Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I just heard the details. Taya took a pill to prevent Malaria last night, and it had got stuck in her throat. She said it was okay, since it had happened before and she could still act normally. Sometime during the night she had woken up her husband, since she couldn't breath. Mucus had built up in her lungs. They couldn't get enough help on time, since they were in a small town in Africa, and she passed away. She had had some swallowing trouble earlier, and she had started to have difficulties with continous coughing. - Venla Sad news I've been mostly lurking on this list, but I'm the sister of Taya Heinonen. I'm sad to inform you she passed away last night while on a work-related trip in Tanzania. I don't have all the details yet, so I'll send another message when I know more. - Venla SMA II Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I'm so sorry Venla...our thoughts are with you. tracy In a message dated 10/22/2008 10:31:25 A.M. Central Daylight Time, blueyedaze@... writes: I'm so sorry for your loss. That's just too sad. -Amy On Oct 22, 2008, at 3:04 AM, Venla Räty wrote: > I've been mostly lurking on this list, but I'm the sister of Taya > Heinonen. I'm sad to inform you she passed away last night while on > a work-related trip in Tanzania. I don't have all the details yet, > so I'll send another message when I know more. > > - Venla > SMA II > > [Non-text portions of this message have been removed] > > > [Non-text portions of this message have been removed] **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I really am sad to hear it. My heartfelt sympathy to you and all her loved ones. Camilla > > I've been mostly lurking on this list, but I'm the sister of Taya Heinonen. I'm sad to inform you she passed away last night while on a work-related trip in Tanzania. I don't have all the details yet, so I'll send another message when I know more. > > - Venla > SMA II > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 That is terrible news, I am very sorry for your loss. Tom --------- Sad news I've been mostly lurking on this list, but I'm the sister of Taya Heinonen. I'm sad to inform you she passed away last night while on a work-related trip in Tanzania. I don't have all the details yet, so I'll send another message when I know more. - Venla SMA II Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Dear Venla, I’m so sorry for your loss. I am a lurker too, but I had had a few email conversations with Taya over the years. She was always so positive and she will be missed by so many people. My condolences to you, her husband and to all her family and friends. My thoughts are with you. x ----------------------------------------- Email sent from www.virginmedia.com/email Virus-checked using McAfee® Software and scanned for spam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I'm so sorry for your loss. That's just too sad. -Amy On Oct 22, 2008, at 3:04 AM, Venla Räty wrote: > I've been mostly lurking on this list, but I'm the sister of Taya > Heinonen. I'm sad to inform you she passed away last night while on > a work-related trip in Tanzania. I don't have all the details yet, > so I'll send another message when I know more. > > - Venla > SMA II > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 this so awfull! i'm sorry for your loss and be strong love & light Patie http://patie80.multiply.com http://lilithfromearth.livejournal.com http://patie.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Venla, Oh my, this is so unexpected! I'm so sorry to hear of her passing. She was such a bright and caring person, and she never hesitated to chime in here to help another SMAer. You, your family, and her friends are in my thoughts and prayers. Kimi }i{ Visit my myspace page and blogs: _www.myspace.com/ksmile96_ (http://www.myspace.com/ksmile96) }i{ " When you're gone, the pieces of my heart are missing you. When you're gone, the face I used to know is missing too. When you're gone all the words I need to hear to always get me thru the day and make it ok. I miss you. " -Avril Lavigne In a message dated 10/22/2008 3:07:35 A.M. Eastern Daylight Time, wepsi@... writes: I've been mostly lurking on this list, but I'm the sister of Taya Heinonen. I'm sad to inform you she passed away last night while on a work-related trip in Tanzania. I don't have all the details yet, so I'll send another message when I know more. - Venla SMA II [Non-text portions of this message have been removed] **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Oh, my, that is so sad. I've known Taya for over a decade! Please let her husband know I am thinking of him and the family. On Oct 22, 2008, at 3:04 