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Roseanne,

I have been using Zithromax at 500 mg x 2 times per wek for three years now

and no side effects. It has proven to be very effective for me. I use it in

conjunction with Minocin. It is important to take acidophilus in conjunction

with these drugs.

Best of health.

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  • 5 months later...

Hi Judy and ,

I wouldn't add Zithromax as then you'd be on four antibiotics. If you feel

you want to take more antibiotic then personally I'd try putting the

doxycycline up to 100mg am MWF.

Usually it's doxycycline/minocycline plus clindamycin or

doxycycline/minocycline plus Zithromax or clarithromycin. If you take too

many antibiotics or too high a dose then it's going to be harder to

keep gut problems under control, especially as you're taking oral

clindamycin which goes through the gut. You're also more likely to get

herxheimer reactions.

Let me know how you get on - my daughter has scleroderma/RA and

fibromyalgia also. She didn't get a definitive diagnosis either.

Chris.

On Sun, 30 Dec 2001 JWARD38@... wrote:

> Hi

> My daughter and I are taking Doxycycline 50mg in am on M-W-F and Minocin

> 100mg in PM on M-W-F plus Clindamycin 1200mg on Sunday because are insurance

> won't cover IV.

> I was wondering if we would benefit if we added Zithromax to our regimen.

> I'm sure our illness is Scleroderma and Fibromyaliga.

> Our doctors thought we have Lupus with overlap but what I have research all

> of our symptoms match diffused SD and Fibromyalgia.

> Judy &

>

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You wrote: Usually it's doxycycline/minocycline plus clindamycin or

doxycycline/minocycline plus Zithromax or clarithromycin.

Is the meaning of the sentence doxy and mino plus clindy? Or, doxy or

mino plus clindy?

I intend to " squirrel " this away for possible later use, and want to

get it right!

Thanks,

bg

>

> > Hi

> > My daughter and I are taking Doxycycline 50mg in am on M-W-F and

Minocin

> > 100mg in PM on M-W-F plus Clindamycin 1200mg on Sunday because

are insurance

> > won't cover IV.

> > I was wondering if we would benefit if we added Zithromax to our

regimen.

> > I'm sure our illness is Scleroderma and Fibromyaliga.

> > Our doctors thought we have Lupus with overlap but what I have

research all

> > of our symptoms match diffused SD and Fibromyalgia.

> > Judy &

> >

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Hello bg,

On Mon, 31 Dec 2001, bsgttx wrote:

>

> Is the meaning of the sentence doxy and mino plus clindy? Or, doxy or

> mino plus clindy?

>

Doxycycline or minocycline plus clindamycin.

Chris.

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  • 1 month later...

Randi,

My son has not yet done the antibiotic treatment for viruses. CCid

has come up w/ a protocol for the viruses and the actual antibiotic

they use is biaxin. They are not sure if it will work but I believe

some patients are getting good results. I am going to the doctor

next week to start the antibiotics. I'll keep people posted.

nne

> how long has your child been on Zithromax. Did your doctor do a

test

> to see if this would work?

>

> thanks Randi

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  • 1 month later...
Guest guest

Hi Sally,

I'm the other case whose child made progress on zithromax and like you I

e-mailed and then tried to call the ccid and got nowhere. I am going to try

a different phone# today and if I have any luck I'll let you know. I

definitely think that since the developers of the vaccines are putting in

genetically engineered ingredients that somehow a virus is being killed off

and allowing neurotransmission to take place.Also did your son have an

adverse reaction to what you think is the DPT?Mine did.I did find out in a

medical antibiotic book that zithromax kills bordella pertussis(virus in

dpt) so maybe we are definitely on to something..Send me your e-mail

address.

R,Nashua,NH

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Guest guest

Sally,

Check out the www.ccid.org website. My son is on biaxin for a month

now, 250mg 2xs a day. It is the same product. He is beginning to

talk now, we have also been chelating for a year. We also use

acyclovir. Check out the website and if you have any question I am

more than willing w/ information. My son tested positive for the

stealth virus he is also mercury toxic. CCID does give a protocol

for treating the stealth virus in the theraputic section of there

website.

nne

;

-- In @y..., " sallyjanerobinson "

<sallyjanerobinson@y...> wrote:

> My son, dx: autism, 4.5yr, has shown remarkable improvement on the

> antibiotic zithromax. He also took zithromax about a year ago and

> coincidentally he went from being nonverbal to identifying objects

in

> one day. I stored the information for future reference and sure

> enough this round of zithromax has been remarkable too. Amazingly

he

> shows no regression after the antibiotic is over. Also when on the

> antibiotic his stools have been completely firm(normally loose). I

> have searched the archives for this issue and found one other

family

> with this revelation. I'm wondering if it is safe to use this

> antibiotic in a low dose form? Should we do some sort of stool

check

> for bacteria? We are chelating with ALA. Should we do both?

