Re: Is the NAS worth joining??

[Guest guest]

In a message dated 10/12/2005 23:57:04 GMT Standard Time, bbrowne123@... writes:

I want to join the NAS but I notice they take a LONG time to get things going. I as the parent of a 3 yr old child, dont have time to wait for them to get their act together in terms of biomed. But of course, i worry about all those who come after me.

>>>We have a few brave and determined people on the inside trying to get the biomed voice heard. Nothing is gonna happen real soon. More councillors sympathetic to our cause would be helpful.

I no longer subscribe FWIW

Mandi in Dorset

[Guest guest]

I don't find it useful but I do think you have to be in to change it.

I'm meant to have a letter in the next Communication magazine (heavily

edited but they did agree all the changes with me). If that goes in

then they are at least willing to represent our argument even if, as a

charity, they don't yet agree with it publicly.

>

> I want to join the NAS but I notice they take a LONG time to get

> things going. I as the parent of a 3 yr old child, dont have time to

> wait for them to get their act together in terms of biomed. But of

> course, i worry about all those who come after me.

>

> Can someone suggest whether or not their assistance/membership at

the

> NAS has been " fruitful " ?? I dont know much about them. All i know is

> that i had questions and phoned their free phone line and didnt get

a

> lot of help. I nominate Steve Lodge to start a national biomed

> petition/lobby.

>

> How bout it steve???

>

[Guest guest]

Hi Steph

I too have a letter going in the next Communication magazine, again heavily

edited but that's good that at least the two of us have pro biomedical

articles going in. Maybe there will be even more. Lets hope so!

Kay.

> I'm meant to have a letter in the next Communication magazine (heavily

> edited but they did agree all the changes with me)

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

> advice. If you need medical advice, please seek it from a suitably

> qualified practitioner.

>

>

[Guest guest]

Just so, I never want to appear a maverick with my son's health.

Good that they're including a few responses - we're having to be our

children's physicians which is the real issue, not chelation per se.

>

> Hi Steph

>

> I too have a letter going in the next Communication magazine,

again heavily

> edited but that's good that at least the two of us have pro

biomedical

> articles going in. Maybe there will be even more. Lets hope so!

>

> Kay.

>

>

> > I'm meant to have a letter in the next Communication magazine

(heavily

> > edited but they did agree all the changes with me)

>

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as

medical

> > advice. If you need medical advice, please seek it from a

suitably

> > qualified practitioner.

> >

> >

[Guest guest]

WEll, as you all know, we only have so much time. I want to join the

NAS but dont want to get involved in all their fund raising. I want

to start my own biomed group and cant do two things at once, but i

totally agree with what was said earlier on this topic, nothing

changes except from within. I dont really have the time or energy to

take on a big " fight " though. With a son to recover, my priorities

must be towards him and him only. I cant wait a few years for them

to get their act together. I suppose i could join as just a member.

>

> Hi Steph

>

> I too have a letter going in the next Communication magazine,

again heavily

> edited but that's good that at least the two of us have pro

biomedical

> articles going in. Maybe there will be even more. Lets hope so!

>

> Kay.

>

>

> > I'm meant to have a letter in the next Communication magazine

(heavily

> > edited but they did agree all the changes with me)

>

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as

medical

> > advice. If you need medical advice, please seek it from a

suitably

> > qualified practitioner.

> >

> >

[Guest guest]

I've found NAS useful for advice on education, but that's about it.

Their attitude to biomed is summed up in the recent article in the

Communication magazine by NAS Councillor Mike Stanton.......an

appaling article that was factually incorrect and very biased.

It's a difficult call really on whether to join or not - their

attitude to biomed is so entrenched I dont think anything other than

a complete change at the top (Chief Exec and some Trustees) will

make a difference.

Having said that, they do have a new Chairperson and some people

within the NAS are hopeful that this will start to change attitudes -

not just to biomed, but other stuff as well.

The more biomed-friendly people that join, the better chance there

is of a cultural change within the NAS.........biomed-friendly peeps

tend to be more progressive thinkers across the board I think.

However, if you're looking for NAS to be championing biomed, I think

it will be a long and frustrating wait.

