RE: my sister and neurarlgia

[Guest guest]

Hello ,

Welcome to the group... I'm so sorry that you have had to go through all this your entire life ( Sorry that your sister is so bad also... I see has answered your letter, he would be the best one at this point to give you the advice you are seeking...

Thanks ...

Keep us in touch as to how it is going for ou and your sister... We are here to listen...

((( Welcoming Hugs )))

Helen

HelloMy name is . I am Peruvian and now reside in the United States. I arrived in this marvelous country almost 4 years ago I am married with a loving and caring person, thanks to God I finally have some peace in my life after so many years of torment in Peru. I am forwarding this letter to you in hopes that, as a charitable person you might offer some advice regarding the problem I now face.I come from a family of 11 siblings 6 women 5 men, I am number 7 in the family. At present we are 9 siblings as one child died before my birth. My older sister committed suicide at the age of 39. My parents had not the slightest notion about their responsibilities in raising children especially my mother. She abused us all the time showing no love for her children.They were divorce when I was 11 years old and the majority of the children went to live with my older sister . She protects us until we finished school and could work. Regardless of our intentions and our efforts life is very cruel in Peru to the young raising the young. I began to work at 17 years of age and thanks to God I had good opportunities for work. I worked in the state owned Bank until closed by the government. This left me with no income and 4 sisters to raise. By this time my sister Susy began with psychological problems that deteriorated gradually until she killed herself giving us the worst experience of our lives. We tried to save her life but in the end it wasn't enough and she died in long and arduousagony. At this point I come to the U.S. and to be able to help. Now another sister, Giovanna, 34 is sick with neuralgia and the only thing the doctors in Peru provide are pain killers that cause her to sleep all the time.Her life is changing and I have continuous fear of loosing her. Medical treatment is so far advanced in the U.S. over what she is receiving now. She is a beautiful girl who deserves the opportunity I can provide for her. The assistance I need please, is not money for her treatment as my husband and I can provide that. I'm asking for help and direction in getting the proper referrals for the paper work to get her here for treatment. I have always lived within the law as will Giovanna but the events of Sept 11 have made it all but impossible to help my sister without the help of an influential person such as you. If she can receive the needed medical attention here her life will be of value to her. If I have to leave her in Peru this will not end well. Thank you. Cedarburg WI

[Guest guest]

Hello and welcome Maya. Are you looking to bring her from Peru to be

treated in the US, or are you looking for treatment while she resides in

Peru? How many doctors has she been to? Did they do tests to rule out

other problems? Are you referring to facial neuralgia? If so, please

read the possible treatments from

http://www.healiohealth.com/neuralgia-treatment.html below.

Hugs,

Treatment of postherpetic neuralgia

Clinical bottom line: Tricyclic antidepressants are effective in

relieving postherpetic neuralgia (odds ratio 0.15 (0.08 to 0.27)).

Topical capsaicin is also associated with effective pain relief at the

recommended dose (odds ratio 0.29 (0.16 to 0.54)).

There is currently insufficient evidence to determine whether

transcutaneous nerve stimulation (TENS), benzodiazapines, antiviral

agents, anti-prostaglandins and acupuncture are effective. Current

evidence suggests that they are not, and these treatments should not be

used. Weak evidence suggests that vincristine iontophoresis may have

some benefit, but side effects are unpleasant. More proven treatments

are therefore recommended.

This has been defined as pain persisting in the dermatomes affected by

herpes zoster (shingles) after the disappearance of the rash caused by

the infection.

Up to 15% of untreated patients have persistent pain one month after

healing of an acute herpetic rash. One quarter of these (4% of total)

still have pain at one year. The risk of postherpetic neuralgia

increases sharply with age, and can be as high as 50% in patients aged

over 60 years and 75% in those aged over 75 years.

Treatment during the acute phase has been covered in a separate review

(Lancaster et al, 1995). This review considers treatment during the

chronic phase of the condition.

Systematic review

Volmink J, Lancaster T, Gray S, Silagy C. Treatments for postherpetic

neuralgia: A systematic review of randomized controlled trials. Family

Practice. 1996; 13: 84-91. ISSN: 0263-2136.

Date review completed: December 1993

Number of trials included: 12

Main outcomes: pain relief after treatment.

Inclusion criteria were randomised controlled trials of postherpetic

neuralgia, where pain had persisted for at least one month after onset

of herpes zoster; at least two treatment groups.

Pain data were extracted. Expected event rates were subtracted from

observed event rates for each trial. Estimate of effect size was

calculated using odds ratios with 95% confidence intervals.

