Update on

[Guest guest]

Glen,

Thanks for posting, I have been really worried about her. Just let her

know were all praying for her. Tawny

> regained consciousness this morning. However, they are keeping

> her sedated while she fights the infection. They do have her off all

> of her current RA medications so I don't know exactly how that will

> play out. I know she was hurting pretty bad before this happened and

> she does not take pain medication. If everything goes according to

> plan she should be out of the ICU by the end of the week. I will

keep

> you posted as best I can.

> Thank you,

> Glen

[Guest guest]

Glen, you and will be in our prayers. Thank you so much for

keeping us posted on her progress. Take care of yourself, too.

Jane

--- In , " Genest " <gl199213@y...>

wrote:

> regained consciousness this morning. However, they are keeping

> her sedated while she fights the infection. They do have her off

all

> of her current RA medications so I don't know exactly how that will

> play out. I know she was hurting pretty bad before this happened

and

> she does not take pain medication. If everything goes according to

> plan she should be out of the ICU by the end of the week. I will

keep

> you posted as best I can.

> Thank you,

> Glen

[Guest guest]

Glen, you and will be in our prayers. Thank you so much for

keeping us posted on her progress. Take care of yourself, too.

Jane

> regained consciousness this morning. However, they are keeping

> her sedated while she fights the infection. They do have her off

all

> of her current RA medications so I don't know exactly how that will

> play out. I know she was hurting pretty bad before this happened

and

> she does not take pain medication. If everything goes according to

> plan she should be out of the ICU by the end of the week. I will

keep

> you posted as best I can.

> Thank you,

> Glen

[Guest guest]

In a message dated 8/16/2005 2:16:04 P.M. Eastern Daylight Time, Glen writes:

Update on

Most definitely in my thoughts and prayers, Glen! And you too!

Love and Prayers,

Beth

[Guest guest]

In a message dated 8/16/2005 2:16:04 P.M. Eastern Daylight Time, Glen writes:

Update on

Most definitely in my thoughts and prayers, Glen! And you too!

Love and Prayers,

Beth

[Guest guest]

That's wonderful that she is regaining consciousness. Keeping her

sedated will also keep her comfortable. Thank you for keeping us up

todate on her condition. I will keep her and you in my

prayers...Marina

> regained consciousness this morning. However, they are keeping

> her sedated while she fights the infection. They do have her off all

> of her current RA medications so I don't know exactly how that will

> play out. I know she was hurting pretty bad before this happened and

> she does not take pain medication. If everything goes according to

> plan she should be out of the ICU by the end of the week. I will

keep

> you posted as best I can.

> Thank you,

> Glen

[Guest guest]

That's wonderful that she is regaining consciousness. Keeping her

sedated will also keep her comfortable. Thank you for keeping us up

todate on her condition. I will keep her and you in my

prayers...Marina

> regained consciousness this morning. However, they are keeping

> her sedated while she fights the infection. They do have her off all

> of her current RA medications so I don't know exactly how that will

> play out. I know she was hurting pretty bad before this happened and

> she does not take pain medication. If everything goes according to

> plan she should be out of the ICU by the end of the week. I will

keep

> you posted as best I can.

> Thank you,

> Glen

[Guest guest]

,

I haven't followed all of this, but my first reaction is that coming

off of this, if you are going to chelate, start with 25 mgs. It is

easy and low. Andy recommends 1/8th to 1/2 mg per pound. No need to

push harder than necessary to start (I haven't made this mistake with

chelating, but I sure have with other stuff!).

There is a nutritionist (I think her name is Dorfman?) who

works with alot of our kids and is very well received. Maybe someone

else on the list has used her services and can give you some advice

on this.

As for liver support, if you are not giving it, you should consider

milk thistle and phosphatidyl choline.

Anne

>

> Bowel issues have resolved. I halfed the dose of orthomega, halfed

the

> candex, gave 8000g C in another form . The guy at the HF store said

that

> using the crystal form of C in high amounts could be toxic-maybe

that was

> part of the problem and our emergen c had some ALA in it, so we

discontinued

> that as well. THANKS FOR THE TIP ON THAT!!!

>

> The guy at the HF store recommended the whole foods C, but I

noticed it was

> full of the equivalent of major doses of berries, and I didn't know

about

> the phenol/sulfer/salicylate/amines interactions with those

supplements.

