Re: Chelation therapy - where is the evidence?

April 29, 2005

Dear Noah:

I will be happy to answer your question and would appreciate it if you would answer one that I have. You seem to imply that chelation therapy is risky because there have been no studies done on it and why would a parent risk their child to this? Let me just say that I consider myself to be quite a risk averse person in general...I brush and floss, always drive the speed limit, never smoked or tried drugs and was born in "that" generation...you get it. I thought that I had taken steps to ensure that my child be born healthy. I had a Stanford OB and pediatrician, I did not drink a drop during my pregnancy, ate organic whole foods, took my folate, ect. I wanted as drug free a labor as possible, so I delivered my son au natural...no epidural. My son was 9lbs, 8oz 9/9 apgar. I had researched circumcising him for months before we decided it was medically unnecessary and opted out of that. In short, I am a strong believer in nature creating a perfect human being and limiting intervention. I breast fed and made all of his baby food.

My son was fully vaccinated until 17 months, starting at birth with HEP B. Every shot that could have had thimerasol had it. He had "colic" for 7 months. He walked at 10, spoke at 12, and met all of his milestones early. He was the kid at the park who could hang on the monkey bars at 14 mos. After the big 9 at almost 15 mos, he started to go downhill. Three pediatricians later, with the last one laughing me out of his office and telling my husband that I was "stressed and needed a night out" after I telling him that I suspected my son was autistic, I made an appointment with a pediatric neurologist. At this time, my son had 5 out of 6 of the early warning signs of autism which I pulled off the Internet. He was diagnosed a few months later at 28 mos.

We had already been to a DAN conference the month before and had him on GFCF. He was already starting to improve. Fortunately, I read Andy Culter's book and started him on glucosamine sulfate right away. Three months later, Amy Holmes' office confirmed that his blood levels of sulfur were nonexistent. I read everything about mercury and detoxifying that I could get my hands on... up most nights until 3 or 4. Dr. Cave (Dr. Holmes was no longer practicing) recommended DMSA, but I was not comfortable with a drug chelator yet and so continued researching. Pfeiffer came next, since they were using MT promoter and we knew my son's copper levels were very high, but they were compounding with stuff I would not give my son before he became sick. By this time we had spent about $30,000 between all the testing the neurologist wanted and her $350 per hour rate and the trips to Dr. Holmes and Pfeiffer, but still did not feel comfortable with a treatment plan other than some supps from DAN and Andy Cutler's book. But my son was slowly starting to improve on minerals and sulfur and a very strict organic, whole foods diet. Six months into it he said his first new word. He had stopped adding words at around 15 months and he was now 31 months old. All of my research led me to realize that mercury interrupts fatty acid metabolism and so I found Pat Kane. We went to a local naturopath who was using her protocol and decided to go ahead with the testing. Like all the other tests, this one showed abnormalities. He had acidosis, high nitrogen, low oxygen, dumping calcium into his blood, unbalanced fatty acids, rising bun/creatine, low red, high white, ect. We started to correct these with carbonates, butyrate and fatty acids. He started to take off. He woke up...gone were the glazed over eyes, the stimming, the "deafness," the meltdowns, the hypotonia, the night sweats, the color came back into his face, he was happy. This was slow and steady and took about a year. He lost his diagnosis, but he was not all better yet. But for the first time, I felt that we were definitely on the right track and those who knew him could not believe he was the same kid.

Pat Kane is a big believer in opening pathways before detoxing and chlorella was the last supplement to be added to my son's protocol, but I stalled.....how could I be sure that what we pulled he could get out and not get redistributed? I researched some more and consulted with another naturopath whom had been a dentist and gotten mercury poisoning and now worked with chelating exclusively for the past 15 years. He suggested NDF+ for detoxing kids and after researching it, we decided to go ahead. He has been on this for 7 months and although he has had a bit of behavioral regression, this is what made him very NT and is allowing him to go to kindergarten this fall probably slightly ahead of his peers, especially the boys. Although we did not use a chemical to chelate, I am a strong believer in chelating after you open up pathways. If the protocol we chose had not worked, we would have tried something stronger. I would not have waited for the medical profession to catch up and do double blind studies. It is totally irresponsible of them to have not conducted studies on toxicity in kids by now, knowing what we know about all that these kids are exposed to and what it does to them. Look how long it took for them to wake up to lead and they still don't understand if they remove it the child will improve.

Okay, I've answered your question about my experience with chelators and so here is mine

How can you expect me to put my faith in the "safety" of mainstream medicine when the following occurred while under your care?

1. My son was born in April of 2000, AFTER the American Board of Pediatrics recommended using thimerasol free vaccines and sliding HEP B to 6 months but still he was vaccinated at birth, 2, 4 and 6 months without my being told of the choices.

2. My son was vaccinated with DTAP when his chart clearly states that he had a severe milk allergy which also runs on both sides of the family. The insert clearly states that allergies are a contraindication to this vaccine and three different pediatricians gave it to him.

3. His pediatrician ignored his gastrointestinal distress (colic) and told me he would grow out of it and not to be concerned. He cried continuously for 7 months. We switched pediatricians at 5 months.

4. This same pediatrician (Stanford grad) told us when we balked at giving a vaccine because my son was sick, "If I did not vaccinate kids who had sniffles and fevers, none would end up vaccinated."

5. All three gave my son mega doses of Tylenol before injecting them. We now know that Tylenol wipes out sulfur/glutathione which is the only defense these kids have against the metals and chemicals in the shot.

6. He was given several vaccines at birth and 2 months before the liver makes bile which helps them to clear toxins. My son also had a case of jaundice that was again downplayed and dismissed as nothing to concern ourselves with. We now know otherwise.

7. Last, but not least, our concerns regarding our son's declining health were ignored and at times actually made fun of. How can any doctor ignore such obvious signs as these

complete behavior change (told he was going through terrible twos a bit early at 15 months)

loose, smelly, orange stools (it's toddler diarrhea)

went from 100% on growth charts (9lbs. 8oz 23in. birth) to 5%, did not grow at all for a year

stopped adding words (he's a boy and we don't worry about them until they are four)

developed a strabismus at 22 months (we'll just watch that)

left leg started to turn in and the boy who could hang on the monkey bars at 14 months could no longer do it at 22 months

started to fall and trip and had tremors

I am sorry Noah, but I pray everyday that me son is not in an accident and has to be taken to the hospital. I swear if he needed stitches, I would take him to a vet. At least they removed the thimerasol from animal vaccines in the 90's.

Most sincerely,

Lynn

April 29, 2005

Noah

all I can tell you is my son dose test positive for high mercury even his nuro would agree high enough to do damage but he also recommended not doing chelation on him because he said he would remove the things his body needs as well as his mercury and could do him harm there how ever part of me wishes I had the nerve to try it on him because so many have told me how its helped there child

Chelation therapy - where is the evidence?