Findings

Tricyclic antidepressants

Five trials were included. Three trials compared a tricyclic

(amitriptyline or desipramine) with placebo. Three of three trials

demonstrated better pain relief with a tricyclic. The odds ratio was

0.15 (0.08 to 0.27). However, desimpramine was associated with some

potentially serious side effects. One trial also examined maprotiline,

and found no benefit over amitriptyline.

Transcutaneous electrical nerve stimulation

One low quality trial compared combination clomipramine and

carbamazepine with transcutaneous electrical nerve stimulation (TENS).

Combination therapy was better than TENS, with an odds ratio of 0.15

(0.03 to 0.7).

Benzodiazapines

One trial compared lorazepam with placebo and amitriptyline. Lorazepam

was not associated with any benefit: odds ratio 1.00 (0.24 to 4.18). It

was associated with sedation and low mood, including onset of severe

depression in some patients.

Antiviral

One small trial demonstrated no benefit of acylovir treatment compared

with placebo; odds ratio 1.16 (0.21 to 6.47). However, group size may be

too small to demonstrate an effect.

Topical capsaicin

Three placebo-controlled trials were included. Two of three trials

demonstrated significant benefit of capsaicin (0.075% for six weeks)

over placebo. The remaining trial was large, but used a weaker

preparation (0.025% for four weeks). Capsaicin was associated with skin

reactions which lessened during treatment.

Anti-prostaglandin

One trial compared benzydamine with placebo. There was no significant

benefit, with an odds ratio of 1.2 (0.37 to 3.92). Rashes were more

frequent in benzydamine patients.

Iontophoresis

One small trial of transdermal vincristine iontophoresis showed

significant benefit over saline-only placebo: odds ratio 0.05 (0.01 to

0.26). However skin irritation and painless burns were common in both

groups.

Acupuncture

One trial showed no benefit of acupuncture over placebo (mock TENS):

odds ratio 0.92 (0.28 to 3.00). Failure to complete treatment was high

because of the pain associated with acupuncture.

my sister and neurarlgia

HelloMy name is . I am Peruvian and now reside in

the United States. I arrived in this marvelous country almost 4

years ago I am married with a loving and caring person, thanks to

God I finally have some peace in my life after so many years of

torment in Peru. I am forwarding this letter to you in hopes that,

as a charitable person you might offer some advice regarding the

problem I now face.I come from a family of 11 siblings 6 women 5

men, I am number 7 in the family. At present we are 9 siblings as

one child died before my birth. My older sister committed suicide at

the age of 39. My parents had not the slightest notion about their

responsibilities in raising children especially my mother. She

abused us all the time showing no love for her children.They were

divorce when I was 11 years old and the majority of the children

went to live with my older sister . She protects us until

we finished school and could work. Regardless of our intentions and

our efforts life is very cruel in Peru to the young raising the

young. I began to work at 17 years of age and thanks to God I had

good opportunities for work. I worked in the state owned Bank until

closed by the government. This left me with no income and 4 sisters

to raise. By this time my sister Susy began with psychological

problems that deteriorated gradually until she killed herself giving

us the worst experience of our lives. We tried to save her life but

in the end it wasn't enough and she died in long and arduous agony.

At this point I come to the U.S. and to be able to help. Now another

sister, Giovanna, 34 is sick with neuralgia and the only thing the

doctors in Peru provide are pain killers that cause her to sleep all

the time.Her life is changing and I have continuous fear of loosing

her. Medical treatment is so far advanced in the U.S. over what she

is receiving now. She is a beautiful girl who deserves the

opportunity I can provide for her. The assistance I need please, is

not money for her treatment as my husband and I can provide that.

I'm asking for help and direction in getting the proper referrals

for the paper work to get her here for treatment. I have always

lived within the law as will Giovanna but the events of Sept 11 have

made it all but impossible to help my sister without the help of an

influential person such as you. If she can receive the needed

medical attention here her life will be of value to her. If I have

to leave her in Peru this will not end well. Thank you.

Cedarburg WI

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[Guest guest]

Hello

Being a bit of a Star Trek fan, I just have to refer to you as Seven of

Nine In Houston, there's a local TV celebrity named Marvin Zindler

that will organize various individuals and charities to help individuals

in other countries, often flying the afflicted to Houston for medical

treatment. You may want to try and see if you can draw the attention

of a local media celebrity like that. Other than that, it appears to

me that the US, lacking an organized public healthcare system, depends

on charities to do all the work. Contact some of them, hopefully they

will at least verify the situation which would give more credence to

soliciting for assistance.