AM, Venla Räty wrote: > I've been mostly lurking on this list, but I'm the sister of Taya > Heinonen. I'm sad to inform you she passed away last night while on > a work-related trip in Tanzania. I don't have all the details yet, > so I'll send another message when I know more. > > - Venla > SMA II > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I will. He's in Tanzania until Sunday or so, but they'll bring Taya home before that. Her wheelchair and the clothes she had with her will be donated to someone in there, as she likely would have wanted. Re: Sad news Oh, my, that is so sad. I've known Taya for over a decade! Please let her husband know I am thinking of him and the family. On Oct 22, 2008, at 3:04 AM, Venla Räty wrote: > I've been mostly lurking on this list, but I'm the sister of Taya > Heinonen. I'm sad to inform you she passed away last night while on > a work-related trip in Tanzania. I don't have all the details yet, > so I'll send another message when I know more. > > - Venla > SMA II > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Thank you for letting us know, Venla. I really felt an affinity with Taya...the work she did, her politics, her world view from the perspective of having a disability while not being ruled by her disability. Sending you and all who love her warm thoughts and an acknowledgment that the world is a better place for her being here. Alana SMA II, Age 42 Berkeley, CA, USA > > I will. He's in Tanzania until Sunday or so, but they'll bring Taya home before that. Her wheelchair and the clothes she had with her will be donated to someone in there, as she likely would have wanted. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Venla, if you feel up to it, I'd love to hear about what Taya was doing in Tanzania. I have a friend who just returned from there doing public health work regarding birth. It was a powerful experience. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I will sure miss Taya, she was always there to give advice and talk. Thank you for informing us. :-( On 10/22/08 2:04 AM, " Venla Räty " <wepsi@...> wrote: > I've been mostly lurking on this list, but I'm the sister of Taya Heinonen. > I'm sad to inform you she passed away last night while on a work-related trip > in Tanzania. I don't have all the details yet, so I'll send another message > when I know more. > > - Venla > SMA II > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I'm also very sorry to hear about Taya's passing. I am constantly amazed at the way SMA adults don't just sit around, but work to make a better world (yes, the pun was intended.) I hope Bernie will grow up to be that kind of person too. It would be very interesting to hear more about the project she was working on. I hope someone will carry on her work there. bettylou Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 It's shocking. I'm very sad. My deepest condolences to her family and friends. Aul ________________________________ From: " " < > Sent: Wednesday, October 22, 2008 7:41:56 PM Subject: Digest Number 2759 There are 17 messages in this issue. Topics in this digest: 1.1. Sad news From: Venla Räty 1.2. Re: Sad news From: Tania 1.3. Re: Sad news From: Venla Räty 1.4. Re: Sad news From: Camilla 1.5. Re: Sad news From: tshindle@... 1.6. Re : Re: Sad news From: Nisar Elahi 1.7. Re : Re: Sad news From: Nisar Elahi 1.8. Re: Sad news From: Amy 1.9. Re: Sad news From: tstefonek@... 1.10. Re: Sad news From: patrycja polczyk 1.11. Re: Sad news From: Malatesta 1.12. Re: Sad news From: Venla Räty 1.13. Re: Sad news From: Alana 1.14. Re: Sad news From: Alana 1.15. Re: Sad news From: Ksmile96@... 1.16. Re: Sad news From: 2. Re: sad news From: mulberries@... Messages ________________________________________________________________________ 1.1. Sad news Posted by: " Venla Räty " wepsi@... wepsi_98 Date: Wed Oct 22, 2008 12:04 am ((PDT)) I've been mostly lurking on this list, but I'm the sister of Taya Heinonen. I'm sad to inform you she passed away last night while on a work-related trip in Tanzania. I don't have all the details yet, so I'll send another message when I know more. - Venla SMA II Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Please know my heartfelt condolences and send them to all who loved and knew Taya. My brother Hank {my brother who had SMA} died the same way. In the 1980s I choked on and then aspirated a huge pill myself and was only kept alive by care givers who pumped 'speed' into me for days {by back then legally available channals that aren't available now} while chest P.T.ing and holding me upside down, until I was better. Aspiration is a horrible but common risks that individuals with SMA face regularilly. > 1.3. Re: Sad news > Posted by: " Venla Räty " wepsi@... wepsi_98 > Date: Wed Oct 22, 2008 1:43 am ((PDT)) > > I just heard the details. Taya took a pill to prevent Malaria last night, and it had got stuck in her throat. She said it was okay, since it had happened before and she could still act normally. Sometime during the night she had woken up her husband, since she couldn't breath. Mucus had built up in her lungs. They couldn't get enough help on time, since they were in a small town in Africa, and she passed away. > She had had some swallowing trouble earlier, and she had started to have difficulties with continous coughing. > > - Venla > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Does that mean that the whole pill actually went into your lungs (or taya¹s or your brother¹s)? I choke a lot but so far have never had anything like aspiration pneumonia etc. I usually choke on water though and would never attempt to swallow a pill. On 10/24/08 9:37 PM, " Amy " <charmedcripchic@...> wrote: > Please know my heartfelt condolences and send them to all who loved and > knew Taya. > > My brother Hank {my brother who had SMA} died the same way. > > In the 1980s I choked on and then aspirated a huge pill myself and was > only kept alive by care givers who pumped 'speed' into me for days {by > back then legally available channals that aren't available now} while > chest P.T.ing and holding me upside down, until I was better. > > Aspiration is a horrible but common risks that individuals with SMA > face regularilly. > >> > 1.3. Re: Sad news >> > Posted by: " Venla Räty " wepsi@... wepsi_98 >> > Date: Wed Oct 22, 2008 1:43 am ((PDT)) >> > >> > I just heard the details. Taya took a pill to prevent Malaria last > night, and it had got stuck in her throat. She said it was okay, since > it had happened before and she could still act normally. Sometime > during the night she had woken up her husband, since she couldn't > breath. Mucus had built up in her lungs. They couldn't get enough help > on time, since they were in a small town in Africa, and she passed > away. >> > She had had some swallowing trouble earlier, and she had started to > have difficulties with continous coughing. >> > >> > - Venla >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 venlamy thoughts are with you and all those who loved you sister. i highly valued taya as a fellow european on this list, always willing to help, and so so admired her adventuring spirit. linda 2008/10/25 <nicoleroberts@...> > Does that mean that the whole pill actually went into your lungs (or > taya¹s > or your brother¹s)? I choke a lot but so far have never had anything like > aspiration pneumonia etc. I usually choke on water though and would never > attempt to swallow a pill. > > > > > On 10/24/08 9:37 PM, " Amy " <charmedcripchic@...<charmedcripchic%40>> > wrote: > > > Please know my heartfelt condolences and send them to all who loved and > > knew Taya. > > > > My brother Hank {my brother who had SMA} died the same way. > > > > In the 1980s I choked on and then aspirated a huge pill myself and was > > only kept alive by care givers who pumped 'speed' into me for days {by > > back then legally available channals that aren't available now} while > > chest P.T.ing and holding me upside down, until I was better. > > > > Aspiration is a horrible but common risks that individuals with SMA > > face regularilly. > > > >> > 1.3. Re: Sad news > >> > Posted by: " Venla Räty " wepsi@... wepsi_98 > >> > Date: Wed Oct 22, 2008 1:43 am ((PDT)) > >> > > >> > I just heard the details. Taya took a pill to prevent Malaria last > > night, and it had got stuck in her throat. She said it was okay, since > > it had happened before and she could still act normally. Sometime > > during the night she had woken up her husband, since she couldn't > > breath. Mucus had built up in her lungs. They couldn't get enough help > > on time, since they were in a small town in Africa, and she passed > > away. > >> > She had had some swallowing trouble earlier, and she had started to > > have difficulties with continous coughing. > >> > > >> > - Venla > >> > > >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 I can't speak for Taya but with me a pill went right down my right bronchial tube and burned there as it disolved because it was a high octane prescription anti inflamatory med. This happened because the cripplearium I was in refused to crush pills or give liquid meds because " only whimps take baby medicine at 16 " . The staff claimed my swallowing problems were just me trying to get special treatment. So I tried to swallow a huge oblong hard tablet {bigger then a centrum vitamin} and when it choked me I gasped and down into the lung it went. {ouch} My