Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Doogie, YES,YES,YES!! I know I've read 2 different storys... from 2 different men on this message board... One I know had surgery, I think he was in his 20's when he had it..so I know it is possible. I hope one of the moderators that have been here for a long time, chime in and point you in the right direction! I don't mean to sound rude,so please don't be offended. Where is your head flat? On the side, in the back? Are you male or female? How old are you? This really floors me... I think it is so messed up that even adults have to suffer through this. I don't understand why the medical communtiy can't get it together and HELP EVERY PLAGIO BABY! If they did, there wouldn't be any adults out there looking for help. I wish you nothing but the best. Welcome to the group... you've found a GREAT place for support the members here are the best! Please keep us posted. ) > I was wondering if there were cranial surgery treaments for adults > with plagiocephaly. I've looked through a vast number of sources > but every one was related to infants or very young children with > cranial abnormalities. I was not lucky enough for my parents to > treat me at a younger age so I'm seeking alternative surgical > treaments now or in the near future. I was wondering if anyone > could provide me with some informational and answer some of my > questions, I've tried medical message boards and WebMD already to no > avail. > > Thanks in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Tony, Hi and welcome! Unfortunately, I do not know much about the procedures of correcting adult plagiocephaly. All I know about this unfortunate condition is what it has done to my child and other children around the world in the last 10 years. I have a 17-month-old son named with plagiocephaly on the right side of his head. He underwent some helmet treatment, but regretfully, we had a passive helmet, not the wonderful bands that many children here have, and we were a little past the optimal time period of which it would have been effective. However, at 17 months, his head has rounded out wonderfully and no one even notices it much anymore. Really I am the only one who notices it. The only thing I'm really worried about now is that since the plagio is still there on my son's right side, baseball caps really don't fit him well. Since he is a boy, I think that and the prospect of sports helmets some day is a valid concern. Also, I have been told my doctors that even if his head doesn't round out completely, he's got such a great happy personality that no one will ever notice. At first that made me happy, but then I got to thinking: Of course he's happy now. He's a baby and he has no concept of his looks. I was wondering if you have suffered emotionally from your head shape? Did you ever get teased or are you self-conscious about it? I am worried about my son in the trying times of his life, such as his teen years, which at 17, I'm sure you know a lot about that. I am worried that my son's "happy disposition" might disappear after being teased a few times and develop a low self-esteem. I was a happy baby too, but once a person's idea of self-image develops, I know how hard it is to get past things when you think people are laughing at your looks. I mean, I had bad hair and crooked teeth and I got teased. Those are things that are easily corrected and I still got teased! I was just interested in your experiences throughout high school and such, and if anyone really noticed your head shape. Thanks for any input you have and good luck in your research. Kellie Olympia, WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Thanks for the quick response. Sorry, I forgot to mention. I'm male, 17. Head is symmetrically flattened in the back (lambdoidal,) forming a trapezoidal shape (smaller infront.) This was probably caused by back sleeping. My parents told me they constantly shifted me to my back because I had a tendency to lean towards one side while I'm asleep, hence my now *flawless* trapezoidal shaped head, but they don't think it's a big deal as it's not very severe and I've never suffered any problems. I guess I'm seeking surgery for purely cosmetic (and psychological) reasons. This probably sounds silly, but I bet I've spent more money on hair cuts than what the surgical procedure will cost to make my head look " normal. " I do believe that the medical community should educate more on positional plagiocephaly, if not for obvious medical concerns, think of what your kids will have to grow up with. I have some fundamental questions and concerns regarding to surgery and the growth of cranium/brain. Anyone have any idea how surgery's done, the risks concerned, the success rate, and do they use... metal plates? Is the brain by any way or form shaped by the structure of the cranium? (ehh.. is my brain a trapezoid too, like my skull?) That would indeed be quite awkward to work with, I think I need to brush up on some anatomy. Any information would help. Thanks a lot!!! Tony > > I was wondering if there were cranial surgery treaments for adults > > with plagiocephaly. I've looked through a vast number of sources > > but every one was related to infants or very young children with > > cranial abnormalities. I was not lucky enough for my parents to > > treat me at a younger age so I'm seeking alternative surgical > > treaments now or in the near future. I was wondering if anyone > > could provide me with some informational and answer some of my > > questions, I've tried medical message boards and WebMD already to > no > > avail. > > > > Thanks in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Hi & welcome to our group: We did have a member from last fall who posted that he rec'd some sort of implants to the flat side of his head. Unfortunately though, I heard recently that he had to have the implants removed for some reason, I cannot remember why. I'll search the archive again to see. Sorry to hear of your predicatment I'm sure it's difficult. Have you discussed any options with any specialists, like a neurosurgeon? Debbie Abby's mom MI Here's the post: From: " jason s " <scubaj357@...