Re: Spironolactone - I am confused

January 31, 2009

It is a specific treatment of excess aldo of any cause.

How much are you on, when was it started and has BP and K and general

state of health gotten better.

Are you DASHing as well which will minimize need for BP meds.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 31, 2009, at 10:49 AM, lmcust wrote:

> It has been a while since I have written in but I am the one that

> has a

> brother with Conn's or he had it. (tumor removed) I have very similar

> symptoms but was told I had Fibromyalgia and/or myofacial pain. I had

> high blood pressure when I was 13 and I have always had spell like

> episodes of waves that I was told was hyperglycemia. My blood pressure

> had been quite eratic and difficult to control. I have seen a

> specialist in Calgary who told me my renin was a bit low and she

> put me

> spironolactone. I don't have any other numbers for you but I will try

> and get them. Is spironolactone used to diagnose Conn's or is it just

> used for general blood pressure lowering? I am a bit confused by it

> all. Any input would be welcomed. Thank you.

>

January 31, 2009

You were going to try to get a more detailed family Hx of age and

causes of death in as much detail as possible. There at 2 forms of

inherited Conn's and one that looks like it except aldo is low-called

Liddle's Syndrome. Responds esp to triampterene and similar drugs.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 31, 2009, at 10:49 AM, lmcust wrote:

> It has been a while since I have written in but I am the one that

> has a

> brother with Conn's or he had it. (tumor removed) I have very similar

> symptoms but was told I had Fibromyalgia and/or myofacial pain. I had

> high blood pressure when I was 13 and I have always had spell like

> episodes of waves that I was told was hyperglycemia. My blood pressure

> had been quite eratic and difficult to control. I have seen a

> specialist in Calgary who told me my renin was a bit low and she

> put me

> spironolactone. I don't have any other numbers for you but I will try

> and get them. Is spironolactone used to diagnose Conn's or is it just

> used for general blood pressure lowering? I am a bit confused by it

> all. Any input would be welcomed. Thank you.

>

January 31, 2009

HI. I think its used to lower BP and also is a very lite potassium sparing

diaretic. I also believe in the hands of the right doctors--due to most not

knowing medications can be used as a tool in helping with a possible diagnosis.

I am not a doctor just giving up my opinions. Hope this helps.

________________________________

From: lmcust <lmcust@...>

hyperaldosteronism

Sent: Saturday, January 31, 2009 10:49:54 AM

Subject: Spironolactone - I am confused

It has been a while since I have written in but I am the one that has a

brother with Conn's or he had it. (tumor removed) I have very similar

symptoms but was told I had Fibromyalgia and/or myofacial pain. I had

high blood pressure when I was 13 and I have always had spell like

episodes of waves that I was told was hyperglycemia. My blood pressure

had been quite eratic and difficult to control. I have seen a

specialist in Calgary who told me my renin was a bit low and she put me

spironolactone. I don't have any other numbers for you but I will try

and get them. Is spironolactone used to diagnose Conn's or is it just

used for general blood pressure lowering? I am a bit confused by it

all. Any input would be welcomed. Thank you.

January 31, 2009

My quick and dirty test is that if u peed out 1+

liters during the test u've got

It. Did they tell u how much u

Peed?

Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jan 31, 2009, at 11:10 AM, Jay Man <jndaqca2009@...> wrote:

> HI. I think its used to lower BP and also is a very lite potassium

> sparing diaretic. I also believe in the hands of the right doctors--

> due to most not knowing medications can be used as a tool in helping

> with a possible diagnosis. I am not a doctor just giving up my

> opinions. Hope this helps.

>

> ________________________________

> From: lmcust <lmcust@...>

> hyperaldosteronism

> Sent: Saturday, January 31, 2009 10:49:54 AM

> Subject: Spironolactone - I am confused

>

> It has been a while since I have written in but I am the one that

> has a

> brother with Conn's or he had it. (tumor removed) I have very similar

> symptoms but was told I had Fibromyalgia and/or myofacial pain. I had

> high blood pressure when I was 13 and I have always had spell like

> episodes of waves that I was told was hyperglycemia. My blood pressure

> had been quite eratic and difficult to control. I have seen a

> specialist in Calgary who told me my renin was a bit low and she put

> me

> spironolactone. I don't have any other numbers for you but I will try

> and get them. Is spironolactone used to diagnose Conn's or is it just

> used for general blood pressure lowering? I am a bit confused by it

> all. Any input would be welcomed. Thank you.

