Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Apples, peaches, grapes, milk and apple juice are all very high in phenols. Phenols can cause aggression...........Diet is one of the easiest and definitely safest thing to change, depending how committed you are to what your child can eat, instead of focusing on what he cannot consume. " Symptoms of phenol sensitivity Some typical symptoms indicating your child may have a phenol problem are [not all of these need be present]: dark circles under the eyes, red face/ears, diarrhea, hyperactivity, aggression, headache, head banging or other self-injury, inappropriate laughter, difficulty falling asleep at night, and night waking for several hours " from: http://www.danasview.net/phenol.htm RE: Aggression - how to.... Dear Rose and Pat K. No he is not on any special diet. I asked about that and MD said I was already dealing with too much and not to worry about that at this time. His diet consists mostly of fresh / steamed veggies, and things that he can pick up and eat by himself like crackers, cheese, apples, peaches, grapes, and cereal. He has about two glasses of milk a day and the rest of the day drinks water and apple juice. The abilify was going to be used for aggression, and that is still a possibility depending on how things go. My son also bites and it is just an awful thing to have to deal with. Thanks, Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 The diet is hard to go with. I had a hard time doing it for Evan for almost a year and then and moved in with us. After that it was impossible. was always leaving food around that Evan was not suppose to eat and was always forgetting what he could eat. And a few thousand dollars later he still had not changed much, if at all. I wish I had spent that money on doing NAET in the first place. I heard about NAET from the gf-cfkids lists but it was not until after I left it that I actually tried it. It has been doing some good but I think the Abilify is doing more. One of Evan's former classmates was a biter. It was so hard on his mother. Pretty hard on his classmates also. Evan got bit more than once when the adults had their backs turned. He has a brother about the age of and from his behavior I would now guess that he probably is also bipolar/ADHD. His family moved from here, trying to get better services. I hope they found it. Betty Ann-61 yo, possibly Bipolar but undx'd, Effexor, Buspar grandma and guardian to - 11 yo-- Bipolar/ADHD on Depakote, Adderall, Singular Evan - 9 yo nonverbal autism on 3 mg Risperdal, 5 mg Abilify stated 3/11/03 - 6 yo- Bipolar/ADHD/PTSD on Tegretol, Adderall, Clonidine .1 mg, mother to -32 yo, their mom - Bipolar/ADHD on Topamax, Singular wife to Bob - 71 yo, Effexor and too more many meds to remember ----- Original Message ----- From: " psarar " <Psarar@...> > Dear Rose and Pat K. > No he is not on any special diet. I asked about that and MD said I > was already dealing with too much and not to worry about that at this > time. His diet consists mostly of fresh / steamed veggies, and > things that he can pick up and eat by himself like crackers, cheese, > apples, peaches, grapes, and cereal. He has about two glasses of milk > a day and the rest of the day drinks water and apple juice. The > abilify was going to be used for aggression, and that is still a > possibility depending on how things go. My son also bites and it is > just an awful thing to have to deal with. Thanks, Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Just curious. What is NAET? Rhonda Mom to Max,9, autistic/bipolar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Please seriously consider removing milk products from his diet. Please, get yourself a good book. " Kids with Starving Brains " , " Facing Autism " , etc. My son is nearly 10 and I could absolutely KICK MYSELF for not taking steps in this direction sooner. In December we took my son off of milk. Yesterday he ate a bowl of rice and dried mangoe slices.he has NEVER DONE THIS BEFORE. He is reading at a first grade level!!!! His eye contact is amazing! He is addressing people by name spontaneously, he's saying hi and goodbye, spontaneously. He is having only a rare, occasional " meltdown " . He isn't constipated anymore and has stopped having " accidents " . The thing is, if you start now, you may be able to make serious improvements. Please e me privately if you wish and please check out the group for further information. This is what they suggest in this order, and it's not overwhelming.gluten-free/casein-free diet, addressing yeast problems, taking care of any immune deficiences and then, possibly medication. Your regular medical doctor is probably not aware of any of the things parents with autistic children are doing to better their children. That's ok, you can teach him as you go along. Please, start slowly weeding milk products out of his diet, then make sure you have anything with whey, or milk/casein derivatives. It doesn't have to all be done immediately, but I think you may see a very big difference. All the best~~ Rose RE: Aggression - how to.... Dear Rose and Pat K. No he is not on any special diet. I asked about that and MD said I was already dealing with too much and not to worry about that at this time. His diet consists mostly of fresh / steamed veggies, and things that he can pick up and eat by himself like crackers, cheese, apples, peaches, grapes, and cereal. He has about two glasses of milk a day and the rest of the day drinks water and apple juice. The abilify was going to be used for aggression, and that is still a possibility depending on how things go. My son also bites and it is just an awful thing to have to deal with. Thanks, Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 PSS~~Compared to meltdowns, the diet is a cinch!!!! Rose Re: RE: Aggression - how to.... The diet is hard to go with. I had a hard time doing it for Evan for almost a year and then and moved in with us. After that it was impossible. was always leaving food around that Evan was not suppose to eat and was always forgetting what he could eat. And a few thousand dollars later he still had not changed much, if at all. I wish I had spent that money on doing NAET in the first place. I heard about NAET from the gf-cfkids lists but it was not until after I left it that I actually tried it. It has been doing some good but I think the Abilify is doing more. One of Evan's former classmates was a biter. It was so hard on his mother. Pretty hard on his classmates also. Evan got bit more than once when the adults had their backs turned. He has a brother about the age of and from his behavior I would now guess that he probably is also bipolar/ADHD. His family moved from here, trying to get better services. I hope they found it. Betty Ann-61 yo, possibly Bipolar but undx'd, Effexor, Buspar grandma and guardian to - 11 yo-- Bipolar/ADHD on Depakote, Adderall, Singular Evan - 9 yo nonverbal autism on 3 mg Risperdal, 5 mg Abilify stated 3/11/03 - 6 yo- Bipolar/ADHD/PTSD on Tegretol, Adderall, Clonidine .1 mg, mother to -32 yo, their mom - Bipolar/ADHD on Topamax, Singular wife to Bob - 71 yo, Effexor and too more many meds to remember ----- Original Message ----- From: " psarar " <Psarar@...