We had a debate within our organisation, Treating Autism, about

whether it was worth trying to change things from within the NAS and

we decided it would be better to concentrate on promoting our own

organisation. www.treatingautism.com

Will be looking out for your letter Steph!

Zoe x

> >

> > I want to join the NAS but I notice they take a LONG time to get

> > things going. I as the parent of a 3 yr old child, dont have

time to

> > wait for them to get their act together in terms of biomed. But

of

> > course, i worry about all those who come after me.

> >

> > Can someone suggest whether or not their assistance/membership

at

> the

> > NAS has been " fruitful " ?? I dont know much about them. All i

know is

> > that i had questions and phoned their free phone line and didnt

get

> a

> > lot of help. I nominate Steve Lodge to start a national biomed

> > petition/lobby.

> >

> > How bout it steve???

> >

>

[Guest guest]

I don't know if everyone's seen the Biomed replies in the latest Communication magazine, but it's under the header that the last article by Mike Stanton provoked a hostile response, followed by letters by Grabiec, Mikael Berntson and Kay Lowney. Mike Stanton replied saying he was pleased to have started a debate and gave his website www.mikestantonautism.blogspot.com where you can find the original article. They also received a response from Action Against Autism which was too long to print, so they left it out completely!

Re: Is the NAS worth joining??

Just so, I never want to appear a maverick with my son's health. Good that they're including a few responses - we're having to be our children's physicians which is the real issue, not chelation per se.>> Hi Steph> > I too have a letter going in the next Communication magazine, again heavily > edited but that's good that at least the two of us have pro biomedical > articles going in. Maybe there will be even more. Lets hope so!> > Kay.> > > > I'm meant to have a letter in the next Communication magazine (heavily> > edited but they did agree all the changes with me)> > >> > DISCLAIMER> > No information contained in this post is to be construed as medical > > advice. If you need medical advice, please seek it from a suitably > > qualified practitioner.> >> >

[Guest guest]

In a message dated 26/02/2006 08:57:49 GMT Standard Time, mark.grabiec@... writes:

rather than print a whole new article - AAA must be livid. Glad they printed the letters but all three letters came from this list. Which is a bit worrying possibly?

>>>Thats because I think you Mikael and Kay are "ONLY" individuals maybe?

AAA/ATT are organised and famous for their hard hitting questions in the ish parliament?

Hmmmmmmmm

Anyways, glad you guys got published, my retort was obviously too close to the bone - why should my childs toxicity be ignored because he is ASD....................

Mandi

[Guest guest]

In a message dated 26/02/2006 08:57:49 GMT Standard Time, mark.grabiec@... writes:

rather than print a whole new article - AAA must be livid. Glad they printed the letters but all three letters came from this list. Which is a bit worrying possibly?

>>>alternatively, maybe they didn''t have room for it all. Treating Autism did a peice on request for the AAA newletter, but they could only fit in a bit of it..............................

Mandi x

[Guest guest]

rather than print a whole new article - AAA must be livid. Glad

they printed the letters but all three letters came from this list.

Which is a bit worrying possibly?

> >

> > Hi Steph

> >

> > I too have a letter going in the next Communication magazine,

> again heavily

> > edited but that's good that at least the two of us have pro

> biomedical

> > articles going in. Maybe there will be even more. Lets hope so!

> >

> > Kay.

> >

> >

> > > I'm meant to have a letter in the next Communication

magazine

> (heavily

> > > edited but they did agree all the changes with me)

> >

> > >

> > > DISCLAIMER

> > > No information contained in this post is to be construed as

> medical

> > > advice. If you need medical advice, please seek it from a

> suitably

> > > qualified practitioner.

> > >

> > >

[Guest guest]

I also sent a comment, was probably a bit too harsh for them to

publish... I believe there could have been many more like that.

Natasa

> >

> > Hi Steph

> >

> > I too have a letter going in the next Communication magazine,

> again heavily

> > edited but that's good that at least the two of us have pro

> biomedical

> > articles going in. Maybe there will be even more. Lets hope so!

> >

> > Kay.

> >

> >

> > > I'm meant to have a letter in the next Communication magazine

> (heavily

> > > edited but they did agree all the changes with me)

> >

> > >

> > > DISCLAIMER

> > > No information contained in this post is to be construed as

> medical

> > > advice. If you need medical advice, please seek it from a

> suitably

> > > qualified practitioner.

