Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 In a message dated 3/24/00 2:53:27 PM Mountain Standard Time, mugsymc@... writes: << I guess I always thought a tic was more like a twitch, but even the Dr. said it was possible that the above symptoms were tics and she could very well have Tourette's also. But if the medicine has helped, were they really tics? >> tics can be motor or verbal, simple or complex (much more than just twitching). And yes medication can help. My daughter is on Zoloft and it helps reduce the frequency of tics. On the other hand, there are medications that increase tic behavior, for instance I have to make sure she does not get Benadryl or Triaminic as these both increase tic behavior in her. Jay W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 In a message dated 3/24/00 8:51:48 PM Mountain Standard Time, klr@... writes: << Did you just figure out that Benedryl increased your daughter's tics? Or is there a list out there somewhere of OTC meds that can affect OC/TS symptoms? Do allergy/cold meds interact or interfere with the action of SSRIs? This is the first I'm hearing of this. Both of my daughter's pdocs suggested Benedryl to help her sleep. She so happened to be taking Benedryl nearly nightly for allergy symptoms around the time she suddenly developed many tics. Kathy R. in Indiana >> I pretty much figured it out on my own, when I would give her Benedryl, her symptoms would get worse. people would say, give her Triaminic, and she will sleep better. Well, it had the opposite effect on Leigh, she became hyperactive instead. Vicks 44 is the worst because it increases her aggression and antisocial behavior. Most of the time I just pray she doesn't get a cold or anything requiring OTC drugs, since most seem to interact with her meds (zoloft, loxapine, clonadine) or increase her tic or OCD behaviors. Interestingly, I have not seen any correlation between foods and tics. It seems like people were always advising me on how to change her diet to get rid of her symptoms, but I have not seen any relationship at all between what she eats and how she acts. Jay W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 My daughter had eye blinking with a final wide open blink just start. The Dr. started her on Klonipin to relax her. She is on 100 mg zoloft also. She just came off surgery where she was on pain meds (vicodin-low dose) She is very angry about the klonopin because it relaxes her but makes her very tired (.5 mg) She asked me " why if klonopin is addicting, why can't I stay on vicodin because it relaxes me and yet I feel happier. She really didn't get high acting. I even thought more agitated at times. I feel she has a good point. Why can't they make a med for relaxing that makes you feel better not tired all the time. Not only does she fight her compulsions and agitation, but now the exhaustion. You have to have been here when she came off the luvox. A week of hell!!! Twitching, anger awful depressed. The zoloft seemed to be the key to her having happy times until her surgery. The surgery was vital because they found a bone growth on her femur. No one realizes what a person w/ ocd goes through when trauma is present. (you on the list do!) Dr's-any suggestions for this family of a 16 yr old that was progressing so well. I don't expect happy times every minute. Where did the happiness go (zoloft was working 100%) after surgery? Help Lori_ca Jay7138658@... wrote: > From: Jay7138658@... > > In a message dated 3/24/00 2:53:27 PM Mountain Standard Time, mugsymc@... > writes: > > << I guess I always thought a tic was more like a twitch, > but even the Dr. said it was possible that the above symptoms were tics and > she could very well have Tourette's also. But if the medicine has helped, > were they really tics? >> > > tics can be motor or verbal, simple or complex (much more than just > twitching). And yes medication can help. My daughter is on Zoloft and it > helps reduce the frequency of tics. On the other hand, there are medications > that increase tic behavior, for instance I have to make sure she does not get > Benadryl or Triaminic as these both increase tic behavior in her. > Jay W. > > ------------------------------------------------------------------------ > MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2122/3/_/531051/_/953944848/ > ------------------------------------------------------------------------ > > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The Archives and Links List for the OCD and > Parenting List may be accessed by going to > / . > Enter your email address and password. > Click on the highlighted list name and then click on message archives by month or links located in the toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 My daughter had eye blinking with a final wide open blink just start. The Dr. started her on Klonipin to relax her. She