Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 His reply to my email: Dear I am delighted to hear that your son's condition has improved. I wish I could say the same about my severely autistic son, whose condition has continued to deteriorate despite all forms of intervention. One of the many mysteries of children with autistic spectrum disorders is that their level of functioning fluctuates over time for reasons that are simply not understood (and little is understood about autism). If a deterioration coincides with immunisation or some other event, it is understandable that parents should make a connection; if their improvement coincides with some intervention, whether in the form of a school or behavioural program, a special diet or some form of medication or other treatment, it is also not surprising that parents attribute the improvement to the intervention. However, before any such treatments are recommended for children, I believe that it is important that some basic evaluations are made - to try to establish whether they really are effective, and also to establish whether they are safe. Neither has been done with mercury chelation treatment so I would be very wary of using it or recommending it. You only have to look at the history of autism treatments to see how they come and go and many parents have experienced dramatic results with all sorts of treatments - such as secretin - that have now been discredited (or shown to be positively harmful, like 'holding therapy', or various drug regimes). In my experience desperate parents are vulnerable to claims of wonder cures that are likely to exhaust their reserves of energy and hope (not to mention money) and ultimately leave them disappointed. I'm sorry if you found my review upsetting, but I believe that the anti-mercury campaign is not based on sound science and is likely to cause more harm than good. I sincerely hope that your child continues to improve (though I doubt whether this will have anything to do with mercury). Best wishes Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 It is a shame that Dr. Fitzpatrick claims to have tried " all forms of intervention " with his son, but later says that he has NOT tried chelating him! And then states that evaluations have not been made? Oh NO? What about heavy metal tests before, during and after successful chelations...corresponding with dramatic improvements in a child's symptoms??? We have people like that. Just ask Dr. Rashid Buttar! Or any of dozens of parents I've met! The truth is that Dr. Fitzpatrick is just taking the " safe, " mainstream road of thought for not knowing better. We should get him into a DAN! conference! http://www.autismmedia.org/ > > > His reply to my email: > > Dear > > I am delighted to hear that your son's condition has improved. I wish I > > could say the same about my severely autistic son, whose condition has > > continued to deteriorate despite all forms of intervention. One of the many > > mysteries of children with autistic spectrum disorders is that their level > > of functioning fluctuates over time for reasons that are simply not > > understood (and little is understood about autism). If a deterioration > > coincides with immunisation or some other event, it is understandable that > > parents should make a connection; if their improvement coincides with some > > intervention, whether in the form of a school or behavioural program, a > > special diet or some form of medication or other treatment, it is also not > > surprising that parents attribute the improvement to the intervention. > > However, before any such treatments are recommended for children, I believe > > that it is important that some basic evaluations are made - to try to > > establish whether they really are effective, and also to establish whether > > they are safe. Neither has been done with mercury chelation treatment so I > > would be very wary of using it or recommending it. You only have to look at > > the history of autism treatments to see how they come and go and many > > parents have experienced dramatic results with all sorts of treatments - > > such as secretin - that have now been discredited (or shown to be > > positively harmful, like 'holding therapy', or various drug regimes). In my > > experience desperate parents are vulnerable to claims of wonder cures that > > are likely to exhaust their reserves of energy and hope (not to mention > > money) and ultimately leave them disappointed. > > I'm sorry if you found my review upsetting, but I believe that the > > anti-mercury campaign is not based on sound science and is likely to cause > > more harm than good. > > I sincerely hope that your child continues to improve (though I doubt > > whether this will have anything to do with mercury). > > Best wishes > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 -- Do you know whether or not Fitzpatrick has had his son tested for mercury toxicity? The argument of " coincidence " is a common way for these folks to dismiss the treatments that we watch work before our very eyes. Unfortunately, Fitzpatrick's dismissal seems like it extends to his poor son. When Fitzpatrick says that he has witnessed his son's condition deterioate despite " all " interventions, did he also say which treatments he has tried--or not tried? My heart goes out to the young Fitzpatrick and his brainwashed dad. BTW--I'm a university professor of language and calculated my son's mean-length of utterances and frequency pre- and post-chelation. His progress from three-word fragments to three-sentence paragraphs with full use of pronouns (the most difficult part of a language) happened within a week. The math doesn't lie. Since then, my wife and I have making this same " coincidence " happen on a regular basis. Guess we're just lucky. Davey's Dad > > > His reply to my email: > > Dear > > I am delighted to hear that your son's condition has improved. I wish I > > could say the same about my severely autistic son, whose condition has > > continued to deteriorate despite all forms of intervention. One of the many > > mysteries of children with autistic spectrum disorders is that their level > > of functioning fluctuates over time for reasons that are simply not > > understood (and little is understood about autism). If a deterioration > > coincides with immunisation or some other event, it is understandable that > > parents should make a connection; if their improvement coincides with some > > intervention, whether in the form of a school or behavioural program, a > > special diet or some form of medication or other treatment, it is also not > > surprising that parents attribute the improvement to the intervention. > > However, before any such treatments are recommended for children, I believe > > that it is important that some basic evaluations are made - to try to > > establish whether they really are effective, and also to establish whether > > they are safe. Neither has been done with mercury chelation treatment so I > > would be very wary of using it or recommending it. You only have to look at > > the history of autism treatments to see how they come and go and many > > parents have experienced dramatic results with all sorts of treatments - > > such as secretin - that have now been discredited (or shown to be > > positively harmful, like 'holding therapy', or various drug regimes). In my > > experience desperate parents are vulnerable to claims of wonder cures that > > are likely to exhaust their reserves of energy and hope (not to mention > > money) and ultimately leave them disappointed. > > I'm sorry if you found my review upsetting, but I believe that the > > anti-mercury campaign is not based on sound science and is likely to cause > > more harm than good. > > I sincerely hope that your child continues to improve (though I doubt > > whether this will have anything to do with mercury). > > Best wishes > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 The Doctor wrote the following in 's e-mail: " If a deterioration coincides with immunisation or some other event, it is understandable that parents should make a connection;... " You mean like: " If the sky starts to grow black when the sun goes down, I think they are connected... " or " If I cut my hand and it starts to bleed, I think they are connected... " or " If I dive off the top of a 3 story building and break every