> > >

> > >

[Guest guest]

Hi All from the token Yank! I wish this was not my Intro post but had to jump from the shadows on this post. My name is Beauvais Mom to Josh 5 patient of @ Dr. Bradstreet's. I specifically joined this list to get DAN help for people on my list serve ASD_solutions from the UK and Europe. I would like to weigh in on NAS. NAS as well as ASA is full of, what we call here, the Neurodiverse. They vehemently oppose those of us treating with BioMedical interventions and they loath chelation, calling it murder. Anyone wishing to spy on their hateful agenda sign on to AutAdvo@groups but do not post and use a proxy if you can. You will experience the daily assault on BioMed from people who consider Autism a genetic trait like blue eyes. The oppose anyone helping their children biologically or with ABA which they know only as it was 20

years ago with adversives. They are a sick bunch. They took my posts from the Evidence of Harm list serve and posted them completely out of context on their web page. They are famous for baiting us the posting our comments all over cyberspace misquoted. They frequently boast of their ability to set "anti-cure" agendas at ASA and NAS. Be aware.Sad that parents helping their fragile children would have to face enemies within the Autism community. Proceed with caution.As for us, we have been on this path for 2 years. My son is like a flower in full bloom. He is slowly coming back from a very dark journey. He was once non-verbal and lost and today he is verbal and in regular Kindergarten. I hope the BioMedical movement in Europe and the UK flourishes and we can all join hands to demand that immunizations are made safe and not just economical.Press On, Diane McGregor

<m_d33@...> wrote: I don't know if everyone's seen the Biomed replies in the latest Communication magazine, but it's under the header that the last article by Mike Stanton provoked a hostile response, followed by letters by Grabiec, Mikael Berntson and Kay Lowney. Mike Stanton replied saying he was pleased to have started a debate and gave his website www.mikestantonautism.blogspot.com where you can find the original article. They also received a response from Action Against Autism which was too long to print, so they left it out completely! Re: Is the NAS worth joining?? Just so, I never want to appear a maverick with my son's health. Good that they're including a few responses - we're having to be our children's physicians which is the real issue, not chelation per se.>> Hi Steph> > I too have a letter going in the next Communication magazine, again heavily > edited but that's good that at least the two of us have pro biomedical > articles going in. Maybe there will be even more. Lets hope so!> > Kay.> > > > I'm meant to have a letter in the next Communication magazine (heavily> > edited but they did agree all the changes with me)> > >> > DISCLAIMER> > No information contained in this post is to be construed as medical > > advice. If you need medical advice, please seek it from a suitably > > qualified practitioner.> >> >

[Guest guest]

,

So what is their explanation about all the kids who are improving on Bio-Med?? Or do they think we are imagining things.

BTW don't think automatically that the contributors on those lists are parents. I'll bet a lot are drug industry people. I read somewhere that the pharmaceutical industry is pouring money into the Internet..so it wouldn't surprise me that people are being paid to spread disinformation...

Re: Is the NAS worth joining??

Just so, I never want to appear a maverick with my son's health. Good that they're including a few responses - we're having to be our children's physicians which is the real issue, not chelation per se.>> Hi Steph> > I too have a letter going in the next Communication magazine, again heavily > edited but that's good that at least the two of us have pro biomedical > articles going in. Maybe there will be even more. Lets hope so!> > Kay.> > > > I'm meant to have a letter in the next Communication magazine (heavily> > edited but they did agree all the changes with me)> > >> > DISCLAIMER> > No information contained in this post is to be construed as medical > > advice. If you need medical advice, please seek it from a suitably > > qualified practitioner.> >> >

[Guest guest]

