Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 " timothybooton " writes: >These parents would much rather wax poetically about >their " unique " child and how wonderful it must be for that child to >see the world in a different way. > When my son was first diagnosed in 2002, the first list e-mail support group I joined was a " Parenting Autism " type board. I felt a strong need to hear from other parents about what raising an ASD child was like. Boy did I ever. I was there for about 2 or 3 months (over 1000 members and hundreds of messages a day). One of the rules was that they were not allowed to discuss " controversial " issues about causes and cures except in a very general way as the philosophy of the board was that there was no cure, only things that could help and that ASD was not a bad thing as if it was gone - their unique child would be gone. That was said over and over, until one day a parent wrote in and asked " If there was a cure for ASD, am I the only person on this board that would use it? " There were many resounding posts about how they would absolutely not " cure " their child as it would change everything about the child they knew. Some of the kids were savants, so I could understand a little bit what they were talking about. However I was probably the only one who wrote back and said that I would absolutely cure my child if I could and even though I adored him and I even found some of his ASD qualities to be cute and charming, what we were missing in life was too much - I couldn't even communicate with him back then. (It's much better now but not " normal " ) I realized that I truly believed there was a cure out there somewhere and I needed to focus my search on that and get off the time-wasting board of just talking about the meltdowns, poop smearing, and stimming all the time. It still took me over two years to realize the truth about vaccines, mercury and other environmental insults..... ~ Karin B. Mom to Jake - turning 6 on EOH day!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 on 6/3/05 10:08 AM, quantumerik at erik@... wrote: Kathleen Seidel is nuts. I would like to suggest that we not talk about attacks like this, because it only gives people more reason to do it. There are always going to be people who don't agree with you, just look at Red Soxs fans. You mention the name " Buckner " and they freak. (lol) You know that saying about defending the right of a person to say something, even if YOU don't agree with it? We want society to be tolerant and understanding of our children, we need to do the same for others. I'm not going to agree with what that mother wrote or take my son to Fenway, but if someone wants to rant online- so be it. There are other more important issues to deal with, like insurance coverage, the president keeping his promises, and getting OUR message heard. We have a right to say how we feel, post it online, or buy a billboard in Times Square if we want. If someone wants to pick it apart, take things out of context, and spend LESS time with their child in the process, so be it. - ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 , yankees suck This is very good advice. red sox won the world series We should let it go. yankees suck Love, Re: Re: Autism Rights Movement on 6/3/05 10:08 AM, quantumerik at erik@... wrote: Kathleen Seidel is nuts.I would like to suggest that we not talk about attacks like this, because it only gives people more reason to do it. There are always going to be people who don't agree with you, just look at Red Soxs fans. You mention the name "Buckner" and they freak. (lol) You know that saying about defending the right of a person to say something, even if YOU don't agree with it? We want society to be tolerant and understanding of our children, we need to do the same for others. I'm not going to agree with what that mother wrote or take my son to Fenway, but if someone wants to rant online- so be it. There are other more important issues to deal with, like insurance coverage, the president keeping his promises, and getting OUR message heard. We have a right to say how we feel, post it online, or buy a billboard in Times Square if we want. If someone wants to pick it apart, take things out of context, and spend LESS time with their child in the process, so be it.-ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 I'll agree that anyone has the right to say anything. She has the right to say that I'm nuts, too. And I'm fine with that... > > Kathleen Seidel is nuts. > > > I would like to suggest that we not talk about attacks like this, because it > only gives people more reason to do it. There are always going to be people > who don't agree with you, just look at Red Soxs fans. You mention the name > " Buckner " and they freak. (lol) You know that saying about defending the > right of a person to say something, even if YOU don't agree with it? We > want society to be tolerant and understanding of our children, we need to do > the same for others. I'm not going to agree with what that mother wrote or > take my son to Fenway, but if someone wants