Update on

[Guest guest]

Wow, that's wonderful Leanna. I don't know what 1/8 means exactly

but I assume it's about symmetry? I look forward to hearing your

graduation post and getting the complete story! (and seeing

pics of course!)

Sue

Colin F., 10 mos.

STARband 6/29/04

Buffalo, NY

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> had a check about 1 1/2 weeks ago(sorry this has taken so

> long to post). He is pleased with where is now, he states

he

> always would like to get them with 1/8 , and is now there.

> He really does not need to wear the helmet anymore. Of course we

are

> a little clingy to the helmet, because we want to make sure he is

> done with it. Of course last week he spent it with Grandma, and she

> states he kept taking it off and would not wear it, even at night,

I

> kinda think she did not really try to put it on him. But he is on

> his way home now, so I will get to see him real soon. I will let

you

> all know the official outcome.

> Take care for now

>

> Leanne, mommy to

> Wilmington NC

[Guest guest]

Sorry to hear you went thru 2 ill fititng bands. I am glad you were lead to

an experienced to an experienced ortho and the fit is great!

Please keep us posted on !

Angie and Jenna

Update on

> Sorry it has been so long since I last updated. Things have been very

> hectic. got his 3rd Starband, and the fit is PERFECT after two

> prior ill-fitting bands (one made with the closure on the wrong side

> and one that was way off in fit, both due to ortho error).

>

> After speeking to a rep at Orthoamerica, we were lead to NOPCO at

> Children's Hospital in Boston. They were wonderful!!! had a

> Starscan and our band was ready two weeks later. The fit is

> unbelievable. He doesn't even know he's wearing it, unlike the other

> two. We also saw a Neurosurgeon at Children's who gave us great

> advice re: plagio and torticollis. Anyone hear of Botox injections

> for Tort. treatment?

>

> I guess coming out of this disaster, I cannot emphasize the importance

> of using an ortho who knows what he or she is doing. It is so

> important. I once lost faith in the Starband, but now I am confident

> in the treatment. Finding the right ortho is the key. For anyone in

> the Boston area, Children's Hospital is the wasy to go.

>

> Thank all for your support and advice, especially Krissy. You really

> helped us get through this and make the right decissions.

>

>

> 's Mom (Starband since May 5, 2004)

>

>

>

>

>

>

> For more plagio info

[Guest guest]

,

I;m happy to hear that your persistance has paid off and is in a well fitting helmet. It is very encouraging that Orthoamerica worked with you to find an experienced ortho. You are correct that the experience of the ortho is very important.

I have heard of Botox injections for tort but as pp indicated I do not believe it is fda approved for infants. Is Natan's tort really bad? Is PT not working? Sorry, but I don't remember how old is? Is he approaching 18 months? I know around 18 months the muscle invovled with tort becomes "secured" to the skull and is difficult to correct with stretching and strengthening. Did the neurosurgeon reccommend the botox? What other advise did he give you? I would love to capture it in the tort files section.

Thanks,

mom to na

DOC Grad

Tort Resolved mjcsec2001 <mjcsec@...> wrote:

Sorry it has been so long since I last updated. Things have been veryhectic. got his 3rd Starband, and the fit is PERFECT after twoprior ill-fitting bands (one made with the closure on the wrong sideand one that was way off in fit, both due to ortho error).After speeking to a rep at Orthoamerica, we were lead to NOPCO atChildren's Hospital in Boston. They were wonderful!!! had aStarscan and our band was ready two weeks later. The fit isunbelievable. He doesn't even know he's wearing it, unlike the othertwo. We also saw a Neurosurgeon at Children's who gave us greatadvice re: plagio and torticollis. Anyone hear of Botox injectionsfor Tort. treatment?I guess coming out of this disaster, I cannot emphasize the importanceof using an ortho who knows what he or she is

doing. It is soimportant. I once lost faith in the Starband, but now I am confidentin the treatment. Finding the right ortho is the key. For anyone inthe Boston area, Children's Hospital is the wasy to go.Thank all for your support and advice, especially Krissy. You reallyhelped us get through this and make the right decissions. 's Mom (Starband since May 5, 2004) For more plagio info

[Guest guest]

Yeah!! I'm very happy to hear things are improved!!

