Re: LDN users advice please?

[Guest guest]

In a message dated 16/02/2006 14:09:21 GMT Standard Time, gail@... writes:

I really don't want to stop LDN but would be easier if I knew that this is 'just a phase'. Tried posting on LDN group but no replies - am sure Tom cannot be only one.

>>>you might be able to swing things by adjusting the TIME you gove the dose - what are you doing now?

Mandi x

[Guest guest]

In a message dated 16/02/2006 14:22:31 GMT Standard Time, gail@... writes:

currently give it between 9-10pm. Tried at 11pm couldn't see any difference (and I was too tired to stay up any later LOL).

>>Oh bless, the long term LDN users say to give between 11.00pm and 3.00am. Could you go to bed earlier and set the alarm to get up and apply at say 1.30am? I think its worth a shot - ABA is so expensive shame to waste it LOL

MAndi x

[Guest guest]

I currently give it between 9-10pm. Tried at 11pm couldn't see any

difference (and I was too tired to stay up any later LOL).

Gail

>

>

> In a message dated 16/02/2006 14:09:21 GMT Standard Time,

gail@...

> writes:

>

> I really don't want to stop LDN but

> would be easier if I knew that this is 'just a phase'. Tried

posting

> on LDN group but no replies - am sure Tom cannot be only one.

>

>

>

> >>>you might be able to swing things by adjusting the TIME you

gove the dose

> - what are you doing now?

>

> Mandi x

>

[Guest guest]

Mandi you are a mine of info! How do you do it?

Yep, can certainly give it a go -just what I need more night time

getting up! ;-) I read up on Dr JMc site, it only said give between

9-12pm. So thought I was doing ok. How does this stuff work with

circadian rythmn (sp???) anyhow?

Thanks

Gail

>

>

> In a message dated 16/02/2006 14:22:31 GMT Standard Time,

gail@...

> writes:

>

> currently give it between 9-10pm. Tried at 11pm couldn't see

any

> difference (and I was too tired to stay up any later LOL).

>

>

>

> >>Oh bless, the long term LDN users say to give between 11.00pm

and 3.00am.

> Could you go to bed earlier and set the alarm to get up and apply

at say

> 1.30am? I think its worth a shot - ABA is so expensive shame to

waste it LOL

>

> MAndi x

>

[Guest guest]

Hi Gail,

We are LDN users and I can tell you that we also saw a child that was

more tired that usual (and we also had tantrums- new to us), but all

these seem to be going away. We initially went from 5 lines to 3 lines

and saw no differences so we are back to the full dose.

It's funny you mentioned that the therapits' team were complaining

about it.We had complain after complain ... but I can't tell you what

I really think about these complains :-) We have pushed through and I

think that we won't regret it. So far we have seen how much it is

helping with language: better pronunciation, longer syllabus words,

and a few spontaneoulsy two and three words, mostly imitating chunks,

but I am going with that! I wish I knew how LDN can related to language.

> >

> >

> > In a message dated 16/02/2006 14:09:21 GMT Standard Time,

> gail@

> > writes:

> >

> > I really don't want to stop LDN but

> > would be easier if I knew that this is 'just a phase'. Tried

> posting

> > on LDN group but no replies - am sure Tom cannot be only one.

> >

> >

> >

> > >>>you might be able to swing things by adjusting the TIME you

> gove the dose

> > - what are you doing now?

> >

> > Mandi x

> >

>

[Guest guest]

Thank you!! There is hope.... :-) I feel the same about the

complaints!! It just wears me down.

Same sorts of improvements for us - definitely better

articulation,more phrases- today I was blocking Tom's way and he

said 'move out the way Mum' (!!! I was gobbsmacked!) and he is also

copying more - not just language but also actions. So lots of good

things happening - its just the tiredness we need to see improve.

What time areyou applying the LDN? How long did it take for

tiredness to improve? (Sorry to ask all these questions)

Gail

> > >

> > >

> > > In a message dated 16/02/2006 14:09:21 GMT Standard Time,

> > gail@

> > > writes:

> > >

> > > I really don't want to stop LDN but

> > > would be easier if I knew that this is 'just a phase'. Tried

> > posting

> > > on LDN group but no replies - am sure Tom cannot be only one.

> > >

> > >

> > >

> > > >>>you might be able to swing things by adjusting the TIME

you

> > gove the dose

> > > - what are you doing now?

> > >

> > > Mandi x

> > >

> >

>

[Guest guest]

Hi Gail,

Interesting! So your son is doing better with language as well. Great!

We (I should say my husband) applies LDN at 11.00 pm every day. Our

son is already deep sleep and does not wake up with the application.

We have been on LDN for almost a month now, and I believe that

tantrums, difficult transitions and tiredness are " fading away " just now.

