Re: acute mesenteric adenitis

[Guest guest]

Hi Everyone,

Have any of you heard, or know of anyone that has or has been diagnosed with

" Acute Mesenteric Adentitis? "

[Guest guest]

i'm very sorry to hear about your daughters mesenteric adenitis,

kelly......OMG, this has to stop, this nightmare of ours! i have horrible

pains over my kidneys, which sometimes radiates up my scapula (shoulder

blades) & rarely, though, comes around the front somewhat.....as of yet, no

doc has diagnosed this problem at allllllllllll. i KNOW its due to the

molds, but proving it, is quite another story.

research, kelly, but the milk thistle helps me ........VERY MUCH!

take care, & God bless,

victoria

[] acute mesenteric adenitis

> Hi All,

> I am a bit aware of what this is. Just not familiar with it. My daughter

> (10) was once again taken to ER a couple of weeks ago. She had been

> getting sick again. This time though it brought back horrible memories

> for all of us, from when we were in our sick home. But, I could tell it

> wasn't the same. As after 5 years I have figured out what her symptoms

> are after being exposed again.

> So, after much arguing with the attending doctor to get a CAT scan done on

> her stomach area-I had finally succeeded after 7 years. We would see if

> there was something wrong with her appendix. (that's what I was afraid was

> wrong & didn't want to wait for a miss diagnosis) Well anyway, the

> results came back and she has this mesenteric adenitis. (swollen and

> enlarged lymph nodes around her internal organs in her belly area) That is

> what is causing her problems with her stomach.

> So, I figured maybe some others were diagnosed with this after exposure.

> Her diet has been extremely modified. (by me-because I know what makes

> her sick) So, now we have to go see this specialist (surgeon) to monitor

> the condition. I want to know as much as I can. The feeling I have is

> kind of like when we found out we had mold. NOT A CLUE!!!! I feel like I

> have to know everything about it, before taking her there. So, I figured

> maybe some you had been diagnosed with this, or maybe knew someone who

> had. Just so I would have extra knowledge before going in blind about it

> as I am now.

> I know what the first thougt from many of you will be, as it was mine too.

> She is not being exposed to mold at school, home, or grandmas house.

> Which is where she spends 95% of her time. We know these are safe.

> Also, I have been hearing alot about milk thistle from all of you. I have

> to research it more. But, wondered if it might help. They have the tea

> at health food store, and she loves tea. (can't take pills)

> It is hard to give her much of anything, as it all makes her sick. We

> finally got her a multi-vitamin with enzymes in it,(liquid) which she has

> taken for 3 days now, and she has not gotten sick. This after about 15

> different vitamins.

> Thank you all for your time.

>

>

>

>

[Guest guest]

Thank you ,

I will have to start researching milk thistle today. I am wondering however

if tea is okay. I have found it in pill form, but because pills seem to be

hard to digest for her I have to try and stay with liquid stuff.

I am sorry to hear about your pain also. Its horrible to know there is

something wrong and the doctors cannot find it.

My daughter has been in the hospital so many times. Had every test, x-ray

and so forth done. That I had had enough. They told me they didn't do CAT

scans on kids because of the radiation. This I understand, but geez I

wanted to know what was wrong with her. So, I told him either do it, or we

would not leave the hospital until they did it. I said that there is

something definitely wrong with her and this might be the only answer to

find out what it was, since it is her stomach. Finally, after 3 hours of

the argument and refusing to sign her out they did it. He did commend me

however for fighting for her. If they would not have done it, we would not

know what was wrong.

My thought was, I understand the radiation part of it. But, she is so

sick-alittle radiation is better than not knowing what is wrong. Atleast

now, we can understand why she goes thru all of this sickness and try to fix

it.

She cannot eat meat, raw veggies and fruit, spaghetti, chili, (spicy foods,

acidic foods), orange juice, any type of pill, rich foods (like chocolate,

ice cream), she cannot miss a meal, and needs snacks in between, she has to

get 10 hours of sleep, no strenuous exercise or play, medicine is the

hardest of all, it basically all makes her sick. They did however give her

some kind of dissolving pill for her stomach. So far, she has taken it 4

times and the symptoms have gotten better, the pain is still there, but no

throwing up, or diarrhea. If there is something that upsets her it triggers

the symptoms. If there is a test at school, or something that gets her

nerves excited she gets sick. It just seems that if she could just lay in a

bed, not talk, and just eat cream of potatoes soup it would all be good.

Funny though, my son is basically pretty healthy. It's weird how one child

coming out of the same environment, with the same exact symptoms can react

differently than their sibling.

I hope they can find what it wrong with you. Even if there is no

medical cure, you could atleast try to treat the symptoms, find out what can

make it feel better, or makes it worse. You are right this has to stop.

Think about it, we are just 2 families with problems. We here on the board

atleast are aware and have knowledge of mold. While others sit sick at

home, not knowing why they are sick, doctors telling them nothing is wrong,

while in horrific pain, or enduring illnesses that don't go away.

I feel fortunate enough to atleast " be in the know. " To also have wonderful

people on this board that know also, and understand. For that I am thankful

everyday. Also, that all us here atleast made it out alive, even with the

illnesses, pain and suffering. Some are not as fortunate.

