[TreatingAutism-Biomedical]Moira/was: Re: Long - Mandi's Memory of Hg Protocol changes

[Guest guest]

>

> No, it was not Buttar, who is even more self-important than most

of the drs. I have to watch my pronouns:)

>

> It was JB Handley,

oh, okay.

> he started generation rescue, and has a 3 year old, maybe 4 now,

who has autism.

yeah, I know who he is, nice of you to explain tho.

> He wrote a post on ck2 with the heading " What if Andy Cutler is

right? " Pretty gutsy. Also another self-important man, but to give

him lots of credit, he doesn't care who is right, just wants to see

his kid get better. So, likes his kid more than he dislikes Andy.

Good dad, in my book.

>

> He went on to outline in the post the diffs between Buttar's

protocol and Andy's. Ended up saying he doubted both could be

correct, and although his son had improved on Buttar's protocol, he

was still autistic, so he was going to try Andy's protocol. I hope

it isn't too late, and I hope the kid does marvelously on it, and I

hope he posts it.

I hope it goes well, for the sake of his kid. Also after

reading quotes of Handley in an article recently, well, he

seems to have TOTAL and complete belief that chelation

cures all, and, I dunno, just seems like kind of a setup

for disappointment.

>

> Also, yes, did hear on ck2 the deal about chelating without a dr.

But somehow the docs can do things like IV's weekly (and that is

only one of the many, many examples of damage I have heard others

post docs have done), and do the damage, (the mother reported her

child's speech was now garbled, ugh!!! can't say how sick to the

stomach this makes me) and Anagram will say, It's not permanent!!! I

don't know where she got her med degree. So, is okay if you listen

to a doc who damages your kid, honestly, what are they thinking??

I think what they are thinking is something many people think,

but hard for me to explain. It's like an underlying belief in

deference to degrees and authority. And some of us just don't

have that.

Believe me, in the " Dr. Amy days " it showed up

there too. Or maybe that is something a little different.

Some of the moms seeing Dr. Amy were quite quick to

interpret any disagreement with Dr Amy as an attack on

her (or themselves? or some other principle???)

I found it very constraining. I loved Dr Amy, still do,

think she was wonderful -- but was forever having to SAY

SO because everything would be interpreted as a threat to

her (or something like this, I don't know). Of course, no

amount of saying " oh and by the way, I think Dr Amy is truely

great " actually helped, LOL. This was prior to the split

when the CK2 group started, and also is part of what led

to it.

And let me say, again, I adored Dr Amy's work -- I just

felt no one ever heard that. If you ever said one word

in disagreement, that was it.

I got slammed pretty badly a couple of times, even though

my policy was to generally say very little about it, since

I didn't even want to MISTAKENLY be taken as " anti Amy " .

Jeez, she was wonderful. I still have a video of her

at some conference.

So, it was constraining, and difficult.

Just as right now it is very difficult

to say ANYTHING AT ALL about TD applications or

dosing schedules, let alone about Buttar,

without being misinterpreted all over the place.

Frustrating, and likely to stay this way

Maybe I'd better find a soapbox around here somewhere!

> And everyone will support that, but want to kill Andy for what he

says? Does anybody not see the logic is totally whacky here? And we

all go on acting like all this is normal.

>

> Didn't mean Andy was ousted from ck2 group, but from the

community. Although, Anita saw on Jb's site that Andy is listed

among the big players, although last on the list, and his book also.

I think, but please correct me if I am wrong, this is a recent

development.

Mandi is correct, it was always there. In fact, when the

Generation Rescue site was new, someone (maybe someone from

GR?) posted on A-M aobut Andy being listed there. At that

time, some of the info about him was inaccurate, so I wrote

them and asked them to fix it, which they did.

There is also a link to my hair test page somewhere on their

" how to get help " pages.

>

> Also, everyone please refrain from speaking anywhere of the JB

post, as although talking about it is not forbidden, he did ask that

the post not be forwarded. I think it is prudent to respect his

wishes.

good to know.

Moria