Re: Stopped for a bit any pointers

[Guest guest]

>

> Hello all

>

> Following a real meltdown on 8 hourly (pretty scary actually, thank

> you for those who leapt in to keep us sane, you are stars) we're

> having a break from chelation whilst giving Tom paramythingy to

deal

> with his blasto thingy (technical terms, not my strong point).

> We're also giving sacc boulardi, klaires probiotics, NAG and BC

vits

> and mins. Can someone advise me of the right timings? Obviously

> we're not giving pro biotics close to antibiotics but where to put

> the sacc boulardi which is not a probiotic but a friendly yeast?

> And should we keep vits/mins away from probiotics and sacc boulardi?

>

HI STEPH, I'M SURE MANDI WILL GIVE YOU LOADS OF GOOD ADVICE, SHE

ALWAYS COMES UP WITH THE GOODS! WELCOME BACK MANDI, YOU HAVE BEEN

MISSED!

WE HAD SCARY BEHAVIOUR AFTER 3RD ROUND OF ORAL DMSA 12MG EVERY 3

HOURS FOR 10 YEAR OLD, DREAD TO THINK WHAT THE DAN PROTOCOL WOULD

HAVE DONE TO HIM! DEFIANT CHUCKING STUFF, LAUGHING, TAKING CLOTHES

OFF AND RUNNING ABOUT 90 MILES AN HOUR ROUND THE GARDEN. ANYWAY

LOOKED LIKE YEAST SO TREATING WITH ALTERATING NATURALS, GSE,

BIOCIDIN, OLIVE LEAF EXTRACT AND SOMETIMES CANDIDASE AT NIGHT. I

GIVE THOSE IN BETWEEN EVERYTHING ELSE AND NOT AT SAME TIME AS

PROBIOTICS BIOKULT AND CULTURELLE. AS FAR AS I KNOW OK TO GIVE WITH

VITS/MINS, CORRECT ME IF I'M WRONG SOMEONE!

> Tom's pretty panda eyed at the moment and then the next instant -

> pink cheeked and healthy looking - should we reintroduce yeast aid

> also, and yes you guessed it, when? Aware that some of these can

be

> a bit subtle.

>

> ALSO and this is just dull but we ordered some acidopphilus (sp?)

> from Nutricentre and it was posted Dec 23rd. It just arrived

> yesterday. Is this going to be useless now? We have no idea what

> condition it was kept in during those more than two weeks and I

know

> probiotics demand respect and certain base conditions in order to,

> well remain as probiotics. Any thoughts oh wise ones?

>

> We're going to reintroduce DMPS (or maybe DMSA, heck the world is

> TOm's oyster) once antibiotics done. Think 8 hourly may not be the

> answer for Tom Tom. Wierd how strong his reaction was - moving

> metals, good, mad, bad and dangerous to know 7 year old - bad.

>YES, EVEN SMALL DOSES SEEM TO BE AS EFFECTIVE AS THE BIGGER ONES, WE

HAD TO STOP TD DMPS LAST SUMMER DUE TO MAJOR PEEING! NOW ON AC

PROTOCOL AND SO FAR SO GOOD APART FROM THE DAMIAN SYNDROME EVERY NOW

AND THEN! BUT USUALLY VERY HAPPY AND SOCIALABLE WHEN ON THE ROUND,

BETTER ON THAN OFF ACTUALLY! I REMEMBER PAUL SHATTOCK SAYING

SOMETHING A LONG TIME AGO THAT HE THOUGHT DMSA WAS A SULPHUR THING

THAT WAS HELPING OUR KIDS RATHER THAN DETOXING METALS, THIS IS IN MY

DIM AND DISTANT MEMORY, ANY IDEAS ANYONE?

ALL THE BEST WITH BLASTO THINGY BTW, DI X

> Steph xx

>

> PS welcome back Mandi! We missed you.

>

[Guest guest]

,

not sure if this can be of help but I have heard many parents report an

improvement after doing a 'supplement break' when kids have reached a plateau or

are regressing... In other words if you feel you are running in circles it might

be worth trying this: take him off all sups and vitamins (apart from maybe few

things that you think might be essential) for a week or two and then try

re-introducing slowly one by one and note his reactions. It might be that you'll

observe some new things. Especially look out for anything containing

aspartate/aspartic acid or calcium.

I have not tried this myself but am 'keeping a mental note' for the future.