to rant online- so be it. There > are other more important issues to deal with, like insurance coverage, the > president keeping his promises, and getting OUR message heard. We have a > right to say how we feel, post it online, or buy a billboard in Times Square > if we want. If someone wants to pick it apart, take things out of context, > and spend LESS time with their child in the process, so be it. > > - > > ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 , I agree! Webster > > Kathleen Seidel is nuts. > > > I would like to suggest that we not talk about attacks like this, because it > only gives people more reason to do it. There are always going to be people > who don't agree with you, just look at Red Soxs fans. You mention the name > " Buckner " and they freak. (lol) You know that saying about defending the > right of a person to say something, even if YOU don't agree with it? We > want society to be tolerant and understanding of our children, we need to do > the same for others. I'm not going to agree with what that mother wrote or > take my son to Fenway, but if someone wants to rant online- so be it. There > are other more important issues to deal with, like insurance coverage, the > president keeping his promises, and getting OUR message heard. We have a > right to say how we feel, post it online, or buy a billboard in Times Square > if we want. If someone wants to pick it apart, take things out of context, > and spend LESS time with their child in the process, so be it. > > - > > ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 You may disagree with her, but she has the courage of her convictions and the good grace not to stoop to name-calling and ad hominem argument. > Kathleen Seidel is nuts. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 but how bout those METS?? From: EOHarm [mailto:EOHarm ] On Behalf Of FournierSent: Friday, June 03, 2005 10:40 AMEOHarm Subject: Re: Re: Autism Rights Movement , yankees suck This is very good advice. red sox won the world series We should let it go. yankees suck Love, Re: Re: Autism Rights Movement on 6/3/05 10:08 AM, quantumerik at erik@... wrote: Kathleen Seidel is nuts.I would like to suggest that we not talk about attacks like this, because it only gives people more reason to do it. There are always going to be people who don't agree with you, just look at Red Soxs fans. You mention the name "Buckner" and they freak. (lol) You know that saying about defending the right of a person to say something, even if YOU don't agree with it? We want society to be tolerant and understanding of our children, we need to do the same for others. I'm not going to agree with what that mother wrote or take my son to Fenway, but if someone wants to rant online- so be it. There are other more important issues to deal with, like insurance coverage, the president keeping his promises, and getting OUR message heard. We have a right to say how we feel, post it online, or buy a billboard in Times Square if we want. If someone wants to pick it apart, take things out of context, and spend LESS time with their child in the process, so be it.-ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 You're right. I withdraw my statement as to her mental condition. > > Kathleen Seidel is nuts. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 , Good decision...you are too busy making strides forward to worry about these groups...you are doing excellent things for our community and don't need to be " distracted " by people or groups who take you away from that... Kelli > > > > > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 I'd say that she has an agenda.... kad > > > > I have kids diagnosed with ASD and was not at all offended by Dr. Haley's comments. > Yet, this woman was prepared to lambaste Dr. Boyd Haley for his comments in this regard. > I don't have any problems at all with how Dr. Haley phrased his comments, yet Kathleen > Seidel will find a way to make a mountain out of nothing!! > > > > tony, > > > > I've had similar run-ins. > > > > check out this website: > > > > http://www.wesupportdrhaley.info/ > > > > I felt after reading the petition against dr. haley that we should have a place to support > him. At first it was on petition.com and an aspie got on and attacked dr. haley, me > personally and all the other parents. I had to take it down- but cut and pasted the > legitimate responses and put them on this separate site. > > > > - > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 , YOU REALLY ROCK!!! Kelli > > Kathleen Seidel is nuts. > > > I would like to suggest that we not talk about attacks like this, because it > only gives people more reason to do it. There are always going to be people > who don't agree with you, just look at Red Soxs fans. You mention the name > " Buckner " and they freak. (lol) You know that saying about defending the > right of a person to say something, even if YOU don't agree with it? We > want society to be tolerant and understanding of our children, we need to do > the same for others. I'm not going to agree with what that mother wrote or > take