Guest guest Posted July 24, 1999 Report Share Posted July 24, 1999 What a great idea to highlight the videos for your child's educators. Do you recommend one over another? I have not seen any of them. Vivian in Wa.St. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 1999 Report Share Posted July 24, 1999 Hi Vivian, This is Terry in WI All of the videos are excellent. The touching Tree is very sensitive portrayal of a young boy who is unaware that he has OCD and hides it quit well from mom. It is done in a school setting. Obsessive Compusive Disorder in Scool age chidren consists of 2 videos. The first one is alsoin a school setting with cut backs to professionals that comment on the causes of OCD a suggest solutions for dealing with the symtoms in the classroom. The second video is a speech by 11 year old Jake Mc Dowell who has fought back from a terrible bout of OCD. The video then goes to a panel of children who answer questions concerning their personal experiences with OCD. The audience for both of the videos is a room full of educators. I ordered all of them from OC Foundation, PO box 70, Milford, Connecticut 06460-0070 Phone is 203 878 5669 E-mail is: info@... and the web site is: www.ocfoundation.org These are truly excellent videos. My wife and I were trying to find a way to help Kelsey understand what OCD is all about and we decided to let her view The Touching Tree and Jakes speech. She was rivited to the TV. If I would make a comment she would let me know that we could talk latter because she wanted to see the videos. They Have helped her understand what this is all about, that she is not alone, and she was able to see some kids that are fighting the same battle she is and winning. It was also good for her to know that Marc Sommers also has OCD. Another big bonus was for my wife. She has had a terrible case of the guilts for not picking up on this sooner ( we can remember occurences of OCD for a good number of years but all were very short lived and we attributed it to a " phase " ). During the Touching Tree the tears began to flow and my wife said to my daughter that she was sorry that she " just didn't know " . My daughters reponse was, " its ok mom thats in the past, whats important is the future " . Thats when dads tears made thier presence known. Another big step in the recovery process for all of us. Ialso have a video by Gail that also covers OCD in the schools and I am trying to incorporate some it into the presentation. I'm lucky to have a school district tha so willing to help. Terry in WI Re: educational videos >From: ruth porter <ruth2b4@...> > >What a great idea to highlight the videos for your >child's educators. Do you recommend one over another? >I have not seen any of them. Vivian in Wa.St. > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 1999 Report Share Posted July 25, 1999 HI Terry and all, Terry - just wanted to maybe help with the guilt of not dx earlier. My daughter Carly is 3 and a half and we've had a dx for approx 9mos. I still feel inadequate a good deal of the time and am constantly questioning the dx as it presents itself so differently at times in her young self than it does in the older kids. I am still wondering if it isn't autism or " a phase " (wishful thinking) even with a professional's opinion. There isn't much I can do for her now except on subtle levels until she is older and more cognizant. I mostly am gathering info. and waiting and watching for her signs of readiness for a more traditional approach to treatment. Maybe not so terribly different than what you did when you " just didn't know " . We all do our best and still it doesn't often feel as though it is enough. It sounds as though you are all making great progress now which gives me something to look forward to in our future. - Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 1999 Report Share Posted July 25, 1999 In response to Robin's posting: I'm sure that even the veteran parents who have been at this for years feel inadequate and uncertain a good deal of the time--don't we all as parents from time to time--while that doesn't make it any easier, know that you are in good company. What types of symptoms is Carly having? If you could write in a couple, I could make some suggestions for you. I have worked with CBT with 3 and 4 year olds, it is very scaled down, but helpful. To start with I will use puppets to play out the two parts of her brain- the Carly part that wants to have fun and the bossy part- the Grouch- or whomever Carly identifies as a " bad guy " , then following Dr. March's idea of externalizing the OCD, when you hit an OCD moment, you can say, " Oh it sounds like grouchy wants you to do that, boy that Grouchy is a boss, he's not a happy person, what does Carly want to do now, let's help you use your bossy voice and tell Grouchy to leave you alone... " etc. Tamar Chansky, Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 1999 Report Share Posted July 25, 1999 In response to Terry's posting about materials for children: For young children (under 8): Blink Blink, Clop, Clop, Why do we do things we can't stop? By Dr. E. Katia Mortiz For children up to 10 or 11 Polly's Magic Games by Connie Kids Like Me by Connie (with intro by Marc Summers) For teenagers: Kissing Doorknobs by Terry Spencer Hesser a work of fiction about a girl with OCD- I think this book is great and very hopeful I think all of these are available from the OCF bookstore. Tamar Chansky, Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 1999 Report Share Posted July 25, 1999 Hi Robin and Terry: Since we are lucky enough to have Dr. Chansky as a new advisor to this list you might want to ask her for tips on how to customize CBT for very young children. Obviously it takes a lot of skill to customize treatment to such young kids but it is very possible. I asked Dr. Hatton of San Diego what was the youngest age a child could do CBT and he told me 6 months old! He probably also would be very willing to help with suggestions for very young kid's CBT. One advantage of early treatment is their brains are so plastic and can respond quickly to skillful treatment. Another very positive piece of information I got at the OCF conference in DC was from Dr. Foa who told us that children successfully treated with adequate CBT do not relapse. It seems that OCD is like many illnesses where early detection and treatment confer considerable advantages to the sufferer. It seems that experts are changing their opinion about the prognosis for young sufferers who before were expected to have a poorer outcome because of early onset. Good luck, take care, aloha, Kathy (Ha) kathyh@... At 11:07 AM 7/25/99 -1000, you wrote: >From: " Dennis O'Donnell " <drcod@...