Re: Advice on Chelation please

[Guest guest]

If you try a transdermal chelator like DMPS he won't have to swallow

anything. Many DAN doctors are now using it. Luck. Maurine

Advice on Chelation please

> hey guys i need some sujestions from those who have already been there

> i want to try chelation on my son Cody but there is a major Problem he

> is severly OCD about what he will allow in his mouth so much so that

> he wont try new things most of the time (although latly he has been

> tasting new foods for packs of Yu gi oh cards ) he gags at new smells

> and tastes so i am wondering how some of you managed to get your kids

> to do chelation the only med i can get him to take is Pink

> amoxicillian when he gets an infection he wont or cant keep anything

> else down vitamins nothing unless its something that can be hidden

> well with NO TASTE OR SMELL in his food or drink he has even smelled

> some sups that were cooked into his pancakes and couldnt eat them

> because of it any ideals or sujestions ?

>

>

>

>

>

>

>

[Guest guest]

First, congrats on embarking on a therapy that has, without a doubt,

yielded the greatest gains for our six-year-old autistic son, who

has been undergoing various treatments since two.

The results we saw with the DMSA transdermal rub were nearly

instant. Within 12 hours we saw more awareness in our son, more

speech, more often. Here are a few things we learned along the way:

1. Conduct chelation under the watchful eye of a qualified

physician. In addition to our son Davey's physical visits to Dr.

Jeff Bradstreet in Florida, we have phone conferences every few

weeks to monitor progress and stay alert to any concerns.

We know parents whose children have to be off and on chelation due

to other issues, anxiety being one of them. With your child's OCD

dx, close monitoring would seem to be truly important.

2. Make sure that your child's gut system has been repaired (if

needed) and that he/she is receiving all the supplements necessary

for good health. Our Davey is on methyl B-12 transdermal rub, TMG

with folinic acid, Eskimo Kids Fatty Acid supplment, Ther-Biotic

probiotic (to promote good bacteria growth in the gut), Concentrate

Focus,multi-vitamin, Lubriflex, Taurine, Cal-Mag-K, Coenzyme,

Selenium, transdermal zinc, transdermal n-acetylcysteine,

transdermal methycobalamin.

Since chelation depletes some minerals such as zinc and magnesium,

their re-supplementation is imperative.

3. The immediate results you may see will likely be the result of

relieving oxidative stress rather than the actual removal of

mercury, which takes months or, in the case of lead, years. But the

wait is worth it--children are being taken off the spectrum and we

have this hope for our child, too.

4. DMSA vs. DMPS. We looked closely into this and went with DMSA.

The clinical trials so far show them to be of nearly equal

effectiveness in stripping the body of mercury and other metals.

Although DMPS may have an initially faster rate, the end result

seems to be the same over time. We felt the nod went to DMSA

because it is FDA approved (although this is an off-label use of

it). FDA approval means very little to me and others these days, but

such approval does give DMSA an NDC number. Our insurance pays for

it without question. If you are having to pay, DMSA is about 3-4

times cheaper than DMPS.

Our thoughts and prayers will be with you,

> hey guys i need some sujestions from those who have already been

there

> i want to try chelation on my son Cody but there is a major

Problem

he

> is severly OCD about what he will allow in his mouth so much so

that

> he wont try new things most of the time (although latly he has

been

> tasting new foods for packs of Yu gi oh cards ) he gags at new

smells

> and tastes so i am wondering how some of you managed to get your

kids

[Guest guest]

A couple other notes:

If your metals test shows elevated levels of lead or metals sometimes insurance companies will cover the chelators.

Everything else is ditto

<david@...> wrote:

First, congrats on embarking on a therapy that has, without a doubt, yielded the greatest gains for our six-year-old autistic son, who has been undergoing various treatments since two.The results we saw with the DMSA transdermal rub were nearly instant. Within 12 hours we saw more awareness in our son, more speech, more often. Here are a few things we learned along the way:1. Conduct chelation under the watchful eye of a qualified physician. In addition to our son Davey's physical visits to Dr. Jeff Bradstreet in Florida, we have phone conferences every few weeks to monitor progress and stay alert to any concerns.We know parents whose children have to be off and on chelation due to other issues, anxiety being one of them. With your child's OCD dx, close monitoring would seem to be truly important.2. Make sure that

your child's gut system has been repaired (if needed) and that he/she is receiving all the supplements necessaryfor good health. Our Davey is on methyl B-12 transdermal rub, TMG with folinic acid, Eskimo Kids Fatty Acid supplment, Ther-Biotic probiotic (to promote good bacteria growth in the gut), Concentrate Focus,multi-vitamin, Lubriflex, Taurine, Cal-Mag-K, Coenzyme, Selenium, transdermal zinc, transdermal n-acetylcysteine, transdermal methycobalamin.Since chelation depletes some minerals such as zinc and magnesium, their re-supplementation is imperative.3. The immediate results you may see will likely be the result of relieving oxidative stress rather than the actual removal of mercury, which takes months or, in the case of lead, years. But the wait is worth it--children are being taken off the spectrum and we have this hope for our child, too.4. DMSA vs. DMPS. We looked closely into this and went with DMSA.