Should

> he take probiotic at the same time? Any insights would be greatly

> appreciated. Sally

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  • 7 months later...

Hey guys, can somebody anwer a kinda silly question?

Is Zithromax the popular, Z-Pak????? If so, I will have to inform my dr NOT to

give me that anymore--and would be a no wonder why it never helps!

LeAnn & Blossom

Heart Bandits American Eskimo Dog Rescue

Railroad Coordinator

www.heartbandits.com

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  • 4 years later...

Zithromax has now gone generic, and it's really inexpensive if you buy it at

WalMart. I use the 500 mg. I usually need to take more than that every 30

days. I think it's under $50 for the 500's at WalMart.

emluv23@... wrote: Is anyone currently using Zithromax with or

instead of Minocin? My insurance

will only pay for 6 pills (250mg) every 30 days. I'm not sure how to spread

them out and if I should pay out of pocket to get more of them. 2 or 3 pills

per week maybe?

Thanks,

Emma

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Emma,

I've been taking Zithromax for 3 years now, after I developed a

sensitivity to Minocin and could no longer take it. I've been in

remission for 3 years, my labs have come back clean, no sign of RA - and

I take 250mgs of Zithro 3x/week as a maintenance dose. I found that my

body could tolerate it much better, plus it is a lot cheaper than

Minocin. If you have any questions, I'll be happy to answer them.

Ana in Alaska

emluv23@... wrote:

> Is anyone currently using Zithromax with or instead of Minocin? My

> insurance

> will only pay for 6 pills (250mg) every 30 days. I'm not sure how to

> spread

> them out and if I should pay out of pocket to get more of them. 2 or 3

> pills

> per week maybe?

>

> Thanks,

> Emma

>

>

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Try www.inhousepharmacy.com to get Zithromax.

rheumatic Zithromax

Is anyone currently using Zithromax with or instead of Minocin? My insurance

will only pay for 6 pills (250mg) every 30 days. I'm not sure how to spread

them out and if I should pay out of pocket to get more of them. 2 or 3 pills

per week maybe?

Thanks,

Emma

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Interesting discussion. I knew that some people were

taking erythomycin (sp), doxcycline, tetracycline as a

substitute, but this is the first time I heard of

someone taking zithromax as a substitute for minocin.

It would be interesting to know what other antibiotic

substitutes may exist and how people have responded to

them and any side effects.

--- Ana Willson <willson@...> wrote:

> Emma,

> I've been taking Zithromax for 3 years now, after I

> developed a

> sensitivity to Minocin and could no longer take it.

> I've been in

> remission for 3 years, my labs have come back clean,

> no sign of RA - and

> I take 250mgs of Zithro 3x/week as a maintenance

> dose. I found that my

> body could tolerate it much better, plus it is a lot

> cheaper than

> Minocin. If you have any questions, I'll be happy

> to answer them.

> Ana in Alaska

>

>

>

> emluv23@... wrote:

>

> > Is anyone currently using Zithromax with or

> instead of Minocin? My

> > insurance

> > will only pay for 6 pills (250mg) every 30 days.

> I'm not sure how to

> > spread

> > them out and if I should pay out of pocket to get

> more of them. 2 or 3

> > pills

> > per week maybe?

> >

> > Thanks,

> > Emma

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

>

>------------------------------------------------------------------------

> >

> >No virus found in this incoming message.

> >Checked by AVG Free Edition.

> >Version: 7.1.409 / Virus Database: 268.14.12/544 -

> Release Date: 11/21/2006

> >

> >

> >

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

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I have been using Zithromax since Dec of 2004 and it

has worked very well for my PM. I am down to one per

week and have maintained that level for the past 5

months. It is much cheaper and easier on your stomach.

--- Violet Flame 11 <violetflame11@...> wrote:

> Zithromax has now gone generic, and it's really

> inexpensive if you buy it at WalMart. I use the 500

> mg. I usually need to take more than that every 30

> days. I think it's under $50 for the 500's at

> WalMart.