There have been a number of posts about chelation therapy recently. I amwondering what people's experiences have been with this.What I have heard and found:1) There is not a single controlled study out there.2) Amy Holmes' "preliminary data" is vague, uncontrolled, and lackingdata on toxicity/complications.3) I have heard personal reports of renal failure secondary to chelationtherapy, among other complications.I am always curious as to why the results of experimental therapies likethis are never written up. In the herbal supplement markets, the risk ofhaving a study show that your product does nothing far exceeds thepotential advantage of proving that it does, from a sales standpoint.Chelation therapy may be effective, but it may not be, and it may makechildren sicker. I would only contend that, right now, none of us knowfor sure.I completely understand that parents of autistic children, as many ofyou on this list are, are adamant about securing the best care for yourchildren as quickly as possible. The potential benefit for your childrenmay far exceed the potential danger of chelation therapy. But I reallyam curious as to what guides your decision as to what treatment to seek,and where. I am curious to know who and what sources you trust. All the best,NoahNoah M. RaizmanDoris Duke Clinical Research FellowTrauma Training Center // Dept. of Orthopedic SurgeryColumbia University, College of Physicians and SurgeonsNew York, NY // nmr2002@... // 212.305.4512 >

April 29, 2005

Hi Noah,

I didn't trust our first DAN protocol doctor to chelate. I did the research

and wound up doing the Cutler protocol instead. I still feel the DAN

protocol is a bit risky for children. Meanwhile, my son was biopsied and

found to have Lympho-nodular Hyperplasia of the colon. He is on Asacol and

sometimes has painful colitis flare-ups where we also have to put him on

steroids for a few weeks. Because of the Asacol, my son undergoes regular

blood draws to check on kidney and liver function.

All the chelation has been done with oral DMSA and has been in response to

metal testing showing high lead levels. DMSA, as you probably know, is

considered standard practice of care for lead poisoning.

He has had significant cognitive improvement both times we have done major

rounds of chelation. In addition, the Asacol has controlled his colitis to

the point where he is out of diapers (for 1.5 years now) . I know that

this is a side issue; however, there is a lot of controversy over whether

one should heal the gut before attempting chelation (DAN protocol) or if

the gut will heal naturally because of the chelation (Cutler

protocol). But if chelation is done ineptly, I have no doubt that kids can

get sicker. Nothing is cut and dried here.

BTW, our son was born in 1997 and received all his vaccinations up to the

chicken pox shot. He didn't receive the chicken pox vax because by that

point he had regressed and the doctor was open minded enough to not push it

on him. At 3.5 years of age we went to our first DAN protocol doctor and

our son responded beautifully to a gf/cf diet along with nutritional

supplements, yeast therapy and enzymes. Unfortunately, we couldn't afford

more than three months of services from the DAN doctor and so then went on

our own, doing our own research and using our holistic pedi at the Center

for Health and Healing (assoc. with Beth Isreal). By staying current on

bio-medical research we've done pretty well. Our son still has severe

environmental, seasonal and food allergies, but his mind and behavior is

normal (when he's not having an allergic reaction or colitis attack).

I live in NYC if you wish to contact me off list for further comment.

All the best,

Avril D.

At 10:04 AM 4/29/2005, you wrote:

>There have been a number of posts about chelation therapy recently. I am

>wondering what people's experiences have been with this.

<snip>

April 29, 2005

Thank you Noah for even asking!

Our experiences with Developmental Pediatricians and regular Peds have been

(with one exception) dismissive and borderline contemptuous of any

interventions besides pills (as in Ritalin or Concerta.) Other medical

professionals (dentists, oral surgeons and anesthesiologists) just give us

the 'funny look' and say nothing.

Amber M

Reading PA

> From: Noah Raizman <nmr2002@...>

> Reply-<EOHarm >

> Date: Fri, 29 Apr 2005 10:04:01 -0400

> <EOHarm >

> Subject: Chelation therapy - where is the evidence?

>

> There have been a number of posts about chelation therapy recently. I am

> wondering what people's experiences have been with this.

>

> What I have heard and found:

> 1) There is not a single controlled study out there.

> 2) Amy Holmes' " preliminary data " is vague, uncontrolled, and lacking

> data on toxicity/complications.

> 3) I have heard personal reports of renal failure secondary to chelation

> therapy, among other complications.

>

> I am always curious as to why the results of experimental therapies like

> this are never written up. In the herbal supplement markets, the risk of

> having a study show that your product does nothing far exceeds the

> potential advantage of proving that it does, from a sales standpoint.

> Chelation therapy may be effective, but it may not be, and it may make

> children sicker. I would only contend that, right now, none of us know

> for sure.

>

> I completely understand that parents of autistic children, as many of

> you on this list are, are adamant about securing the best care for your

> children as quickly as possible. The potential benefit for your children

> may far exceed the potential danger of chelation therapy. But I really

> am curious as to what guides your decision as to what treatment to seek,

> and where. I am curious to know who and what sources you trust.

>

> All the best,

> Noah

>

> Noah M. Raizman

> Doris Duke Clinical Research Fellow

> Trauma Training Center // Dept. of Orthopedic Surgery

> Columbia University, College of Physicians and Surgeons

> New York, NY // nmr2002@... // 212.305.4512

>>

>

April 29, 2005

Avril

my son was also born in 1997 he got everything but the chicken pox b4 age 2 but when he started kindergarden they forced me to give him the chicken pox shot too he reacted baddly to that 1 as well he had phnemonia with in 3 days of getting the shot and the doctor refused to report it even though that is a listed side affect of that shot go figure Cody got his 1st shot at six hrs old and showed no signs of autism till he was about 17 months old then it was like all H broke loose in him

Angie

Re: Chelation therapy - where is the evidence?

Hi Noah,I didn't trust our first DAN protocol doctor to chelate. I did the research and wound up doing the Cutler protocol instead. I still feel the DAN protocol is a bit risky for children. Meanwhile, my son was biopsied and found to have Lympho-nodular Hyperplasia of the colon. He is on Asacol and sometimes has painful colitis flare-ups where we also have to put him on steroids for a few weeks. Because of the Asacol, my son undergoes regular blood draws to check on kidney and liver function.All the chelation has been done with oral DMSA and has been in response to metal testing showing high lead levels. DMSA, as you probably know, is considered standard practice of care for lead poisoning.He has had significant cognitive improvement both times we have done major rounds of chelation. In addition, the Asacol has controlled his colitis to the point where he is out of diapers (for 1.5 years now) . I know that this is a side issue; however, there is a lot of controversy over whether one should heal the gut before attempting chelation (DAN protocol) or if the gut will heal naturally because of the chelation (Cutler protocol). But if chelation is done ineptly, I have no doubt that kids can get sicker. Nothing is cut and dried here.BTW, our son was born in 1997 and received all his vaccinations up to the chicken pox shot. He didn't receive the chicken pox vax because by that point he had regressed and the doctor was open minded enough to not push it on him. At 3.5 years of age we went to our first DAN protocol doctor and our son responded beautifully to a gf/cf diet along with nutritional supplements, yeast therapy and enzymes. Unfortunately, we couldn't afford more than three months of services from the DAN doctor and so then went on our own, doing our own research and using our holistic pedi at the Center for Health and Healing (assoc. with Beth Isreal). By staying current on bio-medical research we've done pretty well. Our son still has severe environmental, seasonal and food allergies, but his mind and behavior is normal (when he's not having an allergic reaction or colitis attack).I live in NYC if you wish to contact me off list for further comment.All the best,Avril D.At 10:04 AM 4/29/2005, you wrote:>There have been a number of posts about chelation therapy recently. I am>wondering what people's experiences have been with this.<snip>