> Does anyone know the effect of whole foods C on special diets? It

seems

> like it might be a bad idea.

>

> After looking at all of the Vit C's available locally, I chose

solaray C

> 1000mg caps with bioflavnoids rosehips and acerola. 2caps 4x a

day. I

> would appreciate any feedback on this product.

>

> I am seeing a improvement since adding more Zyme Prime with carbs

like rice

> and such.....I think his acne is clearing even more, and he seems

less

> anxious.

>

> There was some regression with the overdose of probiotics, pink

eye,

> yellowish eye. I suspected liver overload with the yellow whites

of the

> eyes, and was recommended to start NEC for immune system boost and

liver

> support, so I gave him one cap of that yesterday with all his

other stuff.

>

> His regression included a 21 hour awake cycle, diarrea, and the eye

mess.

> He also is mildly less alert and more in his " own little world " ,

less

> talkative, but I think as the probiotic die off clears out, he is

going to

> restore to the former gains and I will try not to overtax him like

this

> again. If I can trace liver overload or toxin overload to his long

awake

> cycles, that would be something, a clue, so I am thinking this is

good

> detective work.

>

> Food is an issue. I printed out all of the Phenol information from

the

> links and have read them over and it has explained a lot, but it

really

> hasn't given me much to go on for foods he can and will eat. I

suspect he

> is sensitive to the amines and all of the things listed,

salicylites and

> such. Where are we going to begin to get fresh killed meat???? A

fresh

> lobster is $25. here in Kansas, but we are going to feed him it,

what other

> choice do we have? Reading about all of these food issues with

phenols

> really helps explain 's eating disorder. Right now he is

pretty much

> living on bacon..and deli ham...and he hates the taste of the ham

and bacon

> with no nitrates. He eats..an occasional general cho's

chicken...some eggs

> (even though he is allergic to eggs)...He can only drink Panna

Italian glass

> bottled spring water now, and no plastic bottled water. I

think....I need

> someone really diet saavy to talk to about this diet

stuff...because when

> you add his food allergies to the phenols and the sulfers he is to

> avoid....we don't know what he can eat. he can eat no fruit and

veggies

> just about....he does eat potatoes but he is allergic to them too.

He has

> been drinking martinelli's organic sparkling apple cider, and I

know it

> probably doesn't help the yeast, but I needed to rehydrate him

after the

> bowel reaction and he can't tolerate drinking a lot of water.

>

> Right now I think he will be living on the houstons enzymes for

the

> temporary, and they have been a lifesaver. Because of his mold

> sensitivities I think we would be wise to continue reading up on

making a

> real safe diet that he can eat without being overly dependant on

enzymes.

> It's overwhelming.

>

> I don't want to wait to chelate, just because of the diet issues

though.

> Why do I have this sinking feeling we are about to develop

a " 's diet " .

>

> I need diet help. I think if we were going to consult with

someone, maybe

> we need professional help with this diet, or something....If anyone

has any

> suggestions on where we should proceed from here, I would

appreciate it.

>

> Earlier the other day though, before the regression, he full on

laughed and

> smiled as he was playing with his sibs and I haven't seen a laugh

and smile

> like that in forever, so it was a touching encouragement. We are

still

> seeing many gains even within the regressions.

>

> I got the DMSA, 25 mg. I am planning on starting maybe this

weekend or

> next, depending on when his eye clears up. is 152 lbs. I

figured on

> math (i'm not the greatest at math so I wanted to run this by you

all) it

> would be 38 mg every 4 hours for 3 days, then eleven days off. Is

this

> correct for the first round (1/4 mg per lb)? He doesn't have any

school or

> anything to go to, he is homeschooled. Should I just eyeball it

and dump a

> little of the DMSA out of the 2nd capsule, like take what

percentage out of

> one cap?, or is there a more scientific way of doing this?

would like

> to know what to expect symptom wise during chelation....if anyone

would like

> to share...

>

> God Bless you all!!!

>

>

>

[Guest guest]

>

> Bowel issues have resolved.

Yay!

> After looking at all of the Vit C's available locally, I chose

solaray C

> 1000mg caps with bioflavnoids rosehips and acerola. 2caps 4x a day. I

> would appreciate any feedback on this product.

That's what I use, and it seems fine, no problems.