my son to Fenway, but if someone wants to rant online- so be it. There > are other more important issues to deal with, like insurance coverage, the > president keeping his promises, and getting OUR message heard. We have a > right to say how we feel, post it online, or buy a billboard in Times Square > if we want. If someone wants to pick it apart, take things out of context, > and spend LESS time with their child in the process, so be it. > > - > > ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 It's not only Kathleen Seidel who has an "agenda". Today, on parents.com, I saw that dangermama (whoever he is) has posted a link to Kathleen Seidel's venomous blog which can also be found on Camille 's Autism Diva site. Here's the link to the parents.com page http://www.parents.com/community/boards/thread.jspa?forumID=78 & threadID=277579 & start=210 & tstart=0 . If this link does not work, the posting be dangermama is on page 15 of the 2 year old shots thread. I only hope that parents who are new to their children's autism diagnoses do not take these "eccentric and self-centered" (as the autism diva/Camille /oddizm likes to call herself) individuals seriously. Aasa truth4miles <kellianndavis@...> wrote: I'd say that she has an agenda....kad> > > > I have kids diagnosed with ASD and was not at all offended by Dr. Haley's comments. > Yet, this woman was prepared to lambaste Dr. Boyd Haley for his comments in this regard. > I don't have any problems at all with how Dr. Haley phrased his comments, yet Kathleen > Seidel will find a way to make a mountain out of nothing!! > > > > tony,> > > > I've had similar run-ins.> > > > check out this website:> > > > http://www.wesupportdrhaley.info/> > > > I felt after reading the petition against dr. haley that we should have a place to support > him. At first it was on petition.com and an aspie got on and attacked dr. haley, me > personally and all the other parents. I had to take it down- but cut and pasted the > legitimate responses and put them on this separate site.> > > > -> > > > ---------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 Ms. Seidel touched a nerve, didn't she? For some very good reasons, I wish people had rallied behind me when I suggested that we should be referring to our children as mercury poisoned instead of autistic. As I recall, only one other person responded positively to that suggestion and he happened to be a grandfather. Interesting. Reason One: It was the mercury which tore up my grandson's digestive system giving him diarrhea and projectile vomiting for four years before we discovered that the GFCF diet could help heal his insides. It was mercury which caused him to experience so much pain after eating, upon hearing loud noises, upon having so much visual input that he had to engage in self-stimulating behavior in order to cope with the pain induced by these events. It was mercury which was deposited into his brain and caused brain damage leading to a loss of speech and other skills, some of which have been reversed by chelation. Granted, some of his damage may have been due to having multiple viruses injected, such as the MMR, but I cannot prove that as I can prove the damage from mercury. Some of his damage may have been due to having viruses injected when he already was sick with a cold (virus) but his mom was told it would be OK; not to worry; but I cannot prove that. The thing I CAN prove is that he has been loaded with mercury and it could only have been through the vaccination regimen coupled with the high mercury in our environment throughout the United States, an effective clean-up of which is undermined by our government. Reason Two: I have made an effort to get to know some autistic adults whom I respect and like. Sometimes we understand each other. Sometimes we do not. (I am NT.) But I do not want to hurt their feelings by indicating that I want to "cure" them even though I fervently want to cure my grandson by clearing him of a mercury overload. They do not want to be "cured" because they see that as wanting to do away with them. They like themselves just the way they are. I do not presume to know what caused their autism but I do know what caused my grandson's autism-like symptoms ~ mercury. I believe my adult autistic friends respect my desire to cure my grandson of mercury poisoning. He was not born with autism although he probably had an overload of mercury prenatally due to mercury-laden fish consumption by his mother and by her amalgam fillings. Reason Three: Evidence of Harm really is about mercury poisoning. Mercury has caused the harm. How could anyone argue that mercury is poisonous to the human body? Even Eli Lilly knew about that danger almost 75 years ago. Doctors should now know it; they claim not to know it. Those who have children harmed by mercury have every reason to be angry and to want justice. Reason Four: Had we talked about mercury poisoning, I doubt that Ms. Seidel would have had nearly as much ammunition. Pity. , I agree with you. Let's show as much courtesy to those who disagree with us as we can find it possible to do. In that way, we may be able to lead other parents to read and study and help their own children as much as we endeavor to help our own. Grandma Sylvia "christine@..." <christine@...