bone in my body, I think they are connected... " Do ya think?? Like, no duh!! The reason why we make the connection is because (drum roll please) THERE IS A CONNECTION!! Kelli > > > His reply to my email: > > Dear > > I am delighted to hear that your son's condition has improved. I wish I > > could say the same about my severely autistic son, whose condition has > > continued to deteriorate despite all forms of intervention. One of the many > > mysteries of children with autistic spectrum disorders is that their level > > of functioning fluctuates over time for reasons that are simply not > > understood (and little is understood about autism). If a deterioration > > coincides with immunisation or some other event, it is understandable that > > parents should make a connection; if their improvement coincides with some > > intervention, whether in the form of a school or behavioural program, a > > special diet or some form of medication or other treatment, it is also not > > surprising that parents attribute the improvement to the intervention. > > However, before any such treatments are recommended for children, I believe > > that it is important that some basic evaluations are made - to try to > > establish whether they really are effective, and also to establish whether > > they are safe. Neither has been done with mercury chelation treatment so I > > would be very wary of using it or recommending it. You only have to look at > > the history of autism treatments to see how they come and go and many > > parents have experienced dramatic results with all sorts of treatments - > > such as secretin - that have now been discredited (or shown to be > > positively harmful, like 'holding therapy', or various drug regimes). In my > > experience desperate parents are vulnerable to claims of wonder cures that > > are likely to exhaust their reserves of energy and hope (not to mention > > money) and ultimately leave them disappointed. > > I'm sorry if you found my review upsetting, but I believe that the > > anti-mercury campaign is not based on sound science and is likely to cause > > more harm than good. > > I sincerely hope that your child continues to improve (though I doubt > > whether this will have anything to do with mercury). > > Best wishes > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 What if we offer to pay for Fitzpatrick's son's metal tests and a month's supply of DMSA if his son turns out to be a " tin man " ? > > > > > > His reply to my email: > > > > Dear > > > > I am delighted to hear that your son's condition has improved. I wish I > > > > could say the same about my severely autistic son, whose condition has > > > > continued to deteriorate despite all forms of intervention. One of the many > > > > mysteries of children with autistic spectrum disorders is that their level > > > > of functioning fluctuates over time for reasons that are simply not > > > > understood (and little is understood about autism). If a deterioration > > > > coincides with immunisation or some other event, it is understandable that > > > > parents should make a connection; if their improvement coincides with some > > > > intervention, whether in the form of a school or behavioural program, a > > > > special diet or some form of medication or other treatment, it is also not > > > > surprising that parents attribute the improvement to the intervention. > > > > However, before any such treatments are recommended for children, I believe > > > > that it is important that some basic evaluations are made - to try to > > > > establish whether they really are effective, and also to establish whether > > > > they are safe. Neither has been done with mercury chelation treatment so I > > > > would be very wary of using it or recommending it. You only have to look at > > > > the history of autism treatments to see how they come and go and many > > > > parents have experienced dramatic results with all sorts of treatments - > > > > such as secretin - that have now been discredited (or shown to be > > > > positively harmful, like 'holding therapy', or various drug regimes). In my > > > > experience desperate parents are vulnerable to claims of wonder cures that > > > > are likely to exhaust their reserves of energy and hope (not to mention > > > > money) and ultimately leave them disappointed. > > > > I'm sorry if you found my review upsetting, but I believe that the > > > > anti-mercury campaign is not based on sound science and is likely to cause > > > > more harm than good. > > > > I sincerely hope that your child continues to improve (though I doubt > > > > whether this will have anything to do with mercury). > > > > Best wishes > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 It guess it must just be a coincidence that thousands of kids are improving with chelation! Let's all go stick our heads in the sand instead! s (Cary, NC) persistentC@... President and Executive Director The Mariposa School for Children with Autism 203 Gregson Drive Cary, NC 27511 919-461-0600 www.MariposaSchool.org From: EOHarm [mailto:EOHarm ] On Behalf Of MedlinSent: Friday, May 13, 2005 4:29 PMEOHarm Subject: Re: BMJ/ Fitzpatrick -his reply to my email His reply to my email: Dear I am delighted to hear that your son's condition has improved. I wish I could say the same about my severely autistic son, whose condition has continued to deteriorate despite all forms of intervention. One of the many mysteries of children with autistic spectrum disorders is that their level of functioning fluctuates over time for reasons that are simply not understood (and little is understood about autism). If a deterioration coincides with immunisation or some other event, it is understandable that parents should make a connection; if their improvement coincides with some intervention, whether in the form of a school or behavioural program, a special diet or some form of medication or other treatment, it is also not surprising that parents attribute the improvement to the intervention. However, before any such treatments are recommended for children, I believe that it is important that some basic evaluations are made - to try to establish whether they really are effective, and also to establish whether they are safe. Neither has been done with mercury chelation treatment so I would be very wary of using it or recommending it. You only have to look at the history of autism treatments to see how they come and go and many parents have experienced dramatic results with all sorts of treatments - such as secretin - that have now been discredited (or shown to be positively harmful, like 'holding therapy', or various drug regimes). In my experience desperate parents are vulnerable to claims of wonder cures that are likely to exhaust their reserves of energy and hope (not to mention money) and ultimately leave them disappointed. I'm sorry if you found my review upsetting, but I believe that the anti-mercury campaign is not based on sound science and is likely to cause more harm than good. I sincerely hope that your child continues to improve (though I doubt whether this will have anything to do with mercury). Best wishes Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 He'd probably refuse, but making the offer is a powerful way to put our " money " where our mouths are! :-) http://www.autismmedia.org/ > > > > > > > > > His reply to my email: > > > > > > Dear > > > > > > I am delighted to hear that your son's condition has improved. I > wish I > > > > > > could say the same about my severely autistic son, whose > condition has > > > > > > continued to deteriorate despite all forms of intervention. One > of the many > > > > > > mysteries of children with autistic spectrum disorders is that > their level > > > > > > of functioning fluctuates over time for reasons that are simply > not > > > > > > understood (and little is understood about autism). If a > deterioration > > > > > > coincides with immunisation or some other event, it is > understandable that > > > > > > parents should make a connection; if their improvement coincides > with some > > > > > > intervention, whether in the form of a school or behavioural > program, a > > > > > > special diet or some form of medication or other treatment, it > is also not > > > > > > surprising that parents attribute the improvement to the > intervention. > > > > > > However, before any such treatments