April 29, 2005

Hi Angie,

Big hugs. It always freaks me out, no matter how many times I hear similar

stories. We did first grade in public school and we had a doctor's note

saying no vaccinations. They tried to strong arm our doctor to do a follow

up MMR shot and chicken pox. The doctor did titers showing MMR was through

the roof, but chicken pox nil. He made a deal that we would do chicken pox

and skip the MMR. At which point we went to another DAN doctor and WE GOT

ANOTHER doctor's note stating because of the condition of our son's immune

system he was NOT to receive any more vaccinations.

Second grade all hell broke loose with our son getting ill from being in

the school. We discovered that the new nurse wasn't making our son wash

his hands before eating and that the school had lead contamination from

peeling and powdering paint. His lead levels were sky high. We removed

him from school and did more DMSA chelation. It's been his best spring

ever for allergies. He does math at fourth grade level and his reading

comprehension is way up there too.

Home schooling was the best choice we could make to spare our son from

being in a school that was making him ill.

I am so sorry they forced you to do further vaccinations when your son had

already regressed. I hope that your son is doing better now.

sincerely,

Avril

At 10:50 AM 4/29/2005, you wrote:

>Avril

>my son was also born in 1997 he got everything but the chicken pox b4 age

>2 but when he started kindergarden they forced me to give him the chicken

>pox shot too he reacted baddly to that 1 as well he had phnemonia with in

>3 days of getting the shot and the doctor refused to report it even though

>that is a listed side affect of that shot go figure Cody got his 1st shot

>at six hrs old and showed no signs of autism till he was about 17 months

>old then it was like all H broke loose in him

>Angie

April 29, 2005

Noah,

1. There are no studies because there is no funding.

2. There is another source of anecdotal data, which is the Autism

Research Institute's " Parent Ratings of Treatments for Autism " , which

is a fairly comprehensive (though not formally controlled) collection

of parental " peer reviews " on the positive/negative experience ratio

for a wide range of therapies. Cheltation is (I believe) at the top

of the list for positive/negative reports.

3. Where have you heard reports of renal failure? That would be

material information for parents. There have been virtually no

negative reports that have received wide circulation. To the extent

that those who oppose the mercury hypothesis want to discredit the

parent support for it, one tactic has been to attempt to raise

concerns over potential adverse treatment effects in the absence of

data.

The answer to the question of the sources we trust is very simple.

Other parents. Some might call it peer review.

Mark

> There have been a number of posts about chelation therapy recently.

I am

> wondering what people's experiences have been with this.

>

> What I have heard and found:

> 1) There is not a single controlled study out there.

> 2) Amy Holmes' " preliminary data " is vague, uncontrolled, and

lacking

> data on toxicity/complications.

> 3) I have heard personal reports of renal failure secondary to

chelation

> therapy, among other complications.

>

> I am always curious as to why the results of experimental therapies

like

> this are never written up. In the herbal supplement markets, the

risk of

> having a study show that your product does nothing far exceeds the

> potential advantage of proving that it does, from a sales

standpoint.

> Chelation therapy may be effective, but it may not be, and it may

make

> children sicker. I would only contend that, right now, none of us

know

> for sure.

>

> I completely understand that parents of autistic children, as many

of

> you on this list are, are adamant about securing the best care for

your

> children as quickly as possible. The potential benefit for your

children

> may far exceed the potential danger of chelation therapy. But I

really

> am curious as to what guides your decision as to what treatment to

seek,

> and where. I am curious to know who and what sources you trust.

>

> All the best,

> Noah

>

> Noah M. Raizman

> Doris Duke Clinical Research Fellow

> Trauma Training Center // Dept. of Orthopedic Surgery

> Columbia University, College of Physicians and Surgeons

> New York, NY // nmr2002@c... // 212.305.4512

> >

April 29, 2005

Noah, I will let the experts speak for themselves.

http://www.autismmedia.org/media2.html

http://www.autismmedia.org/media4.html

If you want to ask for studies, ask THEM. We can give you positive feedback on

our results,

but you should also be asking the doctors who are researching this directly.

My daughter Miranda is making improvements with her TD-DMPS therapy. She is

dumping

copious amounts of mercury according to her toxicology results. Her before and

afters are

like night and day. And I've MET recovered children who only got there as a

result of the

DAN! " protocol " which included chelation.

@ FAIR Autism Media

http://www.autismmedia.org/

> There have been a number of posts about chelation therapy recently. I am

> wondering what people's experiences have been with this.

>

> What I have heard and found:

> 1) There is not a single controlled study out there.

> 2) Amy Holmes' " preliminary data " is vague, uncontrolled, and lacking

> data on toxicity/complications.

> 3) I have heard personal reports of renal failure secondary to chelation

> therapy, among other complications.

>

> I am always curious as to why the results of experimental therapies like

> this are never written up. In the herbal supplement markets, the risk of

> having a study show that your product does nothing far exceeds the

> potential advantage of proving that it does, from a sales standpoint.

> Chelation therapy may be effective, but it may not be, and it may make

> children sicker. I would only contend that, right now, none of us know

> for sure.

>

> I completely understand that parents of autistic children, as many of

> you on this list are, are adamant about securing the best care for your

> children as quickly as possible. The potential benefit for your children

> may far exceed the potential danger of chelation therapy. But I really

> am curious as to what guides your decision as to what treatment to seek,

> and where. I am curious to know who and what sources you trust.

>

> All the best,

> Noah

>

> Noah M. Raizman

> Doris Duke Clinical Research Fellow

> Trauma Training Center // Dept. of Orthopedic Surgery

> Columbia University, College of Physicians and Surgeons

> New York, NY // nmr2002@c... // 212.305.4512

> >

April 29, 2005

here's the link to the ARI table

www.autismwebsite.com/ari/treatment/form34q.pdf

> > There have been a number of posts about chelation therapy

recently.

> I am

> > wondering what people's experiences have been with this.

> >

> > What I have heard and found:

> > 1) There is not a single controlled study out there.

> > 2) Amy Holmes' " preliminary data " is vague, uncontrolled, and

> lacking

> > data on toxicity/complications.

> > 3) I have heard personal reports of renal failure secondary to

> chelation

> > therapy, among other complications.

