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Re: DLA - autism

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Dont forget that in addition to applying for a blue badge you are entitled to contact DVLA to receive your free car tax disc if you are receiving the higher rate of mobility allowance.

Be warned though, we have just lost ours and had our daily rate reduced now is eight on review. Lost £200 a month, the blue badge and the tax disc. Ouch! Had good use of them for 4 years though.

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In a message dated 20/02/2006 23:15:14 GMT Standard Time, Thorpeheather@... writes:

Dont forget that in addition to applying for a blue badge you are entitled to contact DVLA to receive your free car tax disc if you are receiving the higher rate of mobility allowance.

>>>Dh says you can only get this if its for the sole purpose of the claimant. Damn, that £105 was looking good there for as long as it took me to tell DH lol

Mandi x

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Partly but I blame the reports from the school and health practioners which were not requested last time around. Lets face it, they hardly have enough time to devote to teaching our kids let alone filling in complex forms they are not used to!

Mandi, we had the tax disc. My understanding is that as long as the vehicle is used by an adult on behalf of the child for shopping on their behalf, taking them places etc there is no problem. From what I remember we just had to send details of the DLA mobility award along with a form and vehcile details. There were never any further checks made in all the time we had it.

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In a message dated 20/02/2006 23:34:22 GMT Standard Time, Thorpeheather@... writes:

Mandi, we had the tax disc. My understanding is that as long as the vehicle is used by an adult on behalf of the child for shopping on their behalf, taking them places etc there is no problem. From what I remember we just had to send details of the DLA mobility award along with a form and vehcile details. There were never any further checks made in all the time we had it.

>>>>Ok Thanks awfully - - will forward this to - never heard of anyone getting this before. Wonder if we can get refund ont he one we just bought?

Mandi x

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In a message dated 21/02/2006 00:02:10 GMT Standard Time, MaddiganV@... writes:

LOL Mandi we have the tax disc also, if I put that with high rate at age 3 and a half do you think they give preference to seasoned pains in the backside lol.

>>>We need you to run a seminar for us :)

Mandi x

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Just to add to the list, we get higher rate DLA and lower rate

mobility. I decided against applying to local authority for a blue

badge as we do son rise full time at home so apart from once a week to

gym club Joe doesn't really go anywhere where we could use a disabled

parking space. My understanding is also that it is the night waking

that incurs the higher rate. The mobility was granted on appeal,

originally they said Joe didn't need any more care than his peers when

walking outside, not true. He was 6 when we got this, also 6 when we

got higher rate DLA instead of middle - at first review.

We have been awarded 6 hrs per week direct payments,recruiting now,

can't believe the response I have sent out 17 application forms! This

was granted on appeal, original award was 1 hr per week. Our local

authority pay £10.45 per hour.

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Perfect - thank you - very helpful!!!

DLA - autism

> jumping in here, this was very useful for us when filling in and

> wording the DLA form:

>

> http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=300 & a=3330

>

>

>

>

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

advice. If you need medical advice, please seek it from a suitably qualified

practitioner.

>

>

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>

> What can direct payments be used for?

Hi Nic,

As Mandi says it is officially for respite care.

Our original award was 1 hr per week so that we could take our other

son out somewhere (for an hour???) while Joe stayed at home with a

carer. Then my other boy started school and accompanying us on the

school run was Joe's worst nightmare, lots of noise and busy

playground, getting in of the car and out and in and out, and if

he'd had a bad night I'd have to wake him up to take him. I asked

for a review and social services agreed I could have an extra 1 hr

per school day so that he could stay home while I take Sam to

school. Social Services know the carer will be taking part in his

son rise programme but it is a care situation as well as they would

have charge of him while I do the school run. Although the award is

for £10.45 that is quite high, even for round here, so we have

advertised for someone for 2 hours per day at £8 p.h. and will make

up the difference. Just think how nice it will be for me to be able

to get back from school and spend an hour clearing up the house

before going in the playroom without a little helper demolishing in

my wake!

Good luck

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In a message dated 21/02/2006 10:09:31 GMT Standard Time, sallygeorge@... writes:

Hi Mandi, yes we get the free tax disc too. on is higher rate DLA and Mobility. They give you a form for about 5 years and you just get it stamped at the post office when you renew the tax disc. It is my car, but the car that on always travels in when he needs to go anywhere. He also gets transport to school and back in a taxi with a escort.

>>>It was Dh's first job of the day - they are sending the form having given him the run around. Worth the effort for £105. Task 2 get us another wheelie bin - they have just cut our collection to once every 2 weeks. They won't take half the stuff that CAN be recycled because its not profitable. Curretnly he gets up early on collection day and puts our excess in any bin in the street with room in LOL

Mandi x

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You can get the extra large wheelie bin if you have a disabled person at home, a fight as usual, but well worth it, we are also every two weeks alternating with the recycle bin.

Vicky

xx

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This is the one, and only (LOL), time that I have found the NAS

website useful. They havve lots of info there re higher rate DLA

both care and mobility - including the actual wording that the DLA

use to judge each case.