are recommended for > children, I believe > > > > > > that it is important that some basic evaluations are made - to > try to > > > > > > establish whether they really are effective, and also to > establish whether > > > > > > they are safe. Neither has been done with mercury chelation > treatment so I > > > > > > would be very wary of using it or recommending it. You only have > to look at > > > > > > the history of autism treatments to see how they come and go and > many > > > > > > parents have experienced dramatic results with all sorts of > treatments - > > > > > > such as secretin - that have now been discredited (or shown to be > > > > > > positively harmful, like 'holding therapy', or various drug > regimes). In my > > > > > > experience desperate parents are vulnerable to claims of wonder > cures that > > > > > > are likely to exhaust their reserves of energy and hope (not to > mention > > > > > > money) and ultimately leave them disappointed. > > > > > > I'm sorry if you found my review upsetting, but I believe that > the > > > > > > anti-mercury campaign is not based on sound science and is > likely to cause > > > > > > more harm than good. > > > > > > I sincerely hope that your child continues to improve (though I > doubt > > > > > > whether this will have anything to do with mercury). > > > > > > Best wishes > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 --I'm in if you are. It'd be nice if we got a few more to join us before making the formal offer. On what basis do you think Fitzpatrick would refuse to have his child tested--for free? Time? Inconvenience? Not needed based upon his scientific beliefs? The doctor is in a pretty bad position with all three of those. > > > > > > > > > > > > His reply to my email: > > > > > > > > Dear > > > > > > > > I am delighted to hear that your son's condition has improved. I > > wish I > > > > > > > > could say the same about my severely autistic son, whose > > condition has > > > > > > > > continued to deteriorate despite all forms of intervention. One > > of the many > > > > > > > > mysteries of children with autistic spectrum disorders is that > > their level > > > > > > > > of functioning fluctuates over time for reasons that are simply > > not > > > > > > > > understood (and little is understood about autism). If a > > deterioration > > > > > > > > coincides with immunisation or some other event, it is > > understandable that > > > > > > > > parents should make a connection; if their improvement coincides > > with some > > > > > > > > intervention, whether in the form of a school or behavioural > > program, a > > > > > > > > special diet or some form of medication or other treatment, it > > is also not > > > > > > > > surprising that parents attribute the improvement to the > > intervention. > > > > > > > > However, before any such treatments are recommended for > > children, I believe > > > > > > > > that it is important that some basic evaluations are made - to > > try to > > > > > > > > establish whether they really are effective, and also to > > establish whether > > > > > > > > they are safe. Neither has been done with mercury chelation > > treatment so I > > > > > > > > would be very wary of using it or recommending it. You only have > > to look at > > > > > > > > the history of autism treatments to see how they come and go and > > many > > > > > > > > parents have experienced dramatic results with all sorts of > > treatments - > > > > > > > > such as secretin - that have now been discredited (or shown to be > > > > > > > > positively harmful, like 'holding therapy', or various drug > > regimes). In my > > > > > > > > experience desperate parents are vulnerable to claims of wonder > > cures that > > > > > > > > are likely to exhaust their reserves of energy and hope (not to > > mention > > > > > > > > money) and ultimately leave them disappointed. > > > > > > > > I'm sorry if you found my review upsetting, but I believe that > > the > > > > > > > > anti-mercury campaign is not based on sound science and is > > likely to cause > > > > > > > > more harm than good. > > > > > > > > I sincerely hope that your child continues to improve (though I > > doubt > > > > > > > > whether this will have anything to do with mercury). > > > > > > > > Best wishes > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 The excuse will be: I will not subject my child to any unproven treatments. There are no double blinded placebo controlled studies to show chelation or any other treatment is effective. When children improve parents will inevitibly credit whatever intervention they are subjecting their child to at the time for the recovery. Whether it is chelation, ABA, leech therapy or satan worship. I am also not convinced that there is an actual increase in the rate of autism, just better diagnostics. I am also convinced that many famous people throughout history have been autistic, such as Aristotle, Sir Issac Newton, Einstein, Jim on of the Doors, Liza Minelli and Tinky Winky and Po from the teletubbies. I also have a sneaking suspicion that most kids in the early 60's were autistic and recovered. Remember the hand jive. This was classic mass autistic hand flapping. > > > > > > > > > > > > > > > His reply to my email: > > > > > > > > > > Dear > > > > > > > > > > I am delighted to hear that your son's condition has > improved. I > > > wish I > > > > > > > > > > could say the same about my severely autistic son, whose > > > condition has > > > > > > > > > > continued to deteriorate despite all forms of intervention. > One > > > of the many > > > > > > > > > > mysteries of children with autistic spectrum disorders is > that > > > their level > > > > > > > > > > of functioning fluctuates over time for reasons that are > simply > > > not > > > > > > > > > > understood (and little is understood about autism). If a > > > deterioration > > > > > > > > > > coincides with immunisation or some other event, it is > > > understandable that > > > > > > > > > > parents should make a connection; if their improvement > coincides > > > with some > > > > > > > > > > intervention, whether in the form of a school or behavioural > > > program, a > > > > > > > > > > special diet or some form of medication or other treatment, > it > > > is also not > > > > > > > > > > surprising that parents attribute the improvement to the > > > intervention. > > > > > > > > > > However, before any such treatments are recommended for > > > children, I believe > > > > > > > > > > that it is important that some basic evaluations are made - > to > > > try to > > > > > > > > > > establish whether they really are effective, and also to > > > establish whether > > > > > > > > > > they are safe. Neither has been done with mercury chelation > > > treatment so I > > > > > > > > > > would be very wary of using it or recommending it. You only > have > > > to look at > > > > > > > > > > the history of autism treatments to see how they come and go > and > > > many > > > > > > > > > > parents have experienced dramatic results with all sorts of > > > treatments - > > > > > > > > > > such as secretin - that have now been discredited (or shown > to be > > > > > > > > > > positively harmful, like 'holding therapy', or various drug > > > regimes). In my > > > > > > > > > > experience desperate parents are vulnerable to claims of > wonder > > > cures that > > > > > > > > > > are likely to exhaust their reserves of energy and hope (not > to > > > mention > > > > > > > > > > money) and ultimately leave them disappointed. > > > > > > > > > > I'm sorry if you found my review upsetting, but I believe > that > > > the > > > > > > > > > > anti-mercury campaign is not based on sound science and is > > > likely to cause > > > > > > > > > > more harm than good. > > > > > > > > > > I sincerely hope that your child continues to improve > (though I > > > doubt > > > > > > > > > > whether this will have anything to do with mercury). > > > > > > > > > > Best wishes > > > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 I'm good for $25 bucks. http://www.autismmedia.org/ > > > > > > > > > > > > > > > His reply to my email: > > > > > > > > > > Dear > > > > > > > > > > I am delighted to hear that your son's condition has > improved. I > > > wish I > > > > > > > > > > could say the same about my severely autistic son, whose > > > condition has > > > > > > > > > > continued to deteriorate