Where are the experts? [was: Charlotte Teen with MCS]

[Guest guest]

Angel and Group,

The reason more experts aren't on this and other boards is because

responding takes an incredible amount of time by people that are

already busy. Their work calendars are often full for several weeks

or months in advance with critical deadlines. I already have meetings

scheduled in October.

For example, I have made this group a priority for several months.

But I didn't respond most of last week because I was traveling and

had meetings with two groups in three days. Both were intense with

critical issues that required initial preparation and after-hours

work. I got 5-6 hours of sleep each night only because I made it

happen. If I had included this or other groups I wouldn't have gotten

any sleep. I'm paying the price this weekend.

Also, it requires patience to answer the same questions over and over

and still have the same issues come up again and again. It takes

patience to explain vocabulary and concepts that took years of

experience to obtain and do it in a non-teaching situation in a few

lines of e-mail. But what is most frustrating is when information is

ignored because of nonsense from sales people.

Please understand that sales promotion is often the most appealing

and convincing because that is their purpose. But that doesn't make

them accurate or harmless.

For example, while I was gone last week a client called to check on

an ad in the local paper for an air purifier. She is severely

reactive and the ad spoke directly to her needs. She wanted and

NEEDED the results it promised. But the ad was patently false. There

is absolutely no way it could do what it claimed. It could not remove

carbon monoxide, it could not " hunt down pollutants like a guided

missle, finding them where they hide, " it could not remove the

acetone from fingernail clippings. (?) But when I finished

explaining all this she asked, " But who does make one that does all

that? " All she heard was " this " ad was a lie, not that the whole

claim was a lie, regardless of who made it. She was bitterly

disappointed when I said that no one does because it is impossible.

Yes, this is what would help, yes this is exactly what she needed but

it is impossible to do.

I also realize that if someone does their due diligence and checks

for information that they will become incredibly confused. Everyone

says something different and there is no good way to qualify who you

are listening to. It takes time and experience to earn trust. It

takes time and experience - sometimes learning the hard way - to

understand and trust what you decide to take a risk with. It is

incredibly hard with sometimes terrible consequences.

I hope Rhonda doesn't mind my using her as an example but look at how

she did it. And for every post on-line there were 2 or 3 off-line.

KC, myself and others spent the time with her because she was trying

so hard and making progress. She didn't know who I was or why she

should believe me. She wouldn't just " obey " an expert, she had to

understand it for herself. Which is what we all should do. Do you

know why I admire Rhonda so much? She verified her information and

then made her own choices even though some of them didn't agree with

my advise. That takes courage and hard work. The result is that she

successfully solved the primary source of the problem and is now

working of the secondary issues.

Carl Grimes

Healthy Habitats LLc

----->

> The case closed reference was to stop that the mold is the ONLY

> trigger for MCS theory. It's not and those who adhere to it are no

> better than the skeptics who say it's a psychological illness. Take

> CFS for example, go to a neutologist and he see a nervous system

> disorder, go to a rheumatoligist and he sees arthrisit etc. Those who

> only see it as being related to their illness are harming others by

> not allowing for the probability that one...as I stated is the

> conduit/gateway for other immune system dysfunctions.

>

> Even in the chemical injury arena no one has the same symptoms, as

> each chemical creates it s own unique set of symptoms. Pesticide

> poisoinings are usually more neuologically centered as the pesticide

> is designed to attack the bugs cns....that is my opnion why they can

> not clearly define what exactly MCS is. No 2 peoples exposures are

> from the same chemicals in the same ratio etc. Only those who we

> injured in a common setting, it would APPEAR would have the same

> symptoms, lab tests etc.

>

> This is a mold board so everyone apparently is convinced that mold is

> the ultimate trigger. Wrong and people need to understand that one

> can LEAD to the other, not only one causes the other.

>

> What I find ironic, is why there are so few mold medical

> professionals/researchers on this board. The ones I deal with on

> chemcial injury the top players are on it internationally. Why are so

> many of the names (aside from Dr. Lipsey and Dr. Shaller) not on here?

>

> There are a very few on this board who are genuinely pro-active....why

> aren't the rest?

>

> If am not sure, if there are any, people on here who have groups

> intheir area educating people. If not, this board will serve to

> preach to the choir, rather than educate the ones who need it.

> Exchange of info is vital in any area of activism and by keeping it

> betweem those who already are aware serves no purpose, at least in my

> book.

>

> I will reitierate it again...ad nauseum....there is not ONE cause for

> any of this!

>

>

> On Sat, 4 Feb 2006, Carl E. Grimes wrote:

>

> > Date: Sat, 04 Feb 2006 15:45:06 -0700

> > From: Carl E. Grimes <grimes@...>

> > Reply-

> >

> > Subject: Re: [] Charlotte Teen with MCS

> >

> > Angel,

> >

> > I wouldn't say " case closed " necessarily. Most of my clients that

> > are reactive to both mold and chemicals receive more benefit by

> > stopping the exposure to mold rather than to chemicals. I have

> > clients that are reactive to mold but not chemicals and also some

> > that have no mold reactivity and no history of mold exposure -

> > beyond what we all have, i.e. normal fungal ecology - but severely

> > react to chemicals. Could they have had a previous mold exposure

> > that triggered it? We may never know. It may end up being similar to

> > the nature vs nuture argument with the finding that it is the

> > interaction between the two. One or the other predominates for one

> > individual but the other for another. All I can do is work with what

> > I have as I find it.

> >

> > Carl Grimes

> > Healthy Habitats LLC

> >

> > -----

> >> Did I miss the DIRECT correlation of her MCS to mold anywhere?

> >>

> >> Chemicals/mold etc are GATEWAYS for a compromised immune system to

> >> be further injured.

> >>

> >> Case closed!

> >>

> >> Angel

> >>

> >>

> >> On Sat, 4 Feb 2006, Carl E. Grimes wrote:

> >>

> >>> Date: Sat, 04 Feb 2006 13:13:14 -0700

> >>> From: Carl E. Grimes <grimes@...>

> >>> Reply-

> >>>

> >>> Subject: [] Charlotte Teen with MCS

> >>>

> >>> I post this for two reasons: 1. As part of the discussion about

> >>> the role of mold in MCS; and, 2. An idea for increasing awareness

> >>> about the effects of mold.

> >>>

> >>> The news story is at:

> >>> http://www.wsoctv.com/family/6281497/detail.html

> >>>

> >>> At the bottom is a link to the Chemical Sensitivity Foundation. A

> >>> Mold Sensitivity Foundation could work. There is already some

> >>> action at this level, including 's FDRC (any word

> >>> on its current status?).

> >>>

> >>> Carl Grimes

> >>> Healthy Habitats LLC

> >>>

> >>>

> >>>

> >>>

> >>> FAIR USE NOTICE:

> >>>

> >>>

> >>>