- The whole thing is quite unbelievable and we have encountered so much opposition from them in the US several of us have investigated who they are. Many are high functioning adult autistics others are parents of severely autistic children. I do not think it is beyond Pharma to underwrite these folks. They called the recent EDTA chelation death "murder" on the blogs and in the papers before the final autopsy came back "drug switch". (Sodium vs Calcium was pulled by accident.) If you scroll through the pictures of their kids on the site they look sad and distant. Several really outspoken NDs live in the UK and are targeting NAS. Here, they are rallying to have chelation pulled as a medical option from the ASA webpages. When arguing with these folks in public forums they will try to agitate or provoke a personal attack then exploit your quotes. The best defense is your story followed by hard data when going toe to toe with

them.I have come to pity them, they are fighting for absolutely nothing. Their poor kids will be robbed by their closed minds. They have no science in their corner, as science has failed to find an Autism gene, but rather over 32 that represent genetic suseptibility to environmental damage. It is just important to combat their accusations with hard fact (your child's healing or DAN science).Fortunately for us they are a shrinking minority. JULIE GRIFFITHS <moppett1@...> wrote: , So what is their explanation about all the kids who are improving on Bio-Med?? Or do they think we are imagining things. BTW don't think automatically that the contributors on those lists are parents. I'll bet a lot are drug industry people. I read somewhere that the pharmaceutical industry is pouring money into the Internet..so it wouldn't surprise me that people are being paid to spread disinformation...

Re: Is the NAS worth joining?? Just so, I never want to appear a maverick with my son's health. Good that they're including a few responses - we're having to be our children's physicians which is the real issue, not chelation per se.>> Hi Steph> > I too have a letter going in the next Communication magazine, again heavily > edited but that's good that at least the two of us have pro biomedical > articles going in. Maybe there will be even more. Lets hope so!> > Kay.> > > > I'm meant to have a letter in the next Communication magazine (heavily> > edited but they did agree all the changes with me)> >

>> > DISCLAIMER> > No information contained in this post is to be construed as medical > > advice. If you need medical advice, please seek it from a suitably > > qualified practitioner.> >> >

[Guest guest]

The home page is AutAdvo/

Margaret

Re: Is the NAS worth joining??

Just so, I never want to appear a maverick with my son's health. Good that they're including a few responses - we're having to be our children's physicians which is the real issue, not chelation per se.>> Hi Steph> > I too have a letter going in the next Communication magazine, again heavily > edited but that's good that at least the two of us have pro biomedical > articles going in. Maybe there will be even more. Lets hope so!> > Kay.> > > > I'm meant to have a letter in the next Communication magazine (heavily> > edited but they did agree all the changes with me)> > >> > DISCLAIMER> > No information contained in this post is to be construed as medical > > advice. If you need medical advice, please seek it from a suitably > > qualified practitioner.> >> >

[Guest guest]

Are they a shrinking minority , I find them all over the place these days, more's the pity, and I worry they will ever have some clout.

My sons paed who supports us in our funding case made the point we were not trying to change our son, it struck me as a very strange statement and I have to add totally innacurate seeing as we are trying to change him in order that he may have a good quality of life!

Vicky

[Guest guest]

Hi

Thanks for posting and welcome to the group!

The NAS certainly needs changing, that's for sure. And yes, there is

a contingent within the NAS that is vehemently opposed to biomed.

There are also some very good people within the NAS at Councillor

level - I know a handful personally who are doing biomed. I also know

that there are others within the NAS who, whilst they are not doing

biomed, are progressive thinkers who are supportive of other people's

right to choose what they feel is the best treatment for their kids.

Elections for NAS Councillors are coming up soon. The Councillors

vote reps onto the NAS Board, which is the seat of NAS's power. The

more progresseive thinking peeps elected to the Council, the higher

the likelihood of good peeps being elected to the Board.

I beleive this is one way to support change in the NAS and would urge

people to exercise their right to vote in the NAS elections.

Zoe

> >

> > Hi Steph

> >

> > I too have a letter going in the next Communication magazine,

> again heavily

> > edited but that's good that at least the two of us have pro

> biomedical

> > articles going in. Maybe there will be even more. Lets hope so!

> >

> > Kay.

> >

> >

> > > I'm meant to have a letter in the next Communication magazine

> (heavily

> > > edited but they did agree all the changes with me)

> >

> > >

> > > DISCLAIMER

> > > No information contained in this post is to be construed as

> medical

> > > advice. If you need medical advice, please seek it from a

> suitably

> > > qualified practitioner.

> > >

> > >

[Guest guest]

I burned by fingers a few times trying to bring my point across on those types

of forums. It is futile trying to argue that biomed works with someone

who DOES NOT WANT IT TO WORK. This I believe is where the real problem

lies.

