Re: eating problems

[Guest guest]

I have a couple of suggestions for ways to get nutritious food into

reluctant mouths. How about making popsicles from fruit juices? Or Knox

blocks (Knox gelatin has the recipe in the box, I believe) with fruit juice?

I like the idea of the sandwich roll ups. When is not opening

the bathroom door, he gets sandwiches made from tortillas with a filling of

either applesauce and raisins, or a cheese sauce made from nonfat cheese,

salsa, and nonfat sour cream. also likes fat free saltines dipped into

salsa. As he tells me, the salsa has a variety of vegetables in it.

(Actually he was not a fussy eater as a child - it's as he's gotten older

that his diet has become rather unusual.)

- good news about Tom. The teen age years are so difficult even

without OCD that an accomplishment such as his must be doubly satisfying and

encouraging.

Beth in IN - I'm wondering where in Indiana you are located. We are in

East Central Indiana - email me at: Jackie48hrs@ AOL.com if you are

interested in exchanging information about the status of OCD treatment in

Indiana.

Jackie

[Guest guest]

Hi Jackie,It took me awhile to figure out who you where.I saw the story of

your son on 48 hours.Thank God he's out!! I've been praying for him WOW!!

and now I'm e-mailing his mom.We live in Auburn IN. Not far from FT.

Wayne.Not much of anything here for small children.E-mail me and let me know

where you are.Love Beth in IN.

Re: eating problems

> From: Jackie48hr@...

>

> I have a couple of suggestions for ways to get nutritious food into

> reluctant mouths. How about making popsicles from fruit juices? Or Knox

> blocks (Knox gelatin has the recipe in the box, I believe) with fruit

juice?

> I like the idea of the sandwich roll ups. When is not opening

> the bathroom door, he gets sandwiches made from tortillas with a filling

of

> either applesauce and raisins, or a cheese sauce made from nonfat cheese,

> salsa, and nonfat sour cream. also likes fat free saltines dipped

into

> salsa. As he tells me, the salsa has a variety of vegetables in it.

> (Actually he was not a fussy eater as a child - it's as he's gotten older

> that his diet has become rather unusual.)

>

> - good news about Tom. The teen age years are so difficult

even

> without OCD that an accomplishment such as his must be doubly satisfying

and

> encouraging.

>

> Beth in IN - I'm wondering where in Indiana you are located. We are

in

> East Central Indiana - email me at: Jackie48hrs@ AOL.com if you are

> interested in exchanging information about the status of OCD treatment in

> Indiana.

>

> Jackie

>

> ---------------------------

[Guest guest]

Hi Jackie,

How is doing? I saw the 48 hours show and read some of the posts

posted to the OCD-LIST. Is he coping better? Is he out of the bathroom? Back at

University? How are you and your husband doing?

All the doctors that have dealt with my 14 year old Tori are always in disbelief

at her condition. She now has a dx of Asperger's Syndrome on top of her OCD. A

complex mix. She is not living in the real world, and it would be cruel for us

to

push her out into it. A frustrating time. Tori is to start high school in

September but cannot enter a school :-(

from Canada

[Guest guest]

Has he had a medical workup? There is a genetic condition called Prater-Willis syndrome, and those kids eat continuously, often to the point of forcing the parents to lock up all food in the house.

Marie Trenga

-----Original Message-----From: Regina Mayer-Jaekel [mailto:Regina@...]Sent: Saturday, January 29, 2005 15:49 Subject: eating prolems

I have a mum here who is looking for help for her adopted son. He is 8 year and seems to have no internal feedback on eating . He is allways hungry and since he was a baby never stopping eating without beeing forced to. It was not so bad as long as parents had control about everything he eats but meanwhile he has serious problems at school since he is steeling lunch packages from others and lying. They have tried with several psychologists already to help him but without success and physiological there is no explanation. I know him as intelligent boy that escapes any work with all tricks he knows.

Has anyone ever had such a case or any idea whether neurofeedback might help. I am afraid that he won´t go through a full assessment so I thought I look at temporal (because of his adoptation background), central and frontal. I am happy about any feedback on this topic

Regina

[Guest guest]

It is called Prader-Willi Syndrome ... close! :-) It involves an abnormality in chromosome 15. Most with the syndrome have mild intellectual impairment, but some score in the normal IQ range ... and they are eating machines!