brother Hank was force fed a raw egg by our mother {she thought it would make him gain weight} while he was lying on his back, Hank gagged on the egg and then inhaled into his lung while my mom poured it into him as he choked. > > > Please know my heartfelt condolences and send them to all who loved and > > knew Taya. > > > > My brother Hank {my brother who had SMA} died the same way. > > > > In the 1980s I choked on and then aspirated a huge pill myself and was > > only kept alive by care givers who pumped 'speed' into me for days {by > > back then legally available channals that aren't available now} while > > chest P.T.ing and holding me upside down, until I was better. > > > > Aspiration is a horrible but common risks that individuals with SMA > > face regularilly. > > > >> > 1.3. Re: Sad news > >> > Posted by: " Venla Räty " wepsi@ wepsi_98 > >> > Date: Wed Oct 22, 2008 1:43 am ((PDT)) > >> > > >> > I just heard the details. Taya took a pill to prevent Malaria last > > night, and it had got stuck in her throat. She said it was okay, since > > it had happened before and she could still act normally. Sometime > > during the night she had woken up her husband, since she couldn't > > breath. Mucus had built up in her lungs. They couldn't get enough help > > on time, since they were in a small town in Africa, and she passed > > away. > >> > She had had some swallowing trouble earlier, and she had started to > > have difficulties with continous coughing. > >> > > >> > - Venla > >> > > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 I am so sorry to hear this news. My thoughts and prayers go out to your family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Choking and aspirating is one of my biggest fears and pretty common among us. I crush all my pills or ask if it's possible to have the pharmacy to make my meds in a liquid suspension. Medicaid sometimes doesn't cover this, but it's worth it in my opinion. One time I had an allergic reaction to a blood pressure med and I immediately started coughing, aspirating saliva. I went to the ER and they gave me benadryl via IV and I eventually cleared my lungs after being on the Bi-Pap and using percussions. These things can occur at any moment which can really freak me out, but I can't be so scared about every little thing...it's a balancing act. Alice > > > > > Please know my heartfelt condolences and send them to all who loved and > > > knew Taya. > > > > > > My brother Hank {my brother who had SMA} died the same way. > > > > > > In the 1980s I choked on and then aspirated a huge pill myself and was > > > only kept alive by care givers who pumped 'speed' into me for days {by > > > back then legally available channals that aren't available now} while > > > chest P.T.ing and holding me upside down, until I was better. > > > > > > Aspiration is a horrible but common risks that individuals with SMA > > > face regularilly. > > > > > >> > 1.3. Re: Sad news > > >> > Posted by: " Venla Räty " wepsi@ wepsi_98 > > >> > Date: Wed Oct 22, 2008 1:43 am ((PDT)) > > >> > > > >> > I just heard the details. Taya took a pill to prevent Malaria last > > > night, and it had got stuck in her throat. She said it was okay, since > > > it had happened before and she could still act normally. Sometime > > > during the night she had woken up her husband, since she couldn't > > > breath. Mucus had built up in her lungs. They couldn't get enough help > > > on time, since they were in a small town in Africa, and she passed > > > away. > > >> > She had had some swallowing trouble earlier, and she had started to > > > have difficulties with continous coughing. > > >> > > > >> > - Venla > > >> > > > >> > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 I'm sorry to hear how your brother choked. How old was he? All this talk about choking and the great loss of our dear Taya has made me very cautious when I am swallowing. I'm still not completely well from my lung infection so I'm being very careful about things. Last week I had a scare while while suctioning my trach. I can still suction by myself after helps me with positioning. I put the catheter down my trach and put my thumb on the valve but I couldn't pull my thumb off it once it was deep in my left lung. had turned away for two seconds. Blood started filling the tubing and my heart was racing. I reached down with my right hand and released my thumb and I was able to pull the cath out of my lung. Surprisingly, I don't cause too much internal damage (that I know of) and the next couple of suctions had only a little blood in it. We turned down the suctioning pressure on my machine and I am being very careful. Blah! ________________________________ From: Amy <charmedcripchic@...