Laurie (- DOC 8/04)

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they

have

> not gotten 's exit cast in yet. It has been ordered again

and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing

because

> he had a very narrow head before tx). Ok, I feel dumb--here I

thought

> he was regressing and he actually looks better?! She told me that

at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

[Guest guest]

That is a great news Jill!!!! I'm very happy for you and Mathew.chevalier3914 <chevalier3914@...> wrote:

Yeah!! I'm very happy to hear things are improved!!Laurie (- DOC 8/04)> Hi there!> We went in for our evaluation at CT this morning. Turns out they have > not gotten 's exit cast in yet. It has been ordered again and > they will call me when it comes in. Their computer system was down > when we got there, so did pictures to compare with his exit > pics. She called me this afternoon and said that his head actually > appears to have IMPROVED since the last pics were taken. She said > that his head has gotten wider (which for him is a good thing because > he had a very narrow head before tx). Ok, I feel dumb--here I thought > he was regressing and he actually looks

better?! She told me that at > this point would be considered 'borderline' plagio and she > would not recommend banding him. (He did have some remaining > flatness/asymmetry after treatment) I feel a lot better now.> I am looking forward though to comparing his head to the exit cast. > That will be interesting to really see if there has been a change.> > Thanks for your continued support I can't tell you how much it > has meant to me to have someplace to share my feelings and to know > that there are people who understand. > > Thanks again,> Jill and (11 mos, DOC Grad!)> DallasFor more plagio info

[Guest guest]

Hi Jill,

Wonderful news. Yay ! I really think we all fear regression

after the band comes off. These past two weeks I've been looking at

's head non stop. Does it look flatter? Does it look rounder?

Blah blah blah. It can drive one nuts.

Our exit mold is in so we go pick it up tomorrow. I'm anxious, like

you,(in a good way) to see the before and after in 3d.

When is s birthday?

Crista-Grayslake, IL

D-11 mo old-brachy DOCgrad

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they

have

> not gotten 's exit cast in yet. It has been ordered again

and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing

because

> he had a very narrow head before tx). Ok, I feel dumb--here I

thought

> he was regressing and he actually looks better?! She told me that

at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

[Guest guest]

That's great news. Thanks for sharing. Please Let us know when you get his

headsicle.

Angie and Jenna(STAR grad)

Update on

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they have

> not gotten 's exit cast in yet. It has been ordered again and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing because

> he had a very narrow head before tx). Ok, I feel dumb--here I thought

> he was regressing and he actually looks better?! She told me that at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

>

>

>

>

>

> For more plagio info

[Guest guest]

Congrats to !!!

That's great news! Isn't it crazy how our minds play tricks on

us!?!?!

I'm so glad to hear that his treatment went so well!!

Jodie

Jack's Mom

DocBanded 8/13

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they

have

> not gotten 's exit cast in yet. It has been ordered again

and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing

because

> he had a very narrow head before tx). Ok, I feel dumb--here I

thought

> he was regressing and he actually looks better?! She told me that

at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

[Guest guest]

Shew! Sounds good, will you go back for an appt with the exit cast?

Natasha

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they

have

> not gotten 's exit cast in yet. It has been ordered again

and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing

because

> he had a very narrow head before tx). Ok, I feel dumb--here I

thought

> he was regressing and he actually looks better?! She told me that

at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit

cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

[Guest guest]

Thats great news Jill! I really hope the exit cast confirms this

for you! Let us know!

, mom to Hannah, DOCgrad

Cape Cod, Ma

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they

have

> not gotten 's exit cast in yet. It has been ordered again

and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing

because

> he had a very narrow head before tx). Ok, I feel dumb--here I

thought

> he was regressing and he actually looks better?! She told me that

at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit

cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

[Guest guest]

Jill,

I'm so happy to hear he has gotten better.

mom to na

DOC Grad

SC

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they

have

> not gotten 's exit cast in yet. It has been ordered again

and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing

because

> he had a very narrow head before tx). Ok, I feel dumb--here I

thought

> he was regressing and he actually looks better?! She told me that

at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

[Guest guest]

Jill, I am very happy to hear that your question has been answered.