I need

> someone really diet saavy to talk to about this diet stuff...because

when

> you add his food allergies to the phenols and the sulfers he is to

> avoid....we don't know what he can eat.

Here's what I'd do. For as long as you both can stand it, put him on a

very limited diet of stuff you know is safe, even if it's only a few

things. Then add other stuff in, one per day, and see how it goes. The

phenol/salicylate intolerance, for example, may not be to *all

phenols/salicylates. n used to get psycho from red grapes but not

from green ones, etc. The only way to figure it out is slowly, step-by

step, process of elimination. Or process of add-back-in.

Many food additive chemicals are phenolic, so make the diet clean of

those to keep from muddying the results.

One piece of good news is that a lot of kids lose their phenol

intolerance relatively early in chelation; I think n's was mostly

gone by round 15. Before that he ate boatloads of pears .

> Right now I think he will be living on the houstons enzymes for the

> temporary, and they have been a lifesaver. Because of his mold

> sensitivities I think we would be wise to continue reading up on

making a

> real safe diet that he can eat without being overly dependant on

enzymes.

I would let go of that worry. Although the enzymes are derived from

mold, they no longer have mold in them, is my understanding. Embrace

HNI enzymes, they will help you through this tough stage more than

anything else.

> I don't want to wait to chelate, just because of the diet issues

though.

You're right. Chelation is the only thing that will eventually resolve

them.

it

> would be 38 mg every 4 hours for 3 days, then eleven days off. Is this

> correct for the first round (1/4 mg per lb)?

Yes but I'd start him on 25 mgs just to see how he tolerates it, and

to avoid dividing the caps. Less is better when you're first sticking

your toe in the water.

> would like

> to know what to expect symptom wise during chelation....if anyone

would like

> to share...

For me, if the dose is right I get a little tired on the last day and

day after a round. If the dose is too high I get uncomfortably anxious.

Nell

[Guest guest]

Solaray Vit. C with bioflavinoids works great for us too! Keeps my son

regular.

Missy

[ ] Re: Update on

>

> Bowel issues have resolved.

Yay!

> After looking at all of the Vit C's available locally, I chose

solaray C

> 1000mg caps with bioflavnoids rosehips and acerola. 2caps 4x a day.

I

> would appreciate any feedback on this product.

That's what I use, and it seems fine, no problems.

I need

> someone really diet saavy to talk to about this diet stuff...because

when

> you add his food allergies to the phenols and the sulfers he is to

> avoid....we don't know what he can eat.

Here's what I'd do. For as long as you both can stand it, put him on a

very limited diet of stuff you know is safe, even if it's only a few

things. Then add other stuff in, one per day, and see how it goes. The

phenol/salicylate intolerance, for example, may not be to *all

phenols/salicylates. n used to get psycho from red grapes but not

from green ones, etc. The only way to figure it out is slowly, step-by

step, process of elimination. Or process of add-back-in.

Many food additive chemicals are phenolic, so make the diet clean of

those to keep from muddying the results.

One piece of good news is that a lot of kids lose their phenol

intolerance relatively early in chelation; I think n's was mostly

gone by round 15. Before that he ate boatloads of pears .

> Right now I think he will be living on the houstons enzymes for the

> temporary, and they have been a lifesaver. Because of his mold

> sensitivities I think we would be wise to continue reading up on

making a

> real safe diet that he can eat without being overly dependant on

enzymes.

I would let go of that worry. Although the enzymes are derived from

mold, they no longer have mold in them, is my understanding. Embrace

HNI enzymes, they will help you through this tough stage more than

anything else.

> I don't want to wait to chelate, just because of the diet issues

though.

You're right. Chelation is the only thing that will eventually resolve

them.

it

> would be 38 mg every 4 hours for 3 days, then eleven days off. Is

this

> correct for the first round (1/4 mg per lb)?

Yes but I'd start him on 25 mgs just to see how he tolerates it, and

to avoid dividing the caps. Less is better when you're first sticking

your toe in the water.

> would like

> to know what to expect symptom wise during chelation....if anyone

would like

> to share...

For me, if the dose is right I get a little tired on the last day and

day after a round. If the dose is too high I get uncomfortably anxious.

Nell

=======================================================

[Guest guest]

,

Have you considered NAET (N....'s allergy elimination treatment)? www.naet.com

Sounds bizarre at first but a number of us on this list have used it

successfully.