Take care,

[] acute mesenteric adenitis

>

>

>> Hi All,

>> I am a bit aware of what this is. Just not familiar with it. My

>> daughter

>> (10) was once again taken to ER a couple of weeks ago. She had been

>> getting sick again. This time though it brought back horrible memories

>> for all of us, from when we were in our sick home. But, I could tell it

>> wasn't the same. As after 5 years I have figured out what her symptoms

>> are after being exposed again.

>> So, after much arguing with the attending doctor to get a CAT scan done

>> on

>> her stomach area-I had finally succeeded after 7 years. We would see if

>> there was something wrong with her appendix. (that's what I was afraid

>> was

>> wrong & didn't want to wait for a miss diagnosis) Well anyway, the

>> results came back and she has this mesenteric adenitis. (swollen and

>> enlarged lymph nodes around her internal organs in her belly area) That

>> is

>> what is causing her problems with her stomach.

>> So, I figured maybe some others were diagnosed with this after exposure.

>> Her diet has been extremely modified. (by me-because I know what makes

>> her sick) So, now we have to go see this specialist (surgeon) to monitor

>> the condition. I want to know as much as I can. The feeling I have is

>> kind of like when we found out we had mold. NOT A CLUE!!!! I feel like I

>> have to know everything about it, before taking her there. So, I figured

>> maybe some you had been diagnosed with this, or maybe knew someone who

>> had. Just so I would have extra knowledge before going in blind about it

>> as I am now.

>> I know what the first thougt from many of you will be, as it was mine

>> too.

>> She is not being exposed to mold at school, home, or grandmas house.

>> Which is where she spends 95% of her time. We know these are safe.

>> Also, I have been hearing alot about milk thistle from all of you. I

>> have

>> to research it more. But, wondered if it might help. They have the tea

>> at health food store, and she loves tea. (can't take pills)

>> It is hard to give her much of anything, as it all makes her sick. We

>> finally got her a multi-vitamin with enzymes in it,(liquid) which she has

>> taken for 3 days now, and she has not gotten sick. This after about 15

>> different vitamins.

>> Thank you all for your time.

>>

>>

>>

>>

[Guest guest]

,

Thank goodness for your persistance girl, good going. You know if

you didn't continue with the determination that you have, not only

for yourself, but mainly for your children, the next diagnosis you

would have had from these doctors would be " hypochondriac " or worse

because the doctor wasn't diligent enough to continue his

examination. I can understand this diagnosis for some of us, because

they don't understand and they don't have the answers for more than

3 symptoms, but I can't understand this when it comes to children.

How and why would they be making this stuff up?

I did a little bit of research myself last nite , even though I

didn't get back with you (late) I am so sorry you are having to deal

with this now too, but at least you have an answer and that's half

the battle. This illness acute mesenteric adenitis there is

definately one thing that I do not understand, why does this seem to

occur after a battle or two of upper respiratory infections,

according to research, several that I had read. This just seems to

be very odd and since many of us are dealing with inflammation of

the lymph nodes everywhere else, why not in that location also. I

was looking at some x-rays last night on just this and these type of

pains seem like they could be misdiagnosed in females for these

reason (and I'm not only speaking of your daughter , but many

others that have had pain in that area) adhesions, ovaries, of

course appendix, gall bladder, but what they did show was about 5

swollen lymph nodes that were retaining fluid.

As far as milk thistle, with the positive results that many have had

on this board, again it is great for the liver and kidneys, I don't

know if it would help this or these pains. But as well as it works,

it surely couldn't hurt.

, please keep us informed.

KC

>

> Hi All,

> I am a bit aware of what this is. Just not familiar with it. My

daughter (10) was once again taken to ER a couple of weeks ago. She

had been getting sick again. This time though it brought back

horrible memories for all of us, from when we were in our sick

home. But, I could tell it wasn't the same. As after 5 years I

have figured out what her symptoms are after being exposed again.

> So, after much arguing with the attending doctor to get a CAT scan

done on her stomach area-I had finally succeeded after 7 years. We

would see if there was something wrong with her appendix. (that's

what I was afraid was wrong & didn't want to wait for a miss

diagnosis) Well anyway, the results came back and she has this

mesenteric adenitis. (swollen and enlarged lymph nodes around her

internal organs in her belly area) That is what is causing her

problems with her stomach.

> So, I figured maybe some others were diagnosed with this after

exposure. Her diet has been extremely modified. (by me-because I

know what makes her sick) So, now we have to go see this specialist

(surgeon) to monitor the condition. I want to know as much as I

can. The feeling I have is kind of like when we found out we had

mold. NOT A CLUE!!!! I feel like I have to know everything about

it, before taking her there. So, I figured maybe some you had been

diagnosed with this, or maybe knew someone who had. Just so I would

have extra knowledge before going in blind about it as I am now.

> I know what the first thougt from many of you will be, as it was

mine too. She is not being exposed to mold at school, home, or

grandmas house. Which is where she spends 95% of her time. We know

these are safe.

> Also, I have been hearing alot about milk thistle from all of

you. I have to research it more. But, wondered if it might help.

They have the tea at health food store, and she loves tea. (can't

take pills)

> It is hard to give her much of anything, as it all makes her sick.

We finally got her a multi-vitamin with enzymes in it,(liquid) which

she has taken for 3 days now, and she has not gotten sick. This

after about 15 different vitamins.

> Thank you all for your time.

>

>

>

>