RE: Questions for Dr. Grim

April 29, 2008

Sounds like a premature atrial contraction. Was pulse irregular at

the same time.

Were the soft ones followed by a booming one? This may happen when

the ventricle does not empty good after a PAC or even a PVC and then

it fills excessively, stretches a lot and this stretch (Starling's

Law) results in a strong and vigorous contraction. Guyton may

explain it better.

On Apr 29, 2008, at 12:08 AM, Valarie wrote:

> I had a vigorous massage Thursday. Prior to that, I was feeling

> pretty good and even popping a few jokes. The massage felt good

> but she did give my middle back a rigorous working over. An hour

> and a half after we got home, I started feeling poorly. DH

> listened to my heart. It wasn't skipping, but every few beats was

> stutter like it couldn't quite beat that one. My eyesight also

> got bad the next day. I was on 150 mg spiro + 25 mg Toprol XL. It

> was starting to feel like a good combination.

>

> Thanks for any information.

> Val

April 29, 2008

Sorry for taking all day to respond. Daughter born on Conn's birthday had knee

surgery and I've been with her all day.

My pulse at the time was regular but a little high (90).

Yes, the soft beats were followed by a booming one. My heart has pounded hard

like that before when I ate salt. Dr. Grim, is this

PA damage?

" Were the soft ones followed by a booming one? This may happen when

the ventricle does not empty good after a PAC or even a PVC and then

it fills excessively, stretches a lot and this stretch (Starling's

Law) results in a strong and vigorous contraction. "

I will have to read Guyton. Right now, I'm just a little freaked out about

everything. (Remember, you confirmed that " freaked out "

is a medical term.)

Overall, I guess I'm slowly improving. The BB has calmed my heart. I was

sitting in recovery with daughter today, feeling pretty

okay and then a sweat came. I got horribly weak, developed the internal tremor,

and then got the anxiety. I believe my heart

stayed even and without skips. We left not too long after and I slept all the

way home. It seems the only way I can sleep is in a

moving car. Just like a baby.

Early morning sweats continue. I still get up too often to urinate. I got an

hypnosis tape and play that when the sweats start and

have gotten a bit more sleep that way. It kinda' subdues the anxiety for a bit.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Sounds like a premature atrial contraction. Was pulse irregular at

the same time.

Were the soft ones followed by a booming one? This may happen when

the ventricle does not empty good after a PAC or even a PVC and then

it fills excessively, stretches a lot and this stretch (Starling's

Law) results in a strong and vigorous contraction. Guyton may

explain it better.

On Apr 29, 2008, at 12:08 AM, Valarie wrote:

> I had a vigorous massage Thursday. Prior to that, I was feeling

> pretty good and even popping a few jokes. The massage felt good

> but she did give my middle back a rigorous working over. An hour

> and a half after we got home, I started feeling poorly. DH

> listened to my heart. It wasn't skipping, but every few beats was

> stutter like it couldn't quite beat that one. My eyesight also

> got bad the next day. I was on 150 mg spiro + 25 mg Toprol XL. It

> was starting to feel like a good combination.

April 29, 2008

When you get up how much do you pass? A few teaspoons or a real

gully washer?

On Apr 29, 2008, at 9:35 PM, Valarie wrote:

> Sorry for taking all day to respond. Daughter born on Conn's

> birthday had knee surgery and I've been with her all day.

>

> My pulse at the time was regular but a little high (90).

>

> Yes, the soft beats were followed by a booming one. My heart has

> pounded hard like that before when I ate salt. Dr. Grim, is this

> PA damage?

>

> Lots of folks have this without having PA. If it goes away with

> spiro or surgery then must have been due to PA.

>

> " Were the soft ones followed by a booming one? This may happen when

> the ventricle does not empty good after a PAC or even a PVC and then

> it fills excessively, stretches a lot and this stretch (Starling's

> Law) results in a strong and vigorous contraction. "

>

> I will have to read Guyton. Right now, I'm just a little freaked

> out about everything. (Remember, you confirmed that " freaked out "

> is a medical term.)

>

> Overall, I guess I'm slowly improving. The BB has calmed my heart.

> I was sitting in recovery with daughter today, feeling pretty

> okay and then a sweat came. I got horribly weak, developed the

> internal tremor, and then got the anxiety. I believe my heart

> stayed even and without skips. We left not too long after and I

> slept all the way home. It seems the only way I can sleep is in a

> moving car. Just like a baby.