> >

> > I am always curious as to why the results of experimental

therapies

> like

> > this are never written up. In the herbal supplement markets, the

> risk of

> > having a study show that your product does nothing far exceeds the

> > potential advantage of proving that it does, from a sales

> standpoint.

> > Chelation therapy may be effective, but it may not be, and it may

> make

> > children sicker. I would only contend that, right now, none of us

> know

> > for sure.

> >

> > I completely understand that parents of autistic children, as

many

> of

> > you on this list are, are adamant about securing the best care

for

> your

> > children as quickly as possible. The potential benefit for your

> children

> > may far exceed the potential danger of chelation therapy. But I

> really

> > am curious as to what guides your decision as to what treatment

to

> seek,

> > and where. I am curious to know who and what sources you trust.

> >

> > All the best,

> > Noah

> >

> > Noah M. Raizman

> > Doris Duke Clinical Research Fellow

> > Trauma Training Center // Dept. of Orthopedic Surgery

> > Columbia University, College of Physicians and Surgeons

> > New York, NY // nmr2002@c... // 212.305.4512

> > >

April 29, 2005

http://www.autismwebsite.com/ari/treatment/form34q.htm

this is a better link

> > > There have been a number of posts about chelation therapy

> recently.

> > I am

> > > wondering what people's experiences have been with this.

> > >

> > > What I have heard and found:

> > > 1) There is not a single controlled study out there.

> > > 2) Amy Holmes' " preliminary data " is vague, uncontrolled, and

> > lacking

> > > data on toxicity/complications.

> > > 3) I have heard personal reports of renal failure secondary to

> > chelation

> > > therapy, among other complications.

> > >

> > > I am always curious as to why the results of experimental

> therapies

> > like

> > > this are never written up. In the herbal supplement markets,

the

> > risk of

> > > having a study show that your product does nothing far exceeds

the

> > > potential advantage of proving that it does, from a sales

> > standpoint.

> > > Chelation therapy may be effective, but it may not be, and it

may

> > make

> > > children sicker. I would only contend that, right now, none of

us

> > know

> > > for sure.

> > >

> > > I completely understand that parents of autistic children, as

> many

> > of

> > > you on this list are, are adamant about securing the best care

> for

> > your

> > > children as quickly as possible. The potential benefit for your

> > children

> > > may far exceed the potential danger of chelation therapy. But I

> > really

> > > am curious as to what guides your decision as to what treatment

> to

> > seek,

> > > and where. I am curious to know who and what sources you trust.

> > >

> > > All the best,

> > > Noah

> > >

> > > Noah M. Raizman

> > > Doris Duke Clinical Research Fellow

> > > Trauma Training Center // Dept. of Orthopedic Surgery

> > > Columbia University, College of Physicians and Surgeons

> > > New York, NY // nmr2002@c... // 212.305.4512

> > > >

April 29, 2005

April 3....are you from the bay area

April 29, 2005

Noah, It could be that we are getting our kids back and metals pour

out of them on testing.

Most " scare stories " on chelation come from IV. The majority of

parents do low dose, oral or transdermal chelation and safety check

quite often.

I have two metal toxic grandchildren. One recovered, completely with

chelation. I wish you could talk to him. He's now 17, almost through

with his Jr. year in high school, straight A's, kicked A** on his

first try on the ACT and looking at colleges. Drives, has a job and

is living a NORMAL life. Had we not treated...?????? Mainstream, had

nothing to offer him except drugs.

My younger grandson was severly autistic and we continue with

chelation watching him make gains that were thought impossible.

I would suggest you read at ARI www.autism.com/ari

Read the papers and presentation of DAN dr's and you'll understand

that we are doing nothing more than the best we can for these

children and, we are doing it safely.

We don't have 20 years to wait on studies that tell us nothing we

don't already know....it will be too late.

Please, continue to question and study.

Ann

> There have been a number of posts about chelation therapy recently.

I am

> wondering what people's experiences have been with this.

>

> What I have heard and found:

> 1) There is not a single controlled study out there.

> 2) Amy Holmes' " preliminary data " is vague, uncontrolled, and

lacking

> data on toxicity/complications.

> 3) I have heard personal reports of renal failure secondary to

chelation

> therapy, among other complications.

>

> I am always curious as to why the results of experimental therapies

like

> this are never written up. In the herbal supplement markets, the

risk of

> having a study show that your product does nothing far exceeds the

> potential advantage of proving that it does, from a sales

standpoint.

> Chelation therapy may be effective, but it may not be, and it may

make

> children sicker. I would only contend that, right now, none of us

know

> for sure.

>

> I completely understand that parents of autistic children, as many

of

> you on this list are, are adamant about securing the best care for

your

> children as quickly as possible. The potential benefit for your

children

> may far exceed the potential danger of chelation therapy. But I

really

> am curious as to what guides your decision as to what treatment to

seek,

> and where. I am curious to know who and what sources you trust.

>

> All the best,

> Noah

>

> Noah M. Raizman

> Doris Duke Clinical Research Fellow

> Trauma Training Center // Dept. of Orthopedic Surgery

> Columbia University, College of Physicians and Surgeons

> New York, NY // nmr2002@c... // 212.305.4512

> >

April 29, 2005

Hi Noah,

First of all, thanks again for joining this list and

asking these questions. Honest, open dialogue on

these issues is really what we parents (particularly

the hero's you read about in Evidence of Harm) have

been fighting for.

There are two compelling reasons for parents of

autistic children to try chelation therapy.

One reason is the growing evidence that our children

have a genetic susceptibiliy to heavy metals and are

suffering from heavy metal poisoning with most of the

emphasis on mercury. If you accept this as fact then

the logical treatment has to be chelation. I don't

know what you have looked at already but here are some

documents that I am referring to as the body of

evidence.

1. Recent primate study

http://www.generationrescue.org/pdf/news/herald.pdf

http://www.generationrescue.org/pdf/burbacher.pdf

2. Dr. Geier epidemiological study

http://www.generationrescue.org/pdf/geier.pdf

3. Autism is a novel form of mercury poisoning

http://www.generationrescue.org/pdf/bernard.pdf

4. Boyd Haley - Thimerosal containing vaccines and

neuro developmental outcomes

http://www.generationrescue.org/pdf/haley.pdf

5. A Case-Control Study of Mercury Burden in Children

with Autistic Spectrum Disorders

http://www.generationrescue.org/pdf/bradstreet.pdf

6. Reduced Levels of Mercury in First Baby Haircuts

of Autistic Children

http://www.generationrescue.org/pdf/holmes2.pdf

7. Neurotoxic effects of postnatal thimerosal are

mouse strain dependent

http://www.generationrescue.org/pdf/hornig.pdf

8. Truth Revealed: New Scientific Discoveries

Regarding Mercury in Medicine and Autism

http://www.generationrescue.org/pdf/redwood.pdf

9. Molecular Aspects of Thimerosal-Induced Autism

http://www.generationrescue.org/pdf/deth.pdf

10. Retrograde degeneration of neurite membrane

structural integrity of nerve growth cones following

in vitro exposure to mercury

http://www.generationrescue.org/pdf/leong.pdf

11. Thimerosal Neurotoxicity is Associated with

Glutathione Depletion: Protection with Glutathione

Precursors

http://www.generationrescue.org/pdf/james.pdf

You are right about the lack of controlled chelation

studies for autistic children. I thought Dr. Buttar

was going to publish his study but I haven't heard

when that will happen. Here is a link to his

testimony to Congress in case you haven't already seen

it: http://www.generationrescue.org/pdf/buttar.pdf

My experience is that parents place a lot of trust in

other parents that have already tried chelation

therapy or any other therapy for that matter. The

second reason parents want to try chelation are the

success stories we hear about. Here is a link to some

parent testimonials which is sadly the best scientific

evidence that we may have at this point:

http://www.generationrescue.org/testimonials.php

I assume that everyone in this community wants

scientific study on chelation and the lack of it is a

reflection on limited resources, not a fear of poor

test results as you indicate happens with herbal

supplements. Shouldn't the CDC be funding this type

of study? I hope you will help us to put pressure on

the government to fund these necessary studies.

Regards,

Craig

--- Noah Raizman <nmr2002@...> wrote:

> There have been a number of posts about chelation

> therapy recently. I am

> wondering what people's experiences have been with

> this.

>

> What I have heard and found:

> 1) There is not a single controlled study out there.

> 2) Amy Holmes' " preliminary data " is vague,

> uncontrolled, and lacking

> data on toxicity/complications.

> 3) I have heard personal reports of renal failure

> secondary to chelation

> therapy, among other complications.

>

> I am always curious as to why the results of

> experimental therapies like

> this are never written up. In the herbal supplement

> markets, the risk of

> having a study show that your product does nothing

> far exceeds the

> potential advantage of proving that it does, from a

> sales standpoint.

> Chelation therapy may be effective, but it may not

> be, and it may make

> children sicker. I would only contend that, right

> now, none of us know

> for sure.

>

> I completely understand that parents of autistic

> children, as many of

> you on this list are, are adamant about securing the

> best care for your

> children as quickly as possible. The potential

> benefit for your children

> may far exceed the potential danger of chelation

> therapy. But I really

> am curious as to what guides your decision as to

> what treatment to seek,

> and where. I am curious to know who and what sources

> you trust.

>

> All the best,

> Noah

>

> Noah M. Raizman

> Doris Duke Clinical Research Fellow

> Trauma Training Center // Dept. of Orthopedic

> Surgery

> Columbia University, College of Physicians and

> Surgeons

> New York, NY // nmr2002@... // 212.305.4512

>

> >

>

April 29, 2005

Hi Noah-

Plain and simple, it works! We have been on two different chelators FDA approved DMSA oral and now DMPS-td for a year. We have had wonderful gains and our doctor carefully monitors any possible side effects. Most of us are pretty keen to when things go wrong with our kids as they have so many complex issues. Gone are the days of IV bag chelators, our Biomedical doctors, compounders and scientists like Boyd Haley,Holmes and Buttar, have brought the treatment out of the stone age.

The risk reward ratio is very good. I see no benefit in leaving toxic heavy metals (known neurotoxins) in my kid. As they come out he gets better. We have a boatload of science behind it all, as it wasn't long before the raging epidemic would reach the medical community.(Every practitioner in our Bio-Medical doctor's office has an ASD kid.) The sad fact is that mainstream medicine turns a blind eye to the science from Harvard, Tufts and Columbia.

Noah I would like to personally invite you to my house in Atlanta. I would like you to meet my son's speech therapist who thought my child would never talk. I would like to show you how healthy he is now compared to 2 years ago when he wouldn't eat and thing but pizza and had 8-10 putrid diapers a day. I would love to show "Toxic Tipping Point" before and after pictures.

Our chelation gains have been excellent and lasting.

Beauvais

Craig Garfinkel <cdgarfinkel@...> wrote:

Hi Noah,First of all, thanks again for joining this list andasking these questions. Honest, open dialogue onthese issues is really what we parents (particularlythe hero's you read about in Evidence of Harm) havebeen fighting for.There are two compelling reasons for parents ofautistic children to try chelation therapy.One reason is the growing evidence that our childrenhave a genetic susceptibiliy to heavy metals and aresuffering from heavy metal poisoning with most of theemphasis on mercury. If you accept this as fact thenthe logical treatment has to be chelation. I don'tknow what you have looked at already but here are somedocuments that I am referring to as the body ofevidence.1. Recent primate studyhttp://www.generationrescue.org/pdf/news/herald.pdfhttp://www.generationrescue.org/pdf/burbacher.pdf2. Dr. Geier epidemiological studyhttp://www.generationrescue.org/pdf/geier.pdf3. Autism is a novel form of mercury poisoninghttp://www.generationrescue.org/pdf/bernard.pdf4. Boyd Haley - Thimerosal containing vaccines andneuro developmental outcomeshttp://www.generationrescue.org/pdf/haley.pdf5. A Case-Control Study of Mercury Burden in Childrenwith Autistic Spectrum Disordershttp://www.generationrescue.org/pdf/bradstreet.pdf6. Reduced Levels of Mercury in First Baby Haircutsof Autistic Childrenhttp://www.generationrescue.org/pdf/holmes2.pdf7. Neurotoxic effects of postnatal thimerosal aremouse strain dependenthttp://www.generationrescue.org/pdf/hornig.pdf8. Truth Revealed: New Scientific DiscoveriesRegarding Mercury in Medicine and Autismhttp://www.generationrescue.org/pdf/redwood.pdf9. Molecular Aspects of Thimerosal-Induced Autismhttp://www.generationrescue.org/pdf/deth.pdf10. Retrograde degeneration of neurite membranestructural integrity of nerve

growth cones followingin vitro exposure to mercuryhttp://www.generationrescue.org/pdf/leong.pdf11. Thimerosal Neurotoxicity is Associated withGlutathione Depletion: Protection with GlutathionePrecursorshttp://www.generationrescue.org/pdf/james.pdfYou are right about the lack of controlled chelationstudies for autistic children. I thought Dr. Buttarwas going to publish his study but I haven't heardwhen that will happen. Here is a link to histestimony to Congress in case you haven't already seenit: http://www.generationrescue.org/pdf/buttar.pdfMy experience is that parents place a lot of trust inother parents that have already tried chelationtherapy or any other therapy for that matter. Thesecond reason

