Re: Urine Toxic Metals test question

[Guest guest]

In a message dated 31/01/2006 11:48:28 GMT Standard Time, pnhsavvy@... writes:

Just wondering if DMPS 300mg orally is a pretty common dose and medication to use for this test.

My daughter is 8 and 77lbs. Just like to double check everything...

>>>>Probably but I wouldn't do it so I never found out

Did the person ordering the test explain to you what they were hoping to gain in information? Cos there is not a lot to had from this challenge testing, except you will see some metals if you catch enough pee. But proves nothing cos we would all dump some metals if we took 300mg DMPS.....................and caught enough of the right pee.

If you are looking to assess for heavy metal toxicity you would be better off IMHO, getting the Urinary Porphyrins from Paris and or a Hair test from DDI - both non invasive, cheaper and more informative..........IMHO again!

Mandi in Dorset

[Guest guest]

In a message dated 1/31/06 1:08:13 PM Central Standard Time, Mum231ASD@... writes:

Did the person ordering the test explain to you what they were hoping to gain in information? Cos there is not a lot to had from this challenge testing, except you will see some metals if you catch enough pee. But proves nothing cos we would all dump some metals if we took 300mg DMPS.....................and caught enough of the right pee.

If you are looking to assess for heavy metal toxicity you would be better off IMHO, getting the Urinary Porphyrins from Paris and or a Hair test from DDI - both non invasive, cheaper and more informative..........IMHO again!

Hmmm, well he is a DAN doctor here in the states and is an allergy and immunlogy specialist (MD) as well. If it is NOT going to be an accurate test I would like to know, certainly don't want to spend over $100 to no purpose but I do want to know for sure if she needs chelation before starting it (chelation).

I'd be very interested to hear more opinions on this.

Thanks,

Cara

[Guest guest]

In a message dated 31/01/2006 19:44:28 GMT Standard Time, pnhsavvy@... writes:

Hmmm, well he is a DAN doctor here in the states and is an allergy and immunlogy specialist (MD) as well. If it is NOT going to be an accurate test I would like to know, certainly don't want to spend over $100 to no purpose but I do want to know for sure if she needs chelation before starting it (chelation).

>>>Its standard practise, doesn't mean right though Apart from not giving you much useful information, the one high dose can cause mobilisation of metals too great for the body to detox for all we know. That can lead to 'redistribution' of the mobilsed metals to place perhaps worse than before like the brain. Dr's advise it every day of the week..................

This is a link to Autism Mercury group files which explains about the Counting Rules which is a method for interpretating the hair test. There is a book that explains everything too - we have a link for that on the www.TreatingAutism.com links page.

http://home.earthlink.net/~moriam/

HTH

Mandi in UK

[Guest guest]

I'm very sorry to hear about the delay in your daughter. That is exactly why I'm being cautious-she's made so many improvements on the MB12 and supplements. I've held on to this test for a couple of months and even switched doctors....the new one wanted to do an IV chelation test in office, I said "No, thanks!" Now will go back to the other, I like him but he's a 4 hour drive away.

I will look for the porphyrins test and maybe can find it here in the U.S.

Thanks everyone for the help,

Cara

In a message dated 1/31/06 3:14:09 PM Central Standard Time, loraine.higgins@... writes:

We did the challenge test back in July. There is a risk of metal redistribution in the brain and I think that is what hapenned with my daughter. She regressed on all fronts - behaviour, cognition, toilet training etc. It took us a couple of months to get her back on track and as it happens the results were inconclusive. I was of the same opinion as you - I wanted to know for sure before I started chelation but the test did not help in any way, only caused major difficulties for us. It was very painful to watch my daughter regress as well.Others have posted on this group in the past saying there have been no such effects but the risk remains. If I were you I would go with the hair analysis or the porphyrins test.Loraine

[Guest guest]

In a message dated 31/01/2006 22:37:05 GMT Standard Time, pnhsavvy@... writes:

will look for the porphyrins test and maybe can find it here in the U.S.

>>>Not currently avialble anywhere generally known but you might get lucky. I know some from US are sending to Paris

Mandi in UK

[Guest guest]

Cara,

Check out the urinary porphyrin testing offered in Paris

www.labbio.net (I think!)