The clinical trials so far show them to be of nearly equal effectiveness in stripping the body of mercury and other metals. Although DMPS may have an initially faster rate, the end result seems to be the same over time. We felt the nod went to DMSA because it is FDA approved (although this is an off-label use of it). FDA approval means very little to me and others these days, but such approval does give DMSA an NDC number. Our insurance pays for it without question. If you are having to pay, DMSA is about 3-4 times cheaper than DMPS.Our thoughts and prayers will be with you, > hey guys i need some sujestions from those who have already been there > i want to try chelation on my son Cody but there is a major Problem he > is severly OCD about what he will allow in his mouth so much so

that > he wont try new things most of the time (although latly he has been > tasting new foods for packs of Yu gi oh cards ) he gags at new smells > and tastes so i am wondering how some of you managed to get your kids

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Actually the wired thing is both my boys test totally neg for Lead the Ped said he thought that was odd because everyone has had some exposure to lead or he thought so anyway but they boy test negative for lead and only Cody tests positive for mercury Seth is negative for mercury and lead they both test high for aluminum . as for insurance I have an HMO and it wont even pay for things like speech, OT and Motor but if it helps I don’t mind paying for it out of pocket as long as I don’t have to starve the other kids to do it ya know

Re: Re: Advice on Chelation please

A couple other notes:

If your metals test shows elevated levels of lead or metals sometimes insurance companies will cover the chelators.

Everything else is ditto

<david@...> wrote:

First, congrats on embarking on a therapy that has, without a doubt, yielded the greatest gains for our six-year-old autistic son, who has been undergoing various treatments since two.The results we saw with the DMSA transdermal rub were nearly instant. Within 12 hours we saw more awareness in our son, more speech, more often. Here are a few things we learned along the way:1. Conduct chelation under the watchful eye of a qualified physician. In addition to our son Davey's physical visits to Dr. Jeff Bradstreet in Florida, we have phone conferences every few weeks to monitor progress and stay alert to any concerns.We know parents whose children have to be off and on chelation due to other issues, anxiety being one of them. With your child's OCD dx, close monitoring would seem to be truly important.2. Make sure that your child's gut system has been repaired (if needed) and that he/she is receiving all the supplements necessaryfor good health. Our Davey is on methyl B-12 transdermal rub, TMG with folinic acid, Eskimo Kids Fatty Acid supplment, Ther-Biotic probiotic (to promote good bacteria growth in the gut), Concentrate Focus,multi-vitamin, Lubriflex, Taurine, Cal-Mag-K, Coenzyme, Selenium, transdermal zinc, transdermal n-acetylcysteine, transdermal methycobalamin.Since chelation depletes some minerals such as zinc and magnesium, their re-supplementation is imperative.3. The immediate results you may see will likely be the result of relieving oxidative stress rather than the actual removal of mercury, which takes months or, in the case of lead, years. But the wait is worth it--children are being taken off the spectrum and we have this hope for our child, too.4. DMSA vs. DMPS. We looked closely into this and went with DMSA. The clinical trials so far show them to be of nearly equal effectiveness in stripping the body of mercury and other metals. Although DMPS may have an initially faster rate, the end result seems to be the same over time. We felt the nod went to DMSA because it is FDA approved (although this is an off-label use of it). FDA approval means very little to me and others these days, but such approval does give DMSA an NDC number. Our insurance pays for it without question. If you are having to pay, DMSA is about 3-4 times cheaper than DMPS.Our thoughts and prayers will be with you, > hey guys i need some sujestions from those who have already been there > i want to try chelation on my son Cody but there is a major Problem he > is severly OCD about what he will allow in his mouth so much so that > he wont try new things most of the time (although latly he has been > tasting new foods for packs of Yu gi oh cards ) he gags at new smells > and tastes so i am wondering how some of you managed to get your kids

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At 11:55 AM 5/12/2005, angela watters wrote:

>both my boys test totally neg for Lead the Ped said he thought that was

>odd because everyone has had some exposure to lead or he thought so anyway

>but they boy test negative for lead and only Cody tests positive for

>mercury Seth is negative for mercury and lead they both test high for aluminum

was this a blood test? Because your posting reminds me of an

experience with my son, now 8 dx'd with pdd-nos. About 3 1/2 yrs ago we had

a hair test done and the results included:

" Aluminum and arsenic are mildly out of range, lead is moderately out of

range, and mercury and silver are both >95th

percentile. "

We showed the results to the pediatrician and she ordered a blood test,

which only showed aluminum as high - not high enough though to order

chelation therapy. I've read elsewhere that hair and blood tests don't

necessarily show the same types of result.

