the K.

>

> I have always been healthy before this--even had LOW BP for many years and no

primary care doctor. Now, sometimes I feel like I have lost my life. The

hardest part is the exhaustion and not being able to do what I need to do and

want to do. Also, the feeling that my body is out of control is pretty scary.

>

> Thanks for listening.

>

> Callie

>

>

>

>

>

> Stay connected to the people that matter most with a smarter inbox. Take

a look http://au.docs./mail/smarterinbox

>

>

[Guest guest]

Not sure what you mean by " an episode " .

 

a

From: callie.nelle <callie.nelle@...>

Subject: What To Do During An Episode??

hyperaldosteronism

Date: Friday, March 20, 2009, 4:08 PM

Thanks for the tip on eating raw spinach. I have already tried it twice when I

was feeling bad, and it did seem to help both times. I am learning the DASH

diet. I also bought a RESPERATE medical device that helps you learn to do deep

breathing, with clinical studies showing it lowers BP (resperate.com) . I

started using the device to learn deep breathing even before the PA diagnosis,

and my BP has lowered. Since the PA episodes can make you feel so out of

control, it helps me to have a few things I can do to feel like I still have a

little control. So when I have an episode, I do these things if I can:

- practice deep breathing using the RESPERATE

- eat raw spinach(advice from kwame)

- lay down and listen to a stress relief CD (water falls & waves etc.)

- go outside and let the sun shine on my face (this seems to help)

I would very much like to know what everybody else does to feel better when they

have an episode.

Thanks, Callie

>

> research high potassium foods and get massively into them + low salt - it

helps heaps - I find that a 150 g packet of spinach with a light balsamic

vinegar dressing and a little olive oil is as good as any pill any time

>

>

>

>

> ____________ _________ _________ __

> From: callie.nelle <callie.nelle@ ...>

> hyperaldosteronism

> Sent: Tuesday, 17 March, 2009 2:07:17 AM

> Subject: [hyperaldosteronism ] My Experience and Starting Spiro Today

>

>

> I am new to this group, and I am grateful that you are here.

>

> I was diagnosed with primary hyperaldosteronism on February 9 after about six

trips to the emergency room with heart attack-like symptoms (sharp pain in the

chest, irregular heart beat, high BP, nausea, tingling in the hands). This

happened over about 18 months time during the highest period of stress of my

lifetime. They never found anything except low potassium and high BP. After the

first trip, they sent me to a cardiologist who put me on BP meds that depleted

potassium and gave me xanax for what he diagnosed as panic attacks. The episodes

just got worse. Finally, I got a primary care physician who sent me to a

nephrologist who diagnosed primary aldosteronism. My aldosterone was 46.8 and my

renin 0.57 (upright). Then I was sent to an endo who did a CT scan and found

nodules on both adrenals.. Since the first of December I have been on 40 meq K

and 25 mg amlodipine for BP. Some time I feel like myself, and sometime I feel

pretty bad.

>

> Today I am supposed to begin taking 25 mg spiro, reduce my K to 10meq and

continue the 25 mg amlodipine. To tell the truth, I am pretty nervous about

stopping the K.

>

> I have always been healthy before this--even had LOW BP for many years and no

primary care doctor. Now, sometimes I feel like I have lost my life. The hardest

part is the exhaustion and not being able to do what I need to do and want to

do. Also, the feeling that my body is out of control is pretty scary.

>

> Thanks for listening.

>

> Callie

>

>

>

>

>

> Stay connected to the people that matter most with a smarter inbox. Take a

look http://au.docs. / mail/smarterinbo x

>

>

[Guest guest]

Well it is hard to explain. It is not always the same. But generally it

includes a feeling of exhaustion and mental fuzziness. Can also include

shakiness and aches in neck and shoulders. Tightness and pains in my chest.

Before my K was " normalized " it included palpitations. It feels like my body

has forgotten how to work right. I'll be feeling good, and then out of nowhere

it will start, so I call them episodes. They can last for a few hours to days.

I just started spiro, so maybe this will stop soon.

> >

> > research high potassium foods and get massively into them + low salt - it

helps heaps - I find that a 150 g packet of spinach with a light balsamic

vinegar dressing and a little olive oil is as good as any pill any time

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: callie.nelle <callie.nelle@ ...>

> > hyperaldosteronism

> > Sent: Tuesday, 17 March, 2009 2:07:17 AM

> > Subject: [hyperaldosteronism ] My Experience and Starting Spiro Today

> >

> >

> > I am new to this group, and I am grateful that you are here.