>

> Early morning sweats continue. I still get up too often to urinate.

>

> I got an hypnosis tape and play that when the sweats start and

> have gotten a bit more sleep that way. It kinda' subdues the

> anxiety for a bit.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

> Sounds like a premature atrial contraction. Was pulse irregular at

> the same time.

>

> Were the soft ones followed by a booming one? This may happen when

> the ventricle does not empty good after a PAC or even a PVC and then

> it fills excessively, stretches a lot and this stretch (Starling's

> Law) results in a strong and vigorous contraction. Guyton may

> explain it better.

>

> On Apr 29, 2008, at 12:08 AM, Valarie wrote:

>

> > I had a vigorous massage Thursday. Prior to that, I was feeling

> > pretty good and even popping a few jokes. The massage felt good

> > but she did give my middle back a rigorous working over. An hour

> > and a half after we got home, I started feeling poorly. DH

> > listened to my heart. It wasn't skipping, but every few beats was

> > stutter like it couldn't quite beat that one. My eyesight also

> > got bad the next day. I was on 150 mg spiro + 25 mg Toprol XL. It

> > was starting to feel like a good combination.

>

April 30, 2008

No gully washers and no teaspoons. I think its just a normal void (but I'm not

sure anymore what normal is).

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

When you get up how much do you pass? A few teaspoons or a real

gully washer?

On Apr 29, 2008, at 9:35 PM, Valarie wrote:

> Sorry for taking all day to respond. Daughter born on Conn's

> birthday had knee surgery and I've been with her all day.

>

> My pulse at the time was regular but a little high (90).

>

> Yes, the soft beats were followed by a booming one. My heart has

> pounded hard like that before when I ate salt. Dr. Grim, is this

> PA damage?

>

> Lots of folks have this without having PA. If it goes away with

> spiro or surgery then must have been due to PA.

>

> " Were the soft ones followed by a booming one? This may happen when

> the ventricle does not empty good after a PAC or even a PVC and then

> it fills excessively, stretches a lot and this stretch (Starling's

> Law) results in a strong and vigorous contraction. "

>

> I will have to read Guyton. Right now, I'm just a little freaked

> out about everything. (Remember, you confirmed that " freaked out "

> is a medical term.)

>

> Overall, I guess I'm slowly improving. The BB has calmed my heart.

> I was sitting in recovery with daughter today, feeling pretty

> okay and then a sweat came. I got horribly weak, developed the

> internal tremor, and then got the anxiety. I believe my heart

> stayed even and without skips. We left not too long after and I

> slept all the way home. It seems the only way I can sleep is in a

> moving car. Just like a baby.

>

> Early morning sweats continue. I still get up too often to urinate.

>

> I got an hypnosis tape and play that when the sweats start and

> have gotten a bit more sleep that way. It kinda' subdues the

> anxiety for a bit.

>

> Val

>

> From: hyperaldosteronism

<mailto:hyperaldosteronism%40>

> [mailto:hyperaldosteronism

<mailto:hyperaldosteronism%40> ] On Behalf Of Clarence Grim

>

> Sounds like a premature atrial contraction. Was pulse irregular at

> the same time.

>

> Were the soft ones followed by a booming one? This may happen when

> the ventricle does not empty good after a PAC or even a PVC and then

> it fills excessively, stretches a lot and this stretch (Starling's

> Law) results in a strong and vigorous contraction. Guyton may

> explain it better.

>

> On Apr 29, 2008, at 12:08 AM, Valarie wrote:

>

> > I had a vigorous massage Thursday. Prior to that, I was feeling

> > pretty good and even popping a few jokes. The massage felt good

> > but she did give my middle back a rigorous working over. An hour

> > and a half after we got home, I started feeling poorly. DH

> > listened to my heart. It wasn't skipping, but every few beats was

> > stutter like it couldn't quite beat that one. My eyesight also

> > got bad the next day. I was on 150 mg spiro + 25 mg Toprol XL. It

> > was starting to feel like a good combination.

>

April 30, 2008

Can you find a some thing to collect it in to estimate the volume.

PA and HTN tend to put out more urine at night than during thhe day.

On Apr 30, 2008, at 11:46 PM, Valarie wrote:

> No gully washers and no teaspoons. I think its just a normal void

> (but I'm not sure anymore what normal is).

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

> When you get up how much do you pass? A few teaspoons or a real

> gully washer?