Looks like an excellent non-invasive (and not too expensive) method

to give an indication of mercury or lead toxicity.

Sharon

>

> Hmmm, well he is a DAN doctor here in the states and is an allergy

and

> immunlogy specialist (MD) as well. If it is NOT going to be an

accurate test I

> would like to know, certainly don't want to spend over $100 to no

purpose but I

> do want to know for sure if she needs chelation before starting it

> (chelation).

>

> I'd be very interested to hear more opinions on this.

> Thanks,

> Cara

>

[Guest guest]

>

>

> In a message dated 1/31/06 1:08:13 PM Central Standard Time,

> Mum231ASD@a... writes:

>

> Did the person ordering the test explain to you what they were

hoping to

> gain in information? Cos there is not a lot to had from this

challenge testing,

> except you will see some metals if you catch enough pee. But

proves nothing

> cos we would all dump some metals if we took 300mg

> DMPS.....................and caught enough of the right pee.

>

> If you are looking to assess for heavy metal toxicity you would be

better

> off IMHO, getting the Urinary Porphyrins from Paris and or a Hair

test from DDI

> - both non invasive, cheaper and more informative..........IMHO

again!

>

>

>

>

> Hmmm, well he is a DAN doctor here in the states and is an allergy

and

> immunlogy specialist (MD) as well. If it is NOT going to be an

accurate test I

> would like to know, certainly don't want to spend over $100 to no

purpose but I

> do want to know for sure if she needs chelation before starting

it

> (chelation).

>

> I'd be very interested to hear more opinions on this.

> Thanks,

> Cara

>

We did the challenge test back in July. There is a risk of metal

redistribution in the brain and I think that is what hapenned with

my daughter. She regressed on all fronts - behaviour, cognition,

toilet training etc. It took us a couple of months to get her back

on track and as it happens the results were inconclusive. I was of

the same opinion as you - I wanted to know for sure before I started

chelation but the test did not help in any way, only caused major

difficulties for us. It was very painful to watch my daughter

regress as well.

Others have posted on this group in the past saying there have been

no such effects but the risk remains. If I were you I would go with

the hair analysis or the porphyrins test.

Loraine

[Guest guest]

Cara,

I 've just done the test Sharon mentioned for my son and it served to confirm clearly my suspicions around severe lead and mercury poisoning. Its well worth the E90 I think!

On 31/01/06, sharon_asd_uk <sharon_asd_uk@...> wrote:

Cara,Check out the urinary porphyrin testing offered in Pariswww.labbio.net

(I think!)Looks like an excellent non-invasive (and not too expensive) methodto give an indication of mercury or lead toxicity.Sharon>> Hmmm, well he is a DAN doctor here in the states and is an allergyand> immunlogy specialist (MD) as well. If it is NOT going to be an

accurate test I> would like to know, certainly don't want to spend over $100 to nopurpose but I> do want to know for sure if she needs chelation before starting it> (chelation).>> I'd be very interested to hear more opinions on this.

> Thanks,> Cara>DISCLAIMERNo information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.

[Guest guest]

We have just received the test kit and there is nothing in the paper

work that came with it to say whether you need to stop any

supplements etc.

What did you do?

Any views

Thanks Kay.

> >

> > >

> > > Hmmm, well he is a DAN doctor here in the states and is an

allergy

> > and

> > > immunlogy specialist (MD) as well. If it is NOT going to be an

> > accurate test I

> > > would like to know, certainly don't want to spend over $100 to

no

> > purpose but I

> > > do want to know for sure if she needs chelation before

starting it

> > > (chelation).

> > >

> > > I'd be very interested to hear more opinions on this.

> > > Thanks,

> > > Cara

> > >

> >

> >

> >

> >

> >

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as

medical

> > advice. If you need medical advice, please seek it from a

suitably qualified

> > practitioner.

> >

> >

[Guest guest]

Hi Kay,

We didn't stop any supplements at all but they did tell me to take first morning urine sample on the last day before a chelation weekend.