> >

> > I was diagnosed with primary hyperaldosteronism on February 9 after about

six trips to the emergency room with heart attack-like symptoms (sharp pain in

the chest, irregular heart beat, high BP, nausea, tingling in the hands). This

happened over about 18 months time during the highest period of stress of my

lifetime. They never found anything except low potassium and high BP. After the

first trip, they sent me to a cardiologist who put me on BP meds that depleted

potassium and gave me xanax for what he diagnosed as panic attacks. The episodes

just got worse. Finally, I got a primary care physician who sent me to a

nephrologist who diagnosed primary aldosteronism. My aldosterone was 46.8 and my

renin 0.57 (upright). Then I was sent to an endo who did a CT scan and found

nodules on both adrenals.. Since the first of December I have been on 40 meq K

and 25 mg amlodipine for BP. Some time I feel like myself, and sometime I feel

pretty bad.

> >

> > Today I am supposed to begin taking 25 mg spiro, reduce my K to 10meq and

continue the 25 mg amlodipine. To tell the truth, I am pretty nervous about

stopping the K.

> >

> > I have always been healthy before this--even had LOW BP for many years and

no primary care doctor. Now, sometimes I feel like I have lost my life. The

hardest part is the exhaustion and not being able to do what I need to do and

want to do. Also, the feeling that my body is out of control is pretty scary.

> >

> > Thanks for listening.

> >

> > Callie

> >

> >

> >

> >

> >

> > Stay connected to the people that matter most with a smarter inbox. Take a

look http://au.docs. / mail/smarterinbo x

> >

> >

[Guest guest]

Do you get cramps in your hands or feet? If so tell us what they

look like or feel like.

How many times a night do you get up to pee?

Have you ever been unable to get out of bed because you are so weak?

Family History of HTN or low K?

On Mar 20, 2009, at 5:55 PM, callie.nelle wrote:

> Well it is hard to explain. It is not always the same. But

> generally it includes a feeling of exhaustion and mental fuzziness.

> Can also include shakiness and aches in neck and shoulders.

> Tightness and pains in my chest. Before my K was " normalized " it

> included palpitations. It feels like my body has forgotten how to

> work right. I'll be feeling good, and then out of nowhere it will

> start, so I call them episodes. They can last for a few hours to

> days. I just started spiro, so maybe this will stop soon.

>

>

> > >

> > > research high potassium foods and get massively into them + low

> salt - it helps heaps - I find that a 150 g packet of spinach with

> a light balsamic vinegar dressing and a little olive oil is as good

> as any pill any time

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: callie.nelle <callie.nelle@ ...>

> > > hyperaldosteronism

> > > Sent: Tuesday, 17 March, 2009 2:07:17 AM

> > > Subject: [hyperaldosteronism ] My Experience and Starting Spiro

> Today

> > >

> > >

> > > I am new to this group, and I am grateful that you are here.

> > >

> > > I was diagnosed with primary hyperaldosteronism on February 9

> after about six trips to the emergency room with heart attack-like

> symptoms (sharp pain in the chest, irregular heart beat, high BP,

> nausea, tingling in the hands). This happened over about 18 months

> time during the highest period of stress of my lifetime. They never

> found anything except low potassium and high BP. After the first

> trip, they sent me to a cardiologist who put me on BP meds that

> depleted potassium and gave me xanax for what he diagnosed as panic

> attacks. The episodes just got worse. Finally, I got a primary care

> physician who sent me to a nephrologist who diagnosed primary

> aldosteronism. My aldosterone was 46.8 and my renin 0.57 (upright).

> Then I was sent to an endo who did a CT scan and found nodules on

> both adrenals.. Since the first of December I have been on 40 meq K

> and 25 mg amlodipine for BP. Some time I feel like myself, and

> sometime I feel pretty bad.

> > >

> > > Today I am supposed to begin taking 25 mg spiro, reduce my K to

> 10meq and continue the 25 mg amlodipine. To tell the truth, I am

> pretty nervous about stopping the K.