Good luck,

Natasa

>

> Hello all

>

> Following a real meltdown on 8 hourly (pretty scary actually, thank

> you for those who leapt in to keep us sane, you are stars) we're

> having a break from chelation whilst giving Tom paramythingy to deal

> with his blasto thingy (technical terms, not my strong point).

> We're also giving sacc boulardi, klaires probiotics, NAG and BC vits

> and mins. Can someone advise me of the right timings? Obviously

> we're not giving pro biotics close to antibiotics but where to put

> the sacc boulardi which is not a probiotic but a friendly yeast?

> And should we keep vits/mins away from probiotics and sacc boulardi?

>

> Tom's pretty panda eyed at the moment and then the next instant -

> pink cheeked and healthy looking - should we reintroduce yeast aid

> also, and yes you guessed it, when? Aware that some of these can be

> a bit subtle.

>

> ALSO and this is just dull but we ordered some acidopphilus (sp?)

> from Nutricentre and it was posted Dec 23rd. It just arrived

> yesterday. Is this going to be useless now? We have no idea what

> condition it was kept in during those more than two weeks and I know

> probiotics demand respect and certain base conditions in order to,

> well remain as probiotics. Any thoughts oh wise ones?

>

> We're going to reintroduce DMPS (or maybe DMSA, heck the world is

> TOm's oyster) once antibiotics done. Think 8 hourly may not be the

> answer for Tom Tom. Wierd how strong his reaction was - moving

> metals, good, mad, bad and dangerous to know 7 year old - bad.

>

> Steph xx

>

> PS welcome back Mandi! We missed you.

>

[Guest guest]

Just posted - then read this. Does the scary 'Damian' behaviour

just happen every now and then with chelation? What causes it - a

major move of metals????

I'm giving probiotics and sacc boulardi together - don't think they

are antagonistic to each other but please correct me if wrong. I

give away from food/vits/mins but depends on probiotic - eg: Biokult

advise to give with food. Think same time as enzymes is a big no-no.

Have also found using enzymes on empty stomach great for controlling

yeast - but I'm no expert and... am still bit confused whether Tom's

scarey behaviour this w/e has been yeast or doseage or moving metals.

Gail

> >

> > Hello all

> >

> > Following a real meltdown on 8 hourly (pretty scary actually,

thank

> > you for those who leapt in to keep us sane, you are stars) we're

> > having a break from chelation whilst giving Tom paramythingy to

> deal

> > with his blasto thingy (technical terms, not my strong point).

> > We're also giving sacc boulardi, klaires probiotics, NAG and BC

> vits

> > and mins. Can someone advise me of the right timings? Obviously

> > we're not giving pro biotics close to antibiotics but where to

put

> > the sacc boulardi which is not a probiotic but a friendly

yeast?

> > And should we keep vits/mins away from probiotics and sacc

boulardi?

> >

> HI STEPH, I'M SURE MANDI WILL GIVE YOU LOADS OF GOOD ADVICE, SHE

> ALWAYS COMES UP WITH THE GOODS! WELCOME BACK MANDI, YOU HAVE BEEN

> MISSED!

> WE HAD SCARY BEHAVIOUR AFTER 3RD ROUND OF ORAL DMSA 12MG EVERY 3

> HOURS FOR 10 YEAR OLD, DREAD TO THINK WHAT THE DAN PROTOCOL WOULD

> HAVE DONE TO HIM! DEFIANT CHUCKING STUFF, LAUGHING, TAKING

CLOTHES

> OFF AND RUNNING ABOUT 90 MILES AN HOUR ROUND THE GARDEN. ANYWAY

> LOOKED LIKE YEAST SO TREATING WITH ALTERATING NATURALS, GSE,

> BIOCIDIN, OLIVE LEAF EXTRACT AND SOMETIMES CANDIDASE AT NIGHT. I

> GIVE THOSE IN BETWEEN EVERYTHING ELSE AND NOT AT SAME TIME AS

> PROBIOTICS BIOKULT AND CULTURELLE. AS FAR AS I KNOW OK TO GIVE

WITH

> VITS/MINS, CORRECT ME IF I'M WRONG SOMEONE!

>

> > Tom's pretty panda eyed at the moment and then the next instant -

> > pink cheeked and healthy looking - should we reintroduce yeast

aid

> > also, and yes you guessed it, when? Aware that some of these

can

> be

> > a bit subtle.

