Re: Who will be the first to start an Autism H...

[Guest guest]

In a message dated 18/01/2006 17:00:05 GMT Standard Time, peta_catherine@... writes:

We have done 24 hours so far and he is more accepting of it now - last night he said "I like the tank" which I thought was pretty good. Andy is very good at calming him down - I don't think I would be as good.

>>>This is wonderful news! Does he have to wear a hood? That was what drove Sam batty and me to gve up.................

Mandi x

[Guest guest]

Hi Mandi, no he doesn't wear a hood. In the Staes there was a hose

which Andy held near his nose. The tank over here has 100% oxygen

and the dive goes to 24ft.

Peta-

-- In Autism Treatment , Mum231ASD@a... wrote:

>

>

> In a message dated 18/01/2006 17:00:05 GMT Standard Time,

> peta_catherine@y... writes:

>

> We have done 24 hours so far and he is more accepting of

> it now - last night he said " I like the tank " which I thought was

> pretty good. Andy is very good at calming him down - I don't

think I

> would be as good.

>

>

>

> >>>This is wonderful news! Does he have to wear a hood? That was

what drove

> Sam batty and me to gve up.................

>

> Mandi x

>

[Guest guest]

Hi Peta

Is that an air and oxygen chamber with oxygen being breathed via a

mask that you wear over your nose and mouth or an oxygen chamber

where you dont wear a hood or a mask?

I thought 100% oxygen tanks were not licensed for the UK because of

safety problems?

Zoe

> >

> >

> > In a message dated 18/01/2006 17:00:05 GMT Standard Time,

> > peta_catherine@y... writes:

> >

> > We have done 24 hours so far and he is more accepting of

> > it now - last night he said " I like the tank " which I thought

was

> > pretty good. Andy is very good at calming him down - I don't

> think I

> > would be as good.

> >

> >

> >

> > >>>This is wonderful news! Does he have to wear a hood? That

was

> what drove

> > Sam batty and me to gve up.................

> >

> > Mandi x

> >

>

[Guest guest]

Hi Zoe, it's an oxygen chamber where you don't wear a hood or a

mask. The one we use is in East Grinstead - they mainly treat

cerebral palsy children and stroke victims.

What safety issues do you mean?

Peta-

-- In Autism Treatment , " Zoe "

<zoe@t...> wrote:

>

> Hi Peta

>

> Is that an air and oxygen chamber with oxygen being breathed via a

> mask that you wear over your nose and mouth or an oxygen chamber

> where you dont wear a hood or a mask?

>

> I thought 100% oxygen tanks were not licensed for the UK because

of

> safety problems?

>

> Zoe

>

>

> > >

> > >

> > > In a message dated 18/01/2006 17:00:05 GMT Standard Time,

> > > peta_catherine@y... writes:

> > >

> > > We have done 24 hours so far and he is more accepting of

> > > it now - last night he said " I like the tank " which I thought

> was

> > > pretty good. Andy is very good at calming him down - I don't

> > think I

> > > would be as good.

> > >

> > >

> > >

> > > >>>This is wonderful news! Does he have to wear a hood? That

> was

> > what drove

> > > Sam batty and me to gve up.................

> > >

> > > Mandi x

> > >

> >

>

[Guest guest]

In a message dated 22/01/2006 15:58:11 GMT Standard Time, moriam@... writes:

Well, I'm curious as to what the problems are with using HBOTin the existing centers? Do they not take kids?You folks in the UK (I'm in the US) already have the bestthing going for HBOT (you realize this, I hope???)

The majority of the centres are non profit and set up for MS. Some of them also do kids with CP but in most places ASD is new

In 2000 they made all 'care centres' jump through hoops for the Care Standards Commission. Thsi meant many of the little centre that USED to treat kids often now don't because they don't have the approval for under 18's.

What they require to give approval is actually very simple (was not readily apparent in 2000), but after the first reguistration they want £900+ for a variation in your approval. Its too much for many little centres

Mandi x

[Guest guest]

In a message dated 22/01/2006 15:58:11 GMT Standard Time, moriam@... writes:

You folks in the UK (I'm in the US) already have the bestthing going for HBOT (you realize this, I hope???)

>>>Just wnated to say our local hospital will call the centre in town and trransfer peeps with CO2 poisoning for an immediate dive on the NHS. Don't know if other Health Authorities around the country do this. I only know because I used to work for the medical directors of the town centre chamber................

MAndi x

[Guest guest]

>

>

> In a message dated 22/01/2006 15:58:11 GMT Standard Time,

> moriam@e... writes:

>

> Well, I'm curious as to what the problems are with using HBOT

> in the existing centers? Do they not take kids?

> You folks in the UK (I'm in the US) already have the best

> thing going for HBOT (you realize this, I hope???)

>

>

>

> The majority of the centres are non profit and set up for MS. Some

of them

> also do kids with CP but in most places ASD is new

Well, yeah, but is it the " kid " part that they have an issue

with?

>

> In 2000 they made all 'care centres' jump through hoops for the

Care

> Standards Commission. Thsi meant many of the little centre that

USED to treat kids

> often now don't because they don't have the approval for under

18's.

So, okay, it is the age. I was thinking this might be it, rather

than the DX. I've asked someone about whether I can get HBOT in

the UK as a visitor with no dx, and am told the answer is YES.

> What they require to give approval is actually very simple (was

not readily

> apparent in 2000), but after the first reguistration they want

£900+ for a

> variation in your approval. Its too much for many little centres

oh, like each office/center has to pay this? Is it a one time

fee Or every year? Maybe this fee is where all the organizing

efforts need to be directed..... either changing it or collecting

money to pay it for ALL the centers... ??

Or, I suppose in the meantime, just keeping track of which

centers are the ones that will treat kids or will not.

thanks,

Moria

[Guest guest]

Hi Peta

The safety issues I am referring to relate to the flammability of

the oxygen.

I went to visit the Trafford MS Centre's HBOT chamber recently and

was told that the MS centres don't use oxygen chambers because of

the danger of combustion if anyone mistakenly takes a flammable item

into the chamber (a really bad accident happened in Italy in one of

these chambers apparently).

MS centres use air and oxygen chambers where a mask is worn, to

avoid this problem. What organisation runs the East Grinstead HBOT?

Zoe x

> > > >

> > > >

> > > > In a message dated 18/01/2006 17:00:05 GMT Standard Time,

> > > > peta_catherine@y... writes:

> > > >

> > > > We have done 24 hours so far and he is more accepting of

> > > > it now - last night he said " I like the tank " which I

thought

> > was

> > > > pretty good. Andy is very good at calming him down - I

don't

> > > think I

> > > > would be as good.

> > > >

> > > >

> > > >

> > > > >>>This is wonderful news! Does he have to wear a hood? That

> > was

> > > what drove

> > > > Sam batty and me to gve up.................

> > > >

> > > > Mandi x

> > > >

> > >

> >

>

[Guest guest]

In a message dated 25/01/2006 10:09:51 GMT Standard Time, zoe@... writes:

I went to visit the Trafford MS Centre's HBOT chamber recently and was told that the MS centres don't use oxygen chambers because of the danger of combustion if anyone mistakenly takes a flammable item into the chamber (a really bad accident happened in Italy in one of these chambers apparently).

>>>They had masks and hoods at Sussex - both of which had exhaust tubes to carry it away so it didn't build up in the chamber.

Mandi x