despite all forms of intervention. > One > > > of the many > > > > > > > > > > mysteries of children with autistic spectrum disorders is > that > > > their level > > > > > > > > > > of functioning fluctuates over time for reasons that are > simply > > > not > > > > > > > > > > understood (and little is understood about autism). If a > > > deterioration > > > > > > > > > > coincides with immunisation or some other event, it is > > > understandable that > > > > > > > > > > parents should make a connection; if their improvement > coincides > > > with some > > > > > > > > > > intervention, whether in the form of a school or behavioural > > > program, a > > > > > > > > > > special diet or some form of medication or other treatment, > it > > > is also not > > > > > > > > > > surprising that parents attribute the improvement to the > > > intervention. > > > > > > > > > > However, before any such treatments are recommended for > > > children, I believe > > > > > > > > > > that it is important that some basic evaluations are made - > to > > > try to > > > > > > > > > > establish whether they really are effective, and also to > > > establish whether > > > > > > > > > > they are safe. Neither has been done with mercury chelation > > > treatment so I > > > > > > > > > > would be very wary of using it or recommending it. You only > have > > > to look at > > > > > > > > > > the history of autism treatments to see how they come and go > and > > > many > > > > > > > > > > parents have experienced dramatic results with all sorts of > > > treatments - > > > > > > > > > > such as secretin - that have now been discredited (or shown > to be > > > > > > > > > > positively harmful, like 'holding therapy', or various drug > > > regimes). In my > > > > > > > > > > experience desperate parents are vulnerable to claims of > wonder > > > cures that > > > > > > > > > > are likely to exhaust their reserves of energy and hope (not > to > > > mention > > > > > > > > > > money) and ultimately leave them disappointed. > > > > > > > > > > I'm sorry if you found my review upsetting, but I believe > that > > > the > > > > > > > > > > anti-mercury campaign is not based on sound science and is > > > likely to cause > > > > > > > > > > more harm than good. > > > > > > > > > > I sincerely hope that your child continues to improve > (though I > > > doubt > > > > > > > > > > whether this will have anything to do with mercury). > > > > > > > > > > Best wishes > > > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Count me in. wendy Re: BMJ/ Fitzpatrick -his reply to my email I'm good for $25 bucks.http://www.autismmedia.org/> > > > > > > > > > > > > > > His reply to my email:> > > > > > > > > > Dear > > > > > > > > > > I am delighted to hear that your son's condition has > improved. I > > > wish I> > > > > > > > > > could say the same about my severely autistic son, whose > > > condition has> > > > > > > > > > continued to deteriorate despite all forms of intervention. > One > > > of the many> > > > > > > > > > mysteries of children with autistic spectrum disorders is > that > > > their level> > > > > > > > > > of functioning fluctuates over time for reasons that are > simply > > > not> > > > > > > > > > understood (and little is understood about autism). If a > > > deterioration> > > > > > > > > > coincides with immunisation or some other event, it is > > > understandable that> > > > > > > > > > parents should make a connection; if their improvement > coincides > > > with some> > > > > > > > > > intervention, whether in the form of a school or behavioural > > > program, a> > > > > > > > > > special diet or some form of medication or other treatment, > it > > > is also not> > > > > > > > > > surprising that parents attribute the improvement to the > > > intervention.> > > > > > > > > > However, before any such treatments are recommended for > > > children, I believe> > > > > > > > > > that it is important that some basic evaluations are made - > to > > > try to> > > > > > > > > > establish whether they really are effective, and also to > > > establish whether> > > > > > > > > > they are safe. Neither has been done with mercury chelation > > > treatment so I> > > > > > > > > > would be very wary of using it or recommending it. You only > have > > > to look at> > > > > > > > > > the history of autism treatments to see how they come and go > and > > > many> > > > > > > > > > parents have experienced dramatic results with all sorts of > > > treatments -> > > > > > > > > > such as secretin - that have now been discredited (or shown > to be> > > > > > > > > > positively harmful, like 'holding therapy', or various drug > > > regimes). In my> > > > > > > > > > experience desperate parents are vulnerable to claims of > wonder > > > cures that> > > > > > > > > > are likely to exhaust their reserves of energy and hope (not > to > > > mention> > > > > > > > > > money) and ultimately leave them disappointed.> > > > > > > > > > I'm sorry if you found my review upsetting, but I believe > that > > > the> > > > > > > > > > anti-mercury campaign is not based on sound science and is > > > likely to cause> > > > > > > > > > more harm than good.> > > > > > > > > > I sincerely hope that your child continues to improve > (though I > > > doubt> > > > > > > > > > whether this will have anything to do with mercury).> > > > > > > > > > Best wishes> > > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Count me in. wendy Re: BMJ/ Fitzpatrick -his reply to my email I'm good for $25 bucks.http://www.autismmedia.org/> > > > > > > > > > > > > > > His reply to my email:> > > > > > > > > > Dear > > > > > > > > > > I am delighted to hear that your son's condition has > improved. I > > > wish I> > > > > > > > > > could say the same about my severely autistic son, whose > > > condition has> > > > > > > > > > continued to deteriorate despite all forms of intervention. > One > > > of the many> > > > > > > > > > mysteries of children with autistic spectrum disorders is > that > > > their level> > > > > > > > > > of functioning fluctuates over time for reasons that are > simply > > > not> > > > > > > > > > understood (and little is understood about autism). If a > > > deterioration> > > > > > > > > > coincides with immunisation or some other event, it is > > > understandable that> > > > > > > > > > parents should make a connection; if their improvement > coincides > > > with some> > > > > > > > > > intervention, whether in the form of a school or behavioural > > > program, a> > > > > > > > > > special diet or some form of medication or other treatment, > it > > > is also not> > > > > > > > > > surprising that parents attribute the improvement to the > > > intervention.> > > > > > > > > > However, before any such treatments are recommended for > > > children, I believe> > > > > > > > > > that it is important that some basic evaluations are made - > to > > > try to> > > > > > > > > > establish whether they really are effective, and also to > > > establish whether> > > > > > > > > > they are safe. Neither has been done with mercury chelation > > > treatment so I> > > > > > > > > > would be very wary of using it or recommending it. You only > have > > > to look at> > > > > > > > > > the history of autism treatments to see how they come and go > and > > > many> > > > > > > > > > parents have experienced dramatic results with all sorts of > > > treatments -> > > > > > > > > > such as secretin - that have now been discredited (or shown > to be> > > > > > > > > > positively harmful, like 'holding therapy', or various drug > > > regimes). In my> > > > > > > > > > experience desperate parents are vulnerable to claims of > wonder > > > cures that> > > > > > > > > > are likely to exhaust their reserves of energy and hope (not > to > > > mention> > > > > > > > > > money) and ultimately leave them disappointed.> > > > > > > > > > I'm sorry if you found my review upsetting, but I believe > that > > > the> > > > > > > > > > anti-mercury campaign is not based on sound science and is > > > likely to cause> > > > > > > > > > more harm than good.> > > > > > > > > > I sincerely hope that your child continues to improve > (though I > > > doubt> > > > > > > > > > whether this will have anything to do with mercury).