> Date: Mon Nov 12, 2001 11:29 pm Subject: Re: S to answer DangerLeigh's Mommy question I am just turned 27 years old and I just had the surgery on July 30 2001. I actually flew back and forth from Phoenix to San Diego to see my specialist. At my age all that could be done was to fabricate an implant that would make my head look more normal. So Basically the surgeon made a nice 6 inch incision in the back of my head. Then he attached the implant with screws that went in to my skull. If I feel my head I can feel the implant. They say it will take a while to settle. All I can say is I can now put on a cap, and IT FITS! You cant imagine waiting 27 years to finally wear a baseball cap. I am open to any and all questions. By the way you can tell your insurence boys to call me. I will get in the ring with them. > I was wondering if there were cranial surgery treaments for adults > with plagiocephaly. I've looked through a vast number of sources > but every one was related to infants or very young children with > cranial abnormalities. I was not lucky enough for my parents to > treat me at a younger age so I'm seeking alternative surgical > treaments now or in the near future. I was wondering if anyone > could provide me with some informational and answer some of my > questions, I've tried medical message boards and WebMD already to no > avail. > > Thanks in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Hello and welcome! I'm sorry to hear of the problems you are experiencing now due to plagio. It further confirms in my mind that treating my baby was the best thing I've ever done. It all fairness to your parents, the kind of helmet/band therapy that our children go through today is very new and probably wasn't even around when you were a baby. It seems as if your concerns are very serious and significant to you. I would highly recommend seeing if you could have a consultation with a neurosurgeon or a cranial-facial specialist if for no other reason then to get some answers to the excellent questions you pose about skull growth and the shape of your brain. Have you noticed any other medical conditions that might be related to the plagio? Best of luck to you and I hope you will stick with our group. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 would you post a picture??? beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Hey where are you from?/? Beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Hi Tony, I am so glad that you have found your way to this group! Although, I don't have any answers for you, I can bet that tonnes of mothers with plagio babies are itching with curiosity to know your experience growing up with plagio. Here you are, potentially, the voice of our children at 17:) It would really help to know what might go through the minds of our sons at your age and when you were growing up. I have an 8 month old baby boy with plagiocephaly on the right side. I don't know how much correction my baby will get because he hasn't gotton the helmet yet (it takes a while). When were you first aware that your head was flattened at the back? Were you really sensitive about it? Any advice for moms and kids who won't receive 100% correction with their helmets? I hope that you find some good information out there. I will keep my eyes peeled. (Kale's mom) > > > I was wondering if there were cranial surgery treaments for > adults > > > with plagiocephaly. I've looked through a vast number of > sources > > > but every one was related to infants or very young children with > > > cranial abnormalities. I was not lucky enough for my parents to > > > treat me at a younger age so I'm seeking alternative surgical > > > treaments now or in the near future. I was wondering if anyone > > > could provide me with some informational and answer some of my > > > questions, I've tried medical message boards and WebMD already > to > > no > > > avail. > > > > > > Thanks in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Ouch! That sounds rather unpleasant. I haven't really discussed with any specialists yet, just wanted some background information on the procedures so I know what to expect. I'll be starting college in the fall and plan to intern during the next four summers (in order to get in grad school,) so I probably won't have the time to surgery. I think I'm planning on getting something done after college or even grad school, I just hope they don't kill too many brain cells in the process, or my 18 years of education will all be for naught. As for the previous person's ('s) post, he mentioned they inserted an implant? Wouldn't that just make his head look bigger? I don't know about his specific case of plagiocephaly, but the flattening of the back of my head caused the whole back side to flatten out, much like a pancake, it flattens as well as enlarges. So do they saw the extra parts off and seal it with metal plates? That would mean I would also need hair implants. Head vs. Hair, I still have plenty of time to decide... Thank you Debbie for taking the time to dig up that post! Best, Tony P.S. I've made a seperate post for Kellie and Marcie regarding to growing up with Plagio and related medical conditions. > > I was wondering if there were cranial surgery treaments for adults > > with plagiocephaly. I've looked through a vast number of sources > > but every one was related to infants or very young children with > > cranial abnormalities. I was not lucky enough for my parents to > > treat me at a younger age so I'm seeking alternative surgical > > treaments now or in the near future. I was wondering if anyone > > could provide me with some informational and answer some of my > > questions, I've tried medical message boards and WebMD already to > no > > avail. > > > > Thanks in advance. Quote Link to comment Share on other sites More sharing options...
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