> >

> > ALSO and this is just dull but we ordered some acidopphilus

(sp?)

> > from Nutricentre and it was posted Dec 23rd. It just arrived

> > yesterday. Is this going to be useless now? We have no idea what

> > condition it was kept in during those more than two weeks and I

> know

> > probiotics demand respect and certain base conditions in order

to,

> > well remain as probiotics. Any thoughts oh wise ones?

> >

> > We're going to reintroduce DMPS (or maybe DMSA, heck the world

is

> > TOm's oyster) once antibiotics done. Think 8 hourly may not be

the

> > answer for Tom Tom. Wierd how strong his reaction was - moving

> > metals, good, mad, bad and dangerous to know 7 year old - bad.

>

> >YES, EVEN SMALL DOSES SEEM TO BE AS EFFECTIVE AS THE BIGGER ONES,

WE

> HAD TO STOP TD DMPS LAST SUMMER DUE TO MAJOR PEEING! NOW ON AC

> PROTOCOL AND SO FAR SO GOOD APART FROM THE DAMIAN SYNDROME EVERY

NOW

> AND THEN! BUT USUALLY VERY HAPPY AND SOCIALABLE WHEN ON THE

ROUND,

> BETTER ON THAN OFF ACTUALLY! I REMEMBER PAUL SHATTOCK SAYING

> SOMETHING A LONG TIME AGO THAT HE THOUGHT DMSA WAS A SULPHUR THING

> THAT WAS HELPING OUR KIDS RATHER THAN DETOXING METALS, THIS IS IN

MY

> DIM AND DISTANT MEMORY, ANY IDEAS ANYONE?

> ALL THE BEST WITH BLASTO THINGY BTW, DI X

> > Steph xx

> >

> > PS welcome back Mandi! We missed you.

> >

>

[Guest guest]

In a message dated 13/01/2006 18:52:41 GMT Standard Time, mark.grabiec@... writes:

Think 8 hourly may not be the answer for Tom Tom. Wierd how strong his reaction was - moving metals, good, mad, bad and dangerous to know 7 year old - bad.

>>>I'd be inclined to do a round at one drop per dose before you make a decision. Is he back to 'normal' now?

Mandi x

[Guest guest]

In a message dated 13/01/2006 21:28:40 GMT Standard Time, harebigears@... writes:

BETTER ON THAN OFF ACTUALLY! I REMEMBER PAUL SHATTOCK SAYING SOMETHING A LONG TIME AGO THAT HE THOUGHT DMSA WAS A SULPHUR THING THAT WAS HELPING OUR KIDS RATHER THAN DETOXING METALS, THIS IS IN MY DIM AND DISTANT MEMORY, ANY IDEAS ANYONE?

>>>Same would go for the GFCF diet if you need to low sulphur (diary is high) which is why some kids get worse on the diet instead of better if they need the sulphur. Usually more than one reason why any intervention would work. DMSA pulls metals don;t worry

Mandi x

[Guest guest]

In a message dated 15/01/2006 15:43:10 GMT Standard Time, gail@... writes:

I'm giving probiotics and sacc boulardi together - don't think they are antagonistic to each other but please correct me if wrong.

>>>I do the same with good effect

I give away from food/vits/mins but depends on probiotic - eg: Biokult advise to give with food. Think same time as enzymes is a big no-no.

>>Enzymes before food, Biokult after

Have also found using enzymes on empty stomach great for controlling yeast - but I'm no expert and... am still bit confused whether Tom's scarey behaviour this w/e has been yeast or doseage or moving metals.

>>>Either or more likely both. I think the first round after switching from 48 hourly dosing is best extended to 5 or 7 days - you can work around school with 8 hourly dosing. 48 hourly has mobilsed loads of metals, mega movement when you switch to 8 hourly. I thought this through, based also on the early reports that kids got much worse after stopping TD DMPS, we did 7 days of frequent dosing to tail off from 48 hourly and had no problems at all.

Could be concidence but as I'm not prepared to go back and do it the other way I guess we;ll never know LOL

Mandi x

[Guest guest]

As far as I recall, Shattock thought it was possible that

DMSA's powerful action as an anti-oxidant might be helping, rather

than its chelating properties.