> > > > > > > > > > Best wishes> > > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 OK. Well, we're up to $50. We paid $325 for my son's testing. Shall we use that as a goal or up it to $400 to cover overseas mailing costs? Even $400 in pledges is eminently doable. What shall we call this campaign. Seriously. The Fitzpatrick Fund (?) Save Fitzpatrick's Son (sure to alienate) British Heavy Metal: A Fund to encourage a skeptical Brit MD to have his autistic son tested (too long) I can set up a PayPal account, or do you want to do it at your web site? > > > > > > > > > > > > > > > > > > His reply to my email: > > > > > > > > > > > > Dear > > > > > > > > > > > > I am delighted to hear that your son's condition has > > improved. I > > > > wish I > > > > > > > > > > > > could say the same about my severely autistic son, whose > > > > condition has > > > > > > > > > > > > continued to deteriorate despite all forms of intervention. > > One > > > > of the many > > > > > > > > > > > > mysteries of children with autistic spectrum disorders is > > that > > > > their level > > > > > > > > > > > > of functioning fluctuates over time for reasons that are > > simply > > > > not > > > > > > > > > > > > understood (and little is understood about autism). If a > > > > deterioration > > > > > > > > > > > > coincides with immunisation or some other event, it is > > > > understandable that > > > > > > > > > > > > parents should make a connection; if their improvement > > coincides > > > > with some > > > > > > > > > > > > intervention, whether in the form of a school or behavioural > > > > program, a > > > > > > > > > > > > special diet or some form of medication or other treatment, > > it > > > > is also not > > > > > > > > > > > > surprising that parents attribute the improvement to the > > > > intervention. > > > > > > > > > > > > However, before any such treatments are recommended for > > > > children, I believe > > > > > > > > > > > > that it is important that some basic evaluations are made - > > to > > > > try to > > > > > > > > > > > > establish whether they really are effective, and also to > > > > establish whether > > > > > > > > > > > > they are safe. Neither has been done with mercury chelation > > > > treatment so I > > > > > > > > > > > > would be very wary of using it or recommending it. You only > > have > > > > to look at > > > > > > > > > > > > the history of autism treatments to see how they come and go > > and > > > > many > > > > > > > > > > > > parents have experienced dramatic results with all sorts of > > > > treatments - > > > > > > > > > > > > such as secretin - that have now been discredited (or shown > > to be > > > > > > > > > > > > positively harmful, like 'holding therapy', or various drug > > > > regimes). In my > > > > > > > > > > > > experience desperate parents are vulnerable to claims of > > wonder > > > > cures that > > > > > > > > > > > > are likely to exhaust their reserves of energy and hope (not > > to > > > > mention > > > > > > > > > > > > money) and ultimately leave them disappointed. > > > > > > > > > > > > I'm sorry if you found my review upsetting, but I believe > > that > > > > the > > > > > > > > > > > > anti-mercury campaign is not based on sound science and is > > > > likely to cause > > > > > > > > > > > > more harm than good. > > > > > > > > > > > > I sincerely hope that your child continues to improve > > (though I > > > > doubt > > > > > > > > > > > > whether this will have anything to do with mercury). > > > > > > > > > > > > Best wishes > > > > > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 --Good idea.....and/or seats at Autism One and appointment with Dr. Usman right after!! I feel sorry for his son that his father cannot take off his md/political " hat " and help his son. Again, he sees the world as flat and we are all nuts seeing it round..... - In EOHarm , " " <david@p...> wrote: > What if we offer to pay for Fitzpatrick's son's metal tests and a > month's supply of DMSA if his son turns out to be a " tin man " ? > > > > > > > > > > > > > His reply to my email: > > > > > > Dear > > > > > > I am delighted to hear that your son's condition has improved. I > wish I > > > > > > could say the same about my severely autistic son, whose > condition has > > > > > > continued to deteriorate despite all forms of intervention. One > of the many > > > > > > mysteries of children with autistic spectrum disorders is that > their level > > > > > > of functioning fluctuates over time for reasons that are simply > not > > > > > > understood (and little is understood about autism). If a > deterioration > > > > > > coincides with immunisation or some other event, it is > understandable that > > > > > > parents should make a connection; if their improvement coincides > with some > > > > > > intervention, whether in the form of a school or behavioural > program, a > > > > > > special diet or some form of medication or other treatment, it > is also not > > > > > > surprising that parents attribute the improvement to the > intervention. > > > > > > However, before any such treatments are recommended for > children, I believe > > > > > > that it is important that some basic evaluations are made - to > try to > > > > > > establish whether they really are effective, and also to > establish whether > > > > > > they are safe. Neither has been done with mercury chelation > treatment so I > > > > > > would be very wary of using it or recommending it. You only have > to look at > > > > > > the history of autism treatments to see how they come and go and > many > > > > > > parents have experienced dramatic results with all sorts of > treatments - > > > > > > such as secretin - that have now been discredited (or shown to be > > > > > > positively harmful, like 'holding therapy', or various drug > regimes). In my > > > > > > experience desperate parents are vulnerable to claims of wonder > cures that > > > > > > are likely to exhaust their reserves of energy and hope (not to > mention > > > > > > money) and ultimately leave them disappointed. > > > > > > I'm sorry if you found my review upsetting, but I believe that > the > > > > > > anti-mercury campaign is not based on sound science and is > likely to cause > > > > > > more harm than good. > > > > > > I sincerely hope that your child continues to improve (though I > doubt > > > > > > whether this will have anything to do with mercury). > > > > > > Best wishes > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 : I am considering having my youngest son tested for heavy metal toxicity (perhaps even myself) but am not sure how to best proceed with this. I would greatly appreciate it, if you could outline what testing was done with your son. Thanking you in advance, Aasa (penas7ar@... ). <david@...> wrote: OK. Well, we're up to $50. We paid $325 for my son's testing. Shall we use that as a goal or up it to $400 to cover overseas mailing costs? Even $400 in pledges is eminently doable. What shall we call this campaign. Seriously.The Fitzpatrick Fund (?)Save Fitzpatrick's Son (sure to alienate)British Heavy Metal: A Fund to encourage a skeptical Brit MD to have his autistic son tested (too long)I can set up a PayPal account, or do you want to do it at your web site?> > > > > > > > > > > > > > > > > > His reply to my email:> > > > > > > > > > > > Dear > > > > > > > > > > > > I am delighted to hear that your son's condition has > > improved. I > > > > wish I> > > > > > > > > > > > could say the same about my severely autistic son, whose > > > > condition has> > > > > > > > > > > > continued to deteriorate despite all forms of intervention. > > One > > > > of the many> > > > > > > > > > > > mysteries of children with autistic spectrum disorders is > > that > > > > their level> > > > > > > > > > > > of functioning fluctuates over time for reasons that are > > simply > > > > not> > > > > > > > > > > > understood (and little is understood about autism). If a > > > > deterioration> > > > > > > > > > > > coincides with immunisation or some other event, it is > > > > understandable that> > > > > > > > > > > > parents should make a connection; if their improvement > > coincides > > > > with some> > > > > > > > > > > > intervention, whether in the form of a school or behavioural > > > > program, a> > > > > > > > > > > > special diet or some form of medication or other treatment, > > it > > > > is also not> > > > > > > > > > > > surprising that parents attribute the improvement to the > > > > intervention.