Acutally, , all improvements we see in our kids are written off as

placebo, and all science behind biomed as "circular logic" (an actual

quote from an asperger adult). So there. In the end, I think I managed

to convince a few people there that the changes in my son were for

real, but the feedback from them was still negative, as they thought I

might be doing my son a disservice by changing anything...

The weirdest thing of all is that lots of these people who are

anti-biomed are, or have their kids on, gluten free casein free diets!!! When I

tried to point out that diet is also part of biomed/recovery all

hell broke lose...

Natasa

> >> > Hi Steph> > > > I too have a letter going in the next Communication magazine, > again heavily > > edited but that's good that at least the two of us have pro > biomedical > > articles going in. Maybe there will be even more. Lets hope so!> > > > Kay.> > > > > > > I'm meant to have a letter in the next Communication magazine > (heavily> > > edited but they did agree all the changes with me)> > > > >> > > DISCLAIMER> > > No information contained in this post is to be construed as > medical > > > advice. If you need medical advice, please seek it from a > suitably > > > qualified practitioner.> > >> > >

[Guest guest]

how can the NAS explain the " recovered " kids. You can understand the

government and pharma companies being against treating our kids but

the NAS is supposed to be on our side. It is so frustrating that the

majority of people think we are mad beleiving in chelation etc.

I joined the NAS for a year and an advisor was very helpful when we

were fighting for a statement ( only took about 9 months!). I

got lots of letters about re joining but I phoned them and said that

since they seem to be in denial about our kids medical conditions

and interventions then my money would be better spent in helping my

child ( Iknow only pays for a few supplements).-but it is the

principle of the thing. I am having an angry day!

Peta

-- In Autism Treatment , " natasa778 "

<neno@...> wrote:

>

> I burned by fingers a few times trying to bring my point across on

those

> types of forums. It is futile trying to argue that biomed works

with

> someone who DOES NOT WANT IT TO WORK. This I believe is where the

real

> problem lies.

>

> Acutally, , all improvements we see in our kids are written

off as

> placebo, and all science behind biomed as " circular logic " (an

actual

> quote from an asperger adult). So there. In the end, I think I

managed

> to convince a few people there that the changes in my son were for

real,

> but the feedback from them was still negative, as they thought I

might

> be doing my son a disservice by changing anything...

>

> The weirdest thing of all is that lots of these people who are

> anti-biomed are, or have their kids on, gluten free casein free

diets!!!

> When I tried to point out that diet is also part of

biomed/recovery all

> hell broke lose...

>

> Natasa

>

>

>

>

>

>

>

>

>

>

>

>

> > >

> > > Hi Steph

> > >

> > > I too have a letter going in the next Communication magazine,

> > again heavily

> > > edited but that's good that at least the two of us have pro

> > biomedical

> > > articles going in. Maybe there will be even more. Lets hope so!

> > >

> > > Kay.

> > >

> > >

> > > > I'm meant to have a letter in the next Communication magazine

> > (heavily

> > > > edited but they did agree all the changes with me)

> > >

> > > >

> > > > DISCLAIMER

> > > > No information contained in this post is to be construed as

> > medical

> > > > advice. If you need medical advice, please seek it from a

> > suitably

> > > > qualified practitioner.

> > > >

> > > >

[Guest guest]

Hi Zoe!Despite and ocean between us I could not agree with you more. We need to be a driving voice that Autism is treatable. Especially so parents know there are answers for violent tantrums from gut illnesses and in gaining words for their nonverbal children. I feel the same way about ASA. I met our chapter vice president at a Great Plains conference. He was an older Autistic treating himself Biomedically, he was a charming young man. Independent, working, driving and attending church. I admired his service to our community. He was the picture of determination. Another ASA leader attends the same HBOT center we do with her very violent son. They literally bring him in with two escorts. My heart is full of compassion for these people at whatever level they are at.The Neurodiverse are very much a snake in the grass tho'. They lurked on the EOH list and a few others and bait parents by accusing them of not accepting them. Then convolute