>as for insurance I have an HMO and it wont even pay for things like

>speech, OT and Motor

AFAIK this is common, and I've always wondered why that is. After all, our

children do have medical dx's, so why won't medical plans treat them?

Marty

Marty Landman, Face 2 Interface Inc. 845-679-9387

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[Guest guest]

Cody dose have some gut problems our nuro noted codys mercury levels in his report but stated he thought that MMR was the cause of Codys problems as because that’s when he stopped speaking but its like I told him how can he be so sure it was the mmr when he had like 5 other shots that day too and every shot he has ever gotten had mercury in it except that . So he refured us to a gut doctor who works in autism at the U OF land so to be honest I don’t know if I am coming or going I bleave mercury caused this with Cody after all his younger brother is neg for mercury because I didn’t allow the shots and his younger brother is NT and Cody also has the secondary dx of sever Global Apraxia which from what I was told is only caused by 2 things either a stroke or exposure to nuro toxins and his nuro says he has never had a stroke but yet he wont say for sure mercury caused it I thought I had this autism thing figured out but seems I just get more confussed every day , Have to fight the gov for the truth about what they did do our kids have to fight schools to get a decent education for them MAN ITS EXHAUSTING isnt it I am glad you have had such great results with Chelation maybe I can find a doctor who will work with us and maybe I can talk his father into letting us try it . It sounds like its been well worth it

Angie

Re: Re: Advice on Chelation please

A couple other notes:

If your metals test shows elevated levels of lead or metals sometimes insurance companies will cover the chelators.

Everything else is ditto

<david@...> wrote:

First, congrats on embarking on a therapy that has, without a doubt, yielded the greatest gains for our six-year-old autistic son, who has been undergoing various treatments since two.The results we saw with the DMSA transdermal rub were nearly instant. Within 12 hours we saw more awareness in our son, more speech, more often. Here are a few things we learned along the way:1. Conduct chelation under the watchful eye of a qualified physician. In addition to our son Davey's physical visits to Dr. Jeff Bradstreet in Florida, we have phone conferences every few weeks to monitor progress and stay alert to any concerns.We know parents whose children have to be off and on chelation due to other issues, anxiety being one of them. With your child's OCD dx, close monitoring would seem to be truly important.2. Make sure that your child's gut system has been repaired (if needed) and that he/she is receiving all the supplements necessaryfor good health. Our Davey is on methyl B-12 transdermal rub, TMG with folinic acid, Eskimo Kids Fatty Acid supplment, Ther-Biotic probiotic (to promote good bacteria growth in the gut), Concentrate Focus,multi-vitamin, Lubriflex, Taurine, Cal-Mag-K, Coenzyme, Selenium, transdermal zinc, transdermal n-acetylcysteine, transdermal methycobalamin.Since chelation depletes some minerals such as zinc and magnesium, their re-supplementation is imperative.3. The immediate results you may see will likely be the result of relieving oxidative stress rather than the actual removal of mercury, which takes months or, in the case of lead, years. But the wait is worth it--children are being taken off the spectrum and we have this hope for our child, too.4. DMSA vs. DMPS. We looked closely into this and went with DMSA. The clinical trials so far show them to be of nearly equal effectiveness in stripping the body of mercury and other metals. Although DMPS may have an initially faster rate, the end result seems to be the same over time. We felt the nod went to DMSA because it is FDA approved (although this is an off-label use of it). FDA approval means very little to me and others these days, but such approval does give DMSA an NDC number. Our insurance pays for it without question. If you are having to pay, DMSA is about 3-4 times cheaper than DMPS.Our thoughts and prayers will be with you, > hey guys i need some sujestions from those who have already been there > i want to try chelation on my son Cody but there is a major Problem he > is severly OCD about what he will allow in his mouth so much so that > he wont try new things most of the time (although latly he has been > tasting new foods for packs of Yu gi oh cards ) he gags at new smells > and tastes so i am wondering how some of you managed to get your kids

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Martyyes the tests done on my boys were blood tests last yr the school they go to requires a lead test to start school there so I just had the doctor add on the other tests with it he thru a fit and didn’t like the ideal but did it anyway 1 of my sons is NT and the other has a double diagnosis of PDDNOS and Sever Global (Limb) apraxia when Cody was 1st diagnosised he was diagnosed Modrate to Sever Autism and the those docs wouldn’t rule out MR at that time either he was DXed at Hershey med 3 YRS ago at the age of 5 this yr that dx was changed by the Autism specialist at Kennedy Krieger and a Child Nuro at Sina in Baltimore I had him re evaluated because of problems at school getting services and those doctors up graded his diagnosis

