Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Hi , It's interesting that you should mention that your 2 with Ds have their own communication system. Emma and Nicki have their own also and they definately understand each others babbling. They both laugh at each others jokes and I just listen wondering what on earth they are saying! Too cute. I hear multiples often have their own language also - does anyone have this experience? Carolyn Mum to on, , Emma (Ds) and Nicki (Ds) www.geocities.com/nz_mom/sykesfamily.html Re: Hi > .Hi I also have two children with DS (6 Years) and (4 > Years). It is hard dealing with it happening twice. What should have > been joyful events were clouded by fear, anxiety and shock. All of which > including emergency trips down to the neonatal unit at Sick Kids 'in > Toronto(both my kids were very ill) made it very difficult to bond with > them. My thoughts are with you. Today my children are the best of > friends and have a very special bond(and communication system!)I love > them dearly and I am so glad that they are in my life although we have > our challenges for sure! > Take one day at a time. > > > tamiller@... wrote: > > > > Hi,we have 4 children. No multiple births, but my last two children > > have been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey > > (ds) is 2 and my new born is a week old (ds). This has been > > hard finding out also had DS. We didn't have an amnio, but > > we did have a high risk based on our triple screen test. I really > > had hoped it wouldn't happen again, but God had different plans. > > Here is a link for our family web page if you would like to see > > pictures of our family. I belong to the ROA list serve on and > > judi recommended I join this group. Thanks for the info Judi. > > Anne > > > > www.cableone.net/tamiller > > > > > > http://DSyndrome.com/Multiples > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Hi , Did Davey have Hydrops Fetalis? When I developed Polydydramnios late in my pregnancy with Nicki, I took myself off for an ultrasound as my Ob was very unhelpful. They found Nicki had fluid EVERYWHERE! She was induced and had many chest taps to drain the fluid in her chest cavity but it kept coming back. The specialists decided to stop tapping thinking, like breastmilk, it would stop being produced if not removed. We had a rough few days with her, but thankfully she survived the ordeal. Take care, CarolynMum to on, , Emma (Ds) and Nicki (Ds)www.geocities.com/nz_mom/sykesfamily.html Hi Hi,we have 4 children. No multiple births, but my last two childrenhave been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey(ds) is 2 and my new born is a week old (ds). This has beenhard finding out also had DS. We didn't have an amnio, butwe did have a high risk based on our triple screen test. I reallyhad hoped it wouldn't happen again, but God had different plans.Here is a link for our family web page if you would like to seepictures of our family. I belong to the ROA list serve on andjudi recommended I join this group. Thanks for the info Judi.Annewww.cableone.net/tamiller Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 I baby-sit for a family that have three girls with DS (happen to be adopted) and 9 kids all together (some bio and some adopted). Two of the girls with DS are very close sisters (but NOT the two closest in age!) and have their own language. Before the younger of these two could talk, the oldest of the two would always translate for everyone. It is very neat to see, because out of all those siblings, these two have the closest bond. ) Cheers! Sara --On Wednesday, September 26, 2001, 9:27 AM +1200 Carolyn Sykes <tcsykes@...> wrote: > Hi , > > It's interesting that you should mention that your 2 with Ds have their > own communication system. Emma and Nicki have their own also and they > definately understand each others babbling. They both laugh at each > others jokes and I just listen wondering what on earth they are saying! > Too cute. > > I hear multiples often have their own language also - does anyone have > this experience? > > Carolyn > Mum to on, , Emma (Ds) and Nicki (Ds) > www.geocities.com/nz_mom/sykesfamily.html > > > Re: Hi > > >> .Hi I also have two children with DS (6 Years) and (4 >> Years). It is hard dealing with it happening twice. What should have >> been joyful events were clouded by fear, anxiety and shock. All of which >> including emergency trips down to the neonatal unit at Sick Kids 'in >> Toronto(both my kids were very ill) made it very difficult to bond with >> them. My thoughts are with you. Today my children are the best of >> friends and have a very special bond(and communication system!)I love >> them dearly and I am so glad that they are in my life although we have >> our challenges for sure! >> Take one day at a time. >> >> >> tamiller@... wrote: >> > >> > Hi,we have 4 children. No multiple births, but my last two children >> > have been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey >> > (ds) is 2 and my new born is a week old (ds). This has been >> > hard finding out also had DS. We didn't have an amnio, but >> > we did have a high risk based on our triple screen test. I really >> > had hoped it wouldn't happen again, but God had different plans. >> > Here is a link for our family web page if you would like to see >> > pictures of our family. I belong to the ROA list serve on and >> > judi recommended I join this group. Thanks for the info Judi. >> > Anne >> > >> > www.cableone.net/tamiller >> > >> > >> > http://DSyndrome.com/Multiples >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2001 Report Share Posted September 26, 2001 WOW - that's incredible! How wonderful that he was so healthy when he was born. Nicki's Apgars were 3 and 4. She looked like a Michelan baby - she even had fluid filled ears! Poor little thing. I wish her condition was picked up sooner. In Auckland, when Nicki was born, there was an increase of Hydrops Fetalis. There is a list a mile long of what could possibly cause it. Ds was one of the last thing on this list. Carolyn Hi Hi,we have 4 children. No multiple births, but my last two childrenhave been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey(ds) is 2 and my new born is a week old (ds). This has beenhard finding out also had DS. We didn't have an amnio, butwe did have a high risk based on our triple screen test. I reallyhad hoped it wouldn't happen again, but God had different plans.Here is a link for our family web page if you would like to seepictures of our family. I belong to the ROA list serve on andjudi recommended I join this group. Thanks for the info Judi.Annewww.cableone.net/tamiller Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2001 Report Share Posted September 26, 2001 I guess when our doctor (high risk) saw the ultrasound, he was very suspicious of DS. He didn't tell us until he had the amnio results though. I really think Davey's guardian angel works overtime. He is SO healthy. Hi Hi,we have 4 children. No multiple births, but my last two childrenhave been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey(ds) is 2 and my new born is a week old (ds). This has beenhard finding out also had DS. We didn't have an amnio, butwe did have a high risk based on our triple screen test. I reallyhad hoped it wouldn't happen again, but God had different plans.Here is a link for our family web page if you would like to seepictures of our family. I belong to the ROA list serve on andjudi recommended I join this group. Thanks for the info Judi.Annewww.cableone.net/tamiller Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Welcome, !! It is good to have you here. I've been eyeing up a rebounder ever since Carolyn got hers. Any recommendations on what to look for? I like variety, too, but I need to control my impulse purchases so that I can focus and save for workouts I really want! Take care and look forward to hearing about you and your workouts. Donna --- <nabrudigam@...> wrote: > Hi, I'm new here. I began exercising with videos > maybe five or seven > years ago. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 You are sure welcome, and other members will respond before the day is over giving their perspective, too. And yup... you may have made a mistake with the Tuesday shots. But the time for them can be changed no problem. Instead of Tuesday set it to Friday, it won't hurt anything. wow clear 1 year I am happy for and for the hope you have given me maybe I have made a mistake but i started treatment on tues. so at I would be at my best on the weekends for the family but i sure would not be able to work feeling like I did this past WENDS I thank God for your answers and give extra thanks that there are postive .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 You are sure welcome, and other members will respond before the day is over giving their perspective, too. And yup... you may have made a mistake with the Tuesday shots. But the time for them can be changed no problem. Instead of Tuesday set it to Friday, it won't hurt anything. wow clear 1 year I am happy for and for the hope you have given me maybe I have made a mistake but i started treatment on tues. so at I would be at my best on the weekends for the family but i sure would not be able to work feeling like I did this past WENDS I thank God for your answers and give extra thanks that there are postive .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Well now you know a BUNCH of people going through this – in fact, if you want, you have a whole family going through it, all at different stages. For most of us, it does get better with time. The first shot is the worst. We’re here for you, man. Talk to us. De Hi Just joined the group I feel really alone in this thing have so many questions and not many answers ,but I am learning the only 100%answer is to the question do you have Hep C I only know one person who is dealing with this he is in his 10th month of treatment and its looking good for him but he is not very talkive I started treatment this week and took my first shoot of PEG what a rush I was out of commission for 2 days feel fairly normally or should I say only mildly sick PLEASE TELL ME THAT THIS GETS BETTER AS TIME GOES ON !!! I have many questions but as of now that is the most burning Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 You have to weigh out what is most important. I had to work because I’m a single mom, so my family wouldn’t eat if I didn’t work, so I started doing my shots on Friday & ended up moving them to Thursday because I didn’t start feeling bad till Friday evening that way & way OK by Monday. I know your family is important, but keeping a roof over their heads might me the higher priority right now. De RE: Hi/ wow clear 1 year I am happy for and for the hope you have given me maybe I have made a mistake but i started treatment on tues. so at I would be at my best on the weekends for the family but i sure would not be able to work feeling like I did this past WENDS I thank God for your answers and give extra thanks that there are postive Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Thanks again everyone this is good medicine with very pleasing side effectsJust knowing that my next shoot may not or better yet is likly not to be as bad as the first one I cant explain I will try to manage the timing so I dont miss out on family time completely and still keep my Boss happy who happens to be a great guy I am greatful for every answer by the way I am living in Germany great place so it may seem that I answer at odd times (May GOD Bless us all) Motley <dmotley@...