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Dan's therapist said I should get a 504 for him, so I called the

guidance office. The counsellor said there was not a chance, because he

got all As and Bs first term. Unless a student is getting more than one

D, they don't give 504s. Does this sound right?

Judy

Kathy Hammes wrote:

>

> From: Kathy Hammes <kathyh@...>

>

> Hi Dana:

>

> Please don't beat yourself up about the time spent/wasted in dealing

> with

> OCD. For all of us this is a learning process. For our family it has

> literally taken years, months and months to figure out there was a

> real

> problem, months to figure out what it was and then over a year to find

> an

> effective treatment team.

>

> At first I also set up Steve's 504 to allow avoidance and prevented

> teachers from interacting therapeutically with him. Once he was able

> to

> learn CBT then we changed the 504 to reinforce his bossing back and

> involve

> the teachers more therapeutically with him. It is just too early to

> set up

> a 504 with zero enabling until our kids have learned the necessary

> skills

> to boss back OCD on their own. It is counterproductive for our kids

> to get

> punished for OCD behaviors they are only just starting to learn how to

> control.

>

> Changing the 504 has been a bit confusing for the teachers who seem

> more

> accustomed to doing the same thing for a long time. However each year

> there is a new team of teachers and you can start again at square one

> depending on Ava's progress with her CBT/E & RP. The perseverating

> behaviors

> seem particularly irksome to the teachers. For Steve this would

> manifest

> in having to have the last word in classroom discussions. The

> teachers

> really appreciated working on getting him to reduce these behaviors.

>

> We have also faced the structured vs. non-structured/less structured

> educational experience. Strangely enough the structured seems to work

> the

> best. What we do is use humor about the situations when the teachers

> do

> stuff which is not the best approach for managing OCD. Luckily

> Steve's CBT

> therapist has helped the teachers with suggestions about how to handle

> his

> OCD sxs in the classroom and this seems to allay their fears. They

> seem

> relieved to have a non-parent resource to answer their questions.

>

> Ava has already come a long way and will continue to make strides

> against

> her OCD. We notice every few months that Steve is managing things

> better

> than before, it is surprising how lengthy yet persistent the

> improvement is.

>

> Take care, aloha, Kathy (H)

> kathyh@...

>

> At 04:11 PM 01/23/2000 -0500, you wrote:

> >From: Dana Carvalho <clayvon@...>

> >

> >Hi Kathy,

> >This really is good news. I am inspired for sure. Needing to finish

> >things is definitely one of Ava's issues too and it is good to see

> how

> >successful ERP is in dealing with this one as well as the others.

> Since

> >Ava hasn't had the opportunity to learn ERP we've spent (wasted?) so

> >much time trying to change the environment so that she can be okay

> the

> >way she is. Her 504 plan allows her extra time to finish things.

> While

> >this has worked in a temporary way I'm really looking forward to

> finding

> >a doc who can work with all of us using CBT instead of just meds.

> >It's hard to figure out what is support/advocacy and what is enabling

> -

> >at least it's hard for me anyway! I think lately I've been doing

> more

> >enabling, partly I think due to the changes of middle school. Last

> year

> >she had one teacher instead of seven and she was so good that I

> trusted

> >her to help sort out the support vs enabling issues. We worked so

> well

> >together. But this year she got a team of teachers who are known for

> >their high standards and structure (which is very good for Ava) but

> also

> >for their inflexibility and downright meanness (not so good). The

> other

> >choice (there are 2 " teams " of 6th grade teachers at her school) was

> the

> >warm fuzzy, less structured, more laid back team but I didn't pick it

> >because the guidance counselor and I thought that she'd be stressed

> by

> >the unpredictability, bored by the lack of challenge and she'd take

> over

> >the class with the laid back teachers. Ava looms very large when she

> >can (she is a natural leader but it really needs to be channeled!).

> >Your success has given me some hope that with good CBT Ava can

> overcome

> >some of the more difficult situations at school w/o accomadations

> that

> >enable.

> >Dana in NC

> >

>

> ----------------------------------------------------------------------

> [

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