>

> On Apr 29, 2008, at 9:35 PM, Valarie wrote:

>

> > Sorry for taking all day to respond. Daughter born on Conn's

> > birthday had knee surgery and I've been with her all day.

> >

> > My pulse at the time was regular but a little high (90).

> >

> > Yes, the soft beats were followed by a booming one. My heart has

> > pounded hard like that before when I ate salt. Dr. Grim, is this

> > PA damage?

> >

>

> > Lots of folks have this without having PA. If it goes away with

> > spiro or surgery then must have been due to PA.

> >

> > " Were the soft ones followed by a booming one? This may happen when

> > the ventricle does not empty good after a PAC or even a PVC and then

> > it fills excessively, stretches a lot and this stretch (Starling's

> > Law) results in a strong and vigorous contraction. "

> >

> > I will have to read Guyton. Right now, I'm just a little freaked

> > out about everything. (Remember, you confirmed that " freaked out "

> > is a medical term.)

> >

> > Overall, I guess I'm slowly improving. The BB has calmed my heart.

> > I was sitting in recovery with daughter today, feeling pretty

> > okay and then a sweat came. I got horribly weak, developed the

> > internal tremor, and then got the anxiety. I believe my heart

> > stayed even and without skips. We left not too long after and I

> > slept all the way home. It seems the only way I can sleep is in a

> > moving car. Just like a baby.

> >

> > Early morning sweats continue. I still get up too often to urinate.

> >

>

> >

>

> > I got an hypnosis tape and play that when the sweats start and

> > have gotten a bit more sleep that way. It kinda' subdues the

> > anxiety for a bit.

> >

> > Val

> >

> > From: hyperaldosteronism

> <mailto:hyperaldosteronism%40>

> > [mailto:hyperaldosteronism

> <mailto:hyperaldosteronism%40> ] On Behalf Of

> Clarence Grim

> >

> > Sounds like a premature atrial contraction. Was pulse irregular at

> > the same time.

> >

> > Were the soft ones followed by a booming one? This may happen when

> > the ventricle does not empty good after a PAC or even a PVC and then

> > it fills excessively, stretches a lot and this stretch (Starling's

> > Law) results in a strong and vigorous contraction. Guyton may

> > explain it better.

> >

> > On Apr 29, 2008, at 12:08 AM, Valarie wrote:

> >

> > > I had a vigorous massage Thursday. Prior to that, I was feeling

> > > pretty good and even popping a few jokes. The massage felt good

> > > but she did give my middle back a rigorous working over. An hour

> > > and a half after we got home, I started feeling poorly. DH

> > > listened to my heart. It wasn't skipping, but every few beats was

> > > stutter like it couldn't quite beat that one. My eyesight also

> > > got bad the next day. I was on 150 mg spiro + 25 mg Toprol XL. It

> > > was starting to feel like a good combination.

> >

April 30, 2008

Yes, I can do that. I was amazed how much I had to gave over after my last 24

hour one. I will break it into two teams - midnight

to noon and noon to the next midnight. I think the first one will win.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Sent: Wednesday, April 30, 2008 10:53 PM

hyperaldosteronism

Subject: Re: Questions for Dr. Grim

Can you find a some thing to collect it in to estimate the volume.

PA and HTN tend to put out more urine at night than during thhe day.

On Apr 30, 2008, at 11:46 PM, Valarie wrote:

> No gully washers and no teaspoons. I think its just a normal void

> (but I'm not sure anymore what normal is).

>

> Val

>

> From: hyperaldosteronism

<mailto:hyperaldosteronism%40>

> [mailto:hyperaldosteronism

<mailto:hyperaldosteronism%40> ] On Behalf Of Clarence Grim

>

> When you get up how much do you pass? A few teaspoons or a real

> gully washer?

>

> On Apr 29, 2008, at 9:35 PM, Valarie wrote:

>

> > Sorry for taking all day to respond. Daughter born on Conn's

> > birthday had knee surgery and I've been with her all day.

> >

> > My pulse at the time was regular but a little high (90).

> >

> > Yes, the soft beats were followed by a booming one. My heart has

> > pounded hard like that before when I ate salt. Dr. Grim, is this

> > PA damage?

> >

>

> > Lots of folks have this without having PA. If it goes away with

> > spiro or surgery then must have been due to PA.

