Re: Update on Kelsey and !

[Guest guest]

HI Nikki:

Thanks for your update on Kelsey and . They are so lucky to have

you as their mom and you certainly are doing a lot of doctor appointments

right now!

It certainly sounds like you are on the trail of the answer for Kelsey and

hopefully this will be something that maturity will make less severe.

is making such strides with her CBT! Please tell her how impressed

I am at her achievements.

I hope you are having some time for yourself, or will do soon. Take care,

aloha, Kathy (H)

kathyh@...

At 03:58 PM 09/05/2000 -0400, you wrote:

>Hi all! I hope this update finds all of you happy and healthy! We have been

>very busy and I havn't had time to write but have read all of your posts as

>time allows. I know that many of you were aware of my daughter Kelsey's

>trouble with starting Kindergarten. Well we went to the doc. 2 weeks ago.

We

>went because of constrant complaining of stomach problems and this started

>back in May but gradually has gotten worse. She said if her stomach didnt

>hurt all the time then she would like school and she also quit gymnastics

>after 2yrs (and she is very good) because it hurts her stomach too much. The

>doc gave her some zantac and we did it for a week, it only got worse. I

>scheduled an appt to go in without her, I explained my concerns to him

freely

>without her there. I told him that I was not convinced that there is not an

>emotional issue going on too but that I really feel like she has something

>physical also and that I wanted to start physically and go from there. She

>has lost 2lbs and has not grown in 9months at all. She has dropped from the

>95% to 50% in height and barley 40% in weight. She is waking up with huge

>bruises on the back of her leg from nowhere and they have like puffy tissue

>around them. I think he caught on that I was concerned, he order a slew of

>lab work, urine, blood, stool. A gastric emptying scan, upper gi with small

>bowel follow through and chest and stomach x-rays and also a breath hydrogen

>test . We have had everything done exam the last test they cant do it for 3

>weeks and it takes 4hrs. we have spent a total of 12 hrs at the hospital.

But

>today the doc who did the upper gi said she has alot of reflux going on. She

>had Kelsey roll around and when she did that she really refluxed so that

>confirmed why she can't do gymnastics without pain. So I wanted to let you

>all know that we are finally on to something here, we dont have all the

>results back yet just that one but I am almost relieved because I was really

>worried that maybe she was making this up to not go to school because of an

>extreme seperation anxiety or something (ocd maybe?).

> is doing ok, she is on 50mg luvox and 10mg of imiprmine at night.

She

>is having some ocd surfacing which gives us something to work with. She was

>successful the other night in bossing back a bad one about falling off of a

>horse and ending up like Reeves. Horses are her passion and this

>one really bothered her because she said " ive never been scared of horses "

it

>was actually a good motivater to get her to boss it back and it worked. yeah

>!!!!!

>Well Ive chewed your ears enough so I will sign off for now. God Bless all

of

>you! Nikki in O'town

[Guest guest]

Hey Jule! Just wanted to let you know that they have Kelsey on Prevacid

1xdaily and Reglan 4xdaily. It seems to be helping but not completley. Thanks

for your input and your thoughts. Take care! Nikki

[Guest guest]

Hi Kathy! Your reply is interesting to me as Kelsey has throw up worries as

well and for about 3yrs has been what we call " puke phoabic " . I have

wondered at times about her and ocd as she is very perfectionistic worries

alot etc. But no compulsions and really different from my ocd'er.

Time will tell, I'm watching her and actually use E & RP if an extreme worry

comes up. It has made this situation very hard as her discomfort is almost

all the time and the doc said she is refluxing alot per the upper gi today.

So its hard to tell if how she is feeling all the time and the way she is

puke phoabic makes the insecurities worse like being at school. I could kind

of understand that since this is her first time at school after being home

with me for almost 6yrs and then feeling sick all the time. She says if her

stomach did not hurt that she would still miss me but would be ok about

school. She says the main reason she cries is because she feels sick. Did

they determine what is the cause of your daughters. I am concerned because of

the severity of this with my daughter and she has had this since infancy now

that I look back they treated her back as an infant and she started refusing

certain foods like milk at 1yr old, orange juice and tomato sauce at 4yrs

old. and about months ago she started wanting to eat every 1 1/2 to 2 hrs but

yet lost weight and has not grown in 9months. Thanks for your input and for

listening. Nikki in O'town

[Guest guest]

Nikki:

I applaud you for being so persistent with the doc. They are always supposed to

rule out a physical cause before they move on to the psychosomatic one. Not all

docs will do that without prodding. They tend to view women in general and

mom's in particular as hysterics. You were very right to be concerned -- I hope

you get results from the blood work soon. I have reflux myself and take

Prilosec, which is specifically for treatment of GERD (the fancy name for it).

Zantac and Tagamet are for ulcers -- I found Prilosec much more effective for

reflux. However, I am not sure if it is available in liquid form or in a low

enough dose for children as it is a capsule. You might want to ask about it.

Be sure to keep us posted. You're in my thoughts.

Jule -- on Ohio's north shore

[Guest guest]

Hi Nikki! Is O'town cooling off yet? there is a cool breeze here and the

leaves are starting to turn! Yikes!

I am relieved to hear that Kelsey's 'complaints' are being attended to -

and taken seriously. One more example of how parents must advocate for their

kids, eh? Please keep us posted on how she does.

Great for ! Knowing how to take charge and 'boss back' those nasty

thoughts is sooo empowering! You have another reason to be proud of her!

What a great 'turtle' she is! )

keep up the good work! wendy in canada wb4@...

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[Guest guest]

Hi Nikki,

I wrote a response to your question about my involvement in the charter school

but I haven't been able to send it - it keeps coming back to me saying the

address is wrong. I've been waiting for you to post again so I could verify

your address. I tried again today and it came back again. So why don't you

email me off -list and I'll post what I wrote using the reply button.

Dana in NC

[Guest guest]

----- Original Message -----

From: <ANGELO5@...>

<egroups

> we have spent a total of 12 hrs at the hospital. But

> today the doc who did the upper gi said she has alot of reflux going on.

She

> had Kelsey roll around and when she did that she really refluxed so that

> confirmed why she can't do gymnastics without pain. So I wanted to let you

> all know that we are finally on to something here, we dont have all the

> results back yet just that one but I am almost relieved because I was

really

> worried that maybe she was making this up to not go to school because of

an

> extreme seperation anxiety or something (ocd maybe?).

Kel (6) has this dx as well. We found out a couple of years ago, shortly

before OCD started. Her father has hx of gerd since childhood, controlled

only these past couple of years with Prilosec. Kel gets decent relief from

Tums. This problem has muddied the waters when it comes to suspect " tummy

aches " and throw-up feelings/worries.

Kathy R. in Indiana