>

> emluv23@... wrote: Is anyone currently

> using Zithromax with or instead of Minocin? My

> insurance

> will only pay for 6 pills (250mg) every 30 days. I'm

> not sure how to spread

> them out and if I should pay out of pocket to get

> more of them. 2 or 3 pills

> per week maybe?

>

> Thanks,

> Emma

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> The happiest people don't necessarily have the best

> of everything; they just make the best of everything

> they have.

>

>

> [Non-text portions of this message have been

> removed]

>

>

Robbin

________________________________________________________________________________\

____

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Access over 1 million songs.

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Hi Robin

I have polymiositis. I started to use Zithromax almost three months ago

and I noticed the difference immediately. I have to pay $53.00 dollars

for 8 tablets 250mg. The insurance will only let me buy 8 tablets every

two and a half weeks. I take 3 tablets a week. Do you use generic or

brand? Do you take 500 mg tablets? thanks

Talia

On Mon, 27 Nov 2006 14:12:14 -0800 (PST) Robbin

<whitewaterwitch42@...> writes:

I have been using Zithromax since Dec of 2004 and it

has worked very well for my PM. I am down to one per

week and have maintained that level for the past 5

months. It is much cheaper and easier on your stomach.

--- Violet Flame 11 <violetflame11@...> wrote:

> Zithromax has now gone generic, and it's really

> inexpensive if you buy it at WalMart. I use the 500

> mg. I usually need to take more than that every 30

> days. I think it's under $50 for the 500's at

> WalMart.

>

> emluv23@... wrote: Is anyone currently

> using Zithromax with or instead of Minocin? My

> insurance

> will only pay for 6 pills (250mg) every 30 days. I'm

> not sure how to spread

> them out and if I should pay out of pocket to get

> more of them. 2 or 3 pills

> per week maybe?

>

> Thanks,

> Emma

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> The happiest people don't necessarily have the best

> of everything; they just make the best of everything

> they have.

>

>

> [Non-text portions of this message have been

> removed]

>

>

Robbin

__________________________________________________________

Music Unlimited

Access over 1 million songs.

http://music./unlimited

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Yes I am using it for Polymyositis. I started with 250

mgs per day M, W and Fri. I contiued this until 6

months ago when I started to drop back to 2 days per

week and then to one per week. There were some set

back but so far so good.

Back in 2004 when first diagnosed I also took MSM,

Fisol (fish oil, and Quercetin. For the past 6 months

I have been able to discontinue all of those. I now

take Flax oil only. I also have a full body massage

every other week.

I have been in remission since May of 2005 with only a

few flares.

If you have any other questions please let me know.

--- REDDEROTH4 <REDDEROTH4@...> wrote:

> Hi,

> Are you using Zithromax for Polymyositis? My husband

> has had it since 2003 and I am curious about your

> treatment.

> Thanks.

> Barb R.

>

> [Non-text portions of this message have been

> removed]

>

>

Robbin

________________________________________________________________________________\

____

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  • 1 month later...

They gave it to my son and I stopped it immediately

I looked it up on the computer and it had a major warning and a place to

file lawsuits against this for the liver

I fear this drug

sherry

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I have no knowledge of this drug, other than seeing a few things on-line.

My guess is that many drugs are questioned in terms of their possible

negative effects on the liver.

I wonder about the possible negative effect of stopping any prescribed

antibiotic in mid-treatment. Have you spoken with your doctor about this? Is

another antibiotic being substituted?

Harper

In a message dated 1/16/07 6:06:00 AM, SOWeepee@... writes:

>

> They gave it to my son and I stopped it immediately

> I looked it up on the computer and it had a major warning and a place to

> file lawsuits against this for the liver

> I fear this drug

> sherry

>

>

>

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Thank you for all the comments. I realise that it is wise to be

careful about drawing conclusions. I did see the lawsuit info against

Pfizer but on the other hand, here in Finland and our websites in

Finnish, there is really no info that would specifically link disease

of the liver and this drug. Several of my family members & relatives

have different autoimmune diseases although no-one else has a liver

disease. I know that can be a unlucky coincidence that my son happened

to get sclerosing cholangitis and not some other autoimmune disease.

It was interesting to hear your comments on the drug, though. In

Finland the population is so small that, with the fact that the liver

diseases are so rare, we do not have so many people to ask from or

compare experiences with.