> wrote: Well now you know a BUNCH of people going through this – in fact, if you want, you have a whole family going through it, all at different stages. For most of us, it does get better with time. The first shot is the worst. We’re here for you, man. Talk to us. De Hi Just joined the group I feel really alone in this thing have so many questions and not many answers ,but I am learning the only 100%answer is to the question do you have Hep C I only know one person who is dealing with this he is in his 10th month of treatment and its looking good for him but he is not very talkive I started treatment this week and took my first shoot of PEG what a rush I was out of commission for 2 days feel fairly normally or should I say only mildly sick PLEASE TELL ME THAT THIS GETS BETTER AS TIME GOES ON !!! I have many questions but as of now that is the most burning Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 The first shot is a nightmare but gets better.It is also suggested you go on anti depressents because the treatment can really effect your frame of mind and moods.Within three months you will find it hard to keep your cool even about small things,that is why we are told to go on anti depressents at the start to avoid that problem.I was on a trial program so wasn't allowed to take anything and god bless my husband for putting up with me for a year. Gail RE: Hi/ Thanks again everyone this is good medicine with very pleasing side effectsJust knowing that my next shoot may not or better yet is likly not to be as bad as the first one I cant explain I will try to manage the timing so I dont miss out on family time completely and still keep my Boss happy who happens to be a great guy I am greatful for every answer by the way I am living in Germany great place so it may seem that I answer at odd times (May GOD Bless us all) Motley <dmotley@...> wrote: Well now you know a BUNCH of people going through this – in fact, if you want, you have a whole family going through it, all at different stages. For most of us, it does get better with time. The first shot is the worst. We’re here for you, man. Talk to us. De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of anthonyegoolsbySent: Thursday, January 11, 2007 3:43 PMHepatitis CSupportGroupForDummies Subject: Hi Just joined the group I feel really alone in this thing have so manyquestions and not many answers ,but I am learning the only 100%answeris to the question do you have Hep CI only know one person who is dealing with this he is in his 10thmonth of treatment and its looking good for him but he is not verytalkive I started treatment this week and took my first shoot of PEG what a rush I was out of commission for 2 days feel fairly normally or should Isay only mildly sick PLEASE TELL ME THAT THIS GETS BETTER AS TIME GOESON !!!I have many questions but as of now that is the most burning Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi , You say you may answer at strange hours 'cause you're living in Germany, well, I'm here all around the clock - you'll find some of us insomniacing around at all hours. There's even a chat group called just that over on Delphi, run by the same wonderful nuts who have the Hep Hideout there, just bring your own blankie. Sleep disturbances seem to be common in HCV+ people. How has your family taken the news? Sometimes they have a hard time believing we're sick when we don't look it. I'll repost the letter to family & freinds of those with Hep C for you, it makes things clearer than I ever could. SuZie & Sir SpYke the Fuzzy G O T (Galactic Overlord in Training) Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hello , My name is Jeff [rooster] Iam 1 year post op. Ilive in Pa. I have recurring HEP'C' & taking interferon i,m on my 8th week doing preety good I had insomnia for a long time I,m on antidespessents now seems to help ,If you feel like talking i will listen rooster.suzie <suzieandsandy@...> wrote: Hi , You say you may answer at strange hours 'cause you're living in Germany, well, I'm here all around the clock - you'll find some of us insomniacing around at all hours. There's even a chat group called just that over on Delphi, run by the same wonderful nuts who have the Hep Hideout there, just bring your own blankie. Sleep disturbances seem to be common in HCV+ people. How has your family taken the news? Sometimes they have a hard time believing we're sick when we don't look it. I'll repost the letter to family & freinds of those with Hep C for you, it makes things clearer than I ever could. SuZie & Sir SpYke the Fuzzy G O T (Galactic Overlord in Training) Next time I'm coming back as a cat Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 hey suzie the letter for the family would be nice, I just talked to her about making sure she was getting what she spiritual help she might need to get past this year but we both being recovered addicts denial is a place we can set up camp in till the real world comes crashing in and of course she said she I know but I could see or hear no plans to do anything, This is just the 75%of the first week and it seems already like a very long ordeal,I do pray that she take some action for herself we have made it through so much we can make it through this to if we stay alert and spiritually fit. But I am sure this is going to turn out to be a time when all my energy will go into me to keep going My body is already doing strange thingsBtu any way many thanks for everything it means a lot to me and I do truly thank you suzie <suzieandsandy@...