> > >

> > > I have always been healthy before this--even had LOW BP for

> many years and no primary care doctor. Now, sometimes I feel like I

> have lost my life. The hardest part is the exhaustion and not being

> able to do what I need to do and want to do. Also, the feeling that

> my body is out of control is pretty scary.

> > >

> > > Thanks for listening.

> > >

> > > Callie

> > >

> > >

> > >

> > >

> > >

> > > Stay connected to the people that matter most with a smarter

> inbox. Take a look http://au.docs. / mail/smarterinbo x

> > >

> > >

[Guest guest]

Recommend you try 8 oz of low sodium V8.

Besides DASHIng which may well stop the attacks.

Keep us posted on your long term effects of Resperate. Not much

data. Doubt it helps much in PA.

CE Grim MD.

On Mar 20, 2009, at 3:08 PM, callie.nelle wrote:

> Thanks for the tip on eating raw spinach. I have already tried it

> twice when I was feeling bad, and it did seem to help both times. I

> am learning the DASH diet. I also bought a RESPERATE medical device

> that helps you learn to do deep breathing, with clinical studies

> showing it lowers BP (resperate.com). I started using the device to

> learn deep breathing even before the PA diagnosis, and my BP has

> lowered. Since the PA episodes can make you feel so out of control,

> it helps me to have a few things I can do to feel like I still have

> a little control. So when I have an episode, I do these things if I

> can:

> - practice deep breathing using the RESPERATE

> - eat raw spinach(advice from kwame)

> - lay down and listen to a stress relief CD (water falls & waves etc.)

> - go outside and let the sun shine on my face (this seems to help)

> I would very much like to know what everybody else does to feel

> better when they have an episode.

> Thanks, Callie

>

>

> >

> > research high potassium foods and get massively into them + low

> salt - it helps heaps - I find that a 150 g packet of spinach with

> a light balsamic vinegar dressing and a little olive oil is as good

> as any pill any time

> >

> >

> >

> >

> > ________________________________

> > From: callie.nelle <callie.nelle@...>

> > hyperaldosteronism

> > Sent: Tuesday, 17 March, 2009 2:07:17 AM

> > Subject: My Experience and Starting Spiro Today

> >

> >

> > I am new to this group, and I am grateful that you are here.

> >

> > I was diagnosed with primary hyperaldosteronism on February 9

> after about six trips to the emergency room with heart attack-like

> symptoms (sharp pain in the chest, irregular heart beat, high BP,

> nausea, tingling in the hands). This happened over about 18 months

> time during the highest period of stress of my lifetime. They never

> found anything except low potassium and high BP. After the first

> trip, they sent me to a cardiologist who put me on BP meds that

> depleted potassium and gave me xanax for what he diagnosed as panic

> attacks. The episodes just got worse. Finally, I got a primary care

> physician who sent me to a nephrologist who diagnosed primary

> aldosteronism. My aldosterone was 46.8 and my renin 0.57 (upright).

> Then I was sent to an endo who did a CT scan and found nodules on

> both adrenals.. Since the first of December I have been on 40 meq K

> and 25 mg amlodipine for BP. Some time I feel like myself, and

> sometime I feel pretty bad.

> >

> > Today I am supposed to begin taking 25 mg spiro, reduce my K to

> 10meq and continue the 25 mg amlodipine. To tell the truth, I am

> pretty nervous about stopping the K.

> >

> > I have always been healthy before this--even had LOW BP for many

> years and no primary care doctor. Now, sometimes I feel like I have

> lost my life. The hardest part is the exhaustion and not being able

> to do what I need to do and want to do. Also, the feeling that my

> body is out of control is pretty scary.

> >

> > Thanks for listening.

> >

> > Callie

> >

> >

> >

> >

> >

> > Stay connected to the people that matter most with a smarter

> inbox. Take a lookhttp://au.docs./mail/smarterinbox

> >

> >

[Guest guest]

Recommend you try 8 oz of low sodium V8.

Besides DASHIng which may well stop the attacks.

Keep us posted on your long term effects of Resperate. Not much

data. Doubt it helps much in PA.

CE Grim MD.