> Sent: Saturday, October 25, 2008 6:45:29 PM Subject: Re: Sad news I can't speak for Taya but with me a pill went right down my right bronchial tube and burned there as it disolved because it was a high octane prescription anti inflamatory med. This happened because the cripplearium I was in refused to crush pills or give liquid meds because " only whimps take baby medicine at 16 " . The staff claimed my swallowing problems were just me trying to get special treatment. So I tried to swallow a huge oblong hard tablet {bigger then a centrum vitamin} and when it choked me I gasped and down into the lung it went. {ouch} My brother Hank was force fed a raw egg by our mother {she thought it would make him gain weight} while he was lying on his back, Hank gagged on the egg and then inhaled into his lung while my mom poured it into him as he choked. > > > Please know my heartfelt condolences and send them to all who loved and > > knew Taya. > > > > My brother Hank {my brother who had SMA} died the same way. > > > > In the 1980s I choked on and then aspirated a huge pill myself and was > > only kept alive by care givers who pumped 'speed' into me for days {by > > back then legally available channals that aren't available now} while > > chest P.T.ing and holding me upside down, until I was better. > > > > Aspiration is a horrible but common risks that individuals with SMA > > face regularilly. > > > >> > 1.3. Re: Sad news > >> > Posted by: " Venla Räty " wepsi@ wepsi_98 > >> > Date: Wed Oct 22, 2008 1:43 am ((PDT)) > >> > > >> > I just heard the details. Taya took a pill to prevent Malaria last > > night, and it had got stuck in her throat. She said it was okay, since > > it had happened before and she could still act normally. Sometime > > during the night she had woken up her husband, since she couldn't > > breath. Mucus had built up in her lungs. They couldn't get enough help > > on time, since they were in a small town in Africa, and she passed > > away. > >> > She had had some swallowing trouble earlier, and she had started to > > have difficulties with continous coughing. > >> > > >> > - Venla > >> > > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 I don't have the official information on what happened, since we don't know the official cause of death (Taya won't be in Finland until next Thursday). I do know that Taya had had swallowing troubles before (I remember her once almost choking on some rice), and that pills had got partially stuck in her throat. This time it also got stuck, but she thought it would melt away during the night. Our mother and me discussed this, and considered if this happened because it was a drug to prevent malaria. That type of drugs are strong and have sent people to hospital before because of the side-effect. So we theorised that the pill partially melted and irritated Taya's lungs/digestive system and.... She knew the risks of travelling, malaria-drugs and taking pills. She made her own choice. Re: Sad news I can't speak for Taya but with me a pill went right down my right bronchial tube and burned there as it disolved because it was a high octane prescription anti inflamatory med. This happened because the cripplearium I was in refused to crush pills or give liquid meds because " only whimps take baby medicine at 16 " . The staff claimed my swallowing problems were just me trying to get special treatment. So I tried to swallow a huge oblong hard tablet {bigger then a centrum vitamin} and when it choked me I gasped and down into the lung it went. {ouch} My brother Hank was force fed a raw egg by our mother {she thought it would make him gain weight} while he was lying on his back, Hank gagged on the egg and then inhaled into his lung while my mom poured it into him as he choked. > > > Please know my heartfelt condolences and send them to all who loved and > > knew Taya. > > > > My brother Hank {my brother who had SMA} died the same way. > > > > In the 1980s I choked on and then aspirated a huge pill myself and was > > only kept alive by care givers who pumped 'speed' into me for days {by > > back then legally available channals that aren't available now} while > > chest P.T.ing and holding me upside down, until I was better. > > > > Aspiration is a horrible but common risks that individuals with SMA > > face regularilly. > > > >> > 1.3. Re: Sad news > >> > Posted by: " Venla Räty " wepsi@ wepsi_98 > >> > Date: Wed Oct 22, 2008 1:43 am ((PDT)) > >> > > >> > I just heard the details. Taya took a pill to prevent Malaria last > > night, and it had got stuck in her throat. She said it was okay, since > > it had happened before and she could still act normally. Sometime > > during the night she had woken up her