> wrote: I would like to suggest that we not talk about attacks like this, because it only gives people more reason to do it. There are always going to be people who don't agree with you, just look at Red Soxs fans. You mention the name "Buckner" and they freak. (lol) You know that saying about defending the right of a person to say something, even if YOU don't agree with it? We want society to be tolerant and understanding of our children, we need to do the same for others. I'm not going to agree with what that mother wrote or take my son to Fenway, but if someone wants to rant online- so be it. There are other more important issues to deal with, like insurance coverage, the president keeping his promises, and getting OUR message heard. We have a right to say how we feel, post it online, or buy a billboard in Times Square if we want. If someone wants to pick it apart, take things out of context, and spend LESS time with their child in the process, so be it.-ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 A few of us think that " Dangermama " on parents.com is also " Lucid " and " Kev_L " ...all of these handles belonging to Leitch. > > > > > > I have kids diagnosed with ASD and was not at all offended by > Dr. Haley's comments. > > Yet, this woman was prepared to lambaste Dr. Boyd Haley for his > comments in this regard. > > I don't have any problems at all with how Dr. Haley phrased his > comments, yet Kathleen > > Seidel will find a way to make a mountain out of nothing!! > > > > > > tony, > > > > > > I've had similar run-ins. > > > > > > check out this website: > > > > > > http://www.wesupportdrhaley.info/ > > > > > > I felt after reading the petition against dr. haley that we > should have a place to support > > him. At first it was on petition.com and an aspie got on and > attacked dr. haley, me > > personally and all the other parents. I had to take it down- but > cut and pasted the > > legitimate responses and put them on this separate site. > > > > > > - > > > > > > --------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 I think Dangermama is Offit. Re: Re: Autism Rights Movement It's not only Kathleen Seidel who has an "agenda". Today, on parents.com, I saw that dangermama (whoever he is) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 Sylvia, Just speaking for myself, I always refer to my son as being injured by mercury...if I ever mention " autism " it is always in quotes...and sometimes you have to mention " it " so that the mainstream population has a reference to what we are talking about... Kelli > I would like to suggest that we not talk about attacks like this, because it only gives people more reason to do it. There are always going to be people who don't agree with you, just look at Red Soxs fans. You mention the name " Buckner " and they freak. (lol) You know that saying about defending the right of a person to say something, even if YOU don't agree with it? We want society to be tolerant and understanding of our children, we need to do the same for others. I'm not going to agree with what that mother wrote or take my son to Fenway, but if someone wants to rant online- so be it. There are other more important issues to deal with, like insurance coverage, the president keeping his promises, and getting OUR message heard. We have a right to say how we feel, post it online, or buy a billboard in Times Square if we want. If someone wants to pick it apart, take things out of context, and spend LESS time with their child in the process, so be it. > > - > > ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 In a way, I agree with you, Sylvia, regarding "Reason Four: Had we talked about mercury poisoning, I doubt that Ms. Seidel would have had nearly as much ammunition. Pity." The problem is that the diagnostic tools which were used to diagnose our kids lumped them into the ASD ballpark. Doctors were not on the lookout or on an alert for mercury poisoning when my kids and others were diagnosed in recent years. That's not surprising! Most of them would not consider that a possibility, even now.When I last spoke with my dentist a few months ago, she did not think there could be any problems with the methyl mercury in dental amalgams and my kids' pediatrician found it unbelievable that the thimerosal in vaccines could contribute to neurological damage and that the folks at the Simpsonwood meeting would embargo this information from the public, if they indeed did find a link (when I informed him of Verstraeten's study and what had occurred at Simpsonwood). About a year and a half ago, I returned home after hearing Dr. Hicks speak and felt like telling my kids, "Good news, you may not have ASD at all but mercury poisoning instead". I had to hold myself in check...even if they did have mercury poisoning, there was still the problem of what to do about that. And what did it matter if the symptoms were very similar to ASD? The