I am in the process of going to tribunal to get the higher rate for

mobility - I have it for care. For care - you must show a need for

care/supervision during day AND night - and it must be quite often.

For mobility there are a few disciptions, including cannot walk

distances or refusal to do so and severe mental impairment causing

severe behavioural issues which could prove a danger to themselves

or others (early in the morning but I think that's about right).

The tax disc and blue badge should be given automatically to anyone

receiving higher rate DLA. The blue badge can be given on a

discretionary basis by your Council - we got refused (grrrr!)

Hope this helps someone

luv

Jacqui

>

>

> In a message dated 21/02/2006 00:02:10 GMT Standard Time,

MaddiganV@...

> writes:

>

> LOL Mandi we have the tax disc also, if I put that with high rate

at age 3

> and a half do you think they give preference to seasoned pains in

the backside

> lol.

>

>

>

> >>>We need you to run a seminar for us :)

>

> Mandi x

>

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Sorry - just realised Mandi did all this - told you it was too early

for me!!

> >

> >

> > In a message dated 21/02/2006 00:02:10 GMT Standard Time,

> MaddiganV@

> > writes:

> >

> > LOL Mandi we have the tax disc also, if I put that with high

rate

> at age 3

> > and a half do you think they give preference to seasoned pains

in

> the backside

> > lol.

> >

> >

> >

> > >>>We need you to run a seminar for us :)

> >

> > Mandi x

> >

>

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Hi Jacqui

Good luck with tribunal.

They will try and make you withdraw the case before the date.

Dont be put off.

They will use dirty tricks like your whole benefits will be looked

at again etc.

The best one to go for for high rate mobility is..

SMI Rule - Severlerly mentally impaired - AUTISM !

BUT

you must be able also prove / show severe behavioural problems as

well/

Ideal if you have reports with this kind of wording.

I did have this so we were ok but would have resorted to taking

video footage on a portable DVD player if required.

If you have high rate care and can prove the 2 above then it

shouldnt be a problem.

Blue badge is discretionary by local council.

Joanne

> >

> >

> > In a message dated 21/02/2006 00:02:10 GMT Standard Time,

> MaddiganV@

> > writes:

> >

> > LOL Mandi we have the tax disc also, if I put that with high

rate

> at age 3

> > and a half do you think they give preference to seasoned pains

in

> the backside

> > lol.

> >

> >

> >

> > >>>We need you to run a seminar for us :)

> >

> > Mandi x

> >

>

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Thanks Joanne

Yep - they tried that one already and, boy are they SLOWWWWWW at

getting stuff to you. I'm sure they are now trying to bore me out

of doing it!!!

Jacqui

> > >

> > >

> > > In a message dated 21/02/2006 00:02:10 GMT Standard Time,

> > MaddiganV@

> > > writes:

> > >

> > > LOL Mandi we have the tax disc also, if I put that with high

> rate

> > at age 3

> > > and a half do you think they give preference to seasoned pains

> in

> > the backside

> > > lol.

> > >

> > >

> > >

> > > >>>We need you to run a seminar for us :)

> > >

> > > Mandi x

> > >

> >

>

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Swatting at flies in the summer?? New game - 101 uses for your blue

badge (LOL)

Jacqui X

>

>

> In a message dated 21/02/2006 08:20:39 GMT Standard Time,

> jacqui@... writes:

>

> The tax disc and blue badge should be given automatically to anyone

> receiving higher rate DLA. The blue badge can be given on a

> discretionary basis by your Council - we got refused (grrrr!)

>

>

>

> >>>But local Council HAVE to give it when you get the higher rate.

Not that

> it is much use for anythign other than supermarket or B & Q

>

> Mandi x

>

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Hi Mandi, yes we get the free tax disc

too. on is higher rate DLA and

Mobility. They give you a form for about 5 years and you just get it

stamped at the post office when you renew the tax disc. It is my car, but

the car that on always travels in when

he needs to go anywhere. He also gets transport to school and back

in a taxi with a escort.

Sally

From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of Mum231ASD@...

Sent: Monday, February 20, 2006

11:55 PM

Autism Treatment

Subject: Re:

DLA - autism

In a message dated 20/02/2006 23:34:22

GMT Standard Time, Thorpeheather@... writes:

Mandi, we had the tax disc. My

understanding is that as long as the vehicle is used by an adult on behalf of

the child for shopping on their behalf, taking them places etc there is no

problem. From what I remember we just had to send details of the DLA mobility

award along with a form and vehcile details. There were never any

further checks made in all the time we had it.

>>>>Ok Thanks awfully - -

will forward this to - never heard of anyone getting this before. Wonder

if we can get refund ont he one we just bought?

Mandi x

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Blue badge uses

1) Chopping up a line of drugs (supplements).

2) Using it as a missile to throw at SBC

3) A handy bookmark for children with starving brains.