Hope this helps,

> > > >

> > > >

> > > > In a message dated 16/02/2006 14:09:21 GMT Standard Time,

> > > gail@

> > > > writes:

> > > >

> > > > I really don't want to stop LDN but

> > > > would be easier if I knew that this is 'just a phase'. Tried

> > > posting

> > > > on LDN group but no replies - am sure Tom cannot be only one.

> > > >

> > > >

> > > >

> > > > >>>you might be able to swing things by adjusting the TIME

> you

> > > gove the dose

> > > > - what are you doing now?

> > > >

> > > > Mandi x

> > > >

> > >

> >

>

[Guest guest]

Really excited for you. Our only side effect with LDN was lost

appetite. DO you think perhaps your Tom is just knackered through

new activity? If there hasn't been much speach and now there is,

perhaps that's tiring? If you're getting language I wouldn't change

whatever it is you're doing.

> > > >

> > > >

> > > > In a message dated 16/02/2006 14:09:21 GMT Standard Time,

> > > gail@

> > > > writes:

> > > >

> > > > I really don't want to stop LDN but

> > > > would be easier if I knew that this is 'just a phase'.

Tried

> > > posting

> > > > on LDN group but no replies - am sure Tom cannot be only

one.

> > > >

> > > >

> > > >

> > > > >>>you might be able to swing things by adjusting the TIME

> you

> > > gove the dose

> > > > - what are you doing now?

> > > >

> > > > Mandi x

> > > >

> > >

> >

>

[Guest guest]

Hi Gail

Just to add that we went through the same sort of things, both

nursery and Annie's ABA tutor's gave negative feedback. We had major

tantrums/lethargy/lack of attending to task etc. Things have really

settled down now, I would say it took 4 difficult weeks. Appropriate

language and overall mood have greatly improved.

(We apply at 11pm.)

Loraine

> > > >

> > > >

> > > > In a message dated 16/02/2006 14:09:21 GMT Standard Time,

> > > gail@

> > > > writes:

> > > >

> > > > I really don't want to stop LDN but

> > > > would be easier if I knew that this is 'just a phase'.

Tried

> > > posting

> > > > on LDN group but no replies - am sure Tom cannot be only

one.

> > > >

> > > >

> > > >

> > > > >>>you might be able to swing things by adjusting the TIME

> you

> > > gove the dose

> > > > - what are you doing now?

> > > >

> > > > Mandi x

> > > >

> > >

> >

>

[Guest guest]

Thanks - it certainly helps to hear of others experience. Am going

to stick this out then and see how Tom goes.

Gail

> > > > >

> > > > >

> > > > > In a message dated 16/02/2006 14:09:21 GMT Standard Time,

> > > > gail@

> > > > > writes:

> > > > >

> > > > > I really don't want to stop LDN but

> > > > > would be easier if I knew that this is 'just a phase'.

> Tried

> > > > posting

> > > > > on LDN group but no replies - am sure Tom cannot be only

> one.

> > > > >

> > > > >

> > > > >

> > > > > >>>you might be able to swing things by adjusting the TIME

> > you

> > > > gove the dose

> > > > > - what are you doing now?

> > > > >

> > > > > Mandi x

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi

We've been using LDN since October, using the time frame given by

McCandless, seeing lots of good things.

HTH

Anne-Marie

[Guest guest]

Hi we tried LDN .

1/2/3 lines nothing.

5 line rec dose we got a fever ..over 100 degrees. Runny nose.

It lasted 6 days and despite being told to keep going 6 days was

enough for me.

Darryl is viral kid so it probably woke up some dormant virus.

We didnt give him anything for fever hoping it would run its course

but it didnt/

After we stopped within a day or so fever went and runny nose ran

off.

We had some subtle gains with speach..and bit more social.

But no woweees

Then we went back to one line and he was ok.

I then went to 1 1/2 maybe 2 one night because when I applied it he

rolled over and I though it had come off so added a but more.

He has now got a viral infection - swollen glands in his neck.

and off school for another week !

So my message is that this stuff is not for messing with.

Its in a trial and nobody really knows the exact dose for each child

thats in debate.

If its job is to activate the immune system and regulate it ...well

its certainly done that ! and I just hope that when we get through

this we will see better gains.

I keep plodding along...preparing him to start chelation and the fun

and games that is going to bring !

Joanne

> > > > > >

> > > > > >

> > > > > > In a message dated 16/02/2006 14:09:21 GMT Standard

Time,

> > > > > gail@

> > > > > > writes:

> > > > > >

> > > > > > I really don't want to stop LDN but

> > > > > > would be easier if I knew that this is 'just a phase'.

> > Tried

> > > > > posting

> > > > > > on LDN group but no replies - am sure Tom cannot be

only

> > one.

> > > > > >

> > > > > >

> > > > > >

> > > > > > >>>you might be able to swing things by adjusting the

TIME

> > > you

> > > > > gove the dose

> > > > > > - what are you doing now?

> > > > > >

> > > > > > Mandi x

> > > > > >

> > > > >

> > > >

> > >

> >

>