is on 100 mg zoloft also. She just came off surgery where she was on pain meds (vicodin-low dose) She is very angry about the klonopin because it relaxes her but makes her very tired (.5 mg) She asked me " why if klonopin is addicting, why can't I stay on vicodin because it relaxes me and yet I feel happier. She really didn't get high acting. I even thought more agitated at times. I feel she has a good point. Why can't they make a med for relaxing that makes you feel better not tired all the time. Not only does she fight her compulsions and agitation, but now the exhaustion. You have to have been here when she came off the luvox. A week of hell!!! Twitching, anger awful depressed. The zoloft seemed to be the key to her having happy times until her surgery. The surgery was vital because they found a bone growth on her femur. No one realizes what a person w/ ocd goes through when trauma is present. (you on the list do!) Dr's-any suggestions for this family of a 16 yr old that was progressing so well. I don't expect happy times every minute. Where did the happiness go (zoloft was working 100%) after surgery? Help Lori_ca Jay7138658@... wrote: > From: Jay7138658@... > > In a message dated 3/24/00 2:53:27 PM Mountain Standard Time, mugsymc@... > writes: > > << I guess I always thought a tic was more like a twitch, > but even the Dr. said it was possible that the above symptoms were tics and > she could very well have Tourette's also. But if the medicine has helped, > were they really tics? >> > > tics can be motor or verbal, simple or complex (much more than just > twitching). And yes medication can help. My daughter is on Zoloft and it > helps reduce the frequency of tics. On the other hand, there are medications > that increase tic behavior, for instance I have to make sure she does not get > Benadryl or Triaminic as these both increase tic behavior in her. > Jay W. > > ------------------------------------------------------------------------ > MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2122/3/_/531051/_/953944848/ > ------------------------------------------------------------------------ > > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The Archives and Links List for the OCD and > Parenting List may be accessed by going to > / . > Enter your email address and password. > Click on the highlighted list name and then click on message archives by month or links located in the toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 > From: Jay7138658@... >snip< > On the other hand, there are medications > that increase tic behavior, for instance I have to make sure she does not get > Benadryl or Triaminic as these both increase tic behavior in her. > Jay W. Did you just figure out that Benedryl increased your daughter's tics? Or is there a list out there somewhere of OTC meds that can affect OC/TS symptoms? Do allergy/cold meds interact or interfere with the action of SSRIs? This is the first I'm hearing of this. Both of my daughter's pdocs suggested Benedryl to help her sleep. She so happened to be taking Benedryl nearly nightly for allergy symptoms around the time she suddenly developed many tics. Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 Hi and list, I think Tourette symptoms wax and wane too, so I don't know if this pattern can help distinguish tics from compulsions or Tourette's from OCD. Kel says she sometimes gets a feeling like a sneeze coming when she needs to blink or tense her muscles. She is able to not do it, but it's " irritating " (not sure she is using this word conventionally) not to do it, like not scratching a mosquito bite. To her, OCD " threatens " her (with bad feelings) but the blinking, tensing, etc., don't threaten, they just irritate. Thereby, they are not OCD, at least according to Kel. Her doctor told me if they lessened on the Risperdal, they were most likely tics. They did. He also told me that having a few tics did not mean she had Tourette's or that she was developing Tourette's, that many people with OCD also have tics (just as people with Tourette's can have obsessions and compulsions.) Personally I'm still confused here . . . We haven't tried much yet, but haven't had the success with E & RP for the blinking and tensing as with the more conventional compulsions. She doesn't seem aware much of the time when she's doing them--such as when watching TV--and she does them while sleeping. It was great to hear of your girl relaxed and happy. :-) Bet you are too! Kathy R. in Indiana > From: Roman <chrisroman@...