>

January 31, 2009

>

> > HI. I think its used to lower BP and also is a very lite

potassium

> > sparing diaretic. I also believe in the hands of the right

doctors--

> > due to most not knowing medications can be used as a tool in

helping

> > with a possible diagnosis. I am not a doctor just giving up my

> > opinions. Hope this helps.

> >

> > ________________________________

> > From: lmcust <lmcust@...>

> > hyperaldosteronism

> > Sent: Saturday, January 31, 2009 10:49:54 AM

> > Subject: Spironolactone - I am confused

> >

> > It has been a while since I have written in but I am the one

that

> > has a

> > brother with Conn's or he had it. (tumor removed) I have very

similar

> > symptoms but was told I had Fibromyalgia and/or myofacial pain. I

had

> > high blood pressure when I was 13 and I have always had spell like

> > episodes of waves that I was told was hyperglycemia. My blood

pressure

> > had been quite eratic and difficult to control. I have seen a

> > specialist in Calgary who told me my renin was a bit low and she

put

> > me

> > spironolactone. I don't have any other numbers for you but I will

try

> > and get them. Is spironolactone used to diagnose Conn's or is it

just

> > used for general blood pressure lowering? I am a bit confused by

it

> > all. Any input would be welcomed. Thank you.

> >

January 31, 2009

Sounds like a Grim pee test that was +

Keep us posted.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 31, 2009, at 1:32 PM, jndaqca2009 wrote:

>

> >

> > > HI. I think its used to lower BP and also is a very lite

> potassium

> > > sparing diaretic. I also believe in the hands of the right

> doctors--

> > > due to most not knowing medications can be used as a tool in

> helping

> > > with a possible diagnosis. I am not a doctor just giving up my

> > > opinions. Hope this helps.

> > >

> > > ________________________________

> > > From: lmcust <lmcust@...>

> > > hyperaldosteronism

> > > Sent: Saturday, January 31, 2009 10:49:54 AM

> > > Subject: Spironolactone - I am confused

> > >

> > > It has been a while since I have written in but I am the one

> that

> > > has a

> > > brother with Conn's or he had it. (tumor removed) I have very

> similar

> > > symptoms but was told I had Fibromyalgia and/or myofacial pain. I

> had

> > > high blood pressure when I was 13 and I have always had spell like

> > > episodes of waves that I was told was hyperglycemia. My blood

> pressure

> > > had been quite eratic and difficult to control. I have seen a

> > > specialist in Calgary who told me my renin was a bit low and she

> put

> > > me

> > > spironolactone. I don't have any other numbers for you but I will

> try

> > > and get them. Is spironolactone used to diagnose Conn's or is it

> just

> > > used for general blood pressure lowering? I am a bit confused by

> it

> > > all. Any input would be welcomed. Thank you.

> > >

January 31, 2009

Hi. Just an update. The endocrine surgeon I seen a few months back called me

to comment on my tests. She is the one that wants me to go see a regular

endocriniologist after the whole team had a small conference-stated that she

thinks I do not have hyperaldosterone but something else and possible surgey

would not benefit me. She also commented on the protocol of the AVS and said

they follow Young's (Mayo Clinic) reccommendations even though they did not use

ACTH. I guess the successful left side cannulation or other results do not mean

anything to them. I also have to say that its unbelievable that a lab could not

calculate the meds someone is on in interpretating results. How much would

Spironolactone or other meds really add to the values? Can an adenoma be

functioning only like 10% of the time and they have to keep testing to catch

it? I have no idea but I feel that the endo will say that there is nothing

wrong with me and resort to

meds and my symptoms are just in my mind. Talk soon.

________________________________

From: Clarence Grim <lowerbp2@...>

" hyperaldosteronism " <hyperaldosteronism >

Sent: Saturday, January 31, 2009 1:18:47 PM

Subject: Re: Spironolactone - I am confused

My quick and dirty test is that if u peed out 1+

liters during the test u've got

It. Did they tell u how much u

Peed?

Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jan 31, 2009, at 11:10 AM, Jay Man <jndaqca2009@ ..com> wrote:

> HI. I think its used to lower BP and also is a very lite potassium

> sparing diaretic. I also believe in the hands of the right doctors--

> due to most not knowing medications can be used as a tool in helping

> with a possible diagnosis. I am not a doctor just giving up my

> opinions. Hope this helps.

>

> ____________ _________ _________ __

> From: lmcust <lmcust (DOT) com>

> hyperaldosteronism

> Sent: Saturday, January 31, 2009 10:49:54 AM

> Subject: [hyperaldosteronism ] Spironolactone - I am confused

>

> It has been a while since I have written in but I am the one that

> has a

> brother with Conn's or he had it. (tumor removed) I have very similar

> symptoms but was told I had Fibromyalgia and/or myofacial pain. I had

> high blood pressure when I was 13 and I have always had spell like

> episodes of waves that I was told was hyperglycemia. My blood pressure

> had been quite eratic and difficult to control. I have seen a

> specialist in Calgary who told me my renin was a bit low and she put

> me

> spironolactone. I don't have any other numbers for you but I will try

> and get them. Is spironolactone used to diagnose Conn's or is it just

> used for general blood pressure lowering? I am a bit confused by it

> all. Any input would be welcomed. Thank you.

>

January 31, 2009

FYI, I had a successful AVS done at the University of Michigan Hospital and they

do not have you go off ANY medications before the procedure. I don't know if it

affected the results in any way but, per their instructions, I never went off

the spiro. My results are uploaded to the files section of the website under

" AVS " . They were very high, at least to me. Maybe they'd have been higher off

the spiro but it seems it was not necessary to discontinue it.

a

> HI. I think its used to lower BP and also is a very lite potassium

> sparing diaretic. I also believe in the hands of the right doctors--

> due to most not knowing medications can be used as a tool in helping

> with a possible diagnosis. I am not a doctor just giving up my

> opinions. Hope this helps.

>

> ____________ _________ _________ __

> From: lmcust <lmcust (DOT) com>

> hyperaldosteronism

> Sent: Saturday, January 31, 2009 10:49:54 AM

> Subject: [hyperaldosteronism ] Spironolactone - I am confused

>

> It has been a while since I have written in but I am the one that

> has a

> brother with Conn's or he had it. (tumor removed) I have very similar

> symptoms but was told I had Fibromyalgia and/or myofacial pain. I had

> high blood pressure when I was 13 and I have always had spell like

> episodes of waves that I was told was hyperglycemia. My blood pressure

> had been quite eratic and difficult to control. I have seen a

> specialist in Calgary who told me my renin was a bit low and she put

> me

> spironolactone. I don't have any other numbers for you but I will try

> and get them. Is spironolactone used to diagnose Conn's or is it just

> used for general blood pressure lowering? I am a bit confused by it

> all. Any input would be welcomed. Thank you.

>

January 31, 2009

>

> > HI. I think its used to lower BP and also is a very lite

potassium

> > sparing diaretic. I also believe in the hands of the right

doctors--

> > due to most not knowing medications can be used as a tool in

helping

> > with a possible diagnosis. I am not a doctor just giving up my

> > opinions. Hope this helps.

> >

> > ____________ _________ _________ __

> > From: lmcust <lmcust (DOT) com>

> > hyperaldosteronism

> > Sent: Saturday, January 31, 2009 10:49:54 AM

> > Subject: [hyperaldosteronism ] Spironolactone - I am confused

> >

> > It has been a while since I have written in but I am the one that

> > has a

> > brother with Conn's or he had it. (tumor removed) I have very

similar

> > symptoms but was told I had Fibromyalgia and/or myofacial pain. I

had

> > high blood pressure when I was 13 and I have always had spell like

> > episodes of waves that I was told was hyperglycemia. My blood

pressure

> > had been quite eratic and difficult to control. I have seen a

> > specialist in Calgary who told me my renin was a bit low and she

put

> > me

> > spironolactone. I don't have any other numbers for you but I will

try

> > and get them. Is spironolactone used to diagnose Conn's or is it

just

> > used for general blood pressure lowering? I am a bit confused by

it

> > all. Any input would be welcomed. Thank you.

> >

January 31, 2009

You have primary aldo and the question is it on one side or both?