On 02/02/06, Kay Lowney <kay.steve@...> wrote:

We have just received the test kit and there is nothing in the paperwork that came with it to say whether you need to stop any

supplements etc.What did you do?Any viewsThanks Kay.> >> > Cara,> >> > Check out the urinary porphyrin testing offered in Paris

> > www.labbio.net (I think!)> >> > Looks like an excellent non-invasive (and not too expensive)method> > to give an indication of mercury or lead toxicity.

> >> >> > Sharon> >> >> >> >> > --- In Autism Treatment

, pnhsavvy@a...wrote:> >> > >> > > Hmmm, well he is a DAN doctor here in the states and is anallergy> > and> > > immunlogy specialist (MD) as well. If it is NOT going to be an

> > accurate test I> > > would like to know, certainly don't want to spend over $100 tono> > purpose but I> > > do want to know for sure if she needs chelation before

starting it> > > (chelation).> > >> > > I'd be very interested to hear more opinions on this.> > > Thanks,> > > Cara> > >> >> >

> >> >> >> >> > DISCLAIMER> > No information contained in this post is to be construed asmedical> > advice. If you need medical advice, please seek it from a

suitably qualified> > practitioner.> >> >

[Guest guest]

Hi

Thanks for the info.

Kay.

----- Original Message -----

Hi Kay,

We didn't stop any supplements at all but they did tell me to take first morning urine sample on the last day before a chelation weekend.

No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.

[Guest guest]

Hi Cath,

They told us not to do the test while we were chelating - told us to

stop chelating for two months - then do the test.

I queried this and they did not reply, if it is ok I would like to

know as we are keen to do it.

Mark

> > > >

> > > > >

> > > > > Hmmm, well he is a DAN doctor here in the states and is an

> > allergy

> > > > and

> > > > > immunlogy specialist (MD) as well. If it is NOT going to be

an

> > > > accurate test I

> > > > > would like to know, certainly don't want to spend over $100

to

> > no

> > > > purpose but I

> > > > > do want to know for sure if she needs chelation before

> > starting it

> > > > > (chelation).

> > > > >

> > > > > I'd be very interested to hear more opinions on this.

> > > > > Thanks,

> > > > > Cara

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > DISCLAIMER

> > > > No information contained in this post is to be construed as

> > medical

> > > > advice. If you need medical advice, please seek it from a

> > suitably qualified

> > > > practitioner.

> > > >

> > > >

[Guest guest]

Hi Mark,

I definitely told them we were chelating and they just told me to make sure I took the sample on the last off day before a chelation weekend. Are you doing DMSA or DMPS. I know Tina recently did the same test for and I'm pretty sure he's chelating on DMPS 48 hourly as well. Perhaps email them and check again.

HTH

On 04/02/06, Mark Land <ml4nd@...> wrote:

Hi Cath,They told us not to do the test while we were chelating - told us tostop chelating for two months - then do the test.

I queried this and they did not reply, if it is ok I would like toknow as we are keen to do it.Mark> > > >> > > > >> > > > > Hmmm, well he is a DAN doctor here in the states and is an

> > allergy> > > > and> > > > > immunlogy specialist (MD) as well. If it is NOT going to bean> > > > accurate test I> > > > > would like to know, certainly don't want to spend over $100

to> > no> > > > purpose but I> > > > > do want to know for sure if she needs chelation before> > starting it> > > > > (chelation).> > > > >

> > > > > I'd be very interested to hear more opinions on this.> > > > > Thanks,> > > > > Cara> > > > >> > > >> > > >

> > > >> > > >> > > >> > > >> > > > DISCLAIMER> > > > No information contained in this post is to be construed as> > medical

> > > > advice. If you need medical advice, please seek it from a> > suitably qualified> > > > practitioner.> > > >> > > >

[Guest guest]

Thanks Cath, I'll give it a whirl next week then!

> > > > > >

> > > > > > >

> > > > > > > Hmmm, well he is a DAN doctor here in the states and is

an

> > > > allergy

> > > > > > and

> > > > > > > immunlogy specialist (MD) as well. If it is NOT going

to be

> > an

> > > > > > accurate test I

> > > > > > > would like to know, certainly don't want to spend over

$100

> > to

> > > > no

> > > > > > purpose but I

> > > > > > > do want to know for sure if she needs chelation before

> > > > starting it

> > > > > > > (chelation).