husband, since she couldn't > > breath. Mucus had built up in her lungs. They couldn't get enough help > > on time, since they were in a small town in Africa, and she passed > > away. > >> > She had had some swallowing trouble earlier, and she had started to > > have difficulties with continous coughing. > >> > > >> > - Venla > >> > > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Taya worked for the Abilis-foundation (www.abilis.fi). They fund projects which help disabled people in third world countries. The idea is to find work for the disabled, so they can support themselves. There are several project-descriptions on their website, as well as pictures of Taya. One project I remember included buying a cow for a woman, so she could sell the milk. Other one was funding for a wheelchair-repair shop in Zambia. There are others working for the same foundation, so her work will be continued. The foundation just prefers hiring disabled people or their close relatives, so finding someone as capable as Taya will be difficult. Re: Sad news I'm also very sorry to hear about Taya's passing. I am constantly amazed at the way SMA adults don't just sit around, but work to make a better world (yes, the pun was intended.) I hope Bernie will grow up to be that kind of person too. It would be very interesting to hear more about the project she was working on. I hope someone will carry on her work there. bettylou Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Please accept my sincere condolences to you and the rest of Taya's family on her sudden loss. Taya was very dear to us and we will miss her very much. Lori ________________________________ From: Venla Räty <wepsi@...> Sent: Sunday, October 26, 2008 12:05:41 PM Subject: Re: Re: Sad news I don't have the official information on what happened, since we don't know the official cause of death (Taya won't be in Finland until next Thursday). I do know that Taya had had swallowing troubles before (I remember her once almost choking on some rice), and that pills had got partially stuck in her throat. This time it also got stuck, but she thought it would melt away during the night. Our mother and me discussed this, and considered if this happened because it was a drug to prevent malaria. That type of drugs are strong and have sent people to hospital before because of the side-effect. So we theorised that the pill partially melted and irritated Taya's lungs/digestive system and.... She knew the risks of travelling, malaria-drugs and taking pills. She made her own choice. Re: Sad news I can't speak for Taya but with me a pill went right down my right bronchial tube and burned there as it disolved because it was a high octane prescription anti inflamatory med. This happened because the cripplearium I was in refused to crush pills or give liquid meds because " only whimps take baby medicine at 16 " . The staff claimed my swallowing problems were just me trying to get special treatment. So I tried to swallow a huge oblong hard tablet {bigger then a centrum vitamin} and when it choked me I gasped and down into the lung it went. {ouch} My brother Hank was force fed a raw egg by our mother {she thought it would make him gain weight} while he was lying on his back, Hank gagged on the egg and then inhaled into his lung while my mom poured it into him as he choked. > > > Please know my heartfelt condolences and send them to all who loved and > > knew Taya. > > > > My brother Hank {my brother who had SMA} died the same way. > > > > In the 1980s I choked on and then aspirated a huge pill myself and was > > only kept alive by care givers who pumped 'speed' into me for days {by > > back then legally available channals that aren't available now} while > > chest P.T.ing and holding me upside down, until I was better. > > > > Aspiration is a horrible but common risks that individuals with SMA > > face regularilly. > > > >> > 1.3. Re: Sad news > >> > Posted by: " Venla Räty " wepsi@ wepsi_98 > >> > Date: Wed Oct 22, 2008 1:43 am ((PDT)) > >> > > >> > I just heard the details. Taya took a pill to prevent Malaria last > > night, and it had got stuck in her throat. She said it was okay, since > > it had happened before and she could still act normally. Sometime > > during the night she had woken up her husband, since she couldn't > > breath. Mucus had built up in her lungs. They couldn't get enough help > > on time, since they were in a small town in Africa, and she passed > > away. > >> > She had had some swallowing trouble earlier, and she had started to > > have difficulties with continous coughing. > >> > > >> > - Venla > >> > > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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