Dr. Young actually uses our ACTH protocol published from Indiana

using ACTH.

Again I am happy to help train your Drs.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 31, 2009, at 5:03 PM, Jay Man wrote:

> Hi. Just an update. The endocrine surgeon I seen a few months

> back called me to comment on my tests. She is the one that wants

> me to go see a regular endocrinologist after the whole team had a

> small conference-stated that she thinks I do not have

> hyperaldosterone but something else and possible surgey would not

> benefit me. She also commented on the protocol of the AVS and said

> they follow Young's (Mayo Clinic) reccommendations even though they

> did not use ACTH. I guess the successful left side cannulation or

> other results do not mean anything to them. I also have to say

> that its unbelievable that a lab could not calculate the meds

> someone is on in interpretating results. How much would

> Spironolactone or other meds really add to the values? Can an

> adenoma be functioning only like 10% of the time and they have to

> keep testing to catch it? I have no idea but I feel that the endo

> will say that there is nothing wrong with me and resort to

> meds and my symptoms are just in my mind. Talk soon.

>

> ________________________________

> From: Clarence Grim <lowerbp2@...>

> " hyperaldosteronism "

> <hyperaldosteronism >

> Sent: Saturday, January 31, 2009 1:18:47 PM

> Subject: Re: Spironolactone - I am confused

>

> My quick and dirty test is that if u peed out 1+

> liters during the test u've got

> It. Did they tell u how much u

> Peed?

>

> Tiped sad Send form mi

> iPhone ;-)

>

> May your pressure be low!

>

> CE Grim MD

> Specializing in Difficult

> Hypertension

>

> On Jan 31, 2009, at 11:10 AM, Jay Man <jndaqca2009@ ..com> wrote:

>

> > HI. I think its used to lower BP and also is a very lite potassium

> > sparing diaretic. I also believe in the hands of the right doctors--

> > due to most not knowing medications can be used as a tool in helping

> > with a possible diagnosis. I am not a doctor just giving up my

> > opinions. Hope this helps.

> >

> > ____________ _________ _________ __

> > From: lmcust <lmcust (DOT) com>

> > hyperaldosteronism

> > Sent: Saturday, January 31, 2009 10:49:54 AM

> > Subject: [hyperaldosteronism ] Spironolactone - I am confused

> >

> > It has been a while since I have written in but I am the one that

> > has a

> > brother with Conn's or he had it. (tumor removed) I have very

> similar

> > symptoms but was told I had Fibromyalgia and/or myofacial pain. I

> had

> > high blood pressure when I was 13 and I have always had spell like

> > episodes of waves that I was told was hyperglycemia. My blood

> pressure

> > had been quite eratic and difficult to control. I have seen a

> > specialist in Calgary who told me my renin was a bit low and she put

> > me

> > spironolactone. I don't have any other numbers for you but I will

> try

> > and get them. Is spironolactone used to diagnose Conn's or is it

> just

> > used for general blood pressure lowering? I am a bit confused by it

> > all. Any input would be welcomed. Thank you.

> >

January 31, 2009

I would like the help just dont think they will accept it so readily.Â The endo

surgeon told me they use young's methods but IÂ have to disagree?Â Whats the

difference between hypoaldo and primary aldo?

Thanks,

________________________________

From: Clarence Grim <lowerbp2@...>

hyperaldosteronism

Sent: Saturday, January 31, 2009 9:01:57 PM

Subject: Re: Spironolactone - I am confused

You have primary aldo and the question is it on one side or both?

Dr. Young actually uses our ACTH protocol published from Indiana

using ACTH.

Again I am happy to help train your Drs.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc. com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 31, 2009, at 5:03 PM, Jay Man wrote:

> Hi. Just an update.. The endocrine surgeon I seen a few months

> back called me to comment on my tests. She is the one that wants

> me to go see a regular endocrinologist after the whole team had a

> small conference-stated that she thinks I do not have

> hyperaldosterone but something else and possible surgey would not

> benefit me. She also commented on the protocol of the AVS and said

> they follow Young's (Mayo Clinic) reccommendations even though they

> did not use ACTH. I guess the successful left side cannulation or

> other results do not mean anything to them. I also have to say

> that its unbelievable that a lab could not calculate the meds

> someone is on in interpretating results. How much would

> Spironolactone or other meds really add to the values? Can an

> adenoma be functioning only like 10% of the time and they have to

> keep testing to catch it? I have no idea but I feel that the endo

> will say that there is nothing wrong with me and resort to

> meds and my symptoms are just in my mind. Talk soon.