> wrote: Hi , You say you may answer at strange hours 'cause you're living in Germany, well, I'm here all around the clock - you'll find some of us insomniacing around at all hours. There's even a chat group called just that over on Delphi, run by the same wonderful nuts who have the Hep Hideout there, just bring your own blankie. Sleep disturbances seem to be common in HCV+ people. How has your family taken the news? Sometimes they have a hard time believing we're sick when we don't look it. I'll repost the letter to family & freinds of those with Hep C for you, it makes things clearer than I ever could. SuZie & Sir SpYke the Fuzzy G O T (Galactic Overlord in Training) Next time I'm coming back as a cat Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 thanks Jeff Ruse <jeffreyruse@...> wrote: Hello , My name is Jeff [rooster] Iam 1 year post op. Ilive in Pa. I have recurring HEP'C' & taking interferon i,m on my 8th week doing preety good I had insomnia for a long time I,m on antidespessents now seems to help ,If you feel like talking i will listen rooster.suzie <suzieandsandy > wrote: Hi , You say you may answer at strange hours 'cause you're living in Germany, well, I'm here all around the clock - you'll find some of us insomniacing around at all hours. There's even a chat group called just that over on Delphi, run by the same wonderful nuts who have the Hep Hideout there, just bring your own blankie. Sleep disturbances seem to be common in HCV+ people. How has your family taken the news? Sometimes they have a hard time believing we're sick when we don't look it. I'll repost the letter to family & freinds of those with Hep C for you, it makes things clearer than I ever could. SuZie & Sir SpYke the Fuzzy G O T (Galactic Overlord in Training) Next time I'm coming back as a cat Food fight? Enjoy some healthy debatein the Answers Food Drink Q & A. Don't pick lemons. See all the new 2007 cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi in Germany. Welcome and Thank You for joining Us. As you have seem already we are a very open and honest supportive somewhat crazy but good crazy happy bunch and I'm very proud of everyone of them. We all share HCV in common but we also share of ourselves and believe in hands on 1 on 1 personal support of our members. HCV is not just our disease but it affects and impacts all that known and love us. We have an open discussion type format for group for discussing any problems - concerns or fears we may have and we also network and post many medical articles and info messages. Like everyone said just take it 1 day at a time and on treatment meds remember to keep hydrated all throughout the day with on average at least a gallon of water per day. It will be a roller coaster ride of emotions and maybe flu like symptoms so just hang on tight for the long haul. Do you know your geno type - viral load and stage and grade by biopsy before you started treatment meds ???? Your geno type will sometimes distinguish how long on treatment and some geno's are easier to treat than others - the measurement of your viral load to start treatment and than any drop during treatment with additional labs will tell how well it is working for you. Keep us updated or just check-in and say Hi. Take Care and Hang In There !!!!!!!!!! Deb New Orleans Geno 1a 30 years transplant 3-4-01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 thanks gail GOD is good and prayer is how we tap into it ,Why cant i remember that at the right time I dont know I am not asking for any feed back just need to say it WHAT A CRAPPY DAY thank God its just a day one week on this stuff and it seems like weeks I am going to hug my wife I might just cry and them I am going to sleep Thanks everybodygail <gaila@...> wrote: you and your lady will stay in our prayers that things get easier for you both soon.I know prayer helps cause it sure helped me when I was so terribly sick with this disease.Stay with us so we can help you as much as possible. Gail Re: Hi/ hey suzie the letter for the family would be nice, I just talked to her about making sure she was getting what she spiritual help she might need to get past this year but we both being recovered addicts denial is a place we can set up camp in till the real world comes crashing in and of course she said she I know but I could see or hear no plans to do anything, This is just the 75%of the first week and it seems already like a very long ordeal,I do pray that she take some action for herself we have made it through so much we can make it through this to if we stay alert and spiritually fit. But I am sure this is going to turn out to be a time when all my energy will go into me to keep going My body is already doing strange thingsBtu any way many thanks for everything it means a lot to me and I do truly thank you suzie <suzieandsandy > wrote: Hi , You say you may answer at strange hours 'cause you're living in Germany, well, I'm here all around the clock - you'll find some of us insomniacing around at all hours. There's even a chat group called just that over on Delphi, run by the same wonderful nuts who have the Hep Hideout there, just bring your own blankie. Sleep disturbances seem to be common in HCV+ people. How has your family taken the news? Sometimes they have a hard time believing we're sick when we don't look it. I'll repost the letter to family & freinds of those with Hep C for you, it makes things clearer than I ever could. SuZie & Sir SpYke the Fuzzy G O T (Galactic Overlord in Training) Next time I'm coming back as a cat Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Need Mail bonding?Go to the Q&A for great tips from Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 you and your lady will stay in our prayers that things get easier for you both soon.I know prayer helps cause it sure helped me when I was so terribly sick with this disease.Stay with us so we can help you as much as possible. Gail Re: Hi/ hey suzie the letter for the family would be nice, I just talked to her about making sure she was getting what she spiritual help she might need to get past this year but we both being recovered addicts denial is a place we can set up camp in till the real world comes crashing in and of course she said she I know but I could see or hear no plans to do anything, This is just the 75%of the first week and it seems already like a very long ordeal,I do pray that she take some action for herself we have made it through so much we can make it through this to if we stay alert and spiritually fit. But I am sure this is going to turn out to be a time when all my energy will go into me to keep going My body is already doing strange thingsBtu any way many thanks for everything it means a lot to me and I do truly thank you suzie <suzieandsandy@...> wrote: Hi , You say you may answer at strange hours 'cause you're living in Germany, well, I'm here all around the clock - you'll find some of us insomniacing around at all hours. There's even a chat group called just that over on Delphi, run by the same wonderful nuts who have the Hep Hideout there, just bring your own blankie. Sleep disturbances seem to be common in HCV+ people. How has your family taken the news? Sometimes they have a hard time believing we're sick when we don't look it. I'll repost the letter to family & freinds of those with Hep C for you, it makes things clearer than I ever could. SuZie & Sir SpYke the Fuzzy G O T (Galactic Overlord in Training) Next time I'm coming back as a cat Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Hi .. just tryin' to help, if possible..... I was addicted to anything that kept reality far away... for over thirty five years. I surrounded myself with things that would only still allow me to self medicate. So.....my job was an enabler, for me, by buying all my drinks on an expense account, and homelife?? There wasn't much of one. My job of 22 years actually laughed when I would come in the office drunk. It got crazy. When I quit, I seriously did not know there was a world outside of drinking and getting loaded. I really was amazed that there were so many people that weren't under the influence. There was alot of 'em! I asked my friend... You mean these people are all straight??? I was amazed. The reason I said that is because your perception of time will change... time will ofcourse be the same, but, for me anyway... watching the clock and thinking I should be having Fajitas and Triple Ritas right now.... at 11:00 AM. after a couple of hours doing that it was on to the cigar bar or the singles clubs, until it was closing time, staying loaded and then passing out was how I measured it. . Now... Thank God for helping me out, and that I didn't kill anyone... I've been straight for almost three years, and with not keeping time by , "yeah, we can have a couple of more drinks, then go.... or we have time to drink a six-pak before we get there", or the liquor store closes at nine. or remember they will closed New Years day...... better hurry!!!. I find time is alot more enjoyable and I like it. I don't feel as though I'm missing something..... or rushed.... it's actually pretty nice! Sometimes I even am a little saddened there isn't more of it. That sounds like something real basic, to most folks...but to someone that feels the need to stay buzzed, (and normally they aren't wrong.... they do need some sort of help, so guilt should not enter the equation....), time takes on a different meaning. A real different meaning..... I'm done.. Good Luck, Del Goolsby <anthonyegoolsby@...