> > > Hello everyone, > > Recently, several of you were talking about tic-like compulsions in your > kids that were related to blinking and opening eyes wide open. I'm still > not clear about what's a tic and what's a compulsion. It seems to be a > blurry line, at least in my mind. > > I think I posted before about Kelsey's hand-flapping, which someone said > was definitely a tic. But now I don't think so. This genre of symptoms > seem to follow that oh so familiar waxing and waning course of OCD and > when I look back I see lots of this sort of thing over the past year > that has flared up for a month or two and then gone. > > Before OCD came to stay, during one of the early episodes, she went > through a two week period where she pushed her bangs off her forehead so > often it looked greasy. Then it was abruptly gone. Dr. Hat said this was > a compulsion. Then we had handflapping for a few months, which is mostly > gone. Then she used to bite at her t-shirt constantly , which I thought > was just a nervous habit. Then fingers in the mouth. Now compulsive > nail-biting. > > Then Steve (my husband) began to wonder because the area around her eyes > looked kind of orange or discolored and wondered if the supplements we > are giving her could cause that. I couldn't figure it out until she > actually bruised under one eye and I realized it was due to this new > " habit " of hers where she puts her fingers at the bridge of her nose and > wipes down under each eye. > > Instead of letting this one run its course, I framed it for her in terms > of OCD (she hates this but comes around pretty quick. I hope she will > gain this self-awareness when she's older and I'm not always around!) > She told me she knows when she's going to do it and I asked her to boss > it back by stopping herself. In just a few days, the amount she gives > into this urge has dramatically decreased. > > I remember someone saying that tics have to be let out eventually. This > isn't Kelsey's experience. She *can* stop so maybe I don't have to > wonder about Tourette's? > > As an aside, Kelsey's still on an upward swing. I don't know if it's the > supplements or development, but I am seeing a happy, relaxed kid who can > cope much better with frustration and the demands of the day. Lots more > empathy and helpful behavior too. The really good news is that the > social scene is also on an upswing (at least this week). She's got a new > friend in her class who seems to really like her. She's even got a > threesome-thing going in her after school art class with this friend and > a third grader, which is a real surprise as she's never shown any > interest in older kids and I thought she was incapable of making a > threesome work. And I've got to be the only parent who's excited to hear > from her teacher that she's talking too much in class! > > I feel a little silly having this big meeting with the school next week > about social interventions w/everything going so well. But then you know > how it goes...we'll probably be in crisis again by then. > > Take care, > > in San Diego Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 Kathy, My daughter Krysti had the eye blinking twitch badly. Her Dr. put her Klonopin ..5 and she upped her zoloft to 100 mg. What a difference w/ the tic. This was to reduce her anxiety and help her relax. Also she started to where my reading glasses to watch t.v. and read. What a difference. Today she went to the eye Dr. and got her own slight prescription reading glasses. I think a lot of it was her mind thinking this was helping. Hey whatever works! The Klonopin seems to make her relaxed but a little tired in the beginning. Hope this helps Lori-ca Kathy wrote: > From: " Kathy " <klr@...> > > Hi and list, I think Tourette symptoms wax and wane too, so I don't > know if this pattern can help distinguish tics from compulsions or > Tourette's from OCD. Kel says she sometimes gets a feeling like a sneeze > coming when she needs to blink or tense her muscles. She is able to not do > it, but it's " irritating " (not sure she is using this word conventionally) > not to do it, like not scratching a mosquito bite. To her, OCD " threatens " > her (with bad feelings) but the blinking, tensing, etc., don't threaten, > they just irritate. Thereby, they are not OCD, at least according to Kel. > Her doctor told me if they lessened on the Risperdal, they were most likely > tics. They did. He also told me that having a few tics did not mean she > had Tourette's or that she was developing Tourette's, that many people with > OCD also have tics (just as people with Tourette's can have obsessions and > compulsions.) Personally I'm still confused here . . . > > We haven't tried much yet, but haven't had the success with E & RP for the > blinking and tensing as with the more conventional compulsions. She doesn't > seem aware much of the time when she's doing them--such as when watching > TV--and she does them while sleeping. > > It was great to hear of your girl relaxed and happy. :-) Bet you are too! > > Kathy R. in Indiana > > > From: Roman <chrisroman@...