Regards,

mayap16 wrote:

>HelloMy name is . I am Peruvian and now reside in

>the United States. I arrived in this marvelous country almost 4

>years ago I am married with a loving and caring person, thanks to

>God I finally have some peace in my life after so many years of

>torment in Peru. I am forwarding this letter to you in hopes that,

>as a charitable person you might offer some advice regarding the

>problem I now face.I come from a family of 11 siblings 6 women 5

>men, I am number 7 in the family. At present we are 9 siblings as

>one child died before my birth. My older sister committed suicide at

>the age of 39. My parents had not the slightest notion about their

>responsibilities in raising children especially my mother. She

>abused us all the time showing no love for her children.They were

>divorce when I was 11 years old and the majority of the children

>went to live with my older sister . She protects us until

>we finished school and could work. Regardless of our intentions and

>our efforts life is very cruel in Peru to the young raising the

>young. I began to work at 17 years of age and thanks to God I had

>good opportunities for work. I worked in the state owned Bank until

>closed by the government. This left me with no income and 4 sisters

>to raise. By this time my sister Susy began with psychological

>problems that deteriorated gradually until she killed herself giving

>us the worst experience of our lives. We tried to save her life but

>in the end it wasn't enough and she died in long and arduous

>agony.

>At this point I come to the U.S. and to be able to help. Now another

>sister, Giovanna, 34 is sick with neuralgia and the only thing the

>doctors in Peru provide are pain killers that cause her to sleep all

>the time.Her life is changing and I have continuous fear of loosing

>her. Medical treatment is so far advanced in the U.S. over what she

>is receiving now. She is a beautiful girl who deserves the

>opportunity I can provide for her. The assistance I need please, is

>not money for her treatment as my husband and I can provide that.

>I'm asking for help and direction in getting the proper referrals

>for the paper work to get her here for treatment. I have always

>lived within the law as will Giovanna but the events of Sept 11 have

>made it all but impossible to help my sister without the help of an

>influential person such as you. If she can receive the needed

>medical attention here her life will be of value to her. If I have

>to leave her in Peru this will not end well. Thank you.

>

>Cedarburg WI

>

>

>

>

>

....

[Guest guest]

Gracias Jhon

I will do that I am very worry for my sister and i am going to continue serching for help antil I get same.

Thank you for your nice email

[Guest guest]

Thank You

For your nice email, I am going to continue in my search for help for my sister and I hope same one can help me to bring her here.

Thank you

Maya

[Guest guest]

Maya,

No need to be sorry for your writing, I understand what you are saying. You are very brave and a wonderful sister. I agree with , try to get the media involved. Email your local news stations about your story. Don't give up! I will do some searching on the charity aspect, is dealing with his own visa problem at the moment, so he may be able to give you advice in that arena. Keep writing to us. We can support you emotionally while this is going on. Please don't give up!

Hugs,

-----Original Message-----From: & Maya [mailto:mayamick@...] Sent: Wednesday, March 24, 2004 8:15 AM Subject: RE: my sister and neurarlgia

Hello

She when to a couple of doctor in Peru my another sister is helping her, she has a Neuralgia bilateral in both parts of the face she pull her too thinking that can help with the pain but is not she has a head scan and does not appear something dramatic but the think is worry me she is slipping almost all the time and the same exactly happens with my older sister who kill herself.

The only thing I am lucking for it is help for bring her to here I am truing before but the American embassy en Peru denay the visa, just I need help for that because my husband and I we can do all possible for help her with her medical treatment.

I am goin to continue in my serch until I have same help for her

I am sorry for my writing and thak you for your nice email

Maya

---

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[Guest guest]

Hello

I only know about Canada/US visa issues, I've never had a problem with

INS (now called Homeland Security), just with the HR departments of

companies and managers that think they know what they're doing but don't.

I would imagine that a visa waiver would need to be applied for on

compassionate grounds. Visitors visas are for tourists, business visas

are for business, immigrant visas are for immigration, anything else

requires a waiver. One of the requirements for a visa waiver is proof

of sufficient finances to be in the US for the intended period of time

and purpose, without an income. That's where involving the media or a

charity would really help, as they would be able to assume financial

responsibility.

You'll probably need to document a medical reason for the trip, you'll

need letters from the Doctor's she's visited describing her condition

and recommending medical care in the US. They would probably have to

recommend some American institutions or Doctors and how those

institutions or Doctors are uniquely qualified to treat the condition

ie.: why she has to go specifically to the US for the care.