> > >HI Terry and all, > >Terry - just wanted to maybe help with the guilt of not dx earlier. My >daughter Carly is 3 and a half and we've had a dx for approx 9mos. I still >feel inadequate a good deal of the time and am constantly questioning the dx >as it presents itself so differently at times in her young self than it does >in the older kids. I am still wondering if it isn't autism or " a phase " >(wishful thinking) even with a professional's opinion. There isn't much I >can do for her now except on subtle levels until she is older and more >cognizant. I mostly am gathering info. and waiting and watching for her >signs of readiness for a more traditional approach to treatment. Maybe not >so terribly different than what you did when you " just didn't know " . We all >do our best and still it doesn't often feel as though it is enough. It >sounds as though you are all making great progress now which gives me >something to look forward to in our future. - Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 1999 Report Share Posted July 25, 1999 Thanks Robin for the nice thoughts, Terry in WI Re: educational videos >From: " Dennis O'Donnell " <drcod@...> > >HI Terry and all, > >Terry - just wanted to maybe help with the guilt of not dx earlier. My >daughter Carly is 3 and a half and we've had a dx for approx 9mos. I still >feel inadequate a good deal of the time and am constantly questioning the dx >as it presents itself so differently at times in her young self than it does >in the older kids. I am still wondering if it isn't autism or " a phase " >(wishful thinking) even with a professional's opinion. There isn't much I >can do for her now except on subtle levels until she is older and more >cognizant. I mostly am gathering info. and waiting and watching for her >signs of readiness for a more traditional approach to treatment. Maybe not >so terribly different than what you did when you " just didn't know " . We all >do our best and still it doesn't often feel as though it is enough. It >sounds as though you are all making great progress now which gives me >something to look forward to in our future. - Robin > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 1999 Report Share Posted July 25, 1999 Hi this is Terry Kids like me is a great book . Kelsey ( 10 in sept ) loved it and was able to idendify with Marc Summers. Re: educational videos >From: Tamar Chansky <chanskt@...> > >In response to Terry's posting about materials for children: > >For young children (under 8): > >Blink Blink, Clop, Clop, Why do we do things we can't stop? By Dr. E. Katia >Mortiz > >For children up to 10 or 11 > >Polly's Magic Games by Connie >Kids Like Me by Connie (with intro by Marc Summers) > >For teenagers: > >Kissing Doorknobs by Terry Spencer Hesser >a work of fiction about a girl with OCD- I think this book is great and very >hopeful > >I think all of these are available from the OCF bookstore. > >Tamar Chansky, Ph.D. > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 HI: Another one I find pretty good is " The Secret Problem " by two docs in Australia and published by Shrinkrap Press. If anyone wants more ordering details please email me directly and I can get more details when I am at home where my copy is. Aloha, Kathy (Ha) kathyh@... At 11:48 PM 7/25/99 +0000, you wrote: >From: Tamar Chansky <chanskt@...> > >In response to Terry's posting about materials for children: > >For young children (under 8): > >Blink Blink, Clop, Clop, Why do we do things we can't stop? By Dr. E. Katia >Mortiz > >For children up to 10 or 11 > >Polly's Magic Games by Connie >Kids Like Me by Connie (with intro by Marc Summers) > >For teenagers: > >Kissing Doorknobs by Terry Spencer Hesser >a work of fiction about a girl with OCD- I think this book is great and very >hopeful > >I think all of these are available from the OCF bookstore. > >Tamar Chansky, Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 Hi Tamar, Thank you so much for your post. Carly's symptoms are currently clothing sensitivities which are ever present but do vary in degree, car seat or seat belts and fear of movies or T.V. shows, fear of having bowel movements, discomfort with anything wet or sticky especially on her feet and tons of others which are small but at times disturbing non-the-less. Our biggest problem right now is separation anxiety and fear of her peers. We have found (I think and I hope) a good doc who is also a Ph.D who is familiar with OCD and was willing to read my book by Dr. March the treatment manual. We have through play therapy similar to what you have described motivated her to a degree to face some of these problems. Her third party persona is called " Miss Picky Pants " which she and I kind of came up with together. It's still so difficult to get her to agree to the work when her anxiety is heightened. It seems to be the nature of three year olds, even bright ones, to avoid that which causes anxiety. With this in mind it is always hard for me as a parent to know when I am pushing too hard since initially she never wants to face whatever issue we are working with. Because so many of her problems