On Mar 20, 2009, at 3:08 PM, callie.nelle wrote:

> Thanks for the tip on eating raw spinach. I have already tried it

> twice when I was feeling bad, and it did seem to help both times. I

> am learning the DASH diet. I also bought a RESPERATE medical device

> that helps you learn to do deep breathing, with clinical studies

> showing it lowers BP (resperate.com). I started using the device to

> learn deep breathing even before the PA diagnosis, and my BP has

> lowered. Since the PA episodes can make you feel so out of control,

> it helps me to have a few things I can do to feel like I still have

> a little control. So when I have an episode, I do these things if I

> can:

> - practice deep breathing using the RESPERATE

> - eat raw spinach(advice from kwame)

> - lay down and listen to a stress relief CD (water falls & waves etc.)

> - go outside and let the sun shine on my face (this seems to help)

> I would very much like to know what everybody else does to feel

> better when they have an episode.

> Thanks, Callie

>

>

> >

> > research high potassium foods and get massively into them + low

> salt - it helps heaps - I find that a 150 g packet of spinach with

> a light balsamic vinegar dressing and a little olive oil is as good

> as any pill any time

> >

> >

> >

> >

> > ________________________________

> > From: callie.nelle <callie.nelle@...>

> > hyperaldosteronism

> > Sent: Tuesday, 17 March, 2009 2:07:17 AM

> > Subject: My Experience and Starting Spiro Today

> >

> >

> > I am new to this group, and I am grateful that you are here.

> >

> > I was diagnosed with primary hyperaldosteronism on February 9

> after about six trips to the emergency room with heart attack-like

> symptoms (sharp pain in the chest, irregular heart beat, high BP,

> nausea, tingling in the hands). This happened over about 18 months

> time during the highest period of stress of my lifetime. They never

> found anything except low potassium and high BP. After the first

> trip, they sent me to a cardiologist who put me on BP meds that

> depleted potassium and gave me xanax for what he diagnosed as panic

> attacks. The episodes just got worse. Finally, I got a primary care

> physician who sent me to a nephrologist who diagnosed primary

> aldosteronism. My aldosterone was 46.8 and my renin 0.57 (upright).

> Then I was sent to an endo who did a CT scan and found nodules on

> both adrenals.. Since the first of December I have been on 40 meq K

> and 25 mg amlodipine for BP. Some time I feel like myself, and

> sometime I feel pretty bad.

> >

> > Today I am supposed to begin taking 25 mg spiro, reduce my K to

> 10meq and continue the 25 mg amlodipine. To tell the truth, I am

> pretty nervous about stopping the K.

> >

> > I have always been healthy before this--even had LOW BP for many

> years and no primary care doctor. Now, sometimes I feel like I have

> lost my life. The hardest part is the exhaustion and not being able

> to do what I need to do and want to do. Also, the feeling that my

> body is out of control is pretty scary.

> >

> > Thanks for listening.

> >

> > Callie

> >

> >

> >

> >

> >

> > Stay connected to the people that matter most with a smarter

> inbox. Take a lookhttp://au.docs./mail/smarterinbox

> >

> >

[Guest guest]

> Well it is hard to explain. It is not always the same. But

> generally it includes a feeling of exhaustion and mental fuzziness.

> Can also include shakiness and aches in neck and shoulders.

> Tightness and pains in my chest. Before my K was " normalized " it

> included palpitations. It feels like my body has forgotten how to

> work right. I'll be feeling good, and then out of nowhere it will

> start, so I call them episodes. They can last for a few hours to

> days. I just started spiro, so maybe this will stop soon.

>

>

> > >

> > > research high potassium foods and get massively into them + low

> salt - it helps heaps - I find that a 150 g packet of spinach with

> a light balsamic vinegar dressing and a little olive oil is as good

> as any pill any time

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: callie.nelle <callie.nelle@ ...>

> > > hyperaldosteronism

> > > Sent: Tuesday, 17 March, 2009 2:07:17 AM

> > > Subject: [hyperaldosteronism ] My Experience and Starting Spiro

> Today

> > >

> > >

> > > I am new to this group, and I am grateful that you are here.

> > >

> > > I was diagnosed with primary hyperaldosteronism on February 9

> after about six trips to the emergency room with heart attack-like

> symptoms (sharp pain in the chest, irregular heart beat, high BP,

> nausea, tingling in the hands). This happened over about 18 months

> time during the highest period of stress of my lifetime. They never

> found anything except low potassium and high BP. After the first

> trip, they sent me to a cardiologist who put me on BP meds that

> depleted potassium and gave me xanax for what he diagnosed as panic

> attacks. The episodes just got worse. Finally, I got a primary care

> physician who sent me to a nephrologist who diagnosed primary

> aldosteronism. My aldosterone was 46.8 and my renin 0.57 (upright).