> > > > > Hello everyone, > > > > Recently, several of you were talking about tic-like compulsions in your > > kids that were related to blinking and opening eyes wide open. I'm still > > not clear about what's a tic and what's a compulsion. It seems to be a > > blurry line, at least in my mind. > > > > I think I posted before about Kelsey's hand-flapping, which someone said > > was definitely a tic. But now I don't think so. This genre of symptoms > > seem to follow that oh so familiar waxing and waning course of OCD and > > when I look back I see lots of this sort of thing over the past year > > that has flared up for a month or two and then gone. > > > > Before OCD came to stay, during one of the early episodes, she went > > through a two week period where she pushed her bangs off her forehead so > > often it looked greasy. Then it was abruptly gone. Dr. Hat said this was > > a compulsion. Then we had handflapping for a few months, which is mostly > > gone. Then she used to bite at her t-shirt constantly , which I thought > > was just a nervous habit. Then fingers in the mouth. Now compulsive > > nail-biting. > > > > Then Steve (my husband) began to wonder because the area around her eyes > > looked kind of orange or discolored and wondered if the supplements we > > are giving her could cause that. I couldn't figure it out until she > > actually bruised under one eye and I realized it was due to this new > > " habit " of hers where she puts her fingers at the bridge of her nose and > > wipes down under each eye. > > > > Instead of letting this one run its course, I framed it for her in terms > > of OCD (she hates this but comes around pretty quick. I hope she will > > gain this self-awareness when she's older and I'm not always around!) > > She told me she knows when she's going to do it and I asked her to boss > > it back by stopping herself. In just a few days, the amount she gives > > into this urge has dramatically decreased. > > > > I remember someone saying that tics have to be let out eventually. This > > isn't Kelsey's experience. She *can* stop so maybe I don't have to > > wonder about Tourette's? > > > > As an aside, Kelsey's still on an upward swing. I don't know if it's the > > supplements or development, but I am seeing a happy, relaxed kid who can > > cope much better with frustration and the demands of the day. Lots more > > empathy and helpful behavior too. The really good news is that the > > social scene is also on an upswing (at least this week). She's got a new > > friend in her class who seems to really like her. She's even got a > > threesome-thing going in her after school art class with this friend and > > a third grader, which is a real surprise as she's never shown any > > interest in older kids and I thought she was incapable of making a > > threesome work. And I've got to be the only parent who's excited to hear > > from her teacher that she's talking too much in class! > > > > I feel a little silly having this big meeting with the school next week > > about social interventions w/everything going so well. But then you know > > how it goes...we'll probably be in crisis again by then. > > > > Take care, > > > > in San Diego > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/936/3/_/531051/_/953961438/ > ------------------------------------------------------------------------ > > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The Archives and Links List for the OCD and > Parenting List may be accessed by going to > / . > Enter your email address and password. > Click on the highlighted list name and then click on message archives by month or links located in the toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2000 Report Share Posted March 25, 2000 Ava also has tics that wax and wane, come and go and change in nature. Some are complex motor tics and some are simple. She has had these since she was very young. When she was first diagnosed with OCD, Dr. March called them transient tic disorder. After a few years when I took her back to him he said, yeah they're probably Tourettes but they're no big deal so don't worry about it. I know he's the big expert, a great researcher, wonderful lecturer and all but I find him annoying and dismissive as a clinician. I find it interesting that although the last time I took her to him (about 2 months ago) he confirmed that she has OCD, TS, TTM and maybe some ADD, he made NO recommendations regarding school, except to tell her to " be a good girl and listen to your mother " . And now he's lecturing about OCD in schools. He really is very charming and I'm sure he is a great lecturer. It would be cheaper for me to go to his lectures - that way I'd actually learn something from him! Anyway, Ava's tics don't bother her even though they're obvious to others so I don't say much about them to her. What bothers her is when she can't do something OCD or tic wise that she wants to do. Then she gets mad at whoever thwarts her. Dana in NC Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.