YAY for improving!! That will be nice to have that mold. I'm going

to check out his pics again (if I can locate the correct " "

LOL) Please consider posting his pics from all angles in the future

(if you have a digi camera). I would loooove to see future progress

post-band and I think other parents may find it helpful too (that is,

if we have enough storage space, it's time to clean house here).

Sue

Colin F., 1

STARband grad 9/15/04

Buffalo, NY

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they

have

> not gotten 's exit cast in yet. It has been ordered again

and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing

because

> he had a very narrow head before tx). Ok, I feel dumb--here I

thought

> he was regressing and he actually looks better?! She told me that

at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

[Guest guest]

Congratulations and ..glad to hear is doing so well post band. Must be so nice to hear comments on his nice round noggin!

and Angelina 11mos tort, local helmet 07/09/04 , B.C.. Canada

-----Original Message-----From: [mailto:cathynugz@...]Sent: Tuesday, September 28, 2004 2:39 PMPlagiocephaly Subject: Update on Hi all, I havent been here in a long time, but I just wanted to let all know that after 1 year that has been off the DOC band, he looks great!!!! You cant even tell anything was ever wrong. I almost completly forgot he had it until someone told me his head looked great. I never realized how completly happy I am with the results until now. For more plagio info

[Guest guest]

,

Thanks for the updae. It's always great to hear how the kids are

doing.

mom to na

DOC Grad

SC

--- In Plagiocephaly , " " <cathynugz@y...>

wrote:

> Hi all, I havent been here in a long time, but I just wanted to

let

> all know that after 1 year that has been off the DOC band,

he

> looks great!!!! You cant even tell anything was ever wrong. I

> almost completly forgot he had it until someone told me his head

> looked great. I never realized how completly happy I am with the

> results until now.

[Guest guest]

Hello, it's very nice of to " stop by " . I'm glad to hear that

is doing so well and still lookin' good. If you have time

please post a brief history again and possibly a pic of him (showing

affected area) in your B & A album (if you have one). Thanks!!!

Sue

Colin, 1

STARband grad 9/15/04

rt plag/brachy

Buffalo, NY

--- In Plagiocephaly , " " <cathynugz@y...>

wrote:

> Hi all, I havent been here in a long time, but I just wanted to let

> all know that after 1 year that has been off the DOC band, he

> looks great!!!! You cant even tell anything was ever wrong. I

> almost completly forgot he had it until someone told me his head

> looked great. I never realized how completly happy I am with the

> results until now.

[Guest guest]

Hi Jill...so glad to hear they think has improved.

Congratulations to both of you!

Becky ('s mom) in Pgh, PA

> > Hi there!

> > We went in for our evaluation at CT this morning. Turns out they

> have

> > not gotten 's exit cast in yet. It has been ordered again

> and

> > they will call me when it comes in. Their computer system was

down

> > when we got there, so did pictures to compare with his

exit

> > pics. She called me this afternoon and said that his head

actually

> > appears to have IMPROVED since the last pics were taken. She

said

> > that his head has gotten wider (which for him is a good thing

> because

> > he had a very narrow head before tx). Ok, I feel dumb--here I

> thought

> > he was regressing and he actually looks better?! She told me

that

> at

> > this point would be considered 'borderline' plagio and

she

> > would not recommend banding him. (He did have some remaining

> > flatness/asymmetry after treatment) I feel a lot better now.

> > I am looking forward though to comparing his head to the exit

cast.

> > That will be interesting to really see if there has been a

change.

> >

> > Thanks for your continued support I can't tell you how much

it

> > has meant to me to have someplace to share my feelings and to

know

> > that there are people who understand.

> >

> > Thanks again,

> > Jill and (11 mos, DOC Grad!)

> > Dallas

[Guest guest]

Jill,

I'm really glad to hear that 's head is okay and may have

actually improved. I think you made a good decision about going in

for a consult. It only takes a few minutes and hopefully it put

your mind to ease. It'll also be nice to have the exit cast to

compare to in the future.

Take Care,

Dianna

Momt o

DOC Band 9/13

plagio/brachy

In Plagiocephaly , " matthewsmom1028 "

<matthewsmom1028@y...> wrote:

> Hi there!