> >

> > " Were the soft ones followed by a booming one? This may happen when

> > the ventricle does not empty good after a PAC or even a PVC and then

> > it fills excessively, stretches a lot and this stretch (Starling's

> > Law) results in a strong and vigorous contraction. "

> >

> > I will have to read Guyton. Right now, I'm just a little freaked

> > out about everything. (Remember, you confirmed that " freaked out "

> > is a medical term.)

> >

> > Overall, I guess I'm slowly improving. The BB has calmed my heart.

> > I was sitting in recovery with daughter today, feeling pretty

> > okay and then a sweat came. I got horribly weak, developed the

> > internal tremor, and then got the anxiety. I believe my heart

> > stayed even and without skips. We left not too long after and I

> > slept all the way home. It seems the only way I can sleep is in a

> > moving car. Just like a baby.

> >

> > Early morning sweats continue. I still get up too often to urinate.

> >

>

> >

>

> > I got an hypnosis tape and play that when the sweats start and

> > have gotten a bit more sleep that way. It kinda' subdues the

> > anxiety for a bit.

> >

> > Val

> >

> > From: hyperaldosteronism

<mailto:hyperaldosteronism%40>

> <mailto:hyperaldosteronism%40>

> > [mailto:hyperaldosteronism

<mailto:hyperaldosteronism%40>

> <mailto:hyperaldosteronism%40> ] On Behalf Of

> Clarence Grim

> >

> > Sounds like a premature atrial contraction. Was pulse irregular at

> > the same time.

> >

> > Were the soft ones followed by a booming one? This may happen when

> > the ventricle does not empty good after a PAC or even a PVC and then

> > it fills excessively, stretches a lot and this stretch (Starling's

> > Law) results in a strong and vigorous contraction. Guyton may

> > explain it better.

> >

> > On Apr 29, 2008, at 12:08 AM, Valarie wrote:

> >

> > > I had a vigorous massage Thursday. Prior to that, I was feeling

> > > pretty good and even popping a few jokes. The massage felt good

> > > but she did give my middle back a rigorous working over. An hour

> > > and a half after we got home, I started feeling poorly. DH

> > > listened to my heart. It wasn't skipping, but every few beats was

> > > stutter like it couldn't quite beat that one. My eyesight also

> > > got bad the next day. I was on 150 mg spiro + 25 mg Toprol XL. It

> > > was starting to feel like a good combination.

May 2, 2008

I collected as follows:

10 p.m. - 10 a.m. - 1400 ml (night)

10 a.m. - 10 p.m. - 800 ml (day)

I think I've fixed myself for right now. For three days, I've been taking 25 mg

of Elavil at 7 p.m., 5 mg Ambien at 9 p.m. and go

to bed about 10:30 p.m. I wake up to urinate usually at around midnight, 2

a.m., 4 a.m., 6 a.m. and 8 a.m.

For the last two nights, I've been able to go back to sleep until the 4 a.m.

wake up which has more sweats. I've been taking 1 mg

Ativan at 4 a.m. and then can sometimes sleep until 6 a.m. At 6 a.m., I play an

hypnosis CD and can go back to sleep until about 8

a.m. I've been horribly sleep deprived so probably will not sleep as much when

I catch up.

Today, I felt almost human. I am more calm. Sleep matters. My BP has been

averaging 126/76/62.

The Toprol XL has definitely decreased my pulse and has stopped the arrhythmia.

The 150 mg spiro has decreased BP but not the night

sweats and nocturia.

I've lost 6.7 lbs since beginning spiro on 3/21/08 (1.12 lb/week). I'm not

eating less (maybe even more) but I'm keeping K at about

3,000 and Na at about 675, plus my K test = 4.8 now as opposed to 3.7 before.

My poor doc. I asked her a week ago to schedule me at Mayo. Today I called to

see about it. She finally called and said she

hadn't gotten to it but would do so promptly on Monday. She told me to call her

at noon on Monday if I didn't hear from her first.

I think she has ADD. Then she muttered something about getting me on something

different for my BP. I don't think she has a clue.

She wanted to know what the shrink said. He said to continue to treat symptoms

until the main problem is brought under control. I

think she was disappointed that he didn't just determine me crazy. She uttered

something about not seeing anyone with PA so anxious

before. I told her about our board posts about anxiety.

What drugs would be acceptable while off spiro? I assume the Toprol is okay but

what else? I don't trust ADD endo too much.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Can you find a some thing to collect it in to estimate the volume.