>

> ____________ _________ _________ __

> From: Clarence Grim <lowerbp2mac (DOT) com>

> " hyperaldosteronism "

> <hyperaldosteronism>

> Sent: Saturday, January 31, 2009 1:18:47 PM

> Subject: Re: [hyperaldosteronism ] Spironolactone - I am confused

>

> My quick and dirty test is that if u peed out 1+

> liters during the test u've got

> It. Did they tell u how much u

> Peed?

>

> Tiped sad Send form mi

> iPhone ;-)

>

> May your pressure be low!

>

> CE Grim MD

> Specializing in Difficult

> Hypertension

>

> On Jan 31, 2009, at 11:10 AM, Jay Man <jndaqca2009@ ..com> wrote:

>

> > HI. I think its used to lower BP and also is a very lite potassium

> > sparing diaretic. I also believe in the hands of the right doctors--

> > due to most not knowing medications can be used as a tool in helping

> > with a possible diagnosis. I am not a doctor just giving up my

> > opinions. Hope this helps.

> >

> > ____________ _________ _________ __

> > From: lmcust <lmcust (DOT) com>

> > hyperaldosteronism@ groups.. com

> > Sent: Saturday, January 31, 2009 10:49:54 AM

> > Subject: [hyperaldosteronism ] Spironolactone - I am confused

> >

> > It has been a while since I have written in but I am the one that

> > has a

> > brother with Conn's or he had it. (tumor removed) I have very

> similar

> > symptoms but was told I had Fibromyalgia and/or myofacial pain. I

> had

> > high blood pressure when I was 13 and I have always had spell like

> > episodes of waves that I was told was hyperglycemia. My blood

> pressure

> > had been quite eratic and difficult to control. I have seen a

> > specialist in Calgary who told me my renin was a bit low and she put

> > me

> > spironolactone. I don't have any other numbers for you but I will

> try

> > and get them. Is spironolactone used to diagnose Conn's or is it

> just

> > used for general blood pressure lowering? I am a bit confused by it

> > all. Any input would be welcomed. Thank you.

> >

January 31, 2009

Hypo aldo is low aldo with high K and often low BP.

PA has high aldo.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 31, 2009, at 9:24 PM, Jay Man wrote:

> I would like the help just dont think they will accept it so

> readily. The endo surgeon told me they use young's methods but I

> have to disagree? Whats the difference between hypoaldo and

> primary aldo?

> Thanks,

>

> ________________________________

> From: Clarence Grim <lowerbp2@...>

> hyperaldosteronism

> Sent: Saturday, January 31, 2009 9:01:57 PM

> Subject: Re: Spironolactone - I am confused

>

> You have primary aldo and the question is it on one side or both?

>

> Dr. Young actually uses our ACTH protocol published from Indiana

> using ACTH.

>

> Again I am happy to help train your Drs.

>

> May your pressure be low!

>

> ï¿¼

>

> CE Grim BS, MS, MD

>

> High Blood Pressure Consulting

>

> Senior Consultant to Shared Care Research and Education Consulting

> Inc.(sharedcareinc. com)

>

> Clinical Professor of Internal Medicine Medical and Cardiology

> Medical College of Wisconsin

>

> Board certified in Internal Med, Geriatrics and Hypertension.

>

> Interests:

> 1. Difficult to control high blood pressure.

> 2. The effect of recent evolutionary forces on high blood pressure

> in human populations.

> 3. Improving blood pressure measurement in the office and out.

>

> On Jan 31, 2009, at 5:03 PM, Jay Man wrote:

>

> > Hi. Just an update.. The endocrine surgeon I seen a few months

> > back called me to comment on my tests. She is the one that wants

> > me to go see a regular endocrinologist after the whole team had a

> > small conference-stated that she thinks I do not have

> > hyperaldosterone but something else and possible surgey would not

> > benefit me. She also commented on the protocol of the AVS and said

> > they follow Young's (Mayo Clinic) reccommendations even though they

> > did not use ACTH. I guess the successful left side cannulation or

> > other results do not mean anything to them. I also have to say

> > that its unbelievable that a lab could not calculate the meds

> > someone is on in interpretating results. How much would

> > Spironolactone or other meds really add to the values? Can an

> > adenoma be functioning only like 10% of the time and they have to

> > keep testing to catch it? I have no idea but I feel that the endo

> > will say that there is nothing wrong with me and resort to

> > meds and my symptoms are just in my mind. Talk soon.