gfcf diet promoted by Dr. Hicks and Betsy Prohaska seemed like it would be a hard sell with my husband and kids at the time. It could be that many cases of what are now being labelled as autism or ASD (or even other neurological disorders) are indeed cases of mercury poisoning and/or contributed to by also other vaccine ingredients. What's not to say that earlier cases of "autism" or "Asperger's" which were diagnosed in the 1940's were not also cases of mercury or other heavy metal damage? Thimerosal has been used in vaccines since the 1930's. Dental amalgams have been used for over 100 years! Since mercury can cause damage to genetic material, this slow insiduous poisoning could have been going on for several generations, making each successive generation more vulnerable to the effects of further mercury insults, whether it is through the air we breathe, food we eat, amalgams, vaccines etc. There may be a whole host of other factors at play also, but I cannot easily sit by and accept ASD as a difference of neurological wiring to be accepted and celebrated. If one sits idly by and accepts this, and no serious efforts are made to look for a cause and way to put a stop to ever-increasing incidences of ASD and other neurological disorders, what will this mean for generations to come? I shudder to imagine. Aasa Sylvia <sermeldan@...> wrote: Ms. Seidel touched a nerve, didn't she? For some very good reasons, I wish people had rallied behind me when I suggested that we should be referring to our children as mercury poisoned instead of autistic. As I recall, only one other person responded positively to that suggestion and he happened to be a grandfather. Interesting. Reason One: It was the mercury which tore up my grandson's digestive system giving him diarrhea and projectile vomiting for four years before we discovered that the GFCF diet could help heal his insides. It was mercury which caused him to experience so much pain after eating, upon hearing loud noises, upon having so much visual input that he had to engage in self-stimulating behavior in order to cope with the pain induced by these events. It was mercury which was deposited into his brain and caused brain damage leading to a loss of speech and other skills, some of which have been reversed by chelation. Granted, some of his damage may have been due to having multiple viruses injected, such as the MMR, but I cannot prove that as I can prove the damage from mercury. Some of his damage may have been due to having viruses injected when he already was sick with a cold (virus) but his mom was told it would be OK; not to worry; but I cannot prove that. The thing I CAN prove is that he has been loaded with mercury and it could only have been through the vaccination regimen coupled with the high mercury in our environment throughout the United States, an effective clean-up of which is undermined by our government. Reason Two: I have made an effort to get to know some autistic adults whom I respect and like. Sometimes we understand each other. Sometimes we do not. (I am NT.) But I do not want to hurt their feelings by indicating that I want to "cure" them even though I fervently want to cure my grandson by clearing him of a mercury overload. They do not want to be "cured" because they see that as wanting to do away with them. They like themselves just the way they are. I do not presume to know what caused their autism but I do know what caused my grandson's autism-like symptoms ~ mercury. I believe my adult autistic friends respect my desire to cure my grandson of mercury poisoning. He was not born with autism although he probably had an overload of mercury prenatally due to mercury-laden fish consumption by his mother and by her amalgam fillings. Reason Three: Evidence of Harm really is about mercury poisoning. Mercury has caused the harm. How could anyone argue that mercury is poisonous to the human body? Even Eli Lilly knew about that danger almost 75 years ago. Doctors should now know it; they claim not to know it. Those who have children harmed by mercury have every reason to be angry and to want justice. Reason Four: Had we talked about mercury poisoning, I doubt that Ms. Seidel would have had nearly as much ammunition. Pity. , I agree with you. Let's show as much courtesy to those who disagree with us as we can find it possible to do. In that way, we may be able to lead other parents to read and study and help their own children as much as we endeavor to help our own. Grandma Sylvia "christine@..." <christine@...> wrote: I would like to suggest that we not talk about attacks like this, because it only gives people more reason to do it. There are always going to be people who don't agree with you, just look at Red Soxs fans. You mention the name "Buckner" and they freak. (lol) You know that saying about defending the right of a person to say something, even if YOU don't agree with it? We want society to be tolerant and understanding of our children, we need to do the same for others. I'm not going to agree with what that mother wrote or take my son to Fenway, but if someone wants to rant online- so be it. There are other more important issues to deal with, like insurance coverage, the president keeping his promises, and getting OUR message heard. We have a right to say how we feel, post it online, or buy a billboard in Times Square if we want. If someone wants to pick it apart, take things out of context, and spend LESS time with their child in the process, so be it.-ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 I agree. It's clear though......Kathleen Seidel is not nuts, she's full of prunes. Re: Re: Autism Rights Movement on 6/3/05 10:08 AM, quantumerik at erik@... wrote: Kathleen Seidel is nuts.I would like to suggest that we not talk about attacks like this, because it only gives people more reason to do it. There are always going to be people who don't agree with you, just look at Red Soxs fans. You mention the name "Buckner" and they freak. (lol) You know that saying about defending the right of a person to say something, even if YOU don't agree with it? We want society to be tolerant and understanding of our children, we need to do the same for others. I'm not going to agree with what that mother wrote or take my son to Fenway, but if someone wants to rant online- so be it. There are other more important issues to deal with, like insurance coverage, the president keeping his promises, and getting OUR message heard. We have a right to say how we feel, post it online, or buy a billboard in Times Square if we want. If someone wants to pick it apart, take things out of context, and spend LESS time with their child in the process, so be it.-ps- go yankees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 That's what I thought, too. Re: Re: Autism Rights Movement It's not only Kathleen Seidel who has an "agenda". Today, on parents.com, I saw that dangermama (whoever he is) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 Guys, I think it is sooooo important to ignore negative/abuse remarks made by Kev_L/Dangermama/Lucid & not bicker with him/them. It just needs stop because it makes us look like crazies. And I am trying to take it slow with those new to autism because if we force our "beliefs" on people become they will become defensive and refuse to consider it. I try not to bombard the newly dx'ed with too much info too fast because it is so overwhelming & they might give up. Keep it "professional" and everyone will be taken much more seriously. When I read about or hear the position of the "other side" I try really hard to see their point of view. I read Kathleen Seidel's letter and kinda got mad at first - but then tried to see how she felt. Her views are understandable if you try to see it from her perspctive but I am convinced her reality of autism is different from ours. I mean, it's obvious that those who are defending their label are intelligent, able-bodied, literate people. My kid can't even talk. Even though I accept her for who she is and would never trade her for the world, I am going to do everything I can to help her. And if her body is full of poison I'm going to do everything I can to get it out. It is just a sad situation - because we as parents are being attacked for trying to help our kids; we didn't steal the autism label - we didn't diagnose them as autistic, the medical establishment did. Another thing (ok guys don't shoot me on this) I think on parenting.com we need to tone down the statement that all autism = mercury poisoning because people think we are arrogant & presumptous, etc. And Kathleen mentioned my bumper sticker in her letter and I feel so bad!!! I never meant to hurt anyone by it. My point was to demonstrate the absurdity of it: "My child was poisoned by vaccines -but everyone calls it autism". If you insert homosexuality for autism you see how absurd it is and that was the point I was trying to make. Maybe the skull & crossbones was a bit much. Sorry Lenny, you took the blame for that!! I truly never meant to offend anyone & I removed it from my car and replaced it with "Ban Mercury In Vaccines - Stop Poisoning our Kids". I for one had no idea this board was followed so closely and what we were saying was being analyzed! Geez, I thought it was just a place to come and casually chat. Guess I'll be watchin' what I say from now on. ~Becky Blessed are they that mourn: for they shall be comforted. 5:4 KJV Weeping may endure for a night, but joy cometh in the morning.Psalm 30:5 KJV They that sow in tears shall reap in joy.Psalm 126:5 KJV > I think Dangermama is Offit.> > Re: Re: Autism Rights Movement> > > It's not only Kathleen Seidel who has an "agenda". Today, on parents.com, I saw that dangermama (whoever he is) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 I AGREE! --- Becky <nelsons@...