Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 WOW ;;HELEN;; THANKS FOR ALL THIS INFO;; YA;; I DO SOUND A LOT LIKE YOU;; NO;; THEY HAVE NEVER CHECKED ME FOR THE NEUROPATHY;; MY KIDS TELL ME IT IS OLD AGE WHEN IM TELLING THEM SOMETHING AND FORGET WHAT IM SAYING;;OR GO INTO A ROOM TO GET SOMETHING AND FORGET WHY I WENT IN THERE;; ONE TIME I COULDNT FIND MY READING GLASSES;; ALWAYS HAVE THEM ON THE KITCHEN COUNTER;; FOUND THEM THE NEXT DAY IN MY BATHROOM DRAWER WITH MY MAKEUP;; AND I DO NOT REMEMBER PUTTING THEM THERE;;;LOL;; SERIOUSLY THO;; SOMETIMES IT IS SCARRY;; AND I HAVE HAD IT WHEN IM CALLING ONE OF THE KIDS;; I FORGET THEIR PHONE #AND HAVE TO LOOK IT UP IN PHONE BOOK;;I WRITE EVERYTHING ON MY CALENDAR SO I DONT FORGET;;BIRTHDAYS;; APPOINTMENTS;; ETC;; GROCERY LIST AND THEN I STILL FORGET TO GET IT ALL SOMETIMES;;ON & ON;; YOU SURE DO TAKE A LOT OF MEDS;; i DO THE SAME THING WITH MY SLEEPING;; WAKE UP ;;A FEW TIMES A NIGHT;; IF I GET 4 HRS TOTAL ;; I DO GOOD;;;WHEN I WAKE UP IM INSTANTLY AWAKE BUT FEEL SOOOOOOOOO TIRED YET;;;EVERY ONCE IN AWHILE I DO SLEEP MORE THEN THAT;; I FIND THAT IF I TRY TO GO TO BED ABOUT THE SAME TIME EVERY NIGHT I DO BETTER;; IF I BURN THE CANDLE ;;IM SHOT;;THANKS FOR ALL THE ARTICLES YOU SENT ;;I THINK YOU SENT THEM A LONG TIME AGO;; BUT I NEED THE REFRESHING OF THEM AGAIN ;;;WILL SEND THEM TO MY SISTER TOO;; SHE IS A YEAR YOUNGER THEN ME;; AND HAS THE SAME AS I DO;; SOMETIMES ONE WOULD THINK THAT WE ARE TWINS;;LOL;;SO IT MUST RUN IN FAMILIES;; WE HAVE A COUPLE COUSINS WHO HAVE IT ALSO;; FIBRO I MEAN;;TAKE CARE MY FRIEND;; AND HAVE A GOOD WEEKEND;; IM NOT ON MUCH THEN;; THE TWINS COME HOME ON SUNDAYS;; STAY WARM PRAYERS;; LUV & (((HUGS))) DORT -- Re:DORT/DORKY Helen;; when I wrote and told you what is wrong with me;; did I say Fibro also?? See I.m having Fibro Fog too;;lol;; ************* Yes you said Fibro,,, Don't ya just hate Fibro Fog??? I hate the worst is talking to someone and in the middle of a sentence, I totally forget what I am talking about! I also have what I forgot to mention;; Chronic Uticaria;;((Hives)) I break out over my whole body for no apparent reason;; from anything;; Sun;; you name it;;I havent had breakouts lately but never know when I will;;Had all kind of blood tests to see why but they never got to the bottom of it so just called it chronic hives;; I had it so bad a couple times that my throat started to close up on me;;That was scarry;;;It seems that if I get stressed it makes it worse as so does everything when we get stressed;; ******************Ross's Dad does that all the time and they cannot figure out why he does it either... It's terrible when he does break out so bad... I also have bad circulation;; always have cold feet and legs;; even with pants on;; and if I get cold my whole body turns purple ;; like my veins are coming to the surface;; you can see all of the veins in my body when I do that;; they never got to the bottom of that either;; but then the D r that I have dont understand Fibro either;; *******************Have you ever been tested for Neuropathy??? I get like that also and I have been diagnoised with poly neuropathy which means many nerves involved, I get so cold and turn purple too... My hands and feet are the worse... The test they done was that needle thing that they probe you with in your nerves... He poked me so many times in certain areas and would say don't you feel that? I told him I felt something, but he said it must not have been much that I felt because I didn't even flinch, and here there was blood all over the guerney I was laying on that he probed so hard... He did hit one spot that I almost jumped off the table when he zotted it... He said you felt that one!!! I said I sure did!!!!!! All that I know about it I have learned from on here and tapes I have and from going to support groups for it;; I dont go anymore to the group;; It got to be too much to get dressed up to go out;;;It was only once a month;; I have tried every med and herbal thing out there for it ;; but I havent found anything to trully help;; what do you take??? It seems like what helps one doesnt help everyone;;I live on Bayer aspirins;; and take a nite time Bayer at night to sleep;; I used to be on an antidepressant ;;Elival and then W elbutrin but found the aspirins help me just as well;; used to be on an in flamatory also for the arthritus;; but I still had pain so gave up on that also;;then I tried a whole regiman of herbal stuff from the health store;; I do take vitamins and Glosomine;;enuf of my