> > > > > > > > > > > > However, before any such treatments are recommended for > > > > children, I believe> > > > > > > > > > > > that it is important that some basic evaluations are made - > > to > > > > try to> > > > > > > > > > > > establish whether they really are effective, and also to > > > > establish whether> > > > > > > > > > > > they are safe. Neither has been done with mercury chelation > > > > treatment so I> > > > > > > > > > > > would be very wary of using it or recommending it. You only > > have > > > > to look at> > > > > > > > > > > > the history of autism treatments to see how they come and go > > and > > > > many> > > > > > > > > > > > parents have experienced dramatic results with all sorts of > > > > treatments -> > > > > > > > > > > > such as secretin - that have now been discredited (or shown > > to be> > > > > > > > > > > > positively harmful, like 'holding therapy', or various drug > > > > regimes). In my> > > > > > > > > > > > experience desperate parents are vulnerable to claims of > > wonder > > > > cures that> > > > > > > > > > > > are likely to exhaust their reserves of energy and hope (not > > to > > > > mention> > > > > > > > > > > > money) and ultimately leave them disappointed.> > > > > > > > > > > > I'm sorry if you found my review upsetting, but I believe > > that > > > > the> > > > > > > > > > > > anti-mercury campaign is not based on sound science and is > > > > likely to cause> > > > > > > > > > > > more harm than good.> > > > > > > > > > > > I sincerely hope that your child continues to improve > > (though I > > > > doubt> > > > > > > > > > > > whether this will have anything to do with mercury).> > > > > > > > > > > > Best wishes> > > > > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 We're willing to do it through FAIR's website. Anyone serious about contributing to this " fund " can make the donations through our paypal account, and attach a note for what the money is intended. Before we do this, let's decide what tests to buy, and where to get them! Let's come up with a firm goal, so we know what dollar amount to hit. Does this sound like a good idea? :-) http://www.autismmedia.org/ > > > > > > > > > > > > > > > > > > > > > His reply to my email: > > > > > > > > > > > > > > Dear > > > > > > > > > > > > > > I am delighted to hear that your son's condition has > > > improved. I > > > > > wish I > > > > > > > > > > > > > > could say the same about my severely autistic son, whose > > > > > condition has > > > > > > > > > > > > > > continued to deteriorate despite all forms of > intervention. > > > One > > > > > of the many > > > > > > > > > > > > > > mysteries of children with autistic spectrum disorders > is > > > that > > > > > their level > > > > > > > > > > > > > > of functioning fluctuates over time for reasons that are > > > simply > > > > > not > > > > > > > > > > > > > > understood (and little is understood about autism). If a > > > > > deterioration > > > > > > > > > > > > > > coincides with immunisation or some other event, it is > > > > > understandable that > > > > > > > > > > > > > > parents should make a connection; if their improvement > > > coincides > > > > > with some > > > > > > > > > > > > > > intervention, whether in the form of a school or > behavioural > > > > > program, a > > > > > > > > > > > > > > special diet or some form of medication or other > treatment, > > > it > > > > > is also not > > > > > > > > > > > > > > surprising that parents attribute the improvement to the > > > > > intervention. > > > > > > > > > > > > > > However, before any such treatments are recommended for > > > > > children, I believe > > > > > > > > > > > > > > that it is important that some basic evaluations are > made - > > > to > > > > > try to > > > > > > > > > > > > > > establish whether they really are effective, and also to > > > > > establish whether > > > > > > > > > > > > > > they are safe. Neither has been done with mercury > chelation > > > > > treatment so I > > > > > > > > > > > > > > would be very wary of using it or recommending it. You > only > > > have > > > > > to look at > > > > > > > > > > > > > > the history of autism treatments to see how they come > and go > > > and > > > > > many > > > > > > > > > > > > > > parents have experienced dramatic results with all sorts > of > > > > > treatments - > > > > > > > > > > > > > > such as secretin - that have now been discredited (or > shown > > > to be > > > > > > > > > > > > > > positively harmful, like 'holding therapy', or various > drug > > > > > regimes). In my > > > > > > > > > > > > > > experience desperate parents are vulnerable to claims of > > > wonder > > > > > cures that > > > > > > > > > > > > > > are likely to exhaust their reserves of energy and hope > (not > > > to > > > > > mention > > > > > > > > > > > > > > money) and ultimately leave them disappointed. > > > > > > > > > > > > > > I'm sorry if you found my review upsetting, but I > believe > > > that > > > > > the > > > > > > > > > > > > > > anti-mercury campaign is not based on sound science and > is > > > > > likely to cause > > > > > > > > > > > > > > more harm than good. > > > > > > > > > > > > > > I sincerely hope that your child continues to improve > > > (though I > > > > > doubt > > > > > > > > > > > > > > whether this will have anything to do with mercury). > > > > > > > > > > > > > > Best wishes > > > > > > > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Dr. Usman is nice enough that she'd probably agree to meet with him as an opportunity to convert someone from the " dark side... " She is one of the nicest doctors and warmest human beings I've met. She really cares about these kids, including mine. http://www.autismmedia.org/ > > > > > > > > > > > > His reply to my email: > > > > > > > > Dear > > > > > > > > I am delighted to hear that your son's condition has improved. > I > > wish I > > > > > > > > could say the same about my severely autistic son, whose > > condition has > > > > > > > > continued to deteriorate despite all forms of intervention. > One > > of the many > > > > > > > > mysteries of children with autistic spectrum disorders is that > > their level > > > > > > > > of functioning fluctuates over time for reasons that are > simply > > not > > > > > > > > understood (and little is understood about autism). If a > > deterioration > > > > > > > > coincides with immunisation or some other event, it is > > understandable that > > > > > > > > parents should make a connection; if their improvement > coincides > > with some > > > > > > > > intervention, whether in the form of a school or behavioural > > program, a > > > > > > > > special diet or some form of medication or other treatment, it > > is also not > > > > > > > > surprising that parents attribute the improvement to the > > intervention. > > > > > > > > However, before any such treatments are recommended for > > children, I believe > > > > > > > > that it is important that some basic evaluations are made - to > > try to > > > > > > > > establish whether they really are effective, and also to > > establish whether > > > > > > > > they are safe. Neither has been done with mercury chelation > > treatment so I > > > > > > > > would be very wary of using it or recommending it. You only > have > > to look at > > > > > > > > the history of autism treatments to see how they come and go > and > > many > > > > > > > > parents have experienced dramatic results with all sorts of > > treatments - > > > > > > > > such as secretin - that have now been discredited (or shown to > be > > > > > > > > positively harmful, like 'holding therapy', or various drug > > regimes). In my > > > > > > > > experience desperate parents are vulnerable to claims of > wonder > > cures that > > > > > > > > are likely to exhaust their reserves of energy and hope (not > to > > mention > > > > > > > > money) and ultimately leave them disappointed. > > > > > > > > I'm sorry if you found my review upsetting, but I believe that > > the > > > > > > > > anti-mercury campaign is not based on sound science and is > > likely to cause > > > > > > > > more harm than good. > > > > > > > > I sincerely hope that your child continues to improve (though > I > > doubt > > > > > > > > whether this will have anything to do with mercury). > > > > > > > > Best wishes > > > > > > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Tony, any DAN! doctor that you visit can set you up. There are hair, fecal and blood tests. However blood tests are only