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Hi Everyone,

Speaking of tic-like behavior, what can you tell me about hand-flapping?

I've heard that kids with NBDs sometimes do this, but is it considered a

tic? Kelsey has started this in the last few months. Mostly it seems

like an anxious or excited response, like when she's feeling hurried or

when I'm about to brush her hair (anticipating pain on her sensitive

scalp!) of when she's excited about something.

Thanks for any info,

in San Diego

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- Joe did this for a while last summer. I didn't no what to make of

it either. Eliza in WI

handflapping

> From: Roman <ChrisRoman@...>

>

> Hi Everyone,

>

> Speaking of tic-like behavior, what can you tell me about hand-flapping?

> I've heard that kids with NBDs sometimes do this, but is it considered a

> tic? Kelsey has started this in the last few months. Mostly it seems

> like an anxious or excited response, like when she's feeling hurried or

> when I'm about to brush her hair (anticipating pain on her sensitive

> scalp!) of when she's excited about something.

>

> Thanks for any info,

>

> in San Diego

>

>

> ---------------------------

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between the 3 lists i'm on, I can't keep track of who's answered who--

anybody have any suggestions to help with this?

As for handflapping, I remember walking thru stores with my year old baby,

and everyone commenting how cute she was, always in motion -- hands and feet

both flapping.

In later years, she flapped whenever she was happy or excited about

something-- incredibly adorable-- kind of like a dog wagging its tail.

We just always thought it was part of ADHD, but now we know better-- I think

its considered a " complex " tic, definitely part of Tourettes.

And here's the toughest thought I've had today-- I can't believe I'm going to

say I miss a tic-- but hasn't been happy or excited about anything in

so long, that she's stopped flapping altogether. How sad is that?

Ellen in NY

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Hi Ellen:

Sorry if I don't recall but is being treated for depression as well

as TS and OCD?

It is very hard to see the the happiness and joy go out of our kids

everyday activities. Please know that it can and will return. Right now I

have four teens watching " American Pie " and they are having a great time.

Two of them have a number of serious anxiety and mood disorders and other

alphabet soup, and I am enjoying their enjoyment.

take care, aloha, kathy (H)

kathyh@...

At 07:26 PM 01/29/2000 EST, you wrote:

>From: Elan214@...

>

>between the 3 lists i'm on, I can't keep track of who's answered who--

>anybody have any suggestions to help with this?

>

>As for handflapping, I remember walking thru stores with my year old baby,

>and everyone commenting how cute she was, always in motion -- hands and feet

>both flapping.

>

>In later years, she flapped whenever she was happy or excited about

>something-- incredibly adorable-- kind of like a dog wagging its tail.

>

>We just always thought it was part of ADHD, but now we know better-- I think

>its considered a " complex " tic, definitely part of Tourettes.

>

>And here's the toughest thought I've had today-- I can't believe I'm going

to

>say I miss a tic-- but hasn't been happy or excited about anything

in

>so long, that she's stopped flapping altogether. How sad is that?

>

>Ellen in NY

>

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Hi Ellen,

You're daughter's hand flapping sounds more like Asperger's than TS. My son

Mat used to spin when he was happy or excited. I actually got excited when

his fourth grade teacher told me Mat was disrupting the class when he would

get up from his seat and spin!

Tics are more common when a child is stressed. Autistics stims are more

common when a child is happy or excited. Mat has many tics, but I think the

spinning is a stim.

Patti in Ca

<<

between the 3 lists i'm on, I can't keep track of who's answered who--

anybody have any suggestions to help with this?

As for handflapping, I remember walking thru stores with my year old baby,

and everyone commenting how cute she was, always in motion -- hands and feet

both flapping.

In later years, she flapped whenever she was happy or excited about

something-- incredibly adorable-- kind of like a dog wagging its tail.

We just always thought it was part of ADHD, but now we know better-- I think

its considered a " complex " tic, definitely part of Tourettes.

And here's the toughest thought I've had today-- I can't believe I'm going

to

say I miss a tic-- but hasn't been happy or excited about anything

in

so long, that she's stopped flapping altogether. How sad is that?

Ellen in NY >>

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I understand,hang in there.Sometimes it's hard for me to remember when e

wore clothes in the house. will be happy again,and someday e

will have clothes on.Beth in IN.

Re: handflapping

> From: Elan214@...

>

> between the 3 lists i'm on, I can't keep track of who's answered who--

> anybody have any suggestions to help with this?

>

> As for handflapping, I remember walking thru stores with my year old baby,

> and everyone commenting how cute she was, always in motion -- hands and

feet

> both flapping.

>

> In later years, she flapped whenever she was happy or excited about

> something-- incredibly adorable-- kind of like a dog wagging its tail.

>

> We just always thought it was part of ADHD, but now we know better-- I

think

> its considered a " complex " tic, definitely part of Tourettes.

>

> And here's the toughest thought I've had today-- I can't believe I'm going

to

> say I miss a tic-- but hasn't been happy or excited about anything

in

> so long, that she's stopped flapping altogether. How sad is that?

>

> Ellen in NY

>

> ---------------------------

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hi beth and all--

thanks for reassurance, but, not to be a downer, how do you know it will get

better? I understand optimism, but things just seems to be spiraling

downhill fast. Now 's school is making alot of noise about her

needing to find a different place to learn. Compulsions seem to be steady

right now, but her impulse control is horrible-- her first reaction to stress

is striking out, screaming, obviously not acceptable in school, although with

what goes on there, its hard to blame her.

I know some of you home school, or have the kids go to school part time. How

do you manage your own lives when this happens? I feel as if the only time I

can breathe is when she's in school. I have so much sympathy for her, but

its so hard to be with her.

Ellen in NY

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HI Ellen:

You really are going through a very rough time right now. Do you have

anyone who can help you and watch so you can get a breather? We

were amazed at how our friends with their own NBDs came to help us with

Steve's suicide attempts. For two months he could not go to school and he

could not be left alone or even in the next room without an observer. I

will never forget the emotional and physical exhaustion.

What I learned was to develop my support team of people who could help,

also to live minute by minute and not to think of the future but exist only

in the present. We had to keep working so we brought Steve to work with

us, when had to teach class I would watch Steve in my office and then

after classes were over he would return to his dad's office. A friend

would sometimes watch him for us when she was not teaching. Please try to

find people like this who can help you.

Here they have home hospital tutoring. That is how they help kids in the

public school system who are not well enough to attend classes. If

possible, do not let the school get off the hook, find out what resources

they can offer if they feel needs a different place to learn for a

time. This problem is too big for you to solve on your own, developing a

support team may seem overwhelming right now, but that is what you need.

Take care, aloha, Kathy (H)

kathyh@...

At 10:40 AM 01/31/2000 -0500, you wrote:

>From: Elan214@...

>

>hi beth and all--

>

>thanks for reassurance, but, not to be a downer, how do you know it will get

>better? I understand optimism, but things just seems to be spiraling

>downhill fast. Now 's school is making alot of noise about her

>needing to find a different place to learn. Compulsions seem to be steady

>right now, but her impulse control is horrible-- her first reaction to

stress

>is striking out, screaming, obviously not acceptable in school, although

with

>what goes on there, its hard to blame her.

>

>I know some of you home school, or have the kids go to school part time.

How

>do you manage your own lives when this happens? I feel as if the only

time I

>can breathe is when she's in school. I have so much sympathy for her, but

>its so hard to be with her.

>

>

>

>Ellen in NY

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