Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 em5704, CO2 retention is a pathophysiological process in which too little carbon dioxide is removed from the blood by the lungs. The end result is hypercapnia, an elevated level of carbon dioxide dissolved in the bloodstream. http://en.wikipedia.org/wiki/CO2_retention I don't think any conclusions can be made about your aldo level without the renin test. Anyone correct me if I'm wrong. You also need to note the lab's normals beside each test. Lab normals vary. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of em5704 I posted a longer post yesterday after returning from endo visit but I guess it was too long to wade through, because I have no replies. I saw results of Basic 7 blood test and K was low (3.3) which I knew it would be, but CO2 was high (34). What does high CO2 mean? Dr. Grim or anyone, can you explain? The lab lost or ruined the PRA blood test, so I had to repeat it yesterday and wont have the result for a while. The result of 24 hour urinary aldo was 20.4. 24 hour urinary frationated metanephrines was 245, plasma free meta was 76. Endo said the aldo result was inconclusive, and the metanephrine results ruled out pheo. Dr Grim, comments would be appreciated. Kind of freaking out today, knowing my body chemistry is so out of whack. I have an adrenaloma, but endo says not to assume that it's causing any of this, and that could be bilateral hyperaldo ... he raised probability of sending me to Stanford for AVS after a few more lab tests. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 BTW, try not to freak out. I know it is hard because that's exactly what I've been doing. My fear is that I will not get a diagnosis and treatment and will go on forever living a half-life. Try to be patient and you will get some answers. I know how badly you must be feeling. You can't determine if you have an adenoma until you have AVS. Be sure whoever does it has done many, many. Val > Kind of freaking out today, knowing my body chemistry is so out of > whack. I have an adrenaloma, but endo says not to assume that it's > causing any of this, and that could be bilateral hyperaldo ... he > raised probability of sending me to Stanford for AVS after a few more > lab tests. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Thank you. I do take comfort in knowing there are others on this board going thru all this junk. I DO have an adrenal adenoma. It was discovered last oct. when I had a CT scan for something else, and my GYN ignored it because it was not pertinent to what the CT was for. I didn't find out until I asked for a copy of the test result two months later. Then I Googled " adrenal incidentaloma, " and read about Conn's, low potassium and HTN and a lightbulb went off over my head. For the past 6 years, I have been on blood pressure meds, and also on one blood test that I had when I was hospitalized for something unrelated, my potassium was low. But my GP never put 2+2 together, never had my K tested again, never told me low K and HTN could be related. I'm just getting started on this diagnostic road, but the endo thinks I have mild PA, from tests so far. The CO2 result was high according to the lab's parameters -- mine was 34, the highest on the parameter was 29. Have you ever done the salt loading 24 hr urine test? I am dreading it. How does anyone choke down that much salt? > > > Kind of freaking out today, knowing my body chemistry is so out of > > whack. I have an adrenaloma, but endo says not to assume that it's > > causing any of this, and that could be bilateral hyperaldo ... he > > raised probability of sending me to Stanford for AVS after a few more > > lab tests. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 You have at least group hyperaldosteronism. See my paper. I also responded to the HCO3 but you must not have seen the answer. Problems?? On Apr 16, 2008, at 4:48 PM, Valarie wrote: > > May your pressure be low! CE Grim BS, MS, MD High Blood Pressure Consulting Specializing in Difficult to Manage High Blood Pressure Consult the following at for details bloodpressureline hyperaldosteronism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Dr. Grim, it has not posted on the group yet. Val > I also responded to the HCO3 but you must not have seen the answer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Stopping my heart arrhythmia has made a huge difference this afternoon. It quit skipping this morning but the anxiety remained. I then took 1/2 mg Ativan and have been feeling almost normal. I did some chores and started dinner. I would go for a walk except its snowing hard. Whether the anxiety causes the arrhythmia or vice versa, I don't know. I'm afraid to get too hopeful because there have been other times I thought I was home free. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim You have at least group hyperaldosteronism. See my paper. I also responded to the HCO3 but you must not have seen the answer. Problems?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Thank you for your answers. My name's ( " Em " ) INteresting that you have anxiety too. > > No, I have not done the salt-loading. I am extremely sensitive to salt. > There is no way I could eat salt over a few days and not have paralysis. I > told my doc the only way I could do a saline test would be with supervision. > She didn't seem interested in doing that. I am on spiro. When I can keep > my anxiety down, my BP is running about 125/85. That's down from 150/100 > and up to 210/114. The spiro has brought my K up nicely. > > My GP said she's never seen PA. I told her she's seen a lot of it but > didn't recognize it. > > Your incidentaloma may not be aldo producing. The only way to tell for sure > is AVS. > > Do you have a name? > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of em5704 > > > Thank you. I do take comfort in knowing there are others on this > board going thru all this junk. > > I DO have an adrenal adenoma. It was discovered last oct. when I had > a CT scan for something else, and my GYN ignored it because it was > not pertinent to what the CT was for. I didn't find out until I asked > for a copy of the test result two months later. Then I > Googled " adrenal incidentaloma, " and read about Conn's, low potassium > and HTN and a lightbulb went off over my head. For the past 6 years, > I have been on blood pressure meds, and also on one blood test that I > had when I was hospitalized for something unrelated, my potassium was > low. But my GP never put 2+2 together, never had my K tested again, > never told me low K and HTN could be related. I'm just getting > started on this diagnostic road, but the endo thinks I have mild PA, > from tests so far. > > The CO2 result was high according to the lab's parameters -- mine was > 34, the highest on the parameter was 29. > > Have you ever done the salt loading 24 hr urine test? I am dreading > it. How does anyone choke down that much salt? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Dr Grim, you misunderstand me ... by junk I didnt mean anything on this site, I meant all the junk (tests, docs who dont understand) we have to go through to get a diagnosis. Everything on this site is helpful! > > > > > > > Kind of freaking out today, knowing my body chemistry is so out > > of > > > > whack. I have an adrenaloma, but endo says not to assume that > > it's > > > > causing any of this, and that could be bilateral hyperaldo ... he > > > > raised probability of sending me to Stanford for AVS after a few > > more > > > > lab tests. > > > > > > > > > > > > May your pressure be low! > > CE Grim BS, MS, MD > High Blood Pressure Consulting > Specializing in Difficult to Manage High Blood Pressure > Consult the following at for details > bloodpressureline > hyperaldosteronism > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Begin forwarded message: > From: Clarence Grim <lowerbp2@...> > Date: April 16, 2008 7:36:40 PM CDT > hyperaldosteronism > Subject: Re: Re: Help me understand tests > Reply-hyperaldosteronism > > First you must find evidence in the BP and the blood tests for aldo and > renin then test with sprio to see if BP and K gets better. > > On Apr 16, 2008, at 6:58 PM, em5704 wrote: > > > Your incidentaloma may not be aldo producing. The only way to tell > > for sure > > > is AVS. > May your pressure be low! > > CE Grim BS, MS, MD > High Blood Pressure Consulting > Specializing in Difficult to Manage High Blood Pressure > Consult the following at for details > bloodpressureline > hyperaldosteronism > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 Hey Val: I thought about you yesterday...and the shrink visit. I agree that sweats can be an anxiety response, but as some of us know..that is not always the case.. Do you think that he is actually going to do you any good? Angie > > > > You have anxiety??? There is hardly anything in the literature about > > it but > > I've found many people on this board complain about it. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 Val: I have a shrink " on hand " that I like..she's Polish and trained as an endo in Poland before becoming a psychiatrist..I also have a therapist. The psychiatrist told me that in Poland you have to track a patient for 2-3 mos endocrinologically and medically before prescribing psych meds, UNLESS psychiatric emergency and then minimum to maintain until the patient receives a full medical evaluation. This seems like sound reasoning to me..and I wonder why we don't do it here. We all need therapy, support, whatever to get through this very long and tough time..I've gotten more REAL support from my boards, church, and inspiring reading, prayer, meditation, etc. I think the shrinks tend to psychologize EVERYTHING..and they'll pretty much infer that unless they " fix " what is wrong with you mentally/emotionally..you're always going to have problems.. Give me a break..I coped well and did VERY well in my life before getting ill in '04..I had to be doing something right. But, that being said..some people like the psych and sleep meds to help in the process..I don't..they make me feel like a vegetable...however, I strongly believe that this has to be a personal decision. Angie > > I actually don't think he is going to do me any good. Whatever is going on > with me is chemical. I simply am not nuts. I paid $275 for a one- hour > visit. The next visit is for an hour so another $275. I will re- assess > after then. I certainly don't intend to spend an hour a week " talking about > my life from birth " and discovering all my " deeply hidden phobias and > traumas. " My problem is medical, not emotional. The emotional part comes > from years of feeling like poo. I doubt there is anyone on this board who > has not felt the emotional down of being sick. > > Val > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 I will ask her..she is a wonderful woman and respects that I do not want to do psych meds until I am at the bottom of this problem. Her married name is Wojdynska. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Val: Karin (from Intolerance) is taking Atenolol. Friedman told her that it is the only beta blocker that doesn't interfere with T4 to T3 conversion. She says it helps with anxiety..Maybe this might be an option for you as well? Angie > > I don't want to spend the next months pouring over all my obscure phobias > and problems. I don't want any of that " fixed. " I just want the anxiety to > stop (without being drugged out of my mind), I want my heartbeat regular > (without the anxious, heavy chest feeling I get from propranolol) and I want > to sleep more than five hours in 24. I called for a change to Zebeta or > Toprol XL today but haven't heard anything. I am down to taking 1/4 of a 10 > mg propranolol pill when I think I need it (2x today so far). My heartrates > is staying regular so far but only Ativan handles the anxiety. I put off > taking it until my hair's standing on end. I walked a bit today. When my > heart is regular, I can walk. I never have any pain so I guess I should be > thankful for small wonders. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of aviano237 > > I have a shrink " on hand " that I like..she's Polish and trained as an > endo in Poland before becoming a psychiatrist..I also have a > therapist. The psychiatrist told me that in Poland you have to track > a patient for 2-3 mos endocrinologically and medically before > prescribing psych meds, UNLESS psychiatric emergency and then > minimum to maintain until the patient receives a full medical > evaluation. This seems like sound reasoning to me..and I wonder why > we don't do it here. > > Give me a break..I coped well and did VERY well in my life before > getting ill in '04..I had to be doing something right. > But, that being said..some people like the psych and sleep meds to > help in the process..I don't..they make me feel like a > vegetable...however, I strongly believe that this has to be a > personal decision. > > > Quote Link to comment Share on other sites More sharing options...
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