Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 Hi Mike, My second trip to UCI is tomorrow, Monday, to go through more testing and hopefully see where he is on their scales 's one of their oldest kids (15) and his receptive language is pretty high functioning although he can't communicate too well. I'm really happy to see this study being done and very interested in the MRI imaging. I sure hope can get through it, since he can't be sedated due to anesthesia allergies. Have you learned anything yet? (Mom to 15, DS/ASD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 Whoa! Tied up in my world at this time and busy. So, I missed an interesting message going on here. Do stay posted with this, I'm totally " awe " on this as I too enjoy whats being done. Luck on your trip and may all go well with , . Welcome Mike! Glad to have you aboard. I for one do not want to miss out on any new research or testing as my son is 13. Definitely not closing my eyes or ears anymore. Always learning here. Thanks guys for sharing. Irma,13,DS/ASD > Hi Mike, > > My second trip to UCI is tomorrow, Monday, to go through more testing and > hopefully see where he is on their scales 's one of their oldest kids > (15) and his receptive language is pretty high functioning although he can't > communicate too well. I'm really happy to see this study being done and very > interested in the MRI imaging. I sure hope can get through it, since > he can't be sedated due to anesthesia allergies. > > Have you learned anything yet? > (Mom to 15, DS/ASD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Bradford wrote: The only other thing that didn't seem quite right was when one of the CSI people commented " they're not disabled, they're just short " . Actually, that's not quite what he said -- I remembered it because it struck me -- he said, " Being a dwarf doesn't mean you're disabled, it just means you're short. " And that was after another guy had commented about how the suicide rate was higher in the disabled community. I thought, in the context, it was a great way of pointing out to people that dwarfism itself is not automatically a disability, just a fact of height. I thought it was a really positive statement about how dwarfs can be normal people who just happen to be short. Obviously, people can interpret things differently; what saw as possibly negative I, as an average height mom of an LP daughter, saw as truly positive education. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 On Fri, 18 Oct 2002, Hemly wrote: > Actually, that's not quite what he said -- I remembered it because it struck > me -- he said, " Being a dwarf doesn't mean you're disabled, it just means > you're short. " And that was after another guy had commented about how the > suicide rate was higher in the disabled community. > > I thought, in the context, it was a great way of pointing out to people that > dwarfism itself is not automatically a disability, just a fact of height. That is an excellent point and I hadn't considered it that way. Thanks for pointing this out. I only brought it up because it's true that all types of dwarfism carry with them a higher potential for disabling conditions. Some of these may not appear until later in life, but they are risks that we all have to live with. Also, consider that for people of extreme short stature (i.e. 3'6 " and under, like myself) it could be argued that their height alone is a disabling condition. I cannot reach the sinks in public restrooms, for example, or drive without special equipment. I guess it all depends on one's definition of " disabled " . I consider most of us disabled because we require a significant amount of adaptation to function in the " average " world. These adaptations cost money, and if we can get many of them subsidized by programs for the " disabled " , then it's perfectly logical for us to consider ourselves as such. My concern over the comment " being a dwarf doesn't mean you're disabled, it just means you're short " is, what if I run into an average-sized person who refuses to permit me the status of " disabled " because he heard this on CSI? For example, if I am trying to buy tickets for a concert or a sporting event, and I ask for " disabled " seating? Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 I don't disagree that most forms of dwarfism bring disabling conditions -- but I also don't think people are going to argue when you need adaptations, since it's often very obvious that they're necessary. It's just good for people to not automatically think of any group of people as automatically deserving of pity -- I know my daughter nearly choked last year when an elderly gentleman spent five minutes telling her how " brave " she is. Like she has a choice??? The point I was trying to make was that I felt that remark was very humanizing, suggesting people should view a dwarf as a person first rather than just the height of their head. And in the context it was made, I thought it made that point very well. RE: Digest Number 1527 On Fri, 18 Oct 2002, Hemly wrote: > Actually, that's not quite what he said -- I remembered it because it struck > me -- he said, " Being a dwarf doesn't mean you're disabled, it just means > you're short. " And that was after another guy had commented about how the > suicide rate was higher in the disabled community. > > I thought, in the context, it was a great way of pointing out to people that > dwarfism itself is not automatically a disability, just a fact of height. That is an excellent point and I hadn't considered it that way. Thanks for pointing this out. I only brought it up because it's true that all types of dwarfism carry with them a higher potential for disabling conditions. Some of these may not appear until later in life, but they are risks that we all have to live with. Also, consider that for people of extreme short stature (i.e. 3'6 " and under, like myself) it could be argued that their height alone is a disabling condition. I cannot reach the sinks in public restrooms, for example, or drive without special equipment. I guess it all depends on one's definition of " disabled " . I consider most of us disabled because we require a significant amount of adaptation to function in the " average " world. These adaptations cost money, and if we can get many of them subsidized by programs for the " disabled " , then it's perfectly logical for us to consider ourselves as such. My concern over the comment " being a dwarf doesn't mean you're disabled, it just means you're short " is, what if I run into an average-sized person who refuses to permit me the status of " disabled " because he heard this on CSI? For example, if I am trying to buy tickets for a concert or a sporting event, and I ask for " disabled " seating? Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2003 Report Share Posted July 29, 2003 , their website is hoeggergoatsupply.com , and they are located in North Ga. I wanted to ask a few questions about mead, I make wine from scupplings every year, and have a bucket of some strong tasting honey, and was wanting to make mead, are there any books or websites that could walk me thru it???Thanks for any help..Also has anyone made elderberry wine before??? I use wine in cooking and for immune boosting, and have read that elderberry is the best immune booster.. Angel Quote Link to comment Share on other sites More sharing options...
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