Taru-Mari

> We have to be careful drawing conclusions from antidotal evidence with

> medications. Although I recognize that any drug, because they are

all processed by

> the liver, can cause ill effect to some people, zithromax is widely

used and

> AIH is not a common disease. Yes, I have AIH and I have taken Zithro.

> However, my mother, both my children and other family members have

taken this

> common anitbiotic and have no liver disease reaction.

>

> Roxanne

>

>

>

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I had a bad reaction to augmentin (body rash) and they feel it triggered

autoimmune hepatits AIH I know these are not the same drug but the internet

clearly provides information of drugs causing liver damage

chrisnc06@...

CREE8V1@... wrote:

In a message dated 1/15/2007 3:11:40 P.M. Central Standard Time,

tarumaritalaslahti@... writes:

Have any of you been prescribed Zithromax before being diagnosed with

your liver disease? I hope not, it would put my mind at ease. But if

you have, or if you know of someone who has taken this medication, it

would be interesting to hear about it.

We have to be careful drawing conclusions from antidotal evidence with

medications. Although I recognize that any drug, because they are all processed

by

the liver, can cause ill effect to some people, zithromax is widely used and

AIH is not a common disease. Yes, I have AIH and I have taken Zithro.

However, my mother, both my children and other family members have taken this

common anitbiotic and have no liver disease reaction.

Roxanne

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> My primary care has given me things & told me to run it by my

Nurse Coordinator at the Gastroenterologist's office before having

> the Rx filled.

Great to hear that . Always the best thing to do.

Zithromax is in the Erythromycin family, and none of these

are particularly liver friendly. It's an easy, quick treatment

that is very effective for many conditions, but there are

better antibiotics for liver patients to take. My hep hates it.

Jeannette

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Hi ,

Nowadays, after the liver disease diagnosis, my son has only been

prescibed Amoxicillin and even that rather rarely. He was only

prescibed Zithromax before he got sick at the age of 6 (that is why I

was wondering if there was a connection). I think he may not have had

Zithromax for about six months or a year before the diagnosis (I have

not checked). But who knows how long it took for him to develop the

first cholangitis. There is no way of knowing so I guess I should not

trouble myself with it, especially given that not everybody who has

taken Zithromax got a liver disease... Nowadays all the doctors taking

care of him either know or I tell them about his liver condition so he

only gets 'safe' drugs (if there is such a thing).

Taru-Mari

>

> If I still had young children, I'd probably discuss family hx.of PBC

& question the use of this drug. And for myself, each of my Docs are

aware of my diagnosis & I believe that they keep this in mind. I saw

my ENT a couple of days ago for a sinus & ear infection and he

prescribed Amoxicillin because it's kinder to the liver. My primary

care has given me things & told me to run it by my Nurse Coordinator

at the Gastroenterologist's office before having

> the Rx filled.

>

>

>

>

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  • 1 year later...

Dear Dory,

I seem to recall that Zithromax and the whole family of those drugs are on

the list of drugs that we are not to take on Gleevec. Perhaps even on Sprycel.

When I had a lung infection, I showed my doctor the list of drugs I couldn't

take and he threw up his hands and called MDACC and said he didn't know how to

treat me and then called me and said the same thing. I think Zithromax was one

of them. Here is the official web site, but I didn't see what drugs are on the

list.

http://www.gleevec.com/info/ag/SideSafety.jsp?site=google & irmasrc=GLIWB0067 & sour\

ce=01030 & campaign=PKW-gleevec

Does anyone still have their list of forbidden drugs on Gleevec to help Dory

out? My research nurse added star fruit to my list on ski.

Blessings,

Lottie

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  • 4 months later...

Hi,

 

My son has been on Zithromax for 3 days now and Biaxin before this switch 7

days.....Ery-ped even prior...typically I thought he did well on Biaxin in the

past. We went on these meds because he had a cough, stuffiness, fever etc...not

noticing those symptoms now.  He appears to be a lot better. My question is his

behavior is really regressed...He is yelling, dwelling on things that mean

nothing, extremely irritable, falling to the ground when things don't go his

way, he is not himself at all.  He is verbal, in typical preschool

independently, no other therapies. Lately he has just come apart. Anybody with

this experience, or any advice.  I really don't understand the huge regression.

He is also very emotional...extremely emotional.

 

Thanks for any help,

 

 Sincerely Noel

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