us into bigots. It is just crazy.The only way around it is to politely state facts and your child's progress. They posted quotes from me on their webpage from a heated exchange I had with a woman know as the Autismdiva, Camille and inferred that the comments were directed at a teenage girl who post. My actual post to the teenager was very compassionate. Camille has diagnosed herself as Autistic she is so high functioning herself we found pictures of her touring Russia-hardly disabled. She states everywhere she has an Autistic child but later we found her child had Spina bifida a condition that has some similar traits but is completely different. She attacks Generation Rescue, Kirby and anyone biomedically oriented as frauds on her blog.I don't doubt she will show up on this list eventually posing as parent. She harrassed ABMD and EOH lists.It is all pretty meaningless until these folks show up posting letters to the press posing

as Autism advocates. This is where our facts and science must over-shadow them. My concern is for new parents and others taking in their warped rhetoric that Autism is purely genetic.I wish the best for you in the UK and Europe. There are parents crying themselves to sleep at night for lack of answers. This ought not be. My prayer is that your voice will be strong one. Blessings,Zoe <zoe@...> wrote: Hi Thanks for posting and welcome to the group!The NAS certainly needs changing, that's for sure. And yes, there isa contingent within the NAS that is vehemently opposed to biomed.There are also some very good people within the NAS at Councillorlevel - I know a handful personally who are doing biomed. I also knowthat there are

others within the NAS who, whilst they are not doingbiomed, are progressive thinkers who are supportive of other people'sright to choose what they feel is the best treatment for their kids.Elections for NAS Councillors are coming up soon. The Councillorsvote reps onto the NAS Board, which is the seat of NAS's power. Themore progresseive thinking peeps elected to the Council, the higherthe likelihood of good peeps being elected to the Board.I beleive this is one way to support change in the NAS and would urgepeople to exercise their right to vote in the NAS elections.Zoe > >> > Hi Steph> > > > I too have a letter going in the next Communication magazine, > again heavily > > edited but that's good that at least the two of us have pro > biomedical > > articles going in. Maybe there will be even more. Lets hope so!> > > > Kay.> > > > > > > I'm meant to have a letter in the next Communication magazine > (heavily> > > edited but they did agree all the changes with me)> > > > >> > > DISCLAIMER> > > No information contained in this post is to be construed as > medical > > > advice. If you need medical advice, please seek it

from a > suitably > > > qualified practitioner.> > >> > >

[Guest guest]

Yes Vicky...just imagine a parent treating their child for cancer,accused of poisoning them with Chemo (far more dangerous than chelation). After all cancer is purely genetic. Hogwash, cancer is oxidative stress and enviro-insult those with weak genes are more vulnerable. Who would oppose a parent rescuing a child to health??? Every time I get the "purely genetic-accept it" rhetoric, I mention that we didn't have the genes to hold up to 276X over the EPA allowable quantity of Mercury.If I gave that amount of Thimerosal to my child orally I would be in jail now. The EPA wouldn't allow what was injected into my child in a landfill. I am not waiting 50 years for an Autism gene to be found. I don't think they will ever find one.Funny the battles we have to fight in addition to saving our kids.I can say it does get better. Josh's marked obvious, progress can't be argued.My best advocate is the receptionist at

school she has seen us from pre-school non-verbal days, coming in for services. Those that have seen the steady progress and language develop without psych drugs are amazed.My favorite story is heroic mother from Egypt. A local neurologist discredited any Biomedical efforts and wanted her son on Ritalin. This was as she was preparing for her first DAN visit. Her husband almost taken in. At the last minute he read the Ritalin side effect data and kept their DAN appointment. Their metal poisoned son is responding so well his uncle is become a DAN doctor in Dubai!!! At times I want to scream at the obstacles but science and the truth are on our side, so we need to press on despite the opposition. Our kids are worth the crazy fight.Yes they(the ND) are a minority. AutAdvo has about 600 members and CK2 about 7000, GFCFkids 8000 and ABMD 2000. Thankfully parents are catching on. MaddiganV@... wrote: Are they a shrinking minority , I find them all over the place these days, more's the pity, and I worry they will ever have some clout. My sons paed who supports us in our funding case made the point we were not trying to change our son, it struck me as a very strange statement and I have to add totally innacurate seeing as we are trying to change him in order that he may have a good quality of life! Vicky Beauvais Mom to , who had 276X the EPA allowable amount of Mercury in his infant vaccines. ASD_solutions @ groups Helping a generation of Mercury damaged children recover, one step at a time. There is Hope. www.generationrescue.org

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

If you go to AFF website you can read SBC's email to Amy their founder, where he claims proudly to be among the first to say that autism is not a disability but a difference, he does pay lip service to gut issues but emphasises SOME children have comorbid gut issues.

