Re: Is the NAS worth joining??

[Guest guest]

I could send you Emails that have been shared with me that would make your skin crawl. Several of these folks are VPs for ASA and very involved or speaking at NAS events.The call chelating extermination. They are blatantly anti-Semitic and call parents of chelating children f***wits.Tariq's mother was dubbed a murderer before the autopsy came back otherwise.It is bad. This is tame compared to their normal fare. However it is more than just an Email if a new parent, searching for answers, reads these lies. So very sad. Margaret <m.collins9@...> wrote: This is the link to the e-mail which seems to be from S B-C. http://www.aspiesforfreedom.org/index.php?page=libraryview & document=simonbaroncohen_reply I quote one paragraph: My impression is that that SOME (but not all) so-called "low-functioning"people with autism may suffer from some clear-cut medical conditions(including intestinal pain or epilepsy) and I have no problem hoping thatthose medical aspects that can cause suffering can be cured. but i do notsee these as at the core of autism or AS. they occur in some significantsubgroup, and can make life awful for that person or their family. I am appalled by this. OK, it's only an e-mail and people are often less careful to be accurate when dashing off an e-mail. If it is indeed from S B-C and is a true statement of his views then something really does need to be done. Margaret Re: Re: Is the NAS worth joining?? If you go to AFF website

you can read SBC's email to Amy their founder, where he claims proudly to be among the first to say that autism is not a disability but a difference, he does pay lip service to gut issues but emphasises SOME children have comorbid gut issues. The problem is he is seen by many to be the expert in the Country on Autism, and I cannot see at all what he has done for autism research. If autism were not seen as a disability then imagine how fast the DLA and any other meagre services vanish, and this man is pictured with Jane Asher representing the autistic society! As they say "with friends like this". grrrr Vicky__________ NOD32 1.1420 (20060227) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Beauvais Mom to , who had 276X the EPA allowable amount of Mercury in his infant vaccines. ASD_solutions @ groups Helping a generation of Mercury damaged children recover, one step at a time. There is Hope. www.generationrescue.org

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[Guest guest]

In a message dated 28/02/2006 11:37:18 GMT Standard Time, MaddiganV@... writes:

Zoe I think that's a brilliant idea, I would also like him to clarify "so called" low functioning, to me he is implying there is no such thing!

I would also like him to explain how any of our kids is to access services if the disabled label is removed.

I also think he is abusing his position by so closely associating himself with the neurodiverse movement.

>>>>And (keen to get her 5 eggs in) - I have yet to come across a kid with Autism who was declared HEALTHY in appropriate testing - if we don;t test them they how will we KNOW they are ill - point 1 that poor lad who has had to fly to US for investigation for his on-going pain, point 2 crappy NHS test rreporting importnat things like iron as normal when bespoke testing gives different pictire - Jo's Darryl for starters, don;t get me started, my typo's will drive everybody crazy

Mandi x

[Guest guest]

This is ridiculous. My very high functioning 10 year old daughter, who pinches her Granddad's guardian to do the sudoku puzzle, has more biomedical problems than my son, who we are thrilled to say can now string a 10 word sentence together. What has high or low functioning got to do with the price of fish? In my PCT, only my daughter can receive OT, not my son, as she is more 'high functioning', but it is him who needs it the most. It drives me crazy.

Diane

Re: Re: Is the NAS worth joining??

If you go to AFF website you can read SBC's email to Amy their founder, where he claims proudly to be among the first to say that autism is not a disability but a difference, he does pay lip service to gut issues but emphasises SOME children have comorbid gut issues.

The problem is he is seen by many to be the expert in the Country on Autism, and I cannot see at all what he has done for autism research.

If autism were not seen as a disability then imagine how fast the DLA and any other meagre services vanish, and this man is pictured with Jane Asher representing the autistic society!

As they say "with friends like this". grrrr

Vicky__________ NOD32 1.1420 (20060227) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com

[Guest guest]

Mandi,

I had 's thyroid checked via IWDL and her T3 was 9.5 (ref 3.5-6.5). I contacted her paed who wanted her to have the test on the NHS and her T3 was 6.5. He agreed that it was on the high side but within normal limits so hasn't done anything about it, because it must be the NHS test that was accurate. Grrr!

Diane

Re: Re: Is the NAS worth joining??

In a message dated 28/02/2006 11:37:18 GMT Standard Time, MaddiganV@... writes:

Zoe I think that's a brilliant idea, I would also like him to clarify "so called" low functioning, to me he is implying there is no such thing!

I would also like him to explain how any of our kids is to access services if the disabled label is removed.

I also think he is abusing his position by so closely associating himself with the neurodiverse movement.

>>>>And (keen to get her 5 eggs in) - I have yet to come across a kid with Autism who was declared HEALTHY in appropriate testing - if we don;t test them they how will we KNOW they are ill - point 1 that poor lad who has had to fly to US for investigation for his on-going pain, point 2 crappy NHS test rreporting importnat things like iron as normal when bespoke testing gives different pictire - Jo's Darryl for starters, don;t get me started, my typo's will drive everybody crazy

Mandi x