> wrote: > Guys, I think it is sooooo important to ignore > negative/abuse remarks made by > Kev_L/Dangermama/Lucid & not bicker with him/them. > It just needs stop because it makes us look like > crazies. And I am trying to take it slow with those > new to autism because if we force our " beliefs " on > people become they will become defensive and refuse > to consider it. I try not to bombard the newly > dx'ed with too much info too fast because it is so > overwhelming & they might give up. Keep it > " professional " and everyone will be taken much more > seriously. > > When I read about or hear the position of the " other > side " I try really hard to see their point of view. > I read Kathleen Seidel's letter and kinda got mad at > first - but then tried to see how she felt. Her > views are understandable if you try to see it from > her perspctive but I am convinced her reality of > autism is different from ours. I mean, it's obvious > that those who are defending their label are > intelligent, able-bodied, literate people. My kid > can't even talk. Even though I accept her for who > she is and would never trade her for the world, I am > going to do everything I can to help her. And if > her body is full of poison I'm going to do > everything I can to get it out. > > It is just a sad situation - because we as parents > are being attacked for trying to help our kids; we > didn't steal the autism label - we didn't diagnose > them as autistic, the medical establishment did. > Another thing (ok guys don't shoot me on this) I > think on parenting.com we need to tone down the > statement that all autism = mercury poisoning > because people think we are arrogant & presumptous, > etc. > > And Kathleen mentioned my bumper sticker in her > letter and I feel so bad!!! I never meant to hurt > anyone by it. My point was to demonstrate the > absurdity of it: " My child was poisoned by vaccines > -but everyone calls it autism " . If you insert > homosexuality for autism you see how absurd it is > and that was the point I was trying to make. Maybe > the skull & crossbones was a bit much. Sorry Lenny, > you took the blame for that!! I truly never meant > to offend anyone & I removed it from my car and > replaced it with " Ban Mercury In Vaccines - Stop > Poisoning our Kids " . > > I for one had no idea this board was followed so > closely and what we were saying was being analyzed! > Geez, I thought it was just a place to come and > casually chat. Guess I'll be watchin' what I say > from now on. > > ~Becky > > Blessed are they that mourn: for they shall be > comforted. > 5:4 KJV > > Weeping may endure for a night, but joy cometh in > the morning. > Psalm 30:5 KJV > > They that sow in tears shall reap in joy. > Psalm 126:5 KJV > > > > > > I think Dangermama is Offit. > > > > Re: Re: Autism Rights Movement > > > > > > It's not only Kathleen Seidel who has an > " agenda " . Today, on parents.com, I saw that > dangermama (whoever he is) __________________________________ Discover Find restaurants, movies, travel and more fun for the weekend. Check it out! http://discover./weekend.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 Hi Becky...I agree!! > > I think Dangermama is Offit. > > > > Re: Re: Autism Rights Movement > > > > > > It's not only Kathleen Seidel who has an " agenda " . Today, on parents.com, I saw that dangermama (whoever he is) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 My personal guess (since my son is 24, almost 25) is that the earlier kids were the bottom-of-the-vial kids, so they got as much mercury as these kiddos. Barb Re: Re: Autism Rights Movement In a way, I agree with you, Sylvia, regarding "Reason Four: Had we talked about mercury poisoning, I doubt that Ms. Seidel would have had nearly as much ammunition. Pity." The problem is that the diagnostic tools which were used to diagnose our kids lumped them into the ASD ballpark. Doctors were not on the lookout or on an alert for mercury poisoning when my kids and others were diagnosed in recent years. That's not surprising! Most of them would not consider that a possibility, even now.When I last spoke with my dentist a few months ago, she did not think there could be any problems with the methyl mercury in dental amalgams and my kids' pediatrician found it unbelievable that the thimerosal in vaccines could contribute to neurological damage and that the folks at the Simpsonwood meeting would embargo this information from the public, if they indeed did find a link (when I informed him of Verstraeten's study and what had occurred at Simpsonwood). About a year and a half ago, I returned home after hearing Dr. Hicks speak and felt like telling my kids, "Good news, you may not have ASD at all but mercury poisoning instead". I had to hold myself in check...even if they did have mercury poisoning, there was still the problem of what to do about that. And what did it matter if the symptoms were very similar to ASD? The gfcf diet promoted by Dr. Hicks and Betsy Prohaska seemed like it would be a hard sell with my husband and kids at the time. It could be that many cases of what are now being labelled as autism or ASD (or even other neurological disorders) are indeed cases of mercury poisoning and/or contributed to by also other vaccine ingredients. What's not to say that earlier cases of "autism" or "Asperger's" which were diagnosed in the 1940's were not also cases of mercury or other heavy metal damage? Thimerosal has been used in vaccines