Margaret

>

>

> In a message dated 13/01/2006 21:28:40 GMT Standard Time,

> harebigears@y... writes:

>

> BETTER ON THAN OFF ACTUALLY! I REMEMBER PAUL SHATTOCK SAYING

> SOMETHING A LONG TIME AGO THAT HE THOUGHT DMSA WAS A SULPHUR

THING

> THAT WAS HELPING OUR KIDS RATHER THAN DETOXING METALS, THIS IS IN

MY

> DIM AND DISTANT MEMORY, ANY IDEAS ANYONE?

>

>

>

> >>>Same would go for the GFCF diet if you need to low sulphur

(diary is

> high) which is why some kids get worse on the diet instead of

better if they need

> the sulphur. Usually more than one reason why any intervention

would work.

> DMSA pulls metals don;t worry

>

> Mandi x

>

[Guest guest]

He's a bit like Dr Who. He changes completely from one month to the

next. So I would say he's not back as good as he was over Christmas

but he's not hyper anymore. We finish his course of antibiotics on

Thursday and then it's just knowing what to do then. I know that

thinks we should just concentrate on his gut. Dr H thinks we

should carry on as before. I think his gut has probably got worse.

And then also that many think gut can't properly heal without metals

out. So feel a bit torn over the whole thing. His reaction to the

three drops on eight hours was so extreme - he must have been

terrified. Having done so well over 8 months of chelation and then

have such a strong reaction it's a bit of a mystery. I had no idea

there would be such a marked difference. We want to get the metals

out - but I never want to put him or us through that kind of

meltdown again and all a bit scary. We're going to see Dr Usman in

March - either that'll be clarity or another difference of opinion.

Dont' really want to just stop dead now after so long and such

progress but at a bit of a loss.

Steph x

>

>

> In a message dated 13/01/2006 18:52:41 GMT Standard Time,

> mark.grabiec@n... writes:

>

> Think 8 hourly may not be the

> answer for Tom Tom. Wierd how strong his reaction was - moving

> metals, good, mad, bad and dangerous to know 7 year old - bad.

>

>

>

> >>>I'd be inclined to do a round at one drop per dose before you

make a

> decision. Is he back to 'normal' now?

>

> Mandi x

>

[Guest guest]

Hi Steph

We have been chelating with DMPS for about 5 months and then went to

the States and did some IV with good results but since then we have

had to stop the Transdermal DMPS twice ( we are currently off it).

Since the IV it now seems to hurt Charlie and he is scared of us

putting it on. We have another consult next week so will see then.

We are going to States again in March to have more IV. Our Dr said

one IV is like a month's worth of transdermal.

Peta -

-- In Autism Treatment , " Sirr "

<mark.grabiec@n...> wrote:

>

> He's a bit like Dr Who. He changes completely from one month to

the

> next. So I would say he's not back as good as he was over

Christmas

> but he's not hyper anymore. We finish his course of antibiotics

on

> Thursday and then it's just knowing what to do then. I know that

> thinks we should just concentrate on his gut. Dr H thinks we

> should carry on as before. I think his gut has probably got worse.

> And then also that many think gut can't properly heal without

metals

> out. So feel a bit torn over the whole thing. His reaction to the

> three drops on eight hours was so extreme - he must have been

> terrified. Having done so well over 8 months of chelation and

then

> have such a strong reaction it's a bit of a mystery. I had no

idea

> there would be such a marked difference. We want to get the metals

> out - but I never want to put him or us through that kind of

> meltdown again and all a bit scary. We're going to see Dr Usman

in

> March - either that'll be clarity or another difference of

opinion.

> Dont' really want to just stop dead now after so long and such

> progress but at a bit of a loss.

>

> Steph x

>

>

> >

> >

> > In a message dated 13/01/2006 18:52:41 GMT Standard Time,

> > mark.grabiec@n... writes:

> >

> > Think 8 hourly may not be the

> > answer for Tom Tom. Wierd how strong his reaction was - moving

> > metals, good, mad, bad and dangerous to know 7 year old - bad.

> >

> >

> >

> > >>>I'd be inclined to do a round at one drop per dose before

you

> make a

> > decision. Is he back to 'normal' now?

> >

> > Mandi x

> >

>

[Guest guest]

Also I think the argument goes that DMSA is providing alot of much

needed sulphur

Sharon

>

> As far as I recall, Shattock thought it was possible that

> DMSA's powerful action as an anti-oxidant might be helping, rather

> than its chelating properties.

> Margaret

>