Off topic...don't know how to put it there.

[Guest guest]

Ok, I wanted to share and give you guys a much needed update. First, please each

of you know how much this group has meant to me. You have each reached out to me

in one way or another and if only by words of encouragement or a recipe, lifted

me tremendously. As you may have read, despite all of our efforts I was still

continuing to lose weight at a rapid rate. I am now seeing a Dietician who was

just at a loss with me. I was supposed to have a J-tube put in but the surgeon

wouldn't agree because of how much I have deteriorated. He was simply afraid I

wouldn't recover.

So the updates. I have been scheduled to go to the Mayo Clinic Sept 10. This at

first was something I couldn't understand as I thought I was with the beat

doctors. What I didn't realize is the combination of my diseases were making it

impossible for my GI and Neurologists to come up with a plan of treatment for

me. This is hope that the Mayo Clinic can try some new advanced therapys to help

me.

Second, about a month ago someone told me about a product called Orgain. One 11

oz box has 10 servings of fruits and veggies. I looked up the product and seen

it was way to expensive for my household budget. Someone, I don't know who,

wrote the company and the day I went to court for my SSI Hearing (I'll tell

about that in a minute) June 1st, I came home to a case of the product. No

explanation, letter or anything just a case with a name and email address on it.

I drank the product, 2 a day for 7 days. I went to my Nutrionist last Friday and

had gained 3-4 pounds. That night I emailed the address on the box and thanked

them for the product and told them about the success I this far had. It was

nothing more than a thank you email. Later that night the founder and owner of

the company, Dr. Abraham contacted me via email. He told me that he was a

cancer survivor himself with two small children. He said that he had read my

story, again no clue how, and that I was such an inspiration to him. I was

stunned. He said that with his crazy hours as a doctor and as owner of a

company, he often times found himself wondering was keeping this company going

worth it. He said that hearing stories like mine proved that it was. He said my

Faith and attitude was so inspiring that he would like to offer to send me more.

He told me to not worry about the cost, after all God had blessed him with this

was least he could do. He said he wasn't going to email me out of fear of me

refusing his offer, but wanted to know what flavors I liked the most and also

wanted to tell me how I had affected his life in a positive way, as he feels

people who are down need to hear that as often as possible. He said he would be

sending a new shipment every 60 days until I wrote him and told him I no longer

needed them as well as keep my family and myself in his prayers. Yesterday, I

received 5 cases of Orgain directly from him. What a blessing, just a few of the

countless I have received. I'm sharing this for two reasons, one to show

progress and two, to show how awesome our God is. Never lose faith because God

always does wonderful things in His time.

Next SSI. I have fought the idea of being labeled disabled so long but the truth

is, right now I am. Last November, after 8 months I finally broke down and

applied. I was turned down twice before my Congressman stepped in and requested

a critical care hearing. It was scheduled June 1st. I had a courtroom full of

people; nurses, caregivers, family and even my Congressman. GP is not nationally

recognized as a debilitating disease due to lack of awareness. I literally went

in, court officers holding me up as I raised my right hand. The judge shut the

whole court down and ruled in my favor on the spot. He come off the bench,

hugged me and told me how inspirational I was. He told me the fact that I waited

so long to even apply proved the kind of person I was. He apologized on behalf

of SSI for the delay in judgement on this case and told me I was the first

patient with GP he had approved in 43 years, setting a path for others like me.

He told me to keep on advocating, keep my faith and wished me well. We NEVER

expected that. It will take about 45 days for my insurance to get situated, but

in plenty time for me to go to the Mayo Clinic.

I know not everyone here knows what all I've been through. I'm sharing this in

hopes that those that do know what's going on, see how your prayers have helped

me.

With undying love and gratitude,