parents want to try chelation are thesuccess stories we hear about. Here is a link to someparent testimonials which is sadly the best scientificevidence that we may have at this point:http://www.generationrescue.org/testimonials.phpI assume that everyone in this community wantsscientific study on chelation and the lack of it is areflection on limited resources, not a fear of poortest results as you indicate happens with herbalsupplements. Shouldn't the CDC be funding this typeof study? I hope you will help us to put pressure onthe government to fund these necessary studies.Regards,Craig --- Noah Raizman <nmr2002@...> wrote:> There have been a number of posts about chelation> therapy recently. I am> wondering what people's experiences have been with> this.> > What I have heard and

found:> 1) There is not a single controlled study out there.> 2) Amy Holmes' "preliminary data" is vague,> uncontrolled, and lacking> data on toxicity/complications.> 3) I have heard personal reports of renal failure> secondary to chelation> therapy, among other complications.> > I am always curious as to why the results of> experimental therapies like> this are never written up. In the herbal supplement> markets, the risk of> having a study show that your product does nothing> far exceeds the> potential advantage of proving that it does, from a> sales standpoint.> Chelation therapy may be effective, but it may not> be, and it may make> children sicker. I would only contend that, right> now, none of us know> for sure.> > I completely understand that parents of autistic> children, as many of> you on this list

are, are adamant about securing the> best care for your> children as quickly as possible. The potential> benefit for your children> may far exceed the potential danger of chelation> therapy. But I really> am curious as to what guides your decision as to> what treatment to seek,> and where. I am curious to know who and what sources> you trust. > > All the best,> Noah> > Noah M. Raizman> Doris Duke Clinical Research Fellow> Trauma Training Center // Dept. of Orthopedic> Surgery> Columbia University, College of Physicians and> Surgeons> New York, NY // nmr2002@... // 212.305.4512> > > > > __________________________________________________

April 29, 2005

A good many of us have decided that we have no time to wait for the studies. There are plenty of parental experiences that were enough for me. Many of us then research it on our own and proceed with it. This would be one reason that some of these groups were formed. If I had waited for a study on any of the interventions that I have tried with my child over the last 5 years, he would definitely not be as advanced as he is today and very near recovery. The latest and most effective intervention so far for us has been the TD-DMPS. Jane Mama to 7 (ASD) and 5 (NT) www.generationrescue.org -- Re: Chelation therapy - where is the evidence? Noah, I will let the experts speak for themselves. http://www.autismmedia.org/media2.html http://www.autismmedia.org/media4.html If you want to ask for studies, ask THEM. We can give you positive feedback on our results, but you should also be asking the doctors who are researching this directly. My daughter Miranda is making improvements with her TD-DMPS therapy. She is dumping copious amounts of mercury according to her toxicology results. Her before and afters are like night and day. And I've MET recovered children who only got there as a result of the DAN! "protocol" which included chelation. @ FAIR Autism Media http://www.autismmedia.org/ > There have been a number of posts about chelation therapy recently. I am > wondering what people's experiences have been with this. > > What I have heard and found: > 1) There is not a single controlled study out there. > 2) Amy Holmes' "preliminary data" is vague, uncontrolled, and lacking > data on toxicity/complications. > 3) I have heard personal reports of renal failure secondary to chelation > therapy, among other complications. > > I am always curious as to why the results of experimental therapies like > this are never written up. In the herbal supplement markets, the risk of > having a study show that your product does nothing far exceeds the > potential advantage of proving that it does, from a sales standpoint. > Chelation therapy may be effective, but it may not be, and it may make > children sicker. I would only contend that, right now, none of us know > for sure. > > I completely understand that parents of autistic children, as many of > you on this list are, are adamant about securing the best care for your > children as quickly as possible. The potential benefit for your children > may far exceed the potential danger of chelation therapy. But I really > am curious as to what guides your decision as to what treatment to seek, > and where. I am curious to know who and what sources you trust. > > All the best, > Noah > > Noah M. Raizman > Doris Duke Clinical Research Fellow > Trauma Training Center // Dept. of Orthopedic Surgery > Columbia University, College of Physicians and Surgeons > New York, NY // nmr2002@c... // 212.305.4512 > >

April 29, 2005

Avril

Hi again

Cody is doing very well actually his diagnosis was of moderate autism was changed this yr to PDDNOS/Sever Global apraxia he was medicaly exempted from the second MMR b4 he started school so that was the only one he didn’t have to get and only because at the time I had a doctor who was willing to look at vaccines as a possible problem he did the research himself looked at when Cody regressed thru his medical records and decided himself that he felt the MMR caused Codys problems this was before we knew his mercury levels and be4 they manadated the chicken pox shot so we werent counting on having to exempt him from that 1. The doctor just named the MMR cause at that time it was the only one we knew he would still have to get to go to school . As for school boy has that been fun NOT. Cody is in first grade now and I have spent all yr working on a decent IEP for him we had 5 IEPs this yr and just did finely finish it up so that next yr he starts school with what he really needs His IQ is average to above yet he is just now learning to read . his math skills are amazing though . I Thought about home schooling but where I live in land is so rule he wouldn’t get anything for service unless we took him to Baltimore which I do take him to Kennedy Krieger to see his Autism specialist there but we only see him when the school gives us problems about services and he will be starting feeding therapy there this summer that’s our biggest autism problem at home now is feeding problems he is so OCD about the foods he eats that nothing he eats is good for him and hasn’t touched a veggie since he was 2 yrs old . I am glad your boy is doing so well on the DMSA chelation I have a ?s about that is it odder and taste less cause that would be the only way I could even try with my son if he can smell it see it taste it he wont touch it I tried supper nuthra on him and no deal no matter what I hid that in he knew it was there I even cooked it in his pancakes and he wouldn’t touch them lol always Cody's mom

Angie

Re: Chelation therapy - where is the evidence?

Hi Angie,Big hugs. It always freaks me out, no matter how many times I hear similar stories. We did first grade in public school and we had a doctor's note saying no vaccinations. They tried to strong arm our doctor to do a follow up MMR shot and chicken pox. The doctor did titers showing MMR was through the roof, but chicken pox nil. He made a deal that we would do chicken pox and skip the MMR. At which point we went to another DAN doctor and WE GOT ANOTHER doctor's note stating because of the condition of our son's immune system he was NOT to receive any more vaccinations.Second grade all hell broke loose with our son getting ill from being in the school. We discovered that the new nurse wasn't making our son wash his hands before eating and that the school had lead contamination from peeling and powdering paint. His lead levels were sky high. We removed him from school and did more DMSA chelation. It's been his best spring ever for allergies. He does math at fourth grade level and his reading comprehension is way up there too.Home schooling was the best choice we could make to spare our son from being in a school that was making him ill.I am so sorry they forced you to do further vaccinations when your son had already regressed. I hope that your son is doing better now.sincerely,AvrilAt 10:50 AM 4/29/2005, you wrote:>Avril>my son was also born in 1997 he got everything but the chicken pox b4 age >2 but when he started kindergarden they forced me to give him the chicken >pox shot too he reacted baddly to that 1 as well he had phnemonia with in >3 days of getting the shot and the doctor refused to report it even though >that is a listed side affect of that shot go figure Cody got his 1st shot >at six hrs old and showed no signs of autism till he was about 17 months >old then it was like all H broke loose in him>Angie

April 29, 2005

> There have been a number of posts about chelation therapy recently.