Always inserted in page 3 cos you cant get past there

cos you are so tired you have fallen asleep

4) An emergency ice scraper

Then there is the things it really comes in handy for

a) Finding a car parking space at a hospital

B) Parking close to something so that when your kid decides they are

not walking you dont have to give them a firemans lift for 1 mile

whilst holding the hand of your other toddler who may or may not

decide to walk whilst carrying a rucksack of gf/cf food for the

next 12 hours on your back..a bum bag on the front full of

supplements.. a mobile in case of emergency and there always is

one...a change of clothes for when they decide to jump in a lake or

soil themselves.. 1 thomas the tank engine train and at least 2 of

his mates in your pocket ..cos they wont put them in their's..

1 carrier bag to put all the rubbish in...a deoderant for when you

get a sweat on..and portable dvd player or console..just in case you

get stranded .. First aid kit strapped to you leg like angelina

jolie...and not forgetting loose change - making sure all coins are

catered for the moment the decide they want to go stop off at

supermarket and you need a £1 for the trolley ...or 10p for a wee..

Oh and not forgetting Treating autism wristband just in case you

need to make people aware your child actually has autism.

and a leaflet explaining what autism is..

> >

> >

> > In a message dated 21/02/2006 08:20:39 GMT Standard Time,

> > jacqui@ writes:

> >

> > The tax disc and blue badge should be given automatically to

anyone

> > receiving higher rate DLA. The blue badge can be given on a

> > discretionary basis by your Council - we got refused (grrrr!)

> >

> >

> >

> > >>>But local Council HAVE to give it when you get the higher

rate.

> Not that

> > it is much use for anythign other than supermarket or B & Q

> >

> > Mandi x

> >

>

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In a message dated 21/02/2006 15:47:40 GMT Standard Time, Thorpeheather@... writes:

Why do you say the blue badge is not much good? I saved a fortune in parking fees over the years.

>>>ah buts that because you had the free tax disc. I'm a gonna get me one now :)

Mandi x

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so, travelling light again Joanne? I think the Angelina Jolie image

is the one to cling to - we're not overburdened, knackered and

stressed no, we're Lara Croft. Slightly less bee stung in the lip

department and no longer as bendy but it works for me.

Do you think DLA would fund trained Sherpas to help us?? We went to

a farm on Sunday (£18). My pockets stuffed with gf bread sticks and

water, leaflets, chewy toys and then with bird food for farm. Then

Tom decided he wanted to leave NOW and it was a close run thing that

I didn't feed him the (non gf) bird food to calm him down.

Tweet tweet.

> > >

> > >

> > > In a message dated 21/02/2006 08:20:39 GMT Standard Time,

> > > jacqui@ writes:

> > >

> > > The tax disc and blue badge should be given automatically to

> anyone

> > > receiving higher rate DLA. The blue badge can be given on a

> > > discretionary basis by your Council - we got refused (grrrr!)

> > >

> > >

> > >

> > > >>>But local Council HAVE to give it when you get the higher

> rate.

> > Not that

> > > it is much use for anythign other than supermarket or B & Q

> > >

> > > Mandi x

> > >

> >

>

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I think you still have to apply for it, nothing seems to be

automatic!

> >

> > In a message dated 21/02/2006 08:20:39 GMT Standard Time,

> > jacqui@... writes:

> >

> > The tax disc and blue badge should be given automatically to

anyone

> > receiving higher rate DLA. The blue badge can be given on a

> > discretionary basis by your Council - we got refused (grrrr!)

> >

> > >>>But local Council HAVE to give it when you get the higher

rate. Not

> > that it is much use for anythign other than supermarket or B & Q

> >

> > Mandi x

> >

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as

medical

> > advice. If you need medical advice, please seek it from a

suitably qualified

> > practitioner.

> >

> >

> >

> >

> >

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Yes, you have to apply seperatly because the blue badge is a local

council thing...we also have a bus pass scheme here. You have to

phone your local council to send you a form. All you need is a photo

and proof of getting the higher rate mobility allowance.

Once you have the badge you are entitled to free parking in council

car parks etc.

Also if you have the higher rate mobility part you get a certificate

which you take to the post office when renewing your car tax to get

this free.

Free transport to school is an LEA funded thing.

I'm sorry if this has already been answered, we have had a flu bug

thing and have a backlog of messages to read through. I have already

answered one message only to find it had been answered already!

BW

> >

> > In a message dated 21/02/2006 08:20:39 GMT Standard Time,

> > jacqui@... writes:

> >

> > The tax disc and blue badge should be given automatically to

anyone

> > receiving higher rate DLA. The blue badge can be given on a

> > discretionary basis by your Council - we got refused (grrrr!)

> >

> > >>>But local Council HAVE to give it when you get the higher

rate. Not

> > that it is much use for anythign other than supermarket or B & Q

> >

> > Mandi x

> >

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as

medical

> > advice. If you need medical advice, please seek it from a

suitably qualified

> > practitioner.

> >

> >

> >

> >

> >

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