S S

<tt>

Bowel issues have resolved. I halfed the dose of orthomega, halfed the <BR>

candex, gave 8000g C in another form . The guy at the HF store said that <BR>

using the crystal form of C in high amounts could be toxic-maybe that was <BR>

part of the problem and our emergen c had some ALA in it, so we discontinued

<BR>

that as well. THANKS FOR THE TIP ON THAT!!!<BR>

<BR>

The guy at the HF store recommended the whole foods C, but I noticed it was <BR>

full of the equivalent of major doses of berries, and I didn't know about <BR>

the phenol/sulfer/salicylate/amines interactions with those supplements. <BR>

Does anyone know the effect of whole foods C on special diets?  It seems <BR>

like it might be a bad idea.<BR>

<BR>

After looking at all of the Vit C's available locally, I chose solaray C <BR>

1000mg caps with bioflavnoids rosehips and acerola.  2caps 4x a day.  I <BR>

would appreciate any feedback on this product.<BR>

<BR>

I am seeing a improvement since adding more Zyme Prime with carbs like rice <BR>

and such.....I think his acne is clearing even more, and he seems less <BR>

anxious.<BR>

<BR>

There was some regression with the overdose of probiotics, pink eye, <BR>

yellowish eye.  I suspected liver overload with the yellow whites of the <BR>

eyes, and was recommended to start NEC for immune system boost and liver <BR>

support, so  I gave him one cap of that yesterday with all his other stuff.<BR>

<BR>

His regression included a 21 hour awake cycle, diarrea, and the eye mess. <BR>

He also is mildly less alert and more in his " own little world " , less <BR>

talkative, but I think as the probiotic die off clears out, he is going to <BR>

restore to the former gains and I will try not to overtax him like this <BR>

again.  If I can trace liver overload or toxin overload to his long awake <BR>

cycles, that would be something, a clue, so I am thinking this is good <BR>

detective work.<BR>

<BR>

Food is an issue.  I printed out all of the Phenol information from the <BR>

links and have read them over and it has explained a lot, but it really <BR>

hasn't given me much to go on for foods he can and will eat.  I suspect he <BR>

is sensitive to the amines and all of the things listed, salicylites and <BR>

such. Where are we going to begin to get fresh killed meat????  A fresh <BR>

lobster is $25. here in Kansas, but we are going to feed him it, what other <BR>

choice do we have? Reading about all of these food issues with phenols <BR>

really helps explain 's eating disorder.  Right now he is pretty much <BR>

living on bacon..and deli ham...and he hates the taste of the ham and bacon <BR>

with no nitrates.  He eats..an occasional general cho's chicken...some eggs <BR>

(even though he is allergic to eggs)...He can only drink Panna Italian glass

<BR>

bottled spring water now, and no plastic bottled water.  I think....I need <BR>

someone really diet saavy to talk to about this diet stuff...because when <BR>

you add his food allergies to the phenols and the sulfers he is to <BR>

avoid....we don't know what he can eat.  he can eat no fruit and veggies <BR>

just about....he does eat potatoes but he is allergic to them too. He has <BR>

been drinking martinelli's organic sparkling apple cider, and I know it <BR>

probably doesn't help the yeast, but I needed to rehydrate him after the <BR>

bowel reaction and he can't tolerate drinking a lot of water.<BR>

<BR>

Right now I think he will be living on the houstons enzymes for the <BR>

temporary, and they have been a lifesaver.  Because of his mold <BR>

sensitivities I think we would be wise to continue reading up on making a <BR>

real safe diet that he can eat without being overly dependant on enzymes. <BR>

It's overwhelming.<BR>

<BR>

I don't want to wait to chelate, just because of the diet issues though. <BR>

Why do I have this sinking feeling we are about to develop a " 's diet " .<BR>

<BR>

I need diet help.  I think if we were going to consult with someone, maybe <BR>

we need professional help with this diet, or something....If anyone has any <BR>

suggestions on where we should proceed from here, I would appreciate it.<BR>

<BR>

Earlier the other day though, before the regression, he full on laughed and <BR>

smiled as he was playing with his sibs and I haven't seen a laugh and smile <BR>

like that in forever, so it was a touching encouragement.  We are still <BR>

seeing many gains even within the regressions.<BR>

<BR>

I got the DMSA, 25 mg.  I am planning on starting maybe this weekend or <BR>