> We went in for our evaluation at CT this morning. Turns out they

have

> not gotten 's exit cast in yet. It has been ordered again

and

> they will call me when it comes in. Their computer system was down

> when we got there, so did pictures to compare with his exit

> pics. She called me this afternoon and said that his head actually

> appears to have IMPROVED since the last pics were taken. She said

> that his head has gotten wider (which for him is a good thing

because

> he had a very narrow head before tx). Ok, I feel dumb--here I

thought

> he was regressing and he actually looks better?! She told me that

at

> this point would be considered 'borderline' plagio and she

> would not recommend banding him. (He did have some remaining

> flatness/asymmetry after treatment) I feel a lot better now.

> I am looking forward though to comparing his head to the exit

cast.

> That will be interesting to really see if there has been a change.

>

> Thanks for your continued support I can't tell you how much it

> has meant to me to have someplace to share my feelings and to know

> that there are people who understand.

>

> Thanks again,

> Jill and (11 mos, DOC Grad!)

> Dallas

[Guest guest]

Hi ,

Thanks for that great update! I'm glad to hear you're so happy with

's post band head shape! Long term updates are always very

helpful to parents.

, mom to Hannah (21 mos), DOCgrad 7/29

Cape Cod, Ma

--- In Plagiocephaly , " " <cathynugz@y...>

wrote:

> Hi all, I havent been here in a long time, but I just wanted to

let

> all know that after 1 year that has been off the DOC band,

he

> looks great!!!! You cant even tell anything was ever wrong. I

> almost completly forgot he had it until someone told me his head

> looked great. I never realized how completly happy I am with the

> results until now.

[Guest guest]

So glad to hear that is doing well 1 year post DOC Band.

Thanks for sharing.

Dianna

Momt to

DOC Band 9/13

plagio/brachy

In Plagiocephaly , " " <cathynugz@y...> wrote:

> Hi all, I havent been here in a long time, but I just wanted to

let

> all know that after 1 year that has been off the DOC band,

he

> looks great!!!! You cant even tell anything was ever wrong. I

> almost completly forgot he had it until someone told me his head

> looked great. I never realized how completly happy I am with the

> results until now.

[Guest guest]

Hi Pam,

One of my best friends here in Venice was

on the transplant list – in and out of the hospital all the time until he

started taking Leci-PC (phosphatidycoline

30%) from defatted lecithin soybeans He is back doing photography full time and

in fact did the Hepatis Liver Foundation shots when

they were here at Griffith Park 2 years ago. .We eat it with everything;

breakfast cereal, fruit salad, smoothies, on a vegetable salad, on yogurt or ice-cream,

etc. It is very sticky and has a taste that grows on you when you start to feel

better from it. I have it in some of the formulas but will have to take it out

of them since it is making the capsules gummy with the other ingredients and

looks, well, gummy! Anyway, since one should eat it by the teaspoon on food it

doesn’t make sense to cap it up. This is one food that has such a

terrific benefit for the liver it can be taken even by ESLD folk. My friend is

no longer on the transplant list!

I m sending you a link to an article on

our website but the short version is below:

http://www.liverfriend.com/cms.php?language=en & content=Leci-PC+and+the+Liver & Submit=Go

Conclusion:

From the many controlled clinical studies conducted on thousands of human

subjects to date, PC's confirmed clinical benefits include:

1. Successful improvement of specific indicators of liver damage

2. Faster functional and structural recovery of the liver tissue

3. Accelerated restoration of subjects' overall well-being

My purpose in writing this is to offer to

send some Leci-PC to as I did for my friend

Stanley. It helped him so much he could go back to work. If you think she would

take it, send me her address and I’ll send her a bottle to try out. It is

so nice that you are able to visit her.

Love & Light,

Jay

[ ] Update

on

Hi everyone. I am back

from Atlanta and was able to see . I took and

with me to the Woodstock support group and we had a great time! We

stopped by Emory and hugged Tee and were there when they moved her across the

street to the Rehab Center. She is temporarily off the transplant

list again until they can get her strength built back up. She did get up

and walk a few steps while I was there so that was encouraging. She

has been in bed now for a month :-( She is very dehydrated

and very swollen. She is not confused but very tired. Please keep

her in your thoughts and prayers and please send her a card if yo

Jay

u get the

chance. She has gotten several and they really help to cheer her

up! Write me if you need the address again.