Re: Re: Advice on Chelation please

At 11:55 AM 5/12/2005, angela watters wrote:>both my boys test totally neg for Lead the Ped said he thought that was >odd because everyone has had some exposure to lead or he thought so anyway >but they boy test negative for lead and only Cody tests positive for >mercury Seth is negative for mercury and lead they both test high for aluminum was this a blood test? Because your posting reminds me of an experience with my son, now 8 dx'd with pdd-nos. About 3 1/2 yrs ago we had a hair test done and the results included:"Aluminum and arsenic are mildly out of range, lead is moderately out of range, and mercury and silver are both >95thpercentile."We showed the results to the pediatrician and she ordered a blood test, which only showed aluminum as high - not high enough though to order chelation therapy. I've read elsewhere that hair and blood tests don't necessarily show the same types of result.>as for insurance I have an HMO and it wont even pay for things like >speech, OT and MotorAFAIK this is common, and I've always wondered why that is. After all, our children do have medical dx's, so why won't medical plans treat them?MartyMarty Landman, Face 2 Interface Inc. 845-679-9387Search & Sort Easily: http://face2interface.com/Products/FormATable.shtmlWeb Installed Formmail: http://face2interface.com/formINSTal

[Guest guest]

At 12:34 PM 5/12/2005, angela watters wrote:

>yes the tests done on my boys were blood tests

Wonder if a hair test would show results similar to those my son got

>has a double diagnosis of PDDNOS and Sever Global (Limb) apraxia

My son's first dx at 15 mos was cerebral palsy, but that was later removed.

The MRI showed dilation of both lateral cerebral ventricles, more so in the

left. I guessed that this was why his soft spot was slow to close up.

>when Cody was 1st diagnosised he was diagnosed Modrate to Sever Autism

was dx'd at 39 mos with moderate autism, changed a couple years later

to pdd-nos.

>and the those docs wouldn't rule out MR at that time

Ok, here's my understanding and hope if it's wrong someone will speak up

and straighten me out.

1. mental retardation is dx'd mostly based on IQ testing

2. most autistic ppl test low enough to be dx'd as MR

3. I've only seen a definition of " high functioning autism " once, forget

where, and it was ~autism in a person whose IQ is average or higher~

FWIW my son's last full eval 2+ years ago by a neuropsych we hired included

two IQ tests, the results were iirc 71 & 97, iow borderline retarded &

average. His expressive speech was, and in my wife and my opinion as his

homeschool teachers continues to be better than average. The doc said she

didn't think that first test reflected his true potential so she used a

second test.

I've always speculated if, had she been paid by some party other than my

wife and I might have stopped at that first IQ test so that he would have

also been dx'd as mentally retarded.

Marty

Marty Landman, Face 2 Interface Inc. 845-679-9387

Search & Sort Easily: http://face2interface.com/Products/FormATable.shtml

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[Guest guest]

Martythe school at the request of our Autism doc did an IQ test on Cody a few months ago to deterim some IEP issues I had with them at the school the school wasn’t meeting there goals and I couldn’t figure out why cause he was doing these things at home but not for his teacher so we asked for an IQ test his IQ is average to above in most things unless related to his understanding of speech those things he tested WAY LOW IN

Re: Re: Advice on Chelation please

At 12:34 PM 5/12/2005, angela watters wrote:>yes the tests done on my boys were blood testsWonder if a hair test would show results similar to those my son got>has a double diagnosis of PDDNOS and Sever Global (Limb) apraxiaMy son's first dx at 15 mos was cerebral palsy, but that was later removed. The MRI showed dilation of both lateral cerebral ventricles, more so in the left. I guessed that this was why his soft spot was slow to close up.>when Cody was 1st diagnosised he was diagnosed Modrate to Sever Autism was dx'd at 39 mos with moderate autism, changed a couple years later to pdd-nos.>and the those docs wouldn't rule out MR at that timeOk, here's my understanding and hope if it's wrong someone will speak up and straighten me out.1. mental retardation is dx'd mostly based on IQ testing2. most autistic ppl test low enough to be dx'd as MR3. I've only seen a definition of "high functioning autism" once, forget where, and it was ~autism in a person whose IQ is average or higher~FWIW my son's last full eval 2+ years ago by a neuropsych we hired included two IQ tests, the results were iirc 71 & 97, iow borderline retarded & average. His expressive speech was, and in my wife and my opinion as his homeschool teachers continues to be better than average. The doc said she didn't think that first test reflected his true potential so she used a second test.I've always speculated if, had she been paid by some party other than my wife and I might have stopped at that first IQ test so that he would have also been dx'd as mentally retarded.MartyMarty Landman, Face 2 Interface Inc. 845-679-9387Search & Sort Easily: http://face2interface.com/Products/FormATable.shtmlWeb Installed Formmail: http://face2interface.com/formINSTal