rattling; lol;; take care and stay warm;; Prayers;; Luv and Hugs ********************I take 17 meds, but none of them for the fibro... All the meds I take are to just to keep my body running normal... I do have two pain meds that I can take for the migrains, but I rarely use them, they never take away the pain anyways and I don't like the way the one makes me feel as then I can't sleep at all... I won't take anything that makes my head feel funny, its spacy enough up there, I don't need any help ) I get very little sleep... On a good night I will get 5 hours of broken sleep... My normal now is 3 - 5 hours a night and I usually wake up at least once or twice in that time period... I was taking one asprin a day, but it was thinning ny blood so much that I had to stop taking it as when I had to go in for emergency surgery, they couldn't get my blood to clot within the alloted time... Will send a couple of articles for you to look at when I find them here ) You almost sound like a carbon copy of myself! ((( Stay Well Hugs ))) Helen Signature Creations by PANDORASBOX8 ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 My Calender is my lifeline, everything is wrote down on it, as there is no way I remember anything... It has to make an impact for me to remember it... Have ya put the milk in the cupboard and the iron in the fridge yet??? ) Things come up missing around here all the time and then its the search game that begins... Hubby usually finds the things I sorta missplace... And theres other things that are never recovered ( We came to the conclusion that the things that have never been recoved was most likely thrown away... Ross has caught me throwing things away that had no intent of going to the garbage can ] but somehow thats where they end up... Yes, Fibro Is Hereditary, they can't tell me any different... Our son has it and I think our daughter has it and now I think little Bre, my grand daughter has it... My girlfriend has it and 7 of her 9 sisters have it!!! Have fun with your children... They grow up and move away all too soon... ((( Weekend Hugs ))) Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 No;;Helen;; I havent done that yet;; At least I dont remember if I did;; lol;; But I have thrown things away;; and remember later;; then have to go thru the garbage to find it;; if it is something important;; yuck;;lol;; How is your weather today?? It is 21 here now;; we got a little more snow over night but not as much as others around here;; Especially on the other side of Lake Mi;;They are saying lake effect snow every day;; Yes ;; the kids do grow up way too fast;; One of my grandaughters is 16; today;;and then a grandson will be 16 the 2nd of Feb;; another one will be in April and then another one in May;; We had 5 grandkids in a year;; all of my girls and daughter-in law were pg at the same time;; all of the girls except the twins;; The one who is 16 today;; was a month early and only weighed 3 # & A few oz.. Would never know it today;; she is such a smart girl and such a caring and giving girl;; Ya;; I think also that Fibro is a family thing;; So far none of my kids seem to have it but I didnt get it till I was in my 50;s but thinking back to when I was a kid ;; I think I had it then;; always had bad headaches and achey muscles;; But then they said it was growing pains;;lol;;Didnt know what they know now back then;; have to check more mail;; wasnt on here since Sat;; Luv & Hugs Dort -- Re: Re:DORT/DORKY My Calender is my lifeline, everything is wrote down on it, as there is no way I remember anything... It has to make an impact for me to remember it... Have ya put the milk in the cupboard and the iron in the fridge yet??? ) Things come up missing around here all the time and then its the search game that begins... Hubby usually finds the things I sorta missplace... And theres other things that are never recovered ( We came to the conclusion that the things that have never been recoved was most likely thrown away... Ross has caught me throwing things away that had no intent of going to the garbage can ] but somehow thats where they end up... Yes, Fibro Is Hereditary, they can't tell me any different... Our son has it and I think our daughter has it and now I think little Bre, my grand daughter has it... My girlfriend has it and 7 of her 9 sisters have it!!! Have fun with your children... They grow up and move away all too soon... ((( Weekend Hugs ))) Helen ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
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