effective for very RECENT exposures. Blood tests will be used to see what minerals/vitamins your child is deficient in. The hair tests are about $75.00 each. I don't know what the other tests cost. With our TD- DMPS therapy, we're testing Miranda's levels every two months. @ FAIR http://www.autismmedia.org/ > > > > > > > > > > > > > > > > > > > > > His reply to my email: > > > > > > > > > > > > > > Dear > > > > > > > > > > > > > > I am delighted to hear that your son's condition has > > > improved. I > > > > > wish I > > > > > > > > > > > > > > could say the same about my severely autistic son, whose > > > > > condition has > > > > > > > > > > > > > > continued to deteriorate despite all forms of > intervention. > > > One > > > > > of the many > > > > > > > > > > > > > > mysteries of children with autistic spectrum disorders > is > > > that > > > > > their level > > > > > > > > > > > > > > of functioning fluctuates over time for reasons that are > > > simply > > > > > not > > > > > > > > > > > > > > understood (and little is understood about autism). If a > > > > > deterioration > > > > > > > > > > > > > > coincides with immunisation or some other event, it is > > > > > understandable that > > > > > > > > > > > > > > parents should make a connection; if their improvement > > > coincides > > > > > with some > > > > > > > > > > > > > > intervention, whether in the form of a school or > behavioural > > > > > program, a > > > > > > > > > > > > > > special diet or some form of medication or other > treatment, > > > it > > > > > is also not > > > > > > > > > > > > > > surprising that parents attribute the improvement to the > > > > > intervention. > > > > > > > > > > > > > > However, before any such treatments are recommended for > > > > > children, I believe > > > > > > > > > > > > > > that it is important that some basic evaluations are > made - > > > to > > > > > try to > > > > > > > > > > > > > > establish whether they really are effective, and also to > > > > > establish whether > > > > > > > > > > > > > > they are safe. Neither has been done with mercury > chelation > > > > > treatment so I > > > > > > > > > > > > > > would be very wary of using it or recommending it. You > only > > > have > > > > > to look at > > > > > > > > > > > > > > the history of autism treatments to see how they come > and go > > > and > > > > > many > > > > > > > > > > > > > > parents have experienced dramatic results with all sorts > of > > > > > treatments - > > > > > > > > > > > > > > such as secretin - that have now been discredited (or > shown > > > to be > > > > > > > > > > > > > > positively harmful, like 'holding therapy', or various > drug > > > > > regimes). In my > > > > > > > > > > > > > > experience desperate parents are vulnerable to claims of > > > wonder > > > > > cures that > > > > > > > > > > > > > > are likely to exhaust their reserves of energy and hope > (not > > > to > > > > > mention > > > > > > > > > > > > > > money) and ultimately leave them disappointed. > > > > > > > > > > > > > > I'm sorry if you found my review upsetting, but I > believe > > > that > > > > > the > > > > > > > > > > > > > > anti-mercury campaign is not based on sound science and > is > > > > > likely to cause > > > > > > > > > > > > > > more harm than good. > > > > > > > > > > > > > > I sincerely hope that your child continues to improve > > > (though I > > > > > doubt > > > > > > > > > > > > > > whether this will have anything to do with mercury). > > > > > > > > > > > > > > Best wishes > > > > > > > > > > > > > > Mike > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I will gladly chip in $25 if that is what everyone decides BUT I do not think money is the issue. I think we should chip in and send a care package with some worthwhile literature, TD DMPS, Buttar DVD, articles etc. and send it to him or his wife ( maybe she's not an arrogant AH ). --- <david@...> wrote: > OK. Well, we're up to $50. We paid $325 for my son's > testing. Shall > we use that as a goal or up it to $400 to cover > overseas mailing > costs? Even $400 in pledges is eminently doable. > > What shall we call this campaign. Seriously. > > The Fitzpatrick Fund (?) > Save Fitzpatrick's Son (sure to alienate) > British Heavy Metal: A Fund to encourage a skeptical > Brit MD to have > his autistic son tested (too long) > > I can set up a PayPal account, or do you want to do > it at your web > site? > > > > > > > > > > > > > > > > > > > > > > > > His reply to my email: > > > > > > > > > > > > > > Dear > > > > > > > > > > > > > > I am delighted to hear that your son's > condition has > > > improved. I > > > > > wish I > > > > > > > > > > > > > > could say the same about my severely > autistic son, whose > > > > > condition has > > > > > > > > > > > > > > continued to deteriorate despite all > forms of > intervention. > > > One > > > > > of the many > > > > > > > > > > > > > > mysteries of children with autistic > spectrum disorders > is > > > that > > > > > their level > > > > > > > > > > > > > > of functioning fluctuates over time for > reasons that are > > > simply > > > > > not > > > > > > > > > > > > > > understood (and little is understood > about autism). If a > > > > > deterioration > > > > > > > > > > > > > > coincides with immunisation or some > other event, it is > > > > > understandable that > > > > > > > > > > > > > > parents should make a connection; if > their improvement > > > coincides > > > > > with some > > > > > > > > > > > > > > intervention, whether in the form of a > school or > behavioural > > > > > program, a > > > > > > > > > > > > > > special diet or some form of medication > or other > treatment, > > > it > > > > > is also not > > > > > > > > > > > > > > surprising that parents attribute the > improvement to the > > > > > intervention. > > > > > > > > > > > > > > However, before any such treatments are > recommended for > > > > > children, I believe > > > > > > > > > > > > > > that it is important that some basic > evaluations are > made - > > > to > > > > > try to > > > > > > > > > > > > > > establish whether they really are > effective, and also to > > > > > establish whether > > > > > > > > > > > > > > they are safe. Neither has been done > with mercury > chelation > > > > > treatment so I > > > > > > > > > > > > > > would be very wary of using it or > recommending it. You > only > > > have > > > > > to look at > > > > > > > > > > > > > > the history of autism treatments to see > how they come > and go > > > and > > > > > many > > > > > > > > > > > > > > parents have experienced dramatic > results with all sorts > of > > > > > treatments - > > > > > > > > > > > > > > such as secretin - that have now been > discredited (or > shown > > > to be > > > > > > > > > > > > > > positively harmful, like 'holding > therapy', or various > drug > > > > > regimes). In my > > > > > > > > > > > > > > experience desperate parents are > vulnerable to claims of > > > wonder > > > > > cures that > > > > > > > > > > > > > > are likely to exhaust their reserves of > energy and hope > (not > > > to > > > > > mention > > > > > > > > > > > > > > money) and ultimately leave them > disappointed. > > > > > > > > > > > > > > I'm sorry if you found my review > upsetting, but I > believe > > > that > > > > > the > > > > > > > > > > > > > > anti-mercury campaign is not based on > sound science and > is > > > > > likely to cause > > > > > > > > > > > > > > more harm than good. > > > > > > > > > > > > > > I sincerely hope that your child > continues to improve > > > (though I > > > > > doubt > > > > > > > > > > > > > > whether this will have anything to do > with mercury). > > > > > > > > > > > > > > Best wishes > > > > > > > > > > > > > > Mike > > > __________________________________ Mobile Take with you! Check email on your mobile phone. http://mobile./learn/mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I think a care-package is a fine idea! Perhaps Ed Arranga could throw in some AutismOne tickets?? Let's get him into a conference! :-) http://www.autismmedia.org/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I DDI hair test is all you really need. Remember that all these tests don;t prove diddly squat, chelation does. Best I have seen for convincing peeps is DDI hair test and applying Andy Cutler's Counting Rules - totally safe, non invasive and only $69 http://home.earthlink.net/~moriam/HOW_TO_hair_test.html Mandi in UK OK. Well, we're up to $50. We paid $325 for my son's testing. Shall we use that as a goal or up it to $400 to cover overseas mailing costs? Even $400 in pledges is eminently doable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Hi "Davey's Dad" , We've been experiencing some wonderful progress around here, too, similar to what you describe below for your son - Holy CRAP, what a coincidence!!! My son was completely non-verbal, still at the age of 6; then we began chelating, and for crying-out-loud if he didn't begin to speak within the first month of the start of chelation!!!!!!!!! My husband and I looked at each other back then and readily proclaimed in unison, "WHAT A FRIGGIN' COINCIDENCE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!" We are just approaching 3 YEARS of chelation at the end of May (my son just celebrated his 9th birthday) and not only has his language continued to develop over these past 3 years, but so have all the other core areas of deficits he was experiencing prior to chelation (socialization, behaviors, cognitive skills, issues with rigidity, etc., etc., etc.) What a coincidence!