I am

> wondering what people's experiences have been with this.

>

> What I have heard and found:

> 1) There is not a single controlled study out there.

Maybe not for autism per se but look back in the literature and you

will find it for DMSA and DMPS. I think maybe means to send

this your way.

And hey if you have some pull and can talk pharmica and/or the NIH to

do the studies we parents would be most grateful. But apparently they

really dont seem to want that kind of study done since it might lead

to a conculsion they dont want.

> 2) Amy Holmes' " preliminary data " is vague, uncontrolled, and

lacking

> data on toxicity/complications.

Yes, clinical data has that problem but does that mean we invalidate

clinical findings?

> 3) I have heard personal reports of renal failure secondary to

chelation

> therapy, among other complications.

Possibly partly because of people doing it wrong or over amibitously.

I know the Children's Hospital here were looking for guinea pigs but

when I found out what they were doing I said no way. They were giving

very high continual doses and seeing what came out in normal and ASD

kids. I got they idea they were trying to make peoples kidneys fail.

If you do that in anyone you'll pull stuff out so they were missing

the point. I have never seen their results published.

> I am always curious as to why the results of experimental therapies

like

> this are never written up.

Lack of funding and the politics of interfering with " markets " and in

this case the possible conclusive outcome.

>

> All the best,

> Noah

>

> Noah M. Raizman

I found out about chelation about 5 years before we had our son.

My background is genetics, plant pathology and biochem. My grad

worked involved looking at a plant which had resistance to a fungal

pathogen - could we incorporate this trait into other plants and

reduce or eliminate the need for fungicides (which are often metal

based)?

In a graduate level class our professor talked about chelation

because if we were going to be exposed to particularly fungicides it

is something we should consider. MAny fungicides are metal based. He

told us he did it and gave us information on it. So I had already

know what and why. If you look back in the literature, especially

from Eu and USSR you will find numerous studies. No it wasn't for

autism.

I took quite awhile to research more. Meanwhile I met other parents

in this area that were chelating and getting their kids back.

I know cause and correlation/ genetic and environmental interactions;

it is what I spent my grad studies picking apart.

I can tell you this:

My son was normal and putting 2 words together and just beginning to

walk. My son received 4 shots at ~4pm on 12/22/00 (after they said

they removed thimerosal). He passed out. He did not come too for over

24 hours and had a mild fever. We called the doctors office and

stated our concern but they just said " if he's breathing and not

convulsing he's ok. Give him TYLENOL for the fever " . When he did come

to he would not respond to us and only starred into the ceiling light

with dilated eyes. He would not speak or respond. Everything went

downhill from there. The way I would describe it would be the soul

was taken from him. I know now he likely was having absent seizures

but this is not something the MD said or expected (actually the MD

would not talk to us and we got a staff nurse instead). I assure you

I emphasized I did not think this was right to the MD's office.

My son was a zombie in the corner, rocking and uniterested in

anything after that and just got worse over time.

My father is a skeptical engineer. He never bought into the mercury

issue. Within 2 hours of his first chelation dose, my son was walking

around the house looking at everything as if he'd never seen it

before. He came up to me and made direct extended eye contact. It

freaked me out because he had not looked at me this way in over a

year since those shots. When my dad saw the change it was stunned.

Chelation has been a slow process but we are making gains. I would

rather take it slow as one Doc had us increase the dosage and switch

what we were doing and it made him tired and more stimmy. DMSA

eventually plateaued and only made yeast problems. Since switching to

to DMPS this seems to be resolved and we are getting in particular

more verbalization, huge cognitive gains and more socialization

interest.

I would love to see unbiased ontrolled studies done. For now, I will

just have to take clinical experience and closely monitor various

vital signs.

With my genetic background I think we've got multiloci interacting

with environmental exposures. No one in our families has had autism

but a few on my wife's side could be ADD and Ill admit, I do have

a " geek/aspergers " like tendency - why else would I love biochemistry

when so many other hated it? Ill stop there.

Best Wishes in School I was SO glad to get out and now I wish I could

go back!

PS - oh by the way, the plant does confer resistance but there is

little interest in it. They would rather sell more chemicals. My

understanding is someone has been trying to isolate the protein(s)

responsible for resistance so they can synthesize them, patent it and

guess what - make another spray.

April 29, 2005

Noah, I am aware that some doctors have gathered their own clinical

data and have shared it at conferences...that helps, but I know what

you mean about not havign the formal controlled studies out there. I

*think* that there is a study going on right now in Arizona (??) that

is a double blind placebo controlled study on dmsa (??) and ASD. My

only concern is that dmsa chelation tends to bring about yeast

issues, which can mask benefits. This is what happened with my son--

the dmsa chelation initially brought about very noticeable changes to

people that worked with him who were unaware that we were chelating,

and to family members who were unaware. He ended up progressing so

quickly that his occupational therapist dismissed him. Issues that

had been long-standing like poor muscle tone quickly abated. The

decision to chelate was not an easy decision to make, because of the

concerns you mentioned. HOwever, what I was finding that my son was

doing all " the right things " in terms of therapy, and my husband and

I being educators, we knew we were doing all " the right things " in

terms of how to make his day consistent, predictable, etc. And yet

my son was still cycling in and out of anxiety, it was getting worse,

new issues were cropping up for him. I honestly didn't think I would

even put him in school at the time, and I even took him to his doctor

to ASK for medication, which is something I never even wanted to do.

FOrtunately his doc felt that the medications might unmask some tics

and so he held off on rx'ing for us. I just decided to give

chelation a try after probably a year of researching/debating it. It

is something I am so glad that I did. The short-term chelation with

DMSA showed me that it was what he needed to improve. He was able to

start kindergarten that Fall with minimal special ed time, and

minimal OT services, and the special ed time was dropped within about

a month or two, and the OT only continued to see him to teach him the

things he had missed growing up-- ball skills--how to throw and catch

a ball--to get him ready for PE in first grade.

The DMSA chelation brought about a yeast flareup that made me quit,

and eventually we tried oral DMPS but he had a bad reaction to it

(allergy) and now we are using oral EDTA to continue on. He had some

exposures to toxins this summer when he was in a day camp that took

apart old appliances, and unbeknownst to me, a computer terminal

contains a lot of toxins... we saw him slip back to " the old Ethan "

after that, and I found myself having deja vu as I would comment

about him and remember, OMG, this is what I USED to say about him/how

I USED to describe him. So I knew we had to resume chelation, and

that's when I decided to try oral EDTA with him.

So long story short, I, too, am hoping to see more studies done on

chelation... I feel bad though for the kids who are going to get the

placebo because it truly is a matter of denying them something that

has shown anecdotally and clinically to be very helpful for these

kids, but if studies are what it will take to get chelation therapy

on the map, and the parents are willing participants, then so be it.