It could be that the problem is as simple as simply asking for a visa

waiver instead of a visa since all the visa categories have very

specific requirements for the purposes they are intended for and none of

them are intended for access to medical care. Document how she will be

supported in the States, her condition, why treatment for those

conditions are best served from the States and ask for a visa waiver.

In Canadian bookstores, there are " border books " that describe the

regulations between Canada and the US with various examples and copies

of the forms. You probably need to find the Peruvian equivalent of

such a book. I think I have a third edition and a ninth edition copy

of the book for Canada/US situations. Of course, they have those books

because 80% of Canada's trade is with the US. As is explaining to the

very fast American drivers that the speed limit is 100 km per hour not

100 miles per hour and that kilometres are shorter than miles.

Regards,

Don & wrote:

> Maya,

>

> No need to be sorry for your writing, I understand what you are

> saying. You are very brave and a wonderful sister. I agree with

> , try to get the media involved. Email your local news stations

> about your story. Don't give up! I will do some searching on the

> charity aspect, is dealing with his own visa problem at the

> moment, so he may be able to give you advice in that arena. Keep

> writing to us. We can support you emotionally while this is going

> on. Please don't give up!

>

> Hugs,

>

>

>

> * RE: my sister and neurarlgia

>

> <http://www.smileycentral.com/?partner=ZSzeb001> Hello

>

> She when to a couple of doctor in Peru my another sister is

> helping her, she has a Neuralgia bilateral in both parts of the

> face she pull her too thinking that can help with the pain but

> is not she has a head scan and does not appear something dramatic

> but the think is worry me she is slipping almost all the time and

> the same exactly happens with my older sister who kill herself.

>

> The only thing I am lucking for it is help for bring her to here

> I am truing before but the American embassy en Peru denay the

> visa, just I need help for that because my husband and I we can

> do all possible for help her with her medical treatment.

>

> I am goin to continue in my serch until I have same help for her

> I am sorry for my writing and thak you for your nice email

> Maya

>

>

>

....

[Guest guest]

Dear Don & :

Many thanks for continuing in contact with me, I was reading allot about emigration and the kind of visa she needs is for "not emigrant B1/B2" that include ,visitor,business,medical attention just I am waiting for my sister medical records for contact with a hospital or clinic here en Wisconsin and apply for that kind of visa.

The difference between apply for a visa and have one is the problem is in that part I need help I am written cards to almost everybody Oprah,Doctor Phil, and I am thinking to send a letter to the local chanels asking for support.

I really appreciate your friendly emails that make feel that I am not alone in all this, every day for me is a torture thinking she is in pain and sleeping almost all the time but I am convince that I can do this I think for same reason I am here already and I am going to do everithing I can for her.

Well everything is not bad in my live I am going to open a Bakery on the place where I live Cedarburg WI and I am so exiting about it , I share this with my sister and I tell her that if she can make it to here everything going to be different for her because I am planing to give the best of me for make her feel better.

Thank you again

Maya

MAYA

[Guest guest]

Maya,

You're welcome. That is what we do here. I would start at the local news channels/newspapers there. You are starting a bakery? I'd love to be able to do that. I love baking. If she is on pain medication at least she isn't in as much pain. You might want to call the local churches as well to see if they have any programs that will help with transporting your sister here. Do you keep in contact often with your sister? How is she doing?

Hugs,

-----Original Message-----From: & Maya [mailto:mayamick@...] Sent: Thursday, March 25, 2004 7:11 PM Subject: Re: my sister and neurarlgia

Dear Don & :

Many thanks for continuing in contact with me, I was reading allot about emigration and the kind of visa she needs is for "not emigrant B1/B2" that include ,visitor,business,medical attention just I am waiting for my sister medical records for contact with a hospital or clinic here en Wisconsin and apply for that kind of visa.

The difference between apply for a visa and have one is the problem is in that part I need help I am written cards to almost everybody Oprah,Doctor Phil, and I am thinking to send a letter to the local chanels asking for support.

I really appreciate your friendly emails that make feel that I am not alone in all this, every day for me is a torture thinking she is in pain and sleeping almost all the time but I am convince that I can do this I think for same reason I am here already and I am going to do everithing I can for her.

Well everything is not bad in my live I am going to open a Bakery on the place where I live Cedarburg WI and I am so exiting about it , I share this with my sister and I tell her that if she can make it to here everything going to be different for her because I am planing to give the best of me for make her feel better.

Thank you again

Maya

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

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[Guest guest]

Hello Lee

Thank you for the information I am going to check at the University of California for the name of the Doctor .

Thank again

Maya