> >

> > ____________ _________ _________ __

> > From: Clarence Grim <lowerbp2mac (DOT) com>

> > " hyperaldosteronism "

> > <hyperaldosteronism>

> > Sent: Saturday, January 31, 2009 1:18:47 PM

> > Subject: Re: [hyperaldosteronism ] Spironolactone - I am confused

> >

> > My quick and dirty test is that if u peed out 1+

> > liters during the test u've got

> > It. Did they tell u how much u

> > Peed?

> >

> > Tiped sad Send form mi

> > iPhone ;-)

> >

> > May your pressure be low!

> >

> > CE Grim MD

> > Specializing in Difficult

> > Hypertension

> >

> > On Jan 31, 2009, at 11:10 AM, Jay Man <jndaqca2009@ ..com>

> wrote:

> >

> > > HI. I think its used to lower BP and also is a very lite potassium

> > > sparing diaretic. I also believe in the hands of the right

> doctors--

> > > due to most not knowing medications can be used as a tool in

> helping

> > > with a possible diagnosis. I am not a doctor just giving up my

> > > opinions. Hope this helps.

> > >

> > > ____________ _________ _________ __

> > > From: lmcust <lmcust (DOT) com>

> > > hyperaldosteronism@ groups.. com

> > > Sent: Saturday, January 31, 2009 10:49:54 AM

> > > Subject: [hyperaldosteronism ] Spironolactone - I am confused

> > >

> > > It has been a while since I have written in but I am the one that

> > > has a

> > > brother with Conn's or he had it. (tumor removed) I have very

> > similar

> > > symptoms but was told I had Fibromyalgia and/or myofacial pain. I

> > had

> > > high blood pressure when I was 13 and I have always had spell like

> > > episodes of waves that I was told was hyperglycemia. My blood

> > pressure

> > > had been quite eratic and difficult to control. I have seen a

> > > specialist in Calgary who told me my renin was a bit low and

> she put

> > > me

> > > spironolactone. I don't have any other numbers for you but I will

> > try

> > > and get them. Is spironolactone used to diagnose Conn's or is it

> > just

> > > used for general blood pressure lowering? I am a bit confused

> by it

> > > all. Any input would be welcomed. Thank you.

> > >

January 31, 2009

Thanks---I usually go to the Mayoclinic website and found it there....it comes

in handy.

________________________________

From: Clarence Grim <lowerbp2@...>

hyperaldosteronism

Sent: Saturday, January 31, 2009 10:10:54 PM

Subject: Re: Spironolactone - I am confused

Hypo aldo is low aldo with high K and often low BP.

PA has high aldo.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc. com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 31, 2009, at 9:24 PM, Jay Man wrote:

> I would like the help just dont think they will accept it so

> readily. The endo surgeon told me they use young's methods but I

> have to disagree? Whats the difference between hypoaldo and

> primary aldo?

> Thanks,

>

> ____________ _________ _________ __

> From: Clarence Grim <lowerbp2mac (DOT) com>

> hyperaldosteronism

> Sent: Saturday, January 31, 2009 9:01:57 PM

> Subject: Re: [hyperaldosteronism ] Spironolactone - I am confused

>

> You have primary aldo and the question is it on one side or both?

>

> Dr. Young actually uses our ACTH protocol published from Indiana

> using ACTH.

>

> Again I am happy to help train your Drs.

>

> May your pressure be low!

>

> ï¿¼

>

> CE Grim BS, MS, MD

>

> High Blood Pressure Consulting

>

> Senior Consultant to Shared Care Research and Education Consulting

> Inc.(sharedcareinc. com)

>

> Clinical Professor of Internal Medicine Medical and Cardiology

> Medical College of Wisconsin

>

> Board certified in Internal Med, Geriatrics and Hypertension.