> > Dear Rose and Pat K. > No he is not on any special diet. I asked about that and MD said I > was already dealing with too much and not to worry about that at this > time. His diet consists mostly of fresh / steamed veggies, and > things that he can pick up and eat by himself like crackers, cheese, > apples, peaches, grapes, and cereal. He has about two glasses of milk > a day and the rest of the day drinks water and apple juice. The > abilify was going to be used for aggression, and that is still a > possibility depending on how things go. My son also bites and it is > just an awful thing to have to deal with. Thanks, Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Mom, that is great that your son will eat steamed vegetables. The only vegetable that Karac will eat is a raw carrot and I am thankful for that! The Zydis stopped Karac's biting, but it caused 30 lbs in weight gain; so we are now trying to Abilify and so far it looks promising, but this is only the second week; so I can't be sure. It sounds like the diet has worked great for Rose. Karac's mother has never been willing to try the diet consistently, but it is certainly worth the try. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Betty, what is NAET? Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 You must admit though, that the diet doesn't work for every child and it's neccesary to figure out a way to deal with the behavior that isn't due to food allergies, celiac disease, etc., and is just b/c he is autistic. Myself and 3 other friends put our children on the diet for a year with no success whatsoever, although I understand that it has made a miraculous change in some children's lives. Several people in our support group swear by it, it's just unfortunate that it does not work for every child and we as parents need to be prepared to deal with that. I think everyone should try it, though! It's also worth looking into the possibililty of a mood disorder, which can be a co-diagnosis with autism. Just my 2 cents. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 http://www.naet.com/ NAET, Nambudripad's Allergy Elimination Techniques The site can explain better than I can. But you work with eliminating the allergies instead of just eliminating the foods or whatever causes the allergy. Betty ----- Original Message ----- From: <rhndahood5@...> > Just curious. What is NAET? > > > Rhonda > Mom to Max,9, autistic/bipolar > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 http://www.naet.com/ NAET, Nambudripad's Allergy Elimination Techniques The site can explain better than I can. But you work with eliminating the allergies instead of just eliminating the foods or whatever causes the allergy. Betty ----- Original Message ----- From: <rhndahood5@...> > Just curious. What is NAET? > > > Rhonda > Mom to Max,9, autistic/bipolar > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 I have to add my two cents here. I agree with Rose. If your child has a problem with casein taking him off will give you good results. I slowly took Evan off anything with casein--you have to learn to read them labels on EVERYTHING you buy because they sneak it in the strangest places but many children have been recovered whose autism was caused by a reaction to casein and/or gluten. I am afraid that Evan is more the classic autism and not the eviromentally induced. Betty Re: RE: Aggression - how to.... > Please seriously consider removing milk products from his diet. Please, get yourself a good book. " Kids with Starving Brains " , " Facing Autism " , etc. My son is nearly 10 and I could absolutely KICK MYSELF for not taking steps in this direction sooner. In December we took my son off of milk. Yesterday he ate a bowl of rice and dried mangoe slices.he has NEVER DONE THIS BEFORE. He is reading at a first grade level!!!! His eye contact is amazing! He is addressing people by name spontaneously, he's saying hi and goodbye, spontaneously. He is having only a rare, occasional " meltdown " . He isn't constipated anymore and has stopped having " accidents " . The thing is, if you start now, you may be able to make serious improvements. Please e me privately if you wish and please check out the group for further information. This is what they suggest in this order, and it's not overwhelming.gluten-free/casein-free diet, addressing yeast problems, taking care of any immune deficiences and then, possibly medication. Your regular medical doctor is probably not aware of any of the things parents with autistic children are doing to better their children. That's ok, you can teach him as you go along. Please, start slowly weeding milk products out of his diet, then make sure you have anything with whey, or milk/casein deri vatives. It doesn't have to all be done immediately, but I think you may see a very big difference. > All the best~~ > Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 I agree, I'm certainly no expert, but am really worried about you'all and any unnecessary suffering. After going through so many years and so much ill temper (my arms are scarred from shoulders to fingertips), it's nice to have a bit of control over my son's moods. It's not perfect and it's not fullproof, but I strongly urge you to get your child off milk. Do it slowly one item at a time and it really isn't that difficult. Rhonda, I'm so sorry that the diet didn't work for you. I don't have any answers. We tried the diet when my son was 4 and he almost starved to death and things got worse for us as well. Now, however, there is so much more reliable information and step-by-step directives on how to go about it and I am thankful that we gave it a second chance. My son still has autism and we still have a million more battles to fight and we're right in the trenches with you guys. All the best~~ Rose From: rhndahood5@... autism Sent: Thursday, April 24, 2003 3:45 PM Subject: Re: RE: Aggression - how to.... You must admit though, that the diet doesn't work for every child and it's neccesary to figure out a way to deal with the behavior that isn't due to food allergies, celiac disease, etc., and is just b/c he is autistic. Myself and 3 other friends put our children on the diet for a year with no success whatsoever, although I understand that it has made a miraculous change in some children's lives. Several people in our support group swear by it, it's just unfortunate that it does not work for every child and we as parents need to be prepared to deal with that. I think everyone should try it, though! It's also worth looking into the possibililty of a mood disorder, which can be a co-diagnosis with autism. Just my 2 cents. Rhonda Quote Link to comment Share on other sites More sharing options...
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