Anecdotally and clinically there was just too much evidence available

for me to NOT chelate.

I appreciate your willingness to be here and to try to understand

what we are doing, and why, without being judgmental.

W

>> I completely understand that parents of autistic children, as many

of

> you on this list are, are adamant about securing the best care for

your

> children as quickly as possible. The potential benefit for your

children

> may far exceed the potential danger of chelation therapy. But I

really

> am curious as to what guides your decision as to what treatment to

seek,

> and where. I am curious to know who and what sources you trust.

>

> All the best,

> Noah

April 29, 2005

This list could very well be bombarded with responses to this one and

they'll likely be very long responses about what we're doing and why

we're doing it and how we came to these decisions. Would you like us

to write to you directly?

I can tell you right now that chelation therapy has been the " No. 1 with

a bullet " therapy that has made major changes in my son and made me

believe that recovery is possible.

~ Karin

Mom to Jake, 5 yrs old

p.s. I very much appreciate and respect that you are looking into this

and asking these questions.

>There have been a number of posts about chelation therapy recently. I am

>wondering what people's experiences have been with this.

>

>What I have heard and found:

>1) There is not a single controlled study out there.

>2) Amy Holmes' " preliminary data " is vague, uncontrolled, and lacking

>data on toxicity/complications.

>3) I have heard personal reports of renal failure secondary to chelation

>therapy, among other complications.

>

>I am always curious as to why the results of experimental therapies like

>this are never written up. In the herbal supplement markets, the risk of

>having a study show that your product does nothing far exceeds the

>potential advantage of proving that it does, from a sales standpoint.

>Chelation therapy may be effective, but it may not be, and it may make

>children sicker. I would only contend that, right now, none of us know

>for sure.

>

>I completely understand that parents of autistic children, as many of

>you on this list are, are adamant about securing the best care for your

>children as quickly as possible. The potential benefit for your children

>may far exceed the potential danger of chelation therapy. But I really

>am curious as to what guides your decision as to what treatment to seek,

>and where. I am curious to know who and what sources you trust.

>

>All the best,

>Noah

>

>Noah M. Raizman

>Doris Duke Clinical Research Fellow

>Trauma Training Center // Dept. of Orthopedic Surgery

>Columbia University, College of Physicians and Surgeons

>New York, NY // nmr2002@... // 212.305.4512

>

April 29, 2005

Also Noah, one thing that also led me to go ahead and do chelation in

the absence of DBPControlled studies on it for ASD children were that

I had enough information to show me that my son has lead in him. So I

did spend time on pubmed looking at chelation of lead with dmsa, and

that helped me make my decision that regardless of the mercury issue,

I want the lead out. In my distant memory, I can remember doing that

research and that was a pivotal point for me to decide to chelate

him. Same thing for why I chose to go ahead and use oral EDTA with

him now-- aside from my mercury concerns, I want the lead gone, and I

found a good number of studies on pubmed that reassured me that EDTA

is a safe and effective chelator for lead.

Another bottom line for me is, I want my child to have good health as

an " adult " and if having lead and/or other toxicity is going to lead

to changes in his body that will interfere with or prevent having

good health as an adult, then I want it out now.

W

> Noah,

April 29, 2005

Oh my gosh, Noah, you should have been on the list for the

past five years if you want the answer to this question!!!! SOOOOOO many

kids are getting better after the metals are coming out. I don't even

understand why there would be a question about this! When kids are poisoned

with lead, we take the lead out ASAP don't we, since we know that keeping it

in their brains causes further damage? It isn't a question about whether or

not we should take the !@#$#! stuff out, it's what method is the safest,

most effective, and easiest on the kids!

We don't question whether we should kill cancer cells, do we? We go through

months of excruciating side effects to return to health! Our kids are

getting the metals out as safely as possible so that they have a chance at a

normal life. How I WISH my son could have been two or three when we

started! More and more of these kids are NORMAL now because the metals have

come out and they have gotten therapy in time.

This is a rescue operation!!!!!

Barb

Chelation therapy - where is the evidence?

> There have been a number of posts about chelation therapy recently. I am

> wondering what people's experiences have been with this.

>

> What I have heard and found:

> 1) There is not a single controlled study out there.

> 2) Amy Holmes' " preliminary data " is vague, uncontrolled, and lacking

> data on toxicity/complications.

> 3) I have heard personal reports of renal failure secondary to chelation

> therapy, among other complications.

>

> I am always curious as to why the results of experimental therapies like

> this are never written up. In the herbal supplement markets, the risk of

> having a study show that your product does nothing far exceeds the

> potential advantage of proving that it does, from a sales standpoint.

> Chelation therapy may be effective, but it may not be, and it may make

> children sicker. I would only contend that, right now, none of us know

> for sure.

>

> I completely understand that parents of autistic children, as many of

> you on this list are, are adamant about securing the best care for your

> children as quickly as possible. The potential benefit for your children

> may far exceed the potential danger of chelation therapy. But I really

> am curious as to what guides your decision as to what treatment to seek,

> and where. I am curious to know who and what sources you trust.

>

> All the best,

> Noah

>

> Noah M. Raizman

> Doris Duke Clinical Research Fellow

> Trauma Training Center // Dept. of Orthopedic Surgery

> Columbia University, College of Physicians and Surgeons

> New York, NY // nmr2002@... // 212.305.4512

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>

April 29, 2005

As long as you supplement, supplement, supplement along the way, its safer to take the stuff out then to leave it in!!

Barb

Chelation therapy - where is the evidence?

There have been a number of posts about chelation therapy recently. I amwondering what people's experiences have been with this.What I have heard and found:1) There is not a single controlled study out there.2) Amy Holmes' "preliminary data" is vague, uncontrolled, and lackingdata on toxicity/complications.3) I have heard personal reports of renal failure secondary to chelationtherapy, among other complications.I am always curious as to why the results of experimental therapies likethis are never written up. In the herbal supplement markets, the risk ofhaving a study show that your product does nothing far exceeds thepotential advantage of proving that it does, from a sales standpoint.Chelation therapy may be effective, but it may not be, and it may makechildren sicker. I would only contend that, right now, none of us knowfor sure.I completely understand that parents of autistic children, as many ofyou on this list are, are adamant about securing the best care for yourchildren as quickly as possible. The potential benefit for your childrenmay far exceed the potential danger of chelation therapy. But I reallyam curious as to what guides your decision as to what treatment to seek,and where. I am curious to know who and what sources you trust. All the best,NoahNoah M. RaizmanDoris Duke Clinical Research FellowTrauma Training Center // Dept. of Orthopedic SurgeryColumbia University, College of Physicians and SurgeonsNew York, NY // nmr2002@... // 212.305.4512 >

April 29, 2005

lynn not being nosy but what day was your son born in april 2000 codys little brother my second son seth was born april 23 rd 2000 that’s why I ask