Take care of each other!

Peace and Love,

Pam

[Guest guest]

>

> my mom had slipped into acoma 2 weeks ago whe nthey were going to

do hip surgery on the rite hip for the osteo is eating her joint up,

im her son bjorn just posting to let u know what happened ... she

had a small blood vessel ruptue in her head. she is lucky to be

alive,,, she is doing okay.. i will try to post again soon,, thank

you bjorn,,, her son

Thank you Bjorn for keeping us updated on your mom, . Please

tell her we are thinking of her and wish her well.

Janet

[Guest guest]

Bjorn: Thank you for your update, I'm sure all of us here were worrying

about her. Glad to hear she's ok. Do you know if she's come out of the coma?

Peace, love, and prayers to your mother.

Crystal

>From: brenda stein <leelioness662002@...>

>Reply-

>

>Subject: [ ] Update on

>Date: Sun, 7 Nov 2004 11:29:50 -0500 (EST)

>

>

>my mom had slipped into acoma 2 weeks ago whe nthey were going to do hip

>surgery on the rite hip for the osteo is eating her joint up, im her son

>bjorn just posting to let u know what happened ... she had a small blood

>vessel ruptue in her head. she is lucky to be alive,,, she is doing okay..

>i will try to post again soon,, thank you bjorn,,, her son

>

>

>

>

[Guest guest]

I hope you like the new ortho, be sure and post to us after her

first fitting.

Natasha

>

> Hi everyone,

> went to New England Orthotics in Providence RI last Friday

and

> was scanned for her STARband. It was quick. I was surprised that

she

> has a 11.6mm asymetry and that her ears are only 4mm off. At the

> neuro office they said her ear misalignment was worse that the

shape

> of her head. The ortho said the opposite. at New England

> orthotics was great friendly and knowledgeable. He won't be there

> for her fitting next thursday, he is going to be out on paternity

> leave hopefully we have a good experience with the next ortho. We

> also had our intake appt with EI yesterday. It has been a busy

> couple of weeks.

> Hope all are well,

> Emilie

> Mommy to 2.5yrs and 4.75 months tort & plagio to be

> STARbanded on 1/27/05

[Guest guest]

Please let us know how the fitting goes, and how you like the new

ortho.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

http://www.geocities.com/samipa74/Willow_Lanette.html

>

> Hi everyone,

> went to New England Orthotics in Providence RI last Friday

and

> was scanned for her STARband. It was quick. I was surprised that

she

> has a 11.6mm asymetry and that her ears are only 4mm off. At the

> neuro office they said her ear misalignment was worse that the

shape

> of her head. The ortho said the opposite. at New England

> orthotics was great friendly and knowledgeable. He won't be there

> for her fitting next thursday, he is going to be out on paternity

> leave hopefully we have a good experience with the next ortho. We

> also had our intake appt with EI yesterday. It has been a busy

> couple of weeks.

> Hope all are well,

> Emilie

> Mommy to 2.5yrs and 4.75 months tort & plagio to be

> STARbanded on 1/27/05

[Guest guest]

Hi Emilie,

Good luck at the fitting. Thats a real bummber about having a

different ortho. Did he say how long he'll be out? Hopefully his

replacement will be as good. Let us know how it goes!

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

>

> Hi everyone,

> went to New England Orthotics in Providence RI last Friday

and

> was scanned for her STARband. It was quick. I was surprised that

she

> has a 11.6mm asymetry and that her ears are only 4mm off. At the

> neuro office they said her ear misalignment was worse that the

shape

> of her head. The ortho said the opposite. at New England

> orthotics was great friendly and knowledgeable. He won't be there

> for her fitting next thursday, he is going to be out on paternity

> leave hopefully we have a good experience with the next ortho. We

> also had our intake appt with EI yesterday. It has been a busy

> couple of weeks.

> Hope all are well,

> Emilie

> Mommy to 2.5yrs and 4.75 months tort & plagio to be

> STARbanded on 1/27/05