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Best Regards, progress from three-word fragments to three-sentence paragraphs with full use of pronouns (the most difficult part of a language) happened within a week. The math doesn't lie.Since then, my wife and I have making this same "coincidence" happen on a regular basis.Guess we're just lucky.Davey's Dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 -- I am so happy for you, Tim and especially for your son. Let these frightened, embarrassed doctors and bureaucrats want dismiss us, our children and the treatments that work. Our love and our hope will never diminish. I wonder if our opponents' primary error is failing to realize that moms and dads, grandmas and grandads will do ANYTHING to protect and help their children. Officialdom is used to in-house politics, spreadsheets, and PR. They seem to have no idea, no clue, how real and powerful we are. , your story also uplifts Kristi, my wife, and me. Our Davey just turned six and has just started chelation. BTW, when I was helping Davey to get ready to go for swimming lessons this morning, we were headed out the door when he turned and said: " I need my scandals. " Shall we analyze that utterance for a moment? 1. It is a unique utterance indicating the creative use of language. Davey was not echoing. He was choosing words from among his active expressive vocabulary, then placing those words in their appropriate slots in a sentence, to express his needs/feelings at a given point in time. 2. This single, complete utterance is proof that the entire system of English phonetics and syntax/grammar is complete within him. He " has " acquired human language. The rest is development. 3. He could not form complete English utterances until AFTER chelation. As Dr. Fitizpatrick would say, " What a coincidence. " Davey's Dad > Hi " Davey's Dad " , > > We've been experiencing some wonderful progress around here, too, similar to what you describe below for your son - Holy CRAP, what a coincidence!!! > > My son was completely non-verbal, still at the age of 6; then we began chelating, and for crying-out-loud if he didn't begin to speak within the first month of the start of chelation!!!!!!!!! My husband and I looked at each other back then and readily proclaimed in unison, " WHAT A FRIGGIN' COINCIDENCE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! " > > We are just approaching 3 YEARS of chelation at the end of May (my son just celebrated his 9th birthday) and not only has his language continued to develop over these past 3 years, but so have all the other core areas of deficits he was experiencing prior to chelation (socialization, behaviors, cognitive skills, issues with rigidity, etc., etc., etc.) What a coincidence!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > Best Regards, > > > > progress from three-word fragments to three-sentence paragraphs with > full use of pronouns (the most difficult part of a language) > happened within a week. The math doesn't lie. > > Since then, my wife and I have making this same " coincidence " happen > on a regular basis. > > Guess we're just lucky. > > Davey's Dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 for some it is just easier to drug their kids, stay in denial, while accepting pity (and consulting fees) from the pharmcos. Too bad the road this misguided doctor is on will never have any of those moments of "sheer ecstasy" when your child speaks a novel sentence. I had to laugh.. Josh "fired" his speech therapist yesterday. She is doing his annual testing and wouldn't pull out her usual cache of toys. He pointed at her and said "You're fired!". Hopefully we won't need her services too much longer but I'll try and be bit more polite about it. Way to go Davey, keep fighting! K <david@...> wrote: --I am so happy for you, Tim and especially for your son. Let these frightened, embarrassed doctors and bureaucrats want dismiss us, our children and the treatments that work. Our love and our hope will never diminish. I wonder if our opponents' primary error is failing to realize that moms and dads, grandmas and grandads will do ANYTHING to protect and help their children. Officialdom is used to in-house politics, spreadsheets, and PR. They seem to have no idea, no clue, how real and powerful we are., your story also uplifts Kristi, my wife, and me. Our Davey just turned six and has just started chelation. BTW, when I was helping Davey to get ready to go for swimming lessons this morning, we were headed out the door when he turned and said:"I need my scandals."Shall we analyze that utterance for a moment?1. It is a unique utterance indicating the creative use of language. Davey was not echoing. He was choosing words from among his active expressive vocabulary, then placing those words in their appropriate slots in a sentence, to express his needs/feelings at a given point in time. 2. This single, complete utterance is proof that the entire system of English phonetics and syntax/grammar is complete within him. He "has" acquired human language. The rest is development.3. He could not form complete English utterances until AFTER chelation.As Dr. Fitizpatrick would say, "What a coincidence."Davey's Dad> Hi "Davey's Dad" ,> > We've been experiencing some wonderful progress around here, too, similar to what you describe below for your son - Holy CRAP, what a coincidence!!!> > My son was completely non-verbal, still at the age of 6; then we began chelating, and for crying-out-loud if he didn't begin to speak within the first month of the start of chelation!!!!!!!!! My husband and I looked at each other back then and readily proclaimed in unison, "WHAT A FRIGGIN' COINCIDENCE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!"> > We are just approaching 3 YEARS of chelation at the end of May (my son just celebrated his 9th birthday) and not only has his language continued to develop over these past 3 years, but so have all the other core areas of deficits he was experiencing prior to chelation (socialization, behaviors, cognitive skills, issues with rigidity, etc., etc., etc.) What a coincidence!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!> > Best Regards,> > > > progress from three-word fragments to three-sentence paragraphs with > full use of pronouns (the most difficult part of a language) > happened within a week. The math doesn't lie.> > Since then, my wife and I have making this same "coincidence" happen > on a regular basis.> > Guess we're just lucky.> > Davey's Dad__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 poster: would you allow a doctor to inject your child with lead? then why mercury? > You made some truly excellent points about lead poisoning vs. > mercury poisoning. Do you think that one of our goals is to have to > instill the same level of medical acceptable for mercury poisoning > as lead now has? > > When the dangers of household lead first started coming out, did the > paint industry resort to the same tactics as Big Pharma? What was > our government's reaction--denial? > > I think I'll try to find the answers. > > Davey's Dad > Read only the mail you want - SpamGuard. Quote Link to comment Share on other sites More sharing options...
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