Mark Darling

RE: eating problems

Has he had a medical workup? There is a genetic condition called Prater-Willis syndrome, and those kids eat continuously, often to the point of forcing the parents to lock up all food in the house.

Marie Trenga

-----Original Message-----From: Regina Mayer-Jaekel [mailto:Regina@...]Sent: Saturday, January 29, 2005 15:49 Subject: eating prolems

I have a mum here who is looking for help for her adopted son. He is 8 year and seems to have no internal feedback on eating . He is allways hungry and since he was a baby never stopping eating without beeing forced to. It was not so bad as long as parents had control about everything he eats but meanwhile he has serious problems at school since he is steeling lunch packages from others and lying. They have tried with several psychologists already to help him but without success and physiological there is no explanation. I know him as intelligent boy that escapes any work with all tricks he knows.

Has anyone ever had such a case or any idea whether neurofeedback might help. I am afraid that he won´t go through a full assessment so I thought I look at temporal (because of his adoptation background), central and frontal. I am happy about any feedback on this topic

Regina

[Guest guest]

Celia,

My son ate turkey bacon for breakfast lunch and dinner for 3yrs.Every blue moon

he'd eat chips or the crust off a frozen pizza.One day I got take out from an

italian place that just opened nearby and brought home chicken

parmesean/spaghetti.As usual I showed him what I had and tried to entice him

with it..well..he pointed at the chicken..I gave him a small taste (I always do

this so he doesn't feel overwhelmed by the food)..he ate it..then another

piece..and another..he ate the whole thing!

This is the only thing that we've struggled with that just changed literally

overnight! He's a good eater now BUT he still gets stuck on one thing ..like now

he wants pizza (again for every meal )he'll eat doritos for snack.I will make

everything else to try to get him to eat it but to no avail.He's been like this

for years now and rather than stress I just hang in there till he's ready to

change his eating habits again..I've learned it's something I cannot control.I

think some of the things he eats like chips are more of satisfying a sensory

need..the need for something crunchy(like we all have from time to time) this is

probably the same thing with your son.My son knows exactly what type of pizza or

whatever he's into at the time ,looks like..the box it comes in etc.

Hang in there!

Stacey

From: daux_family <daux_family@...>

Date: Thu Jun 22 18:30:37 CDT 2006

autism

Subject: Eating problems

Hi everyone,

I have a quick question. I can't get to eat anything other than

peanutbutter and jelly sandwiches! It's odd because he used to not eat

them at all. I can fix all sorts of things but in the end I usually

have to fix him that just so he will eat. It's all he wants and I know

he needs to eat something other than the same thing day after day.

It's going on almost 2 weeks. Before this it was rice and gravey. But

it had to be brown rice like his grandma cooks! Just wondering if

anyone else has had this problem?

Thanks Celia

[Guest guest]

Hi Celia,

I had the same concerns about my son who started into the PBJ diet at

the age of 3.

He is now 11 and still eating very few other things. There are days

when he will have one for each meal and a snack too. I have found

through tons of research on this, that this is one of the best foods

they can eat if they are going to be exclusive in their taste.

They should be incouraged to take a vitamin daily too, and I found the

ones that are like gummy bears were the only ones he would take

without a fight.

My son is a very healthy and not malnourished boy after years and

years of PBJ sandwiches, so my advise is this. Try to coax him into

having a very small piece of something you think he might like, and

have there be a reward for doing so, like a favorite piece of candy,

or a favorite activity, or getting his sandwich on a favorite plate.

With my son, once he had that tiny little piece, it did sometimes open

up a new food he would at least consider.

Hope this helps.

Raylene

--- >

> Hi everyone,

> I have a quick question. I can't get to eat anything other

than

> peanutbutter and jelly sandwiches! It's odd because he used to not

eat

> them at all. I can fix all sorts of things but in the end I usually

> have to fix him that just so he will eat. It's all he wants and I

know

> he needs to eat something other than the same thing day after day.

> It's going on almost 2 weeks. >

> Thanks Celia

>