since the 1930's. Dental amalgams have been used for over 100 years! Since mercury can cause damage to genetic material, this slow insiduous poisoning could have been going on for several generations, making each successive generation more vulnerable to the effects of further mercury insults, whether it is through the air we breathe, food we eat, amalgams, vaccines etc. There may be a whole host of other factors at play also, but I cannot easily sit by and accept ASD as a difference of neurological wiring to be accepted and celebrated. If one sits idly by and accepts this, and no serious efforts are made to look for a cause and way to put a stop to ever-increasing incidences of ASD and other neurological disorders, what will this mean for generations to come? I shudder to imagine. Aasa Sylvia <sermeldan@...> wrote: Ms. Seidel touched a nerve, didn't she? For some very good reasons, I wish people had rallied behind me when I suggested that we should be referring to our children as mercury poisoned instead of autistic. As I recall, only one other person responded positively to that suggestion and he happened to be a grandfather. Interesting. Reason One: It was the mercury which tore up my grandson's digestive system giving him diarrhea and projectile vomiting for four years before we discovered that the GFCF diet could help heal his insides. It was mercury which caused him to experience so much pain after eating, upon hearing loud noises, upon having so much visual input that he had to engage in self-stimulating behavior in order to cope with the pain induced by these events. It was mercury which was deposited into his brain and caused brain damage leading to a loss of speech and other skills, some of which have been reversed by chelation. Granted, some of his damage may have been due to having multiple viruses injected, such as the MMR, but I cannot prove that as I can prove the damage from mercury. Some of his damage may have been due to having viruses injected when he already was sick with a cold (virus) but his mom was told it would be OK; not to worry; but I cannot prove that. The thing I CAN prove is that he has been loaded with mercury and it could only have been through the vaccination regimen coupled with the high mercury in our environment throughout the United States, an effective clean-up of which is undermined by our government. Reason Two: I have made an effort to get to know some autistic adults whom I respect and like. Sometimes we understand each other. Sometimes we do not. (I am NT.) But I do not want to hurt their feelings by indicating that I want to "cure" them even though I fervently want to cure my grandson by clearing him of a mercury overload. They do not want to be "cured" because they see that as wanting to do away with them. They like themselves just the way they are. I do not presume to know what caused their autism but I do know what caused my grandson's autism-like symptoms ~ mercury. I believe my adult autistic friends respect my desire to cure my grandson of mercury poisoning. He was not born with autism although he probably had an overload of mercury prenatally due to mercury-laden fish consumption by his mother and by her amalgam fillings. Reason Three: Evidence of Harm really is about mercury poisoning. Mercury has caused the harm. How could anyone argue that mercury is poisonous to the human body? Even Eli Lilly knew about that danger almost 75 years ago. Doctors should now know it; they claim not to know it. Those who have children harmed by mercury have every reason to be angry and to want justice. Reason Four: Had we talked about mercury poisoning, I doubt that Ms. Seidel would have had nearly as much ammunition. Pity. , I agree with you. Let's show as much courtesy to those who disagree with us as we can find it possible to do. In that way, we may be able to lead other parents to read and study and help their own children as much as we endeavor to help our own. Grandma Sylvia "christine@..." <christine@...> wrote: I would like to suggest that we not talk about attacks like this, because it only gives people more reason to do it. There are always going to be people who don't agree with you, just look at Red Soxs fans. You mention the name "Buckner" and they freak. (lol) You know that saying about defending the right of a person to say something, even if YOU don't agree with it? We want society to be tolerant and understanding of our children, we need to do the same for others. I'm not going to agree with what that mother wrote or take my son to Fenway, but if someone wants to rant online- so be it. There are other more important issues to deal with, like insurance coverage, the president keeping his promises, and getting OUR message heard. We have a right to say how we feel, post it online, or buy a billboard in Times Square if we want. If someone wants to pick it apart, take things out of context, and spend LESS time with their child in the process, so be it.-ps- go yankees Quote Link to comment Share on other sites More sharing options...
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