next, depending on when his eye clears up.  is 152 lbs. I figured on <BR>

math (i'm not the greatest at math so I wanted to run this by you all) it <BR>

would be 38 mg every 4 hours for 3 days, then eleven days off.  Is this <BR>

correct for the first round (1/4 mg per lb)? He doesn't have any school or <BR>

anything to go to, he is homeschooled.  Should I just eyeball it and dump a <BR>

little of the DMSA out of the 2nd capsule, like take what percentage out of <BR>

one cap?, or is there a more scientific way of doing this?  would like

<BR>

to know what to expect symptom wise during chelation....if anyone would like

<BR>

to share...<BR>

<BR>

God Bless you all!!!<BR>

<BR>

<BR>

<BR>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Comments interspersed....

,

I haven't followed all of this, but my first reaction is that coming

off of this, if you are going to chelate, start with 25 mgs. It is

easy and low. Andy recommends 1/8th to 1/2 mg per pound. No need to

push harder than necessary to start (I haven't made this mistake with

chelating, but I sure have with other stuff!).

Thanks! I will start on at 25, and I read that i made a mistake, and Andy says

to start with 1/8, not 1/4 as I thought. Thank you!

There is a nutritionist (I think her name is Dorfman?) who

works with alot of our kids and is very well received. Maybe someone

else on the list has used her services and can give you some advice

on this.

Yes, I would so appreciate a number or referrral for her.

As for liver support, if you are not giving it, you should consider

milk thistle and phosphatidyl choline.

I am giving him milk thisle 100mg 4x a day.

Someone at great plains labs told me to start him on NAC for liver support, now

I see that that is high in sulfer and he is to avoid that. I'd better start

running everything by this list or looking it up in Andy's book. How is

phosphatidyl choline on the sulfer? High or low?

Anne

Thanks Anne!

[Guest guest]

,

> Have you considered NAET (N....'s allergy elimination treatment)?

> www.naet.com Sounds bizarre at first but a number of us on this list have

> used it successfully.

> S S

>

,

Yes, since he couldn't leave the house I was a surrogate for him for about

15 rounds from a doc who was new at it.

I think he is less sensitive to egg, so that was a biggie. I hesitate to go

back because I didn't see a big wow response from it, but have been thinking

that maybe I ought to go back.

[Guest guest]

>>Reading about all of these food issues with phenols

> really helps explain 's eating disorder. Right now he is

pretty much

> living on bacon..and deli ham...and he hates the taste of the ham

and bacon

> with no nitrates.

No-Fenol enzyme helps some kids with nitrates, but not others. You

can try it instead of removing foods, if you want, see if it helps.

http://www.houstonni.com/

> Right now I think he will be living on the houstons enzymes for the

> temporary, and they have been a lifesaver. Because of his mold

> sensitivities I think we would be wise to continue reading up on

making a

> real safe diet that he can eat without being overly dependant on

enzymes.

> It's overwhelming.

My son tolerated no foods. He was seriously dependent on enzymes for

over two years. After ALA chelation, he no longer needs enzymes. So

if it turns out that your child is dependent on enzymes, it does not

have to be forever.

Dana

[Guest guest]

>

> I have great news! said today that he felt better. He said

that he has

> more energy.

That's GREAT!

> Um....the other side is that I have started too many new things to

know what

> to attribute this good fortune.

Um, here too.

>

> He stopped the probiotic until I can put it into capsules, it

tastes yukky

> in water.

It is quite disgusting. My son drinks it in about 4 oz of OJ (w/

Calcium, oral MB12, Ester-C, fish oil, & carotenes - UGH!). He is

taking 3.2 grams (4 adult scoops) divided into 2 doses per day. His

dose is considered " high dose " - I have read at least 3 sources,

including Andy, that have suggested trying a high dose. This has to

be done gradually. It seems to be working very well. It IS

expensive - we go through 100 grams a month.

> I purchased the special probiotic d-lactate free. Does anyone

know if you

> can successfully make yogurt out of these probiotics? I heard

some

> probiotics can be used out of the jar to make yogurt, but since

this bottle

> was so expensive, I thought I would ask first.

Call Harry @ Custom Probiotics. He's been good about giving advice

on usage of his products. I've seen yogurt starter culture on his

website.