The problem is he is seen by many to be the expert in the Country on Autism, and I cannot see at all what he has done for autism research.

If autism were not seen as a disability then imagine how fast the DLA and any other meagre services vanish, and this man is pictured with Jane Asher representing the autistic society!

As they say "with friends like this". grrrr

Vicky

[Guest guest]

Hi

Welcome to ABE - very good to have you here.

Steph x

> Are they a shrinking minority , I find them all over

the place these days, more's the pity, and I worry they will ever

have some clout.

> My sons paed who supports us in our funding case made the point

we were not trying to change our son, it struck me as a very strange

statement and I have to add totally innacurate seeing as we are

trying to change him in order that he may have a good quality of

life!

> Vicky

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice. If you need medical advice, please seek it from a

suitably qualified practitioner.

>

>

>

>

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[Guest guest]

One thing people don't see (unless you lurk on the ND boards) is their agenda to drive BioMed off as well as any treatment options. They literally sit in on lectures at NAS and the M.I.N.D. institute and wait to harass the speaker. Of course if they are older high functioning and not a victim of 74 immunizations, bolus Mercury dosing or a faulty MMR. Unlike Generation Hg from the 90s. They can say they are just a little different. I would love for my son to have battled a "Bill Gates" Autism. My kid was a very sick kid. My hope and prayer is that one day he is just "a little" different.How does one look at an Immune Study, a Krigsman scope, a urine toxic metal lab or a kid who has violent reflux and call it "different".Later on we pay the price when ABA is taken out of the schools and physicians chalk us up as quack science. These folks need to be reckoned with. Thankfully we can put our science toe to toe with their's and

come out on top. MaddiganV@... wrote: If you go to AFF website you can read SBC's email to Amy their founder, where he claims proudly to be among the first to say that autism is not a disability but a difference, he does pay lip service to gut issues but emphasises SOME children have comorbid gut issues. The problem is he is seen by many to be the expert in the Country on Autism, and I cannot see at all what he has done for autism research. If autism were not seen as a disability then imagine how fast the DLA and any other meagre services vanish, and this man is pictured with Jane Asher representing the autistic society! As they say "with friends like this".

grrrr Vicky Beauvais Mom to , who had 276X the EPA allowable amount of Mercury in his infant vaccines. ASD_solutions @ groups Helping a generation of Mercury damaged children recover, one step at a time. There is Hope. www.generationrescue.org

Use Photomail to share photos without annoying attachments.

[Guest guest]

This is the link to the e-mail which seems to be from S B-C. http://www.aspiesforfreedom.org/index.php?page=libraryview & document=simonbaroncohen_reply

I quote one paragraph:

My impression is that that SOME (but not all) so-called "low-functioning"people with autism may suffer from some clear-cut medical conditions(including intestinal pain or epilepsy) and I have no problem hoping thatthose medical aspects that can cause suffering can be cured. but i do notsee these as at the core of autism or AS. they occur in some significantsubgroup, and can make life awful for that person or their family.

I am appalled by this. OK, it's only an e-mail and people are often less careful to be accurate when dashing off an e-mail. If it is indeed from S B-C and is a true statement of his views then something really does need to be done.

Margaret

Re: Re: Is the NAS worth joining??

If you go to AFF website you can read SBC's email to Amy their founder, where he claims proudly to be among the first to say that autism is not a disability but a difference, he does pay lip service to gut issues but emphasises SOME children have comorbid gut issues.

The problem is he is seen by many to be the expert in the Country on Autism, and I cannot see at all what he has done for autism research.

If autism were not seen as a disability then imagine how fast the DLA and any other meagre services vanish, and this man is pictured with Jane Asher representing the autistic society!

As they say "with friends like this". grrrr

Vicky__________ NOD32 1.1420 (20060227) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com