PA and HTN tend to put out more urine at night than during the day.

On Apr 30, 2008, at 11:46 PM, Valarie wrote:

> No gully washers and no teaspoons. I think its just a normal void

> (but I'm not sure anymore what normal is).

>

> Val

>

> From: hyperaldosteronism

<mailto:hyperaldosteronism%40>

> [mailto:hyperaldosteronism

<mailto:hyperaldosteronism%40> ] On Behalf Of Clarence Grim

>

> When you get up how much do you pass? A few teaspoons or a real

> gully washer?

>

> On Apr 29, 2008, at 9:35 PM, Valarie wrote:

>

> > Sorry for taking all day to respond. Daughter born on Conn's

> > birthday had knee surgery and I've been with her all day.

> >

> > My pulse at the time was regular but a little high (90).

> >

> > Yes, the soft beats were followed by a booming one. My heart has

> > pounded hard like that before when I ate salt. Dr. Grim, is this

> > PA damage?

> >

>

> > Lots of folks have this without having PA. If it goes away with

> > spiro or surgery then must have been due to PA.

> >

> > " Were the soft ones followed by a booming one? This may happen when

> > the ventricle does not empty good after a PAC or even a PVC and then

> > it fills excessively, stretches a lot and this stretch (Starling's

> > Law) results in a strong and vigorous contraction. "

> >

> > I will have to read Guyton. Right now, I'm just a little freaked

> > out about everything. (Remember, you confirmed that " freaked out "

> > is a medical term.)

> >

> > Overall, I guess I'm slowly improving. The BB has calmed my heart.

> > I was sitting in recovery with daughter today, feeling pretty

> > okay and then a sweat came. I got horribly weak, developed the

> > internal tremor, and then got the anxiety. I believe my heart

> > stayed even and without skips. We left not too long after and I

> > slept all the way home. It seems the only way I can sleep is in a

> > moving car. Just like a baby.

> >

> > Early morning sweats continue. I still get up too often to urinate.

> >

>

> >

>

> > I got an hypnosis tape and play that when the sweats start and

> > have gotten a bit more sleep that way. It kinda' subdues the

> > anxiety for a bit.

> >

> > Val

> >

> > From: hyperaldosteronism

<mailto:hyperaldosteronism%40>

> <mailto:hyperaldosteronism%40>

> > [mailto:hyperaldosteronism

<mailto:hyperaldosteronism%40>

> <mailto:hyperaldosteronism%40> ] On Behalf Of

> Clarence Grim

> >

> > Sounds like a premature atrial contraction. Was pulse irregular at

> > the same time.

> >

> > Were the soft ones followed by a booming one? This may happen when

> > the ventricle does not empty good after a PAC or even a PVC and then

> > it fills excessively, stretches a lot and this stretch (Starling's

> > Law) results in a strong and vigorous contraction. Guyton may

> > explain it better.

> >

> > On Apr 29, 2008, at 12:08 AM, Valarie wrote:

> >

> > > I had a vigorous massage Thursday. Prior to that, I was feeling

> > > pretty good and even popping a few jokes. The massage felt good

> > > but she did give my middle back a rigorous working over. An hour

> > > and a half after we got home, I started feeling poorly. DH

> > > listened to my heart. It wasn't skipping, but every few beats was

> > > stutter like it couldn't quite beat that one. My eyesight also

> > > got bad the next day. I was on 150 mg spiro + 25 mg Toprol XL. It

> > > was starting to feel like a good combination.

> >

May 3, 2008

On May 2, 2008, at 11:14 PM, Valarie wrote:

> I collected as follows:

>

> 10 p.m. - 10 a.m. - 1400 ml (night)

> 10 a.m. - 10 p.m. - 800 ml (day)

Classic for HTN especially PA more out at night.

>

> I think I've fixed myself for right now. For three days, I've been

> taking 25 mg of Elavil at 7 p.m., 5 mg Ambien at 9 p.m. and go

> to bed about 10:30 p.m. I wake up to urinate usually at around

> midnight, 2 a.m., 4 a.m., 6 a.m. and 8 a.m.

>

> For the last two nights, I've been able to go back to sleep until

> the 4 a.m. wake up which has more sweats.

Wonder if the volume you pass is greatest when you wake up with the

sweats? Bladder may be distended more.