are every day parts of life I frequently find myself explaining that I understand her discomfort but together we have to work through it because we can't walk around naked and I won't allow her to ride in the car without a safety restraint. So I am sadly accustomed to her rage being directed at me since I am constantly in a state for one reason or another of reminding her that it is Miss Picky Pants and that she can win. I remind her of her previous successes. Right now she is saying it's not Picky Pants and that I am wrong and that she doesn't remember when it was O.K. for her to be with her daddy or other close friends and not feel frightened without me her mommy. She just doesn't want to do it. Our doc has some specific bt program for the separation anxiety which we just started discussing last week and she will instruct me further before we begin. Her separation anxiety and social phobia has always been a problem but we had made so much progress that Carly felt she was ready to try pre-school. So we enrolled her in a part-time program for the summer. This would be her first separation from me on regular basis in a group setting as she has never been in daycare, etc. As bad luck would have it she broke her arm the day after her first day of school. This caused her so much anxiety due to the restrictive nature of a full arm cast not to mention pain which is another fear, the fact that it was caused by rambunctious playmates reinforcing her fear that kids aren't safe and so on. We tried anyway with the school thing in many degrees with it ultimately not working out as she got to the point where she just refused to go even with me there. I gave up after seeking others opinions. The decision being that she is just not ready. Now we are back to her freaking out even when I leave her with her Dad. I am doing it anyway but it is breaking all of our hearts. I would love any suggestions that you might have. I am always looking for help, more info., etc. and really do appreciate all the input. With respect to the school issue my feelings are that she is destined to be very uncomfortable with her first school experience whether it is now in the form of pre-school or later in the Kindergarten forum. I don't feel in my heart as though this is something that she will just outgrow or will just go away without therapy addressing the separation anxiety. It is therefore my belief that we should help her now and hopefully spare her the pain of the potential ridicule that I feel is more likely to be present from her peers in a Kindergarten setting. Her doc feels that the therapy will take longer than a month with Carly's strong oppositional feelings about school right now so we have elected to wait until maybe next summer or the fall of the year 2K. Any light that you can shed on this would be appreciated. Any opinion would be welcome. Even though I think I like her doc I guess that I am just a natural skeptic and can't help double and triple checking her trmt plan. Sounds a bit OCD?! Kidding. Sorry for the length of the post. I just don't know how to be short winded!! Anyway thanks for your time. - Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 1999 Report Share Posted July 30, 1999 Hi Robin, Thanks for the kind words, and I agree. Still it's hard to let go of the thought that ERP would have it under control by now ( insread of just meds if we had caught it sooner. We also are trying to learn everything we can. It's amazing how much better you feel when you have the knowledge to make intelligent decisions. thanks again, Terry in WI Re: educational videos >From: Kathy Hammes <kathyh@...> > >Hi Robin and Terry: > >Since we are lucky enough to have Dr. Chansky as a new advisor to this list >you might want to ask her for tips on how to customize CBT for very young >children. Obviously it takes a lot of skill to customize treatment to such >young kids but it is very possible. I asked Dr. Hatton of San Diego what >was the youngest age a child could do CBT and he told me 6 months old! He >probably also would be very willing to help with suggestions for very young >kid's CBT. > >One advantage of early treatment is their brains are so plastic and can >respond quickly to skillful treatment. Another very positive piece of >information I got at the OCF conference in DC was from Dr. Foa who told us >that children successfully treated with adequate CBT do not relapse. It >seems that OCD is like many illnesses where early detection and treatment >confer considerable advantages to the sufferer. It seems that experts are >changing their opinion about the prognosis for young sufferers who before >were expected to have a poorer outcome because of early onset. > >Good luck, take care, aloha, Kathy (Ha) >kathyh@... > >At 11:07 AM 7/25/99 -1000, you wrote: >>From: " Dennis O'Donnell " <drcod@...> >> >>HI Terry and all, >> >>Terry - just wanted to maybe help with the guilt of not dx earlier. My >>daughter Carly is 3 and a half and we've had a dx for approx 9mos. I still >>feel inadequate a good deal of the time and am constantly questioning the dx >>as it presents itself so differently at times in her young self than it does >>in the older kids. I am still wondering if it isn't autism or " a phase " >>(wishful thinking) even with a professional's opinion. There isn't much I >>can do for her now except on subtle levels until she is older and more >>cognizant. I mostly am gathering info. and waiting and watching for her >>signs of readiness for a more traditional approach to treatment. Maybe not >>so terribly different than what you did when you " just didn't know " . We all >>do our best and still it doesn't often feel as though it is enough. It >>sounds as though you are all making great progress now which gives me >>something to look forward to in our future. - Robin > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
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