[Guest guest]

> After chelation, he has a distinctive smell, like a corpse in a coffin. Kind

> of earthy and bacterial. Anyone know what this is? Normal? Good/Bad?

I don't really know, but I'm guessing - detox.

Keep giving antioxidants and stuff to help him take those toxins out of his

body. Maybe try some charcoal?

> the type of vit C we were giving in a ascorbic acid form was too acidic.

> Baking soda was supposed to buffer that, but it just made him not feel well.

If you want to give a lot of vitamin C and you're worried that is too acidic,

try sodium ascorbate.

I would be careful with baking soda when there's food in his stomach. Baking

soda will make his stomach so alkaline, it won't be able to process the food

well anymore.

Valentina

[Guest guest]

Very cute!!!!!!!! I am glad he is doing well!

In a message dated 4/17/2006 8:02:43 P.M. Eastern Standard Time, boystripletmom@... writes:

http://health.ph./group/Plagiocephaly/photos/browse/1094?b=81 & m=t & o=0

})o{{~~})o{{She's Turnin' The Fabulous Four!.-.........-.(~4~)..¤..(~4~)'w'../_\..'w'§..('"')..§(_Y_)(_)(_)dwh...--4--...dwh(*_**_*_)||'|'|'||`.____.'})o{{~andra 4-23-02~})o{{Joinin' the party~

[Guest guest]

Jess,

's band looks great! Good job on the decorating. He is a cutie

and what a head of hair he has. I love the curls. I am glad to hear

that he is adjusting to the band well.

Isabelle 8 mos STARband 1/31/06

>

> Hey everyone,

>

> Well, is doing really well in his DocBand. He really does

not

> even notice it. He slept in it without a problem last night and

the

> night before.

>

> I ended up painting it blue. I could not figure out what theme to

use

> so I thought of what he liked most....Chocolate! Not that he has

had

> enough of it to like it that much, but it is a funny story.

has

> a gag refex, which makes it really difficult to eat " Big Boy "

foods

> like his brothers, but the other day his daddy was eating

chocolate

> cake and low and behold Mr. was right there wanting some. We

> gave him a little bit to see if he would gag on that too and guess

> what! He ate it without a problem. So all of this reflex and lip

> lock that he has been doing is behavoral mostly. I just thought

that

> it was funny. What kid would not want a hat made out of

chocolate?

>

> I posted some pics....

>

http://health.ph./group/Plagiocephaly/photos/browse/1

0

> 94?b=81 & m=t & o=0

>

> Ciao for now!

>

> Jess

> Mom to DocBand 4/14/06

>

[Guest guest]

Thanks, . He is going to hate me when he gets older for passing down all of those curls to him....hee hee D <fanofleesa@...> wrote: Jess,'s band looks great! Good job on the decorating. He is a cutie and what a head of hair he has. I love the curls. I am glad to hear that he is adjusting to the band well. Isabelle 8 mos STARband 1/31/06>> Hey everyone, > > Well, is doing really well in his DocBand. He really does not > even notice it. He slept in it without a problem last night and the > night before. > > I ended up painting it blue. I could not figure out what theme to use > so I thought of what he liked

most....Chocolate! Not that he has had > enough of it to like it that much, but it is a funny story. has > a gag refex, which makes it really difficult to eat "Big Boy" foods > like his brothers, but the other day his daddy was eating chocolate > cake and low and behold Mr. was right there wanting some. We > gave him a little bit to see if he would gag on that too and guess > what! He ate it without a problem. So all of this reflex and lip > lock that he has been doing is behavoral mostly. I just thought that > it was funny. What kid would not want a hat made out of chocolate? > > I posted some pics....> http://health.ph./group/Plagiocephaly/photos/browse/10> 94?b=81 & m=t & o=0> > Ciao for

now!> > Jess> Mom to DocBand 4/14/06>Thank you, JessRemember to visit our webpage at:http://www.geocities.com/boystripletmom/

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice.

[Guest guest]

Very cute!

-- In Plagiocephaly , " " <boystripletmom@...> wrote:

>

> Hey everyone,

>

> Well, is doing really well in his DocBand. He really does not

> even notice it. He slept in it without a problem last night and the

> night before.