> wrote: thanks gail GOD is good and prayer is how we tap into it ,Why cant i remember that at the right time I dont know I am not asking for any feed back just need to say it WHAT A CRAPPY DAY thank God its just a day one week on this stuff and it seems like weeks I am going to hug my wife I might just cry and them I am going to sleep Thanks everybodygail <gaila@....ca> wrote: you and your lady will stay in our prayers that things get easier for you both soon.I know prayer helps cause it sure helped me when I was so terribly sick with this disease.Stay with us so we can help you as much as possible. Gail Re: Hi/ hey suzie the letter for the family would be nice, I just talked to her about making sure she was getting what she spiritual help she might need to get past this year but we both being recovered addicts denial is a place we can set up camp in till the real world comes crashing in and of course she said she I know but I could see or hear no plans to do anything, This is just the 75%of the first week and it seems already like a very long ordeal,I do pray that she take some action for herself we have made it through so much we can make it through this to if we stay alert and spiritually fit. But I am sure this is going to turn out to be a time when all my energy will go into me to keep going My body is already doing strange thingsBtu any way many thanks for everything it means a lot to me and I do truly thank you suzie <suzieandsandy > wrote: Hi , You say you may answer at strange hours 'cause you're living in Germany, well, I'm here all around the clock - you'll find some of us insomniacing around at all hours. There's even a chat group called just that over on Delphi, run by the same wonderful nuts who have the Hep Hideout there, just bring your own blankie. Sleep disturbances seem to be common in HCV+ people. How has your family taken the news? Sometimes they have a hard time believing we're sick when we don't look it. I'll repost the letter to family & freinds of those with Hep C for you, it makes things clearer than I ever could. SuZie & Sir SpYke the Fuzzy G O T (Galactic Overlord in Training) Next time I'm coming back as a cat Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Need Mail bonding?Go to the Q & A for great tips from Answers users. Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Take one day at a time and rest and the day will go faster. Gail Re: Hi/ hey suzie the letter for the family would be nice, I just talked to her about making sure she was getting what she spiritual help she might need to get past this year but we both being recovered addicts denial is a place we can set up camp in till the real world comes crashing in and of course she said she I know but I could see or hear no plans to do anything, This is just the 75%of the first week and it seems already like a very long ordeal,I do pray that she take some action for herself we have made it through so much we can make it through this to if we stay alert and spiritually fit. But I am sure this is going to turn out to be a time when all my energy will go into me to keep going My body is already doing strange thingsBtu any way many thanks for everything it means a lot to me and I do truly thank you suzie <suzieandsandy > wrote: Hi , You say you may answer at strange hours 'cause you're living in Germany, well, I'm here all around the clock - you'll find some of us insomniacing around at all hours. There's even a chat group called just that over on Delphi, run by the same wonderful nuts who have the Hep Hideout there, just bring your own blankie. Sleep disturbances seem to be common in HCV+ people. How has your family taken the news? Sometimes they have a hard time believing we're sick when we don't look it. I'll repost the letter to family & freinds of those with Hep C for you, it makes things clearer than I ever could. SuZie & Sir SpYke the Fuzzy G O T (Galactic Overlord in Training) Next time I'm coming back as a cat Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Need Mail bonding?Go to the Q & A for great tips from Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Some days are like that – one or off treatment. But tomorrow’s another day. De Re: Hi/ thanks gail GOD is good and prayer is how we tap into it ,Why cant i remember that at the right time I dont know I am not asking for any feed back just need to say it WHAT A CRAPPY DAY thank God its just a day one week on this stuff and it seems like weeks I am going to hug my wife I might just cry and them I am going to sleep Thanks everybody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Amen to that glad I had a place to vent Motley <dmotley@...> wrote: Some days are like that – one or off treatment. But tomorrow’s another day. De Re: Hi/ thanks gail GOD is good and prayer is how we tap into it ,Why cant i remember that at the right time I dont know I am not asking for any feed back just need to say it WHAT A CRAPPY DAY thank God its just a day one week on this stuff and it seems like weeks I am going to hug my wife I might just cry and them I am going to sleep Thanks everybody Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 hey everybody I need to know is it ok if I move my shoot day up or back a day or two thanks Motley <dmotley@...> wrote: Some days are like that – one or off treatment. But tomorrow’s another day. De Re: Hi/ thanks gail GOD is good and prayer is how we tap into it ,Why cant i remember that at the right time I dont know I am not asking for any feed back just need to say it WHAT A CRAPPY DAY thank God its just a day one week on this stuff and it seems like weeks I am going to hug my wife I might just cry and them I am going to sleep Thanks everybody Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 I started on Fridays & moved to Thursdays. If I had wanted to move to Wednesday, I would have waited until the following week to back it up another day. Only your doctor knows for sure. We can’t give medical advice, only our personal experience. Do you have the hotline/nurse line for your pharmaceutical company – Pegassist or the one for PegIntron, whichever you’re taking? De RE: Hi/ hey everybody I need to know is it ok if I move my shoot day up or back a day or two thanks Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.