> Then I was sent to an endo who did a CT scan and found nodules on

> both adrenals.. Since the first of December I have been on 40 meq K

> and 25 mg amlodipine for BP. Some time I feel like myself, and

> sometime I feel pretty bad.

> > >

> > > Today I am supposed to begin taking 25 mg spiro, reduce my K to

> 10meq and continue the 25 mg amlodipine. To tell the truth, I am

> pretty nervous about stopping the K.

> > >

> > > I have always been healthy before this--even had LOW BP for

> many years and no primary care doctor. Now, sometimes I feel like I

> have lost my life. The hardest part is the exhaustion and not being

> able to do what I need to do and want to do. Also, the feeling that

> my body is out of control is pretty scary.

> > >

> > > Thanks for listening.

> > >

> > > Callie

> > >

> > >

> > >

> > >

> > >

> > > Stay connected to the people that matter most with a smarter

> inbox. Take a look http://au.docs. / mail/smarterinbo x

> > >

> > >

[Guest guest]

Getting up more that once a night is not normal. But folks with HTN

esp PA do it more. One of my pts was 14 x a night.

CE Grim MD

On Mar 22, 2009, at 3:13 PM, Callie wrote:

>

>

>

>

> > Well it is hard to explain. It is not always the same. But

> > generally it includes a feeling of exhaustion and mental fuzziness.

> > Can also include shakiness and aches in neck and shoulders.

> > Tightness and pains in my chest. Before my K was " normalized " it

> > included palpitations. It feels like my body has forgotten how to

> > work right. I'll be feeling good, and then out of nowhere it will

> > start, so I call them episodes. They can last for a few hours to

> > days. I just started spiro, so maybe this will stop soon.

> >

> >

> > > >

> > > > research high potassium foods and get massively into them + low

> > salt - it helps heaps - I find that a 150 g packet of spinach with

> > a light balsamic vinegar dressing and a little olive oil is as good

> > as any pill any time

> > > >

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: callie.nelle <callie.nelle@ ...>

> > > > hyperaldosteronism

> > > > Sent: Tuesday, 17 March, 2009 2:07:17 AM

> > > > Subject: [hyperaldosteronism ] My Experience and Starting Spiro

> > Today

> > > >

> > > >

> > > > I am new to this group, and I am grateful that you are here.

> > > >

> > > > I was diagnosed with primary hyperaldosteronism on February 9

> > after about six trips to the emergency room with heart attack-like

> > symptoms (sharp pain in the chest, irregular heart beat, high BP,

> > nausea, tingling in the hands). This happened over about 18 months

> > time during the highest period of stress of my lifetime. They never

> > found anything except low potassium and high BP. After the first

> > trip, they sent me to a cardiologist who put me on BP meds that

> > depleted potassium and gave me xanax for what he diagnosed as panic

> > attacks. The episodes just got worse. Finally, I got a primary care

> > physician who sent me to a nephrologist who diagnosed primary

> > aldosteronism. My aldosterone was 46.8 and my renin 0.57 (upright).

> > Then I was sent to an endo who did a CT scan and found nodules on

> > both adrenals.. Since the first of December I have been on 40 meq K

> > and 25 mg amlodipine for BP. Some time I feel like myself, and

> > sometime I feel pretty bad.

> > > >

> > > > Today I am supposed to begin taking 25 mg spiro, reduce my K to

> > 10meq and continue the 25 mg amlodipine. To tell the truth, I am

> > pretty nervous about stopping the K.

> > > >

> > > > I have always been healthy before this--even had LOW BP for

> > many years and no primary care doctor. Now, sometimes I feel like I

> > have lost my life. The hardest part is the exhaustion and not being

> > able to do what I need to do and want to do. Also, the feeling that

> > my body is out of control is pretty scary.

> > > >

> > > > Thanks for listening.

> > > >

> > > > Callie

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Stay connected to the people that matter most with a smarter

> > inbox. Take a look http://au.docs. / mail/smarterinbo x

> > > >

> > > >