> > > > > > >

> > > > > > > I'd be very interested to hear more opinions on this.

> > > > > > > Thanks,

> > > > > > > Cara

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > DISCLAIMER

> > > > > > No information contained in this post is to be construed

as

> > > > medical

> > > > > > advice. If you need medical advice, please seek it from a

> > > > suitably qualified

> > > > > > practitioner.

> > > > > >

> > > > > >

[Guest guest]

Hi,

Can anyone tell me, the cost of the French Urine test for metal

toxicity?

Quick update, our asd son has been on Authia cream, a gentle

transdermal chelating agent. It still freeks me out that we are even

doing the most gentle chelating, and really without evidence of metal

toxicity in the first place. The Hair Elements counting rules did not

suggest a problem. We did send off bloods to America, which came up

with abnornal " metallothionein+mercury " - 43.00 (normal ref.range 50-

100) whatever all that means!!

I received my NAS welcome pack today, with an article on biomed

approaches which is highly critical of chelation, and indeed " mercury

moms " . So feeling fragile today, thus the frenzied internet activity.

Thanks,

Kris

[Guest guest]

Hi Kris It costs Euros 90 and deduct 15% for an ASD child. Go for the test and hopefully it will be 'clean', but if its not, don't panic. Chelation can be done safely. I was sooo worried about chelation, but we are a year in and things are going well. We do regular liver, kidney and mineral tests and all have been fine. Its a case of going low and slow. Good luck Tinasmithythorn <krisandstusmith@...> wrote: Hi, Can anyone tell me, the cost of the French Urine test for metal toxicity? Quick update, our asd son has been on Authia cream, a gentle transdermal chelating agent. It still freeks me out that we are even doing the most gentle chelating, and really without

evidence of metal toxicity in the first place. The Hair Elements counting rules did not suggest a problem. We did send off bloods to America, which came up with abnornal "metallothionein+mercury" - 43.00 (normal ref.range 50-100) whatever all that means!!I received my NAS welcome pack today, with an article on biomed approaches which is highly critical of chelation, and indeed "mercury moms". So feeling fragile today, thus the frenzied internet activity.Thanks,KrisDISCLAIMERNo information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.

[Guest guest]

> Hi,

>

> Can anyone tell me, the cost of the French Urine test for metal

> toxicity?

>

> Quick update, our asd son has been on Authia cream, a gentle

> transdermal chelating agent. It still freeks me out that we are

even

> doing the most gentle chelating, and really without evidence of

metal

> toxicity in the first place. The Hair Elements counting rules did

not

> suggest a problem. We did send off bloods to America, which came up

> with abnornal " metallothionein+mercury " - 43.00 (normal ref.range

50-

> 100) whatever all that means!!

>

> I received my NAS welcome pack today, with an article on biomed

> approaches which is highly critical of chelation, and

indeed " mercury

> moms " . So feeling fragile today, thus the frenzied internet

activity.

>

> Thanks,

> Kris

>

>

>

>

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

advice. If you need medical advice, please seek it from a suitably

qualified practitioner.

>

>

[Guest guest]

I sent them a reply which they said they would include - they edited

it and I approved the edit. I'm no longer a member so don't read the

magazine. Did the replies not go in? That was weeks ago.

>

>

> In a message dated 04/02/2006 14:08:51 GMT Standard Time,

> krisandstusmith@... writes:

>

> I received my NAS welcome pack today, with an article on biomed

> approaches which is highly critical of chelation, and

indeed " mercury

> moms " . So feeling fragile today, thus the frenzied internet

activity.

>

>

>

> >>>Oh thats a shame - you could have joined Treating Autism

instead. Do you

> know anybody at NAS that knows Jack S**T abotu chelation? I don't

LOL They

> had heaps of mails from folks chelating after that last but in

their

> publication, they were supposed to be printing some replies,

s was one I am sure

>

> Mandi in Dorset

>

[Guest guest]

Did the replies not go in? That was weeks ago.

Hi Steph

I am still a member and haven't had another magazine since, I think

they are only issued quarterly. Kris mentioned a welcome pack so I

would guess she has just joined and been sent a copy of the latest

magazine (i.e. nearly 3 months old) as part of the pack,