>

> Interests:

> 1. Difficult to control high blood pressure.

> 2. The effect of recent evolutionary forces on high blood pressure

> in human populations.

> 3. Improving blood pressure measurement in the office and out.

>

> On Jan 31, 2009, at 5:03 PM, Jay Man wrote:

>

> > Hi. Just an update.. The endocrine surgeon I seen a few months

> > back called me to comment on my tests. She is the one that wants

> > me to go see a regular endocrinologist after the whole team had a

> > small conference-stated that she thinks I do not have

> > hyperaldosterone but something else and possible surgey would not

> > benefit me. She also commented on the protocol of the AVS and said

> > they follow Young's (Mayo Clinic) reccommendations even though they

> > did not use ACTH. I guess the successful left side cannulation or

> > other results do not mean anything to them. I also have to say

> > that its unbelievable that a lab could not calculate the meds

> > someone is on in interpretating results. How much would

> > Spironolactone or other meds really add to the values? Can an

> > adenoma be functioning only like 10% of the time and they have to

> > keep testing to catch it? I have no idea but I feel that the endo

> > will say that there is nothing wrong with me and resort to

> > meds and my symptoms are just in my mind. Talk soon.

> >

> > ____________ _________ _________ __

> > From: Clarence Grim <lowerbp2mac (DOT) com>

> > " hyperaldosteronism "

> > <hyperaldosteronism >

> > Sent: Saturday, January 31, 2009 1:18:47 PM

> > Subject: Re: [hyperaldosteronism ] Spironolactone - I am confused

> >

> > My quick and dirty test is that if u peed out 1+

> > liters during the test u've got

> > It. Did they tell u how much u

> > Peed?

> >

> > Tiped sad Send form mi

> > iPhone ;-)

> >

> > May your pressure be low!

> >

> > CE Grim MD

> > Specializing in Difficult

> > Hypertension

> >

> > On Jan 31, 2009, at 11:10 AM, Jay Man <jndaqca2009@ ..com>

> wrote:

> >

> > > HI. I think its used to lower BP and also is a very lite potassium

> > > sparing diaretic. I also believe in the hands of the right

> doctors--

> > > due to most not knowing medications can be used as a tool in

> helping

> > > with a possible diagnosis. I am not a doctor just giving up my

> > > opinions. Hope this helps.

> > >

> > > ____________ _________ _________ __

> > > From: lmcust <lmcust (DOT) com>

> > > hyperaldosteronism@ groups. . com

> > > Sent: Saturday, January 31, 2009 10:49:54 AM

> > > Subject: [hyperaldosteronism ] Spironolactone - I am confused

> > >

> > > It has been a while since I have written in but I am the one that

> > > has a

> > > brother with Conn's or he had it. (tumor removed) I have very

> > similar

> > > symptoms but was told I had Fibromyalgia and/or myofacial pain. I

> > had

> > > high blood pressure when I was 13 and I have always had spell like

> > > episodes of waves that I was told was hyperglycemia. My blood

> > pressure

> > > had been quite eratic and difficult to control. I have seen a

> > > specialist in Calgary who told me my renin was a bit low and

> she put

> > > me

> > > spironolactone. I don't have any other numbers for you but I will

> > try

> > > and get them. Is spironolactone used to diagnose Conn's or is it

> > just

> > > used for general blood pressure lowering? I am a bit confused

> by it

> > > all. Any input would be welcomed. Thank you.

> > >

January 31, 2009

Spironolactone is used when bp does not respond to standard treatment

using multiple medications. It seems like doctors are turning to Spiro

sooner than in the past. After 15 years of

uncontrolled/uncontrollable HTN with the classic accompanying low

potassium, I finally was seen by a group of astute and competent

doctors. Conn's Syndrome is a tricky little beast that sometimes

mimics other conditions. I guess that's why doctors have such a hard

time recognizing it.

*******************************************************

>

> It has been a while since I have written in but I am the one that has a

> brother with Conn's or he had it. (tumor removed) I have very similar

> symptoms but was told I had Fibromyalgia and/or myofacial pain. I had

> high blood pressure when I was 13 and I have always had spell like

> episodes of waves that I was told was hyperglycemia. My blood pressure

> had been quite eratic and difficult to control. I have seen a

> specialist in Calgary who told me my renin was a bit low and she put me

> spironolactone. I don't have any other numbers for you but I will try

> and get them. Is spironolactone used to diagnose Conn's or is it just

> used for general blood pressure lowering? I am a bit confused by it

> all. Any input would be welcomed. Thank you.