> I've been taking 1 mg

> Ativan at 4 a.m. and then can sometimes sleep until 6 a.m. At 6

> a.m., I play an hypnosis CD and can go back to sleep until about 8

> a.m. I've been horribly sleep deprived so probably will not sleep

> as much when I catch up.

>

> Today, I felt almost human. I am more calm. Sleep matters. My BP

> has been averaging 126/76/62.

>

> The Toprol XL has definitely decreased my pulse and has stopped the

> arrhythmia. The 150 mg spiro has decreased BP but not the night

> sweats and nocturia.

May need more Spiro.

>

> I've lost 6.7 lbs since beginning spiro on 3/21/08 (1.12 lb/week).

> I'm not eating less (maybe even more) but I'm keeping K at about

> 3,000 and Na at about 675, plus my K test = 4.8 now as opposed to

> 3.7 before.

Excellent work and this one reason you are doing better I suspect.

>

> My poor doc. I asked her a week ago to schedule me at Mayo. Today I

> called to see about it. She finally called and said she

> hadn't gotten to it but would do so promptly on Monday. She told me

> to call her at noon on Monday if I didn't hear from her first.

> I think she has ADD. Then she muttered something about getting me

> on something different for my BP. I don't think she has a clue.

>

> She wanted to know what the shrink said. He said to continue to

> treat symptoms until the main problem is brought under control. I

> think she was disappointed that he didn't just determine me crazy.

> She uttered something about not seeing anyone with PA so anxious

> before. I told her about our board posts about anxiety.

>

> What drugs would be acceptable while off spiro? I assume the Toprol

> is okay but what else? I don't trust ADD endo too much.

I would check with Mayo and see what they recommend before you go.

Would be good to see if they can do AVS at same visit.

Any word from Dr. Weinberger?

>

> Val

May 3, 2008

My comments are in CAPITAL LETTERS (not shouting)

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

On May 2, 2008, at 11:14 PM, Valarie wrote:

> I collected as follows:

> 10 p.m. - 10 a.m. - 1400 ml (night)

> 10 a.m. - 10 p.m. - 800 ml (day)

Classic for HTN especially PA more out at night.

Wonder if the volume you pass is greatest when you wake up with the

sweats? Bladder may be distended more.

I BELIEVE THE VOLUME IS GREATLY INCREASED WHILE HAVING SWEATS. THIS IS A MUCH

SMALLER VOLUME THAN BACK IN JANUARY - 3300 ml THEN

> Today, I felt almost human. I am more calm. Sleep matters. My BP

> has been averaging 126/76/62.

>

> The Toprol XL has definitely decreased my pulse and has stopped the

> arrhythmia. The 150 mg spiro has decreased BP but not the night

> sweats and nocturia.

May need more Spiro.

>

> I've lost 6.7 lbs since beginning spiro on 3/21/08 (1.12 lb/week).

> I'm not eating less (maybe even more) but I'm keeping K at about

> 3,000 and Na at about 675, plus my K test = 4.8 now as opposed to

> 3.7 before.

Excellent work and this one reason you are doing better I suspect.

IT WAS SIMPLY A CHOICE OF GETTING PARALYZED OR EATING LESS SALT. EASY CHOICE.

> What drugs would be acceptable while off spiro? I assume the Toprol

> is okay but what else? I don't trust ADD endo too much.

I would check with Mayo and see what they recommend before you go.

Would be good to see if they can do AVS at same visit.

MY ENTIRE INTENTION IN GOING TO MAYO IS TO HAVE AVS BECAUSE I DON'T TRUST ANYONE

AROUND HERE TO DO IT. IF AN ADENOMA CAN BE

LOCALIZED, I WANT IT OUT. I HAVE THOUGHT LONG AND HARD ABOUT THIS.

Any word from Dr. Weinberger?

NO WORD. I DO INTEND TO SEE HIM REGARDLESS OF WHAT I DO WITH MAYO.

May 3, 2008

On May 3, 2008, at 2:40 PM, Valarie wrote:

> My comments are in CAPITAL LETTERS (not shouting)

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

> On May 2, 2008, at 11:14 PM, Valarie wrote:

>

> > I collected as follows:

>

> > 10 p.m. - 10 a.m. - 1400 ml (night)

> > 10 a.m. - 10 p.m. - 800 ml (day)

>

> Classic for HTN especially PA more out at night.

>

> Wonder if the volume you pass is greatest when you wake up with the

> sweats? Bladder may be distended more.