>

> I ended up painting it blue. I could not figure out what theme to use

> so I thought of what he liked most....Chocolate! Not that he has had

> enough of it to like it that much, but it is a funny story. has

> a gag refex, which makes it really difficult to eat " Big Boy " foods

> like his brothers, but the other day his daddy was eating chocolate

> cake and low and behold Mr. was right there wanting some. We

> gave him a little bit to see if he would gag on that too and guess

> what! He ate it without a problem. So all of this reflex and lip

> lock that he has been doing is behavoral mostly. I just thought that

> it was funny. What kid would not want a hat made out of chocolate?

>

> I posted some pics....

> http://health.ph./group/Plagiocephaly/photos/browse/10

> 94?b=81 & m=t & o=0

>

> Ciao for now!

>

> Jess

> Mom to DocBand 4/14/06

>

[Guest guest]

I'm glad to hear this great update. A hat made out of chocolate.

Hillarious!

Haylee

mom to adnre doc band grad

>

> Hey everyone,

>

> Well, is doing really well in his DocBand. He really does

not

> even notice it. He slept in it without a problem last night and

the

> night before.

>

> I ended up painting it blue. I could not figure out what theme to

use

> so I thought of what he liked most....Chocolate! Not that he has

had

> enough of it to like it that much, but it is a funny story.

has

> a gag refex, which makes it really difficult to eat " Big Boy "

foods

> like his brothers, but the other day his daddy was eating

chocolate

> cake and low and behold Mr. was right there wanting some. We

> gave him a little bit to see if he would gag on that too and guess

> what! He ate it without a problem. So all of this reflex and lip

> lock that he has been doing is behavoral mostly. I just thought

that

> it was funny. What kid would not want a hat made out of

chocolate?

>

> I posted some pics....

>

http://health.ph./group/Plagiocephaly/photos/browse/1

0

> 94?b=81 & m=t & o=0

>

> Ciao for now!

>

> Jess

> Mom to DocBand 4/14/06

>

[Guest guest]

Thanks, Haylee. I wish I had a hat of chocolate....haylee204 <rascle204@...> wrote: I'm glad to hear this great update. A hat made out of chocolate. Hillarious!Hayleemom to adnre doc band grad>> Hey everyone, > > Well, is doing really well in his DocBand. He really does not > even notice it. He slept in it without a problem last night and the > night before. > > I ended up painting it blue. I could not figure out what theme to use > so I thought of what he liked most....Chocolate! Not that he has had > enough of it to like it that much, but it is a funny story. has > a gag

refex, which makes it really difficult to eat "Big Boy" foods > like his brothers, but the other day his daddy was eating chocolate > cake and low and behold Mr. was right there wanting some. We > gave him a little bit to see if he would gag on that too and guess > what! He ate it without a problem. So all of this reflex and lip > lock that he has been doing is behavoral mostly. I just thought that > it was funny. What kid would not want a hat made out of chocolate? > > I posted some pics....> http://health.ph./group/Plagiocephaly/photos/browse/10> 94?b=81 & m=t & o=0> > Ciao for now!> > Jess> Mom to DocBand 4/14/06>For more plagio info

[Guest guest]

I'm glad to hear things are going well. Our son had his first doc

band from 14 -18 months. We saw a huge improvment in his head shape,

espeically his forhead. Good luck.

Haylee

mom to Andre 21 months tort/doc band #1 22/11/05 doc bnad #2 21/6/06 &

Lelsy 21 months

>

> Hello All-

>

> We made it through the first weekend with the DOC band. has

> slept all night every night since getting the band on Friday. I was

> worried about how he would sleep on it. Luckily he already has a

> ceiling fan in his room-that helps keep him cool. He has only had

> light red spots since putting it on. So far we are doing well. I

am

> actually a little suprised. Thanks to all for the much needed

support!

>

> Jane

> 12 mos.

>

[Guest guest]

Sharon,

I am glad to hear is re-situated. I am sorry she has to be off

campus though. The med problem is just one of the many reasons why it

was nice to be around the corner from Dr Rand. I wonder how this new

arrangement is going to work out for us big surgical cases.

Please keep us up to date if you hear more. I will put a card in the

mail tomorrow!

Take Care, Cam

[Guest guest]

temporal lobes of the brain

Is there a cure for this ?

I think this part of my brain is gone too.... These implants sure do the damage don't they.... GRRRR

I wonder if this is permanent, I am so afraid that it is since most of us have it and doesn't go away?

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