>

January 31, 2009

young's methods involve being off aldo for six weeks. No diff between hyperaldo

and primary aldo.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Jay Man

I would like the help just dont think they will accept it so readily. The endo

surgeon told me they use young's methods but I have to disagree? Whats the

difference between hypoaldo and primary aldo?

Thanks,

February 1, 2009

Most Conn's on this site would be quickly diagnosed by a good medical

student who had read the AHA Hypertension Primer and I recommend all

on our site get it for free (pay shipping) from americanheart.org.

This is a compendium of what all medical students should know about

HTN before they graduate.

Most never read it.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 31, 2009, at 11:06 PM, kappi98 wrote:

> Spironolactone is used when bp does not respond to standard treatment

> using multiple medications. It seems like doctors are turning to Spiro

> sooner than in the past. After 15 years of

> uncontrolled/uncontrollable HTN with the classic accompanying low

> potassium, I finally was seen by a group of astute and competent

> doctors. Conn's Syndrome is a tricky little beast that sometimes

> mimics other conditions. I guess that's why doctors have such a hard

> time recognizing it.

>

> *******************************************************

>

> >

> > It has been a while since I have written in but I am the one that

> has a

> > brother with Conn's or he had it. (tumor removed) I have very

> similar

> > symptoms but was told I had Fibromyalgia and/or myofacial pain. I

> had

> > high blood pressure when I was 13 and I have always had spell like

> > episodes of waves that I was told was hyperglycemia. My blood

> pressure

> > had been quite eratic and difficult to control. I have seen a

> > specialist in Calgary who told me my renin was a bit low and she

> put me

> > spironolactone. I don't have any other numbers for you but I will

> try

> > and get them. Is spironolactone used to diagnose Conn's or is it

> just

> > used for general blood pressure lowering? I am a bit confused by it

> > all. Any input would be welcomed. Thank you.

> >

>

February 1, 2009

They can't be following Mayo Clinic's recommendations if they don't use

ATCH. I think Dr. Grim wrote that, given your left side numbers, he thought

you did get ACTH. The successful left side cannulation doesn't mean

anything without a successful right side. With your renin and aldosterone

values, I don't think there's any question that you have PA. Keep us

informed.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Jay Man

Hi. Just an update. The endocrine surgeon I seen a few months back called

me to comment on my tests. She is the one that wants me to go see a regular

endocriniologist after the whole team had a small conference-stated that she

thinks I do not have hyperaldosterone but something else and possible surgey

would not benefit me. She also commented on the protocol of the AVS and

said they follow Young's (Mayo Clinic) reccommendations even though they did

not use ACTH. I guess the successful left side cannulation or other results

do not mean anything to them. I also have to say that its unbelievable that

a lab could not calculate the meds someone is on in interpretating results.

How much would Spironolactone or other meds really add to the values? Can

an adenoma be functioning only like 10% of the time and they have to keep

testing to catch it? I have no idea but I feel that the endo will say that

there is nothing wrong with me and resort to

meds and my symptoms are just in my mind. Talk soon.

February 1, 2009

I will. I see the endo who makes the decision on what happens this week I

think. I envision another AVS. I was thinking if I had bilaterial

hyperplasia--wouldn't my also and all be higher in my blood tests? Can he make

a decision to remove an adrenal gland like that--just using those values? Just

was thinking about that----I like to guess on what the doctors will do it keeps

my mind off of it--sort of. Talk soon

I ordered the Dash Diet book today from Amazon---

From: Valarie <val@...>

Subject: RE: Spironolactone - I am confused

hyperaldosteronism

Date: Sunday, February 1, 2009, 9:44 PM

They can't be following Mayo Clinic's recommendations if they don't use

ATCH. I think Dr. Grim wrote that, given your left side numbers, he thought

you did get ACTH. The successful left side cannulation doesn't mean

anything without a successful right side. With your renin and aldosterone

values, I don't think there's any question that you have PA. Keep us

informed.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism] On Behalf Of Jay Man