>

> I BELIEVE THE VOLUME IS GREATLY INCREASED WHILE HAVING SWEATS. THIS

> IS A MUCH SMALLER VOLUME THAN BACK IN JANUARY - 3300 ml THEN

Suspect your bladder is getting very full. Your sleep meds are not

allowing you to wake up and distended bladder is giving you peaks in

BP and sweating.

>

> > Today, I felt almost human. I am more calm. Sleep matters. My BP

> > has been averaging 126/76/62.

> >

> > The Toprol XL has definitely decreased my pulse and has stopped the

> > arrhythmia. The 150 mg spiro has decreased BP but not the night

> > sweats and nocturia.

>

> May need more Spiro.

> >

>

> > I've lost 6.7 lbs since beginning spiro on 3/21/08 (1.12 lb/week).

> > I'm not eating less (maybe even more) but I'm keeping K at about

> > 3,000 and Na at about 675, plus my K test = 4.8 now as opposed to

> > 3.7 before.

>

> Excellent work and this one reason you are doing better I suspect.

>

> IT WAS SIMPLY A CHOICE OF GETTING PARALYZED OR EATING LESS SALT.

> EASY CHOICE.

>

and more :

> > What drugs would be acceptable while off spiro? I assume the Toprol

> > is okay but what else? I don't trust ADD endo too much.

>

> I would check with Mayo and see what they recommend before you go.

> Would be good to see if they can do AVS at same visit.

>

> MY ENTIRE INTENTION IN GOING TO MAYO IS TO HAVE AVS BECAUSE I DON'T

> TRUST ANYONE AROUND HERE TO DO IT. IF AN ADENOMA CAN BE

> LOCALIZED, I WANT IT OUT. I HAVE THOUGHT LONG AND HARD ABOUT THIS.

>

> Any word from Dr. Weinberger?

>

> NO WORD. I DO INTEND TO SEE HIM REGARDLESS OF WHAT I DO WITH MAYO.

May 3, 2008

I'm just not sure. I have the covers off and on all night. I often wake up

cold and have to re-cover only to then have to remove

them again. I'm never awake enough in the night to take BP (that would destroy

the bit of sleep I get anyway). When I am having

sweats during the day, my BP used to go up by 10 - 15 pts but the last few days,

it has not. The sweats overall are less frequent

and less intense so believe they are related to spiro blocking. The last few

days, my BP as barely wavered from 125/75 throughout

each day.

Right now, I simply can't function without Ambien. It seems that Elavil has

leveled out the anxiety a bit too. At some point, I

want off all this stuff but right now, I'm not interested in being brave.

My vision went fuzzy about a week ago and has not improved. It was a sudden

change and came on three days after I started Toprol.

Dave, if you are reading, we're pulling for you.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

On May 3, 2008, at 2:40 PM, Valarie wrote:

> My comments are in CAPITAL LETTERS (not shouting)

>

> Val

>

> From: hyperaldosteronism

<mailto:hyperaldosteronism%40>

> [mailto:hyperaldosteronism

<mailto:hyperaldosteronism%40> ] On Behalf Of Clarence Grim

Suspect your bladder is getting very full. Your sleep meds are not

allowing you to wake up and distended bladder is giving you peaks in

BP and sweating.

May 3, 2008

I'm just not sure. I have the covers off and on all night. I often wake up

cold and have to re-cover only to then have to remove

them again. I'm never awake enough in the night to take BP (that would destroy

the bit of sleep I get anyway). When I am having

sweats during the day, my BP used to go up by 10 - 15 pts but the last few days,

it has not. The sweats overall are less frequent

and less intense so believe they are related to spiro blocking. The last few

days, my BP as barely wavered from 125/75 throughout

each day.

Right now, I simply can't function without Ambien. It seems that Elavil has

leveled out the anxiety a bit too. At some point, I

want off all this stuff but right now, I'm not interested in being brave.

My vision went fuzzy about a week ago and has not improved. It was a sudden

change and came on three days after I started Toprol.

Dave, if you are reading, we're pulling for you.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

On May 3, 2008, at 2:40 PM, Valarie wrote:

> My comments are in CAPITAL LETTERS (not shouting)

>

> Val

>

> From: hyperaldosteronism

<mailto:hyperaldosteronism%40>

> [mailto:hyperaldosteronism

<mailto:hyperaldosteronism%40> ] On Behalf Of Clarence Grim

Suspect your bladder is getting very full. Your sleep meds are not

allowing you to wake up and distended bladder is giving you peaks in

BP and sweating.

May 3, 2008

On May 3, 2008, at 5:11 PM, Valarie wrote:

> I'm just not sure. I have the covers off and on all night. I often

> wake up cold and have to re-cover only to then have to remove

> them again. I'm never awake enough in the night to take BP (that

> would destroy the bit of sleep I get anyway). When I am having

> sweats during the day, my BP used to go up by 10 - 15 pts but the

> last few days, it has not. The sweats overall are less frequent

> and less intense so believe they are related to spiro blocking. The

> last few days, my BP as barely wavered from 125/75 throughout

> each day.

Recommend you try less sleeping meds. What I am suggesting is that

Ambien makes it more difficult for your brain to get the signal that

you bladder is full. When it over fills it causes a SNS discharge

that keeps trying to wake you up and when it finally jacks up the SNS

enough to wake you up you are sweating and have a rapid heart rate

and BP is likely up.

>

> Right now, I simply can't function without Ambien. It seems that

> Elavil has leveled out the anxiety a bit too. At some point, I

> want off all this stuff but right now, I'm not interested in being

> brave.

>

> My vision went fuzzy about a week ago and has not improved. It was

> a sudden change and came on three days after I started Toprol.

I assume they told you that this is one of the side effects of BB.

It blocks the nerves that work on your lens so your lens does focus

as well.

>

> Dave, if you are reading, we're pulling for you.

>

> Val

May 3, 2008

Dr. Grim, I know you're trying to help, but I just can't do that right now. I

am so desperate for sleep. Sometimes, Ambien will

give me four hours of knocked-out sleep. I can't give that up right now.

Shrink tried me on longer-acting sleep meds (Lunesta and

Ambien CR). I still woke up in four hours and then felt hung over several hours

after I got up. The sweats during the day still

are not explained. They come on randomly, usually when I get a little perplexed

or upset; sometimes when I move around. I have very

low tolerance for anything.

At least, with the routine I have now, I can sleep 8 or 9 hours, albeit broken

sleep. That is better than what I've been doing

since September. My anxiety level is considerably lessened since I figured out

how to get through 8 or 9 hours of sleep.

Hell no, she didn't tell me that Toprol would hurt my vision. I trust it is

temporary? Does Zebeta do that too? I need the BB.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Recommend you try less sleeping meds. What I am suggesting is that

Ambien makes it more difficult for your brain to get the signal that

you bladder is full. When it over fills it causes a SNS discharge

that keeps trying to wake you up and when it finally jacks up the SNS

enough to wake you up you are sweating and have a rapid heart rate

and BP is likely up.

I assume they told you that this is one of the side effects of BB.

It blocks the nerves that work on your lens so your lens does focus

as well.

May 3, 2008

All BB may do it in some and it usually passes. What sort of

problems are you having?

On May 3, 2008, at 8:29 PM, Valarie wrote:

> Dr. Grim, I know you're trying to help, but I just can't do that

> right now. I am so desperate for sleep. Sometimes, Ambien will

> give me four hours of knocked-out sleep. I can't give that up right

> now. Shrink tried me on longer-acting sleep meds (Lunesta and

> Ambien CR). I still woke up in four hours and then felt hung over

> several hours after I got up. The sweats during the day still

> are not explained. They come on randomly, usually when I get a

> little perplexed or upset; sometimes when I move around. I have very

> low tolerance for anything.

>

> At least, with the routine I have now, I can sleep 8 or 9 hours,

> albeit broken sleep. That is better than what I've been doing

> since September. My anxiety level is considerably lessened since I

> figured out how to get through 8 or 9 hours of sleep.

>

> Hell no, she didn't tell me that Toprol would hurt my vision. I

> trust it is temporary? Does Zebeta do that too? I need the BB.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

> Recommend you try less sleeping meds. What I am suggesting is that

> Ambien makes it more difficult for your brain to get the signal that

> you bladder is full. When it over fills it causes a SNS discharge

> that keeps trying to wake you up and when it finally jacks up the SNS

> enough to wake you up you are sweating and have a rapid heart rate

> and BP is likely up.

>

> I assume they told you that this is one of the side effects of BB.